Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 " late in life (she's in her 50s) " LATE??? AHHHH...HEMMMM.... Oh well...better " late " than never. I'm glad you hang around with us old folks! lol in Ma. (pass the geratol please.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 has a leg length discrepency also. It has been an issue for years. THe difference is in her hips. One side is " built " different than the other. We did an osteomidy last year. It did not help much. She has to where a 1/2 inch lift on one shoe. a few weeks ago we did a bone age and scanogram. the difference is an overall leg length difference of 2.5cm. It is due to the a hemipelvis retraction and pelvic deformity. We are planning to do a growth arrest on the femur. to balance out her leg lengths. Her orthopedists is currently doing some computation now to see when this should be done, how much growth does have etc. I was concerned about the overall benefit of this. She wears a lift, and this helps, however, it has ,made her lumbar curve in her spine worse and makes the walking and balance more difficult. can still not walk on her own, so we want to do what ever we can to help with this. Cathie, mom to 11 yr CHARGEr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Hi , I am going to forward this message to one of our very experienced PT (they were both at the conference last year). Is that okk with you? I am sure she will have a thought or two..... pam hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 I will be interested in the PT response as well. I have the same thing where my right leg is a tad longer then my left. I get a lot of hip pain as well. But I have been doing at home therapy (on my own) and supposed to be wearing a heel lift to help. hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 - For all the hip stuff we've been through, I have no answer to your questions. Aubrie hasn't had any issues with leg length discrepancy. A friend of mine (just a regular lady - no remarkable health issues) has developed hip and back pain late in life (she's in her 50s) due to a leg length discrepancy that was not addressed earlier. She knew about it, but no one told her she had to manage it or it would cause these difficulties later on. So I think I'd be sure you follow up and watch it and ask about long-term effects of whatever treatment you choose or don't choose. My hubby who has always prided himself on eagle-eye 20/20 vision is now asking for readers too! I had coke-bottle glasses until a few years ago when I had Lasik surgery. Now I need nothing! My vision is better than it ever was with my contacts! So. I feel for you. sort of. at least my husband does :-) Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 yes,yes,yes!!!!! thank you! maria hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Well. I meant later than you'd expect! I'm not that far behind you old fogies!!!!! LOL.. Michele _____ From: CHARGE [mailto:CHARGE ] On Behalf Of mdlinda@... Sent: Tuesday, November 28, 2006 7:02 PM To: CHARGE Subject: Re: hips " late in life (she's in her 50s) " LATE??? AHHHH...HEMMMM.... Oh well...better " late " than never. I'm glad you hang around with us old folks! lol in Ma. (pass the geratol please.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 , I laughed out loud at your message. I guess it is ok!!! So..off it goes. pam Re: hips yes,yes,yes!!!!! thank you! maria hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 hahaha, I feel in very good company as an " Old Fogy " MIchele, you are still a " young'un " ! pam Re: hips " late in life (she's in her 50s) " LATE??? AHHHH...HEMMMM.... Oh well...better " late " than never. I'm glad you hang around with us old folks! lol in Ma. (pass the geratol please.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 i think most hargers have one ive bgot a tiny tiny one not so bad its more a one leg is traighter than the other tha longer LOL > > has a leg length discrepency also. It has been an issue for years. > > THe difference is in her hips. One side is " built " different than the > other. > We did an osteomidy last year. It did not help much. She has to where a > 1/2 inch lift on one shoe. > a few weeks ago we did a bone age and scanogram. the difference is an > overall leg length difference of 2.5cm. It is due to the a hemipelvis > retraction > and pelvic deformity. > We are planning to do a growth arrest on the femur. to balance out her leg > > lengths. Her orthopedists is currently doing some computation now to see > when this should be done, how much growth does have etc. I was > concerned > about the overall benefit of this. She wears a lift, and this helps, > however, it has ,made her lumbar curve in her spine worse and makes the > walking and > balance more difficult. > can still not walk on her own, so we want to do what ever we can to > help with this. > Cathie, mom to 11 yr CHARGEr > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Pat had lasik done too and