I'm finally back to normal....

[Guest guest]

Well as normal as I get anyhow. I should be around more often now that I'm done

with the latest prednisone detox after weaning to 2.5mg daily. I'm doing much

better and man this last wean was not fun. I went thru 5 days of severe

paranoia and nightmares this time around, don't know where that came from but I

sure hope I don't go thru it again with the final drop off pred. Now all I'm

dealing with is pain in my ankle and neck again, I also hope this is just a pred

thing since it's happened with the last two drops in dose. Oh and just when I

thought " Hey I think this detox is finally done " my b/p decided to bottom out

and we had to adjust my lisinopril dose down by half again to keep me upright.

I was dropping to 88/66 and one point hit 84/61. With the reduced dose I'm now

back to my 115/80 range and feeling much better.

Oh and I joined Weight Watchers (due to my neph saying " lets get as much weight

off you as we can before we have to think about transplants " ) and I've lost

6.5lbs so far after 4 weeks. I'm pretty happy about it and it's really helped

me rein in my eating and you can easily work a renal diet into their plan. I'm

also still working out at Curves when I can so hopefully with the drop in pred

and the strength of Weight Watchers meetings I can drop off the extra 125+lbs

I've been carrying around.

Amy G.

[Guest guest]

Amy - you really have an awful time weaning down prednisone. Those (5) days

sound absolutely horrible........hopefully - it's almost over now though :-)

Great job joining Weight Watchers....and continuing with Curves too! Very

impressive! I may go back on Weight Watchers myself, after my vacation....you

know how this diet thing goes....good days/bad days - arghhhhhh

Hugs, Rita

[Guest guest]

Hi Amy,

I feel so bad that the pred drops are just so difficult on you. That

paranoia coupled with the nightmares must have been just horrible. I

am glad you are feeling better now and I want to wish you all the best

in your weight loss! I have a couple of friends who have had great

success with Weight Watchers.

I'm finally back to normal....

Well as normal as I get anyhow. I should be around more often now

that I'm done

with the latest prednisone detox after weaning to 2.5mg daily. I'm

doing much

better and man this last wean was not fun. I went thru 5 days of

severe

paranoia and nightmares this time around, don't know where that came

from but I

sure hope I don't go thru it again with the final drop off pred. Now

all I'm

dealing with is pain in my ankle and neck again, I also hope this is

just a pred

thing since it's happened with the last two drops in dose. Oh and just

when I

thought " Hey I think this detox is finally done " my b/p decided to

bottom out

and we had to adjust my lisinopril dose down by half again to keep me

upright.

I was dropping to 88/66 and one point hit 84/61. With the reduced dose

I'm now

back to my 115/80 range and feeling much better.

Oh and I joined Weight Watchers (due to my neph saying " lets get as

much weight

off you as we can before we have to think about transplants " ) and I've

lost

6.5lbs so far after 4 weeks. I'm pretty happy about it and it's really

helped

me rein in my eating and you can easily work a renal diet into their

plan. I'm

also still working out at Curves when I can so hopefully with the drop

in pred

and the strength of Weight Watchers meetings I can drop off the extra

125+lbs

I've been carrying around.

Amy G.

[Guest guest]

Ya know it was horrid, I actually slept with a night light on for the

first time ever, in my entire life. I would lay down and freak out thinking

there was somebody in the room, felling like someone or something was walking

back and forth at the end of the bed. Then when I would fall asleep I would

have vivid nightmares. Needless to say for about 5 days there I was taking

frequent daytime naps and just not sleeping when it got dark. I'm still having

the random nightmare, more frequent than I normally do but I can live with that

part. This is the first time I've had paranoia happen with a pred drop...I was

expecting everything else. Thankfully my husband made me clear 2 weeks off my

schedule for this drop as he said " it's better to be ready for anything then

have to change plans around " . He was wonderful during my paranoia phase and let

me talk things out with him so he could think of things that might help me deal

with it...and he helped keep up with the housework those days. He was finally

comfortable enough with my stability to finalize our plans to visit his parents

in AZ when he talked to them this weekend. I just hope that my final drop off

the pred doesn't cause the same problems.

I find I'm eating the same amount I used to minus my stress snacking. I do love

the support of the Weight Watchers meetings and I've come away with some great

ways to deal with my stress snacking. My kids attend the meetings with me and

act as my " little subconscious's " when I'm home...asking me things like " so how

many points is that cookie mom? " ;-) I'm confident with the drop in pred, my

continued Curves workouts, and the help of WWs I can get my weight down to where

it should be. I know my neph would love to see me " ready for anything " as he

puts it, since we don't know if my IgAN will become aggressive again once off

pred.

