Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Heart Rate will go up a little bit. JD takes it twice a day. & , parents to twins: Olivia and JD(cHArgE: Choanal Atresia, Heart Repair, TE-F Repair, G-Tube, Trach , Hernia Repair , severe to profound hearing loss, OFF the VENT ) 14 months , Waxahachie, Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 we used it for years, erika has angle closure glaucoma, as it turns out, it increases the glaucoma pressure. it did help w/secretions and inflamation, but we had to stop b/c her eye pressures went up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi all, Does anyone have experience with Atrovent? Felix saw a pulmonologist last week for the first time and she is recommending it to decrease secretions in his trachea (to complement the Botox in his salivary glands). I will have to give him a nebulizer treatment 3 times a day, which we haven't done before... Also any side effects of note? Thanks for your help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Thanks for the response! Do you feel like it has helped to dry JD's secretions? Is that why he is taking it? > > Heart Rate will go up a little bit. JD takes it twice a day. > > > & , parents to twins: Olivia and JD(cHArgE: Choanal Atresia, Heart > Repair, TE-F Repair, G-Tube, Trach , Hernia Repair , severe to profound > hearing loss, OFF the VENT ) 14 months , Waxahachie, Texas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 my 14 month old son has atrovent for the same thing but he doesnt get botox it helps him alot i havent seen any side affects his dose is 1 vial 3 times a day Question about Atrovent Hi all, Does anyone have experience with Atrovent? Felix saw a pulmonologist last week for the first time and she is recommending it to decrease secretions in his trachea (to complement the Botox in his salivary glands). I will have to give him a nebulizer treatment 3 times a day, which we haven't done before... Also any side effects of note? Thanks for your help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 HI , My daughter has been a continous user of Atrovent since she was 12 months old, she is now 2years and 8 months old and has no side affects at all. She is a chronic asthmatic and yes it as helped with her secretions. Cheers NIcole x AUstralia kzkoehler wrote: Hi all, Does anyone have experience with Atrovent? Felix saw a pulmonologist last week for the first time and she is recommending it to decrease secretions in his trachea (to complement the Botox in his salivary glands). I will have to give him a nebulizer treatment 3 times a day, which we haven't done before... Also any side effects of note? Thanks for your help! Send instant messages to your online friends http://au.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I feel silly asking you this, because I know that you are the kind of mom who follows through on this stuff, but...has had any treatment for her narrow angles (like a peripheral iridotomy)? There are lots of medications that slightly dilate the pupils (all the ones marked " Do not take this medication if you have glaucoma " ), which is when angle closure is most likely for people with narrow angles. As young as she is, if she hasn't it would be worth looking into--especially since as she gets older if anything her angles will become narrower (because of growth of the lens). Does her Dr. think her narrow angles have anything to do with CHARGE, or coloboma (if she has one), or is it just something she has independent of CHARGE? (mom to Evan, 16 months) NPTQueenie@... wrote: we used it for years, erika has angle closure glaucoma, as it turns out, it increases the glaucoma pressure. it did help w/secretions and inflamation, but we had to stop b/c her eye pressures went up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 , Yes has had a lensectomy and the drain put it, now the pressures have continued to rise. she is on 5 drops a day. we have been fearing a shunt for the last 2 years. We actually, just recently heard about a procedure they are doing in Germany that ehy may be able to do her soon. The angle closure glaucoma is an indirect result of the eye defect, never developing completely and the smallness to the iris, and it being to " tight " in their allowing the fluid to release. This hit us by surprise a bout 5 years ago at a regular semi annual opthamologic check up, the next day we were on our way to Boston. We now are followed in Philly. We stay away from medications that are not good for glaucoma, occassionally, if she is really sick we have to give her something to get her breathing under control. Cathie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 My son, Bradley, has been on Atrovent nebulizer for quite a few years and there has been no side effects. ck > >Reply-To: CHARGE >To: CHARGE >Subject: Question about Atrovent >Date: Mon, 20 Nov 2006 01:40:28 -0000 > >Hi all, > >Does anyone have experience with Atrovent? Felix saw a pulmonologist >last week for the first time and she is recommending