keeps telling me I should ,but am afraid to --now would reading glasses anyway, so not sure it's worth it! maria RE: hips - For all the hip stuff we've been through, I have no answer to your questions. Aubrie hasn't had any issues with leg length discrepancy. A friend of mine (just a regular lady - no remarkable health issues) has developed hip and back pain late in life (she's in her 50s) due to a leg length discrepancy that was not addressed earlier. She knew about it, but no one told her she had to manage it or it would cause these difficulties later on. So I think I'd be sure you follow up and watch it and ask about long-term effects of whatever treatment you choose or don't choose. My hubby who has always prided himself on eagle-eye 20/20 vision is now asking for readers too! I had coke-bottle glasses until a few years ago when I had Lasik surgery. Now I need nothing! My vision is better than it ever was with my contacts! So. I feel for you. sort of. at least my husband does :-) Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 I'm glad I gave you a laugh!! hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 , several of our CHARGE students have a leg length discrepancy, but they are not the only ones. I think it is one of those things common in life, not just to CHARGE. anyway, I will make sure to get our PT's comments to you, as well. pam Re: hips I will be interested in the PT response as well. I have the same thing where my right leg is a tad longer then my left. I get a lot of hip pain as well. But I have been doing at home therapy (on my own) and supposed to be wearing a heel lift to help. hips ok experts need your advice. I took tim to the orthopedist today--he has complained of a pinch in his hip/groin area. they took x-rays all looks fine she gave us an exercise to do to stretch the muscle in that area she said just could be muscle spasms. but, she did notice that the difference in the lenght of his legs has grown--he now has a lift in his rt shoe, she is saying he needs it on his shoe now. also metntioned she wants to see him yearly for xrays to monitor growth difference--here is my ? she said he can continue to get shoes built up or so a surgery that would stop the growth plates from growing on longer side? does that sound right? said it's an outpatient thing --any input would be helpful. I also found out yesterday that as my opthamologist put it so gracefully--I'm maturing!!!! I need the lowest strength bi focals!!!!! it stinks to mature--now even if I wear my contacts and read I need reading glasses!!! I know I know, at least I can see--but bi focals?!?!?! have a great day everyone I'm subbing the rest of the week, so need to get moving--oh pat is laid off again, so the story goes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 - I have not heard of this surgery to stop growth in the unaffected leg. That doesn't mean its not good, I'm just a little sheltered here in upstate NY (and I find the docs very conservative). I do work with people with leg length discrepancies all the time, and it is a huge cause of back pain. It is often missed for years and years until there is not much that can be done. The lift is a good start. Going to play devil's advocate here for a minute: Can they tell if the growth plates in the shorter leg are still open? If they are (and they should be at his age), he may still have growth on that side, even if it is less than the non- affected side. Stopping growth on the non-affected side may lead to that side being shorter eventually than the now shorter side, if the shorter side does still have some growth legt in it. Additionally, the femur (thigh bone) is the longest bone in the body and contributes substantially to ones height and overall appearance. Preventing future growth from that bone may lead to Timmy's overall height being shorter than it could be (I know short stature is part of CHARGE, but especially with boys, every inch can mean something). What is the difference between leg lengths? Is it substantial? If so, it can cotribute to scoliosis as well. Also, (and I'm sure your ortho checked this already) is that leg length discrepancies can actually be caused by the pelvic or back bones being crooked (so its not the legs, but whats on top). The gold standard for measurement is to take X-rays of the whole leg and measure the bones on the X-ray itself. Just mentioning it because it seems like a lot of CHARGE kiddos have some scoliosis (frankly, its pretty common in general, not just with CHARGE). This is interesting--I'd like to know what you find out and what you decide to do. Let me know if there is any thing I can help with. Good luck, Kate (PT in NY) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Thanks Kate and Thanks for starting this thread. Perfect timing! I'm heading to an orthopedist in about 2 weeks for my (non-charge) daughter. Her pediatrician did not like the way her body sways while walking & suspects a leg length discrepancy. (She's 