Amy G.

I'm finally back to normal....

Well as normal as I get anyhow. I should be around more often now

that I'm done

with the latest prednisone detox after weaning to 2.5mg daily. I'm

doing much

better and man this last wean was not fun. I went thru 5 days of

severe

paranoia and nightmares this time around, don't know where that came

from but I

sure hope I don't go thru it again with the final drop off pred. Now

all I'm

dealing with is pain in my ankle and neck again, I also hope this is

just a pred

thing since it's happened with the last two drops in dose. Oh and just

when I

thought " Hey I think this detox is finally done " my b/p decided to

bottom out

and we had to adjust my lisinopril dose down by half again to keep me

upright.

I was dropping to 88/66 and one point hit 84/61. With the reduced dose

I'm now

back to my 115/80 range and feeling much better.

Oh and I joined Weight Watchers (due to my neph saying " lets get as

much weight

off you as we can before we have to think about transplants " ) and I've

lost

6.5lbs so far after 4 weeks. I'm pretty happy about it and it's really

helped

me rein in my eating and you can easily work a renal diet into their

plan. I'm

also still working out at Curves when I can so hopefully with the drop

in pred

and the strength of Weight Watchers meetings I can drop off the extra

125+lbs

I've been carrying around.

Amy G.

[Guest guest]

Hi Amy,

I can't believe how horrid this Pred wean was. I am so thankful that

you have such a wise and supportive husband. Go give him a big hug and

tell him we appreciate him taking such good care of our Amy :-) He

sure is a " keeper "

I can see where he got his consideration after you wrote about his

family changing their vacation plans from AZ to CA so it would be

easier on you. Guess he comes by it honestly.

I am glad you have this wean behind you and are feeling better.

Re: I'm finally back to normal....

Ya know it was horrid, I actually slept with a night light on

for the

first time ever, in my entire life. I would lay down and freak out

thinking

there was somebody in the room, felling like someone or something was

walking

back and forth at the end of the bed. Then when I would fall asleep I

would

have vivid nightmares. Needless to say for about 5 days there I was

taking

frequent daytime naps and just not sleeping when it got dark. I'm

still having

the random nightmare, more frequent than I normally do but I can live

with that

part. This is the first time I've had paranoia happen with a pred

drop...I was

expecting everything else. Thankfully my husband made me clear 2 weeks

off my

schedule for this drop as he said " it's better to be ready for anything

then

have to change plans around " . He was wonderful during my paranoia

phase and let

me talk things out with him so he could think of things that might help

me deal

with it...and he helped keep up with the housework those days. He was

finally

comfortable enough with my stability to finalize our plans to visit his

parents

in AZ when he talked to them this weekend. I just hope that my final

drop off

the pred doesn't cause the same problems.

I find I'm eating the same amount I used to minus my stress snacking.

I do love

the support of the Weight Watchers meetings and I've come away with

some great

ways to deal with my stress snacking. My kids attend the meetings with

me and

act as my " little subconscious's " when I'm home...asking me things like

" so how

many points is that cookie mom? " ;-) I'm confident with the drop in

pred, my

continued Curves workouts, and the help of WWs I can get my weight down

to where

it should be. I know my neph would love to see me " ready for anything "

as he

puts it, since we don't know if my IgAN will become aggressive again

once off

pred.

Amy G.

I'm finally back to normal....

Well as normal as I get anyhow. I should be around more often now

that I'm done

with the latest prednisone detox after weaning to 2.5mg daily. I'm

doing much

better and man this last wean was not fun. I went thru 5 days of

severe

paranoia and nightmares this time around, don't know where that came

from but I

sure hope I don't go thru it again with the final drop off pred. Now

all I'm

dealing with is pain in my ankle and neck again, I also hope this is

just a pred

thing since it's happened with the last two drops in dose. Oh and

just

when I

thought " Hey I think this detox is finally done " my b/p decided to

bottom out

and we had to adjust my lisinopril dose down by half again to keep me

upright.

I was dropping to 88/66 and one point hit 84/61. With the reduced

dose

I'm now

back to my 115/80 range and feeling much better.

Oh and I joined Weight Watchers (due to my neph saying " lets get as

much weight

off you as we can before we have to think about transplants " ) and

I've

lost

6.5lbs so far after 4 weeks. I'm pretty happy about it and it's

really

helped

me rein in my eating and you can easily work a renal diet into their

plan. I'm

also still working out at Curves when I can so hopefully with the

drop

in pred

and the strength of Weight Watchers meetings I can drop off the extra

125+lbs

I've been carrying around.

Amy G.

[Guest guest]

Amy,

I'm so glad you're almost off the pred now. Those symptoms are very

scary indeed! I had heard of paranoia being a symptom, but they

always say that this is very rare.

My worst symptom was the crazy mood changes. I could actually

think clearly enough that " This crazy angry response makes no sense "

and STILL be doing the crazy angry thing.

I don't know if it will be the same for you, but my final pred pill was

rather anti-climatic, ie. no crazy symptoms, just getting back to being

me again. I hope it will be the same for you. : )

Sophia

> Hi Amy,

>

> I can't believe how horrid this Pred wean was. I am so thankful that

> you have such a wise and supportive husband. Go give him a big

hug and

> tell him we appreciate him taking such good care of our Amy :-) He

> sure is a " keeper "

>

> I can see where he got his consideration after you wrote about his

> family changing their vacation plans from AZ to CA so it would be

> easier on you. Guess he comes by it honestly.

>

> I am glad you have this wean behind you and are feeling better.

>

>

>

> Re: I'm finally back to normal....

>

> Ya know it was horrid, I actually slept with a night light on

> for the

> first time ever, in my entire life. I would lay down and freak out

> thinking

> there was somebody in the room, felling like someone or something

was

> walking

> back and forth at the end of the bed. Then when I would fall asleep I

> would

> have vivid nightmares. Needless to say for about 5 days there I was

> taking

> frequent daytime naps and just not sleeping when it got dark. I'm

> still having

> the random nightmare, more frequent than I normally do but I can live

> with that

> part. This is the first time I've had paranoia happen with a pred

> drop...I was

> expecting everything else. Thankfully my husband made me clear 2

weeks

> off my

> schedule for this drop as he said " it's better to be ready for anything

> then

> have to change plans around " . He was wonderful during my paranoia

> phase and let

> me talk things out with him so he could think of things that might

help

> me deal

> with it...and he helped keep up with the housework those days. He

was

> finally

> comfortable enough with my stability to finalize our plans to visit his

> parents

> in AZ when he talked to them this weekend. I just hope that my final

> drop off

> the pred doesn't cause the same problems.

>

> I find I'm eating the same amount I used to minus my stress

snacking.

> I do love

> the support of the Weight Watchers meetings and I've come away

with

> some great

> ways to deal with my stress snacking. My kids attend the meetings

with

> me and

> act as my " little subconscious's " when I'm home...asking me things

like

> " so how

> many points is that cookie mom? " ;-) I'm confident with the drop in

> pred, my

> continued Curves workouts, and the help of WWs I can get my

weight down

> to where

> it should be. I know my neph would love to see me " ready for

anything "

> as he

> puts it, since we don't know if my IgAN will become aggressive again

> once off

> pred.

>

> Amy G.

> I'm finally back to normal....

>

> Well as normal as I get anyhow. I should be around more often

now

> that I'm done

> with the latest prednisone detox after weaning to 2.5mg daily. I'm

> doing much

> better and man this last wean was not fun. I went thru 5 days of

> severe

> paranoia and nightmares this time around, don't know where that

came

> from but I

> sure hope I don't go thru it again with the final drop off pred. Now

> all I'm

> dealing with is pain in my ankle and neck again, I also hope this is

> just a pred

> thing since it's happened with the last two drops in dose. Oh and

> just

> when I

> thought " Hey I think this detox is finally done " my b/p decided to

> bottom out

> and we had to adjust my lisinopril dose down by half again to keep

me

> upright.

> I was dropping to 88/66 and one point hit 84/61. With the reduced

> dose

> I'm now

> back to my 115/80 range and feeling much better.

>

> Oh and I joined Weight Watchers (due to my neph saying " lets get

as

> much weight

> off you as we can before we have to think about transplants " ) and

> I've

> lost

> 6.5lbs so far after 4 weeks. I'm pretty happy about it and it's

> really

> helped

> me rein in my eating and you can easily work a renal diet into their

> plan. I'm

> also still working out at Curves when I can so hopefully with the

> drop

> in pred

> and the strength of Weight Watchers meetings I can drop off the

extra

> 125+lbs

> I've been carrying around.

>

> Amy G.

>

>

[Guest guest]

Hi Sophia,

You just described exactly two " tempest in a teapot " pred episodes!

Both were fortunately short-lived (several hours). Both times he would

periodically assure himself (and me) that " this has got to be the

prednisone " , before getting caught back up in the content of the rant.

Cy

I'm finally back to normal....

>>

>> Well as normal as I get anyhow. I should be around more often

> now

>> that I'm done

>> with the latest prednisone detox after weaning to 2.5mg daily. I'm

>> doing much

>> better and man this last wean was not fun. I went thru 5 days of

>> severe

>> paranoia and nightmares this time around, don't know where that

> came

>> from but I

>> sure hope I don't go thru it again with the final drop off pred. Now

>> all I'm

>> dealing with is pain in my ankle and neck again, I also hope this is

>> just a pred

>> thing since it's happened with the last two drops in dose. Oh and

>> just

>> when I

>> thought " Hey I think this detox is finally done " my b/p decided to

>> bottom out

>> and we had to adjust my lisinopril dose down by half again to keep

> me

>> upright.

>> I was dropping to 88/66 and one point hit 84/61. With the reduced

>> dose

>> I'm now

>> back to my 115/80 range and feeling much better.

>>

>> Oh and I joined Weight Watchers (due to my neph saying " lets get

> as

>> much weight

>> off you as we can before we have to think about transplants " ) and

>> I've

>> lost

>> 6.5lbs so far after 4 weeks. I'm pretty happy about it and it's

>> really

>> helped

>> me rein in my eating and you can easily work a renal diet into their

>> plan. I'm

>> also still working out at Curves when I can so hopefully with the

>> drop

>> in pred

>> and the strength of Weight Watchers meetings I can drop off the

> extra

>> 125+lbs

>> I've been carrying around.

>>

>> Amy G.

>>

>>

[Guest guest]

Cy,

I can totally tell you (and I am sure will agree too) that it is the

weirdest feeling - to know that I was doing something so " not me " and

yet unable to control or prevent myself from doing it.

I really hope to get on a prednisone free study post-tx. I shudder at the

thought of going thru the mood changes - more so than my appearance

changes (and I am really a vain person).

Sophia

> >> Hi Amy,

> >>

> >> I can't believe how horrid this Pred wean was. I am so thankful

that

> >> you have such a wise and supportive husband. Go give him a big

> > hug and

> >> tell him we appreciate him taking such good care of our Amy :-)

He

> >> sure is a " keeper "

> >>

> >> I can see where he got his consideration after you wrote about his

> >> family changing their vacation plans from AZ to CA so it would be

> >> easier on you. Guess he comes by it honestly.

> >>

> >> I am glad you have this wean behind you and are feeling better.

> >>

> >>

> >>

> >> Re: I'm finally back to normal....

> >>

> >> Ya know it was horrid, I actually slept with a night light on

> >> for the

> >> first time ever, in my entire life. I would lay down and freak out

> >> thinking

> >> there was somebody in the room, felling like someone or

something

> > was

> >> walking

> >> back and forth at the end of the bed. Then when I would fall

asleep I

> >> would

> >> have vivid nightmares. Needless to say for about 5 days there I

was

> >> taking

> >> frequent daytime naps and just not sleeping when it got dark. I'm

> >> still having

> >> the random nightmare, more frequent than I normally do but I can

live

> >> with that

> >> part. This is the first time I've had paranoia happen with a pred

> >> drop...I was

> >> expecting everything else. Thankfully my husband made me

clear 2

> > weeks

> >> off my

> >> schedule for this drop as he said " it's better to be ready for

anything

> >> then

> >> have to change plans around " . He was wonderful during my

paranoia

> >> phase and let

> >> me talk things out with him so he could think of things that might

> > help

> >> me deal

> >> with it...and he helped keep up with the housework those days.

He

> > was

> >> finally

> >> comfortable enough with my stability to finalize our plans to visit

his

> >> parents

> >> in AZ when he talked to them this weekend. I just hope that my

final

> >> drop off

> >> the pred doesn't cause the same problems.

> >>

> >> I find I'm eating the same amount I used to minus my stress

> > snacking.