11 & starting puberty. My chiropractor says things can start to get out of whack & this is a good time to get everything checked out.) Once again, this list comes through with answers to questions I didn't know I had! joanne > - > > I have not heard of this surgery to stop growth in the unaffected > leg. That doesn't mean its not good, I'm just a little sheltered > here in upstate NY (and I find the docs very conservative). I do > work with people with leg length discrepancies all the time, and it > is a huge cause of back pain. It is often missed for years and years > until there is not much that can be done. > > The lift is a good start. Going to play devil's advocate here for a > minute: Can they tell if the growth plates in the shorter leg are > still open? If they are (and they should be at his age), he may > still have growth on that side, even if it is less than the non- > affected side. Stopping growth on the non-affected side may lead to > that side being shorter eventually than the now shorter side, if the > shorter side does still have some growth legt in it. Additionally, > the femur (thigh bone) is the longest bone in the body and > contributes substantially to ones height and overall appearance. > Preventing future growth from that bone may lead to Timmy's overall > height being shorter than it could be (I know short stature is part > of CHARGE, but especially with boys, every inch can mean something). > > What is the difference between leg lengths? Is it substantial? If > so, it can cotribute to scoliosis as well. > > Also, (and I'm sure your ortho checked this already) is that leg > length discrepancies can actually be caused by the pelvic or back > bones being crooked (so its not the legs, but whats on top). The > gold standard for measurement is to take X-rays of the whole leg and > measure the bones on the X-ray itself. Just mentioning it because it > seems like a lot of CHARGE kiddos have some scoliosis (frankly, its > pretty common in general, not just with CHARGE). > > This is interesting--I'd like to know what you find out and what you > decide to do. Let me know if there is any thing I can help with. > > Good luck, > Kate (PT in NY) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 kate thats me ive a tiny scoliosis so im just a tiny bit odd leged not much but yes that is y i am > > Thanks Kate and Thanks for starting this thread. Perfect timing! > I'm heading to an orthopedist in about 2 weeks for my (non-charge) > daughter. Her pediatrician did not like the way her body sways while > walking & suspects a leg length discrepancy. (She's 11 & starting > puberty. My chiropractor says things can start to get out of whack & > this is a good time to get everything checked out.) > > Once again, this list comes through with answers to questions I didn't > know I had! > > joanne > > > > > - > > > > I have not heard of this surgery to stop growth in the unaffected > > leg. That doesn't mean its not good, I'm just a little sheltered > > here in upstate NY (and I find the docs very conservative). I do > > work with people with leg length discrepancies all the time, and it > > is a huge cause of back pain. It is often missed for years and years > > until there is not much that can be done. > > > > The lift is a good start. Going to play devil's advocate here for a > > minute: Can they tell if the growth plates in the shorter leg are > > still open? If they are (and they should be at his age), he may > > still have growth on that side, even if it is less than the non- > > affected side. Stopping growth on the non-affected side may lead to > > that side being shorter eventually than the now shorter side, if the > > shorter side does still have some growth legt in it. Additionally, > > the femur (thigh bone) is the longest bone in the body and > > contributes substantially to ones height and overall appearance. > > Preventing future growth from that bone may lead to Timmy's overall > > height being shorter than it could be (I know short stature is part > > of CHARGE, but especially with boys, every inch can mean something). > > > > What is the difference between leg lengths? Is it substantial? If > > so, it can cotribute to scoliosis as well. > > > > Also, (and I'm sure your ortho checked this already) is that leg > > length discrepancies can actually be caused by the pelvic or back > > bones being crooked (so its not the legs, but whats on top). The > > gold standard for measurement is to take X-rays of the whole leg and > > measure the bones on the X-ray itself. Just mentioning it because it > > seems like a lot of CHARGE kiddos have some scoliosis (frankly, its > > pretty common in general, not just with CHARGE). > > > > This is interesting--I'd like to know what you find out and what you > > decide to do. Let me know if there is any thing I can help with. > > > > Good luck, > > Kate (PT in NY) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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