> >> I do love

> >> the support of the Weight Watchers meetings and I've come away

> > with

> >> some great

> >> ways to deal with my stress snacking. My kids attend the

meetings

> > with

> >> me and

> >> act as my " little subconscious's " when I'm home...asking me

things

> > like

> >> " so how

> >> many points is that cookie mom? " ;-) I'm confident with the drop

in

> >> pred, my

> >> continued Curves workouts, and the help of WWs I can get my

> > weight down

> >> to where

> >> it should be. I know my neph would love to see me " ready for

> > anything "

> >> as he

> >> puts it, since we don't know if my IgAN will become aggressive

again

> >> once off

> >> pred.

> >>

> >> Amy G.

> >> I'm finally back to normal....

> >>

> >> Well as normal as I get anyhow. I should be around more often

> > now

> >> that I'm done

> >> with the latest prednisone detox after weaning to 2.5mg daily.

I'm

> >> doing much

> >> better and man this last wean was not fun. I went thru 5 days of

> >> severe

> >> paranoia and nightmares this time around, don't know where that

> > came

> >> from but I

> >> sure hope I don't go thru it again with the final drop off pred. Now

> >> all I'm

> >> dealing with is pain in my ankle and neck again, I also hope this

is

> >> just a pred

> >> thing since it's happened with the last two drops in dose. Oh

and

> >> just

> >> when I

> >> thought " Hey I think this detox is finally done " my b/p decided to

> >> bottom out

> >> and we had to adjust my lisinopril dose down by half again to

keep

> > me

> >> upright.

> >> I was dropping to 88/66 and one point hit 84/61. With the

reduced

> >> dose

> >> I'm now

> >> back to my 115/80 range and feeling much better.

> >>

> >> Oh and I joined Weight Watchers (due to my neph saying " lets

get

> > as

> >> much weight

> >> off you as we can before we have to think about transplants " )

and

> >> I've

> >> lost

> >> 6.5lbs so far after 4 weeks. I'm pretty happy about it and it's

> >> really

> >> helped

> >> me rein in my eating and you can easily work a renal diet into

their

> >> plan. I'm

> >> also still working out at Curves when I can so hopefully with the

> >> drop

> >> in pred

> >> and the strength of Weight Watchers meetings I can drop off the

> > extra

> >> 125+lbs

> >> I've been carrying around.

> >>

> >> Amy G.

> >>

> >>

[Guest guest]

Cy and Sophia I know that feeling of " I know this is WRONG but I can't stop it " .

There have been many times over the past 2 years where I would look at my

husband and say " The logical part of my brain says 'this is no big deal' but the

emotional side is overpowering it! " Then I would go right back into rant mode.

It was and is one of those things you have to try and keep on a short leash.

I can't wait to be off this stuff for good....or at least off it until I get a

transplant.. ;-)

Amy G.

I'm finally back to normal....

> >>

> >> Well as normal as I get anyhow. I should be around more often

> > now

> >> that I'm done

> >> with the latest prednisone detox after weaning to 2.5mg daily.

I'm

> >> doing much

> >> better and man this last wean was not fun. I went thru 5 days of

> >> severe

> >> paranoia and nightmares this time around, don't know where that

> > came

> >> from but I

> >> sure hope I don't go thru it again with the final drop off pred. Now

> >> all I'm

> >> dealing with is pain in my ankle and neck again, I also hope this

is

> >> just a pred

> >> thing since it's happened with the last two drops in dose. Oh

and

> >> just

> >> when I

> >> thought " Hey I think this detox is finally done " my b/p decided to

> >> bottom out

> >> and we had to adjust my lisinopril dose down by half again to

keep

> > me

> >> upright.

> >> I was dropping to 88/66 and one point hit 84/61. With the

reduced

> >> dose

> >> I'm now

> >> back to my 115/80 range and feeling much better.

> >>

> >> Oh and I joined Weight Watchers (due to my neph saying " lets

get

> > as

> >> much weight

> >> off you as we can before we have to think about transplants " )

and

> >> I've

> >> lost

> >> 6.5lbs so far after 4 weeks. I'm pretty happy about it and it's

> >> really

> >> helped

> >> me rein in my eating and you can easily work a renal diet into

their

> >> plan. I'm

> >> also still working out at Curves when I can so hopefully with the

> >> drop

> >> in pred

> >> and the strength of Weight Watchers meetings I can drop off the

> > extra

> >> 125+lbs

> >> I've been carrying around.

> >>

> >> Amy G.

> >>

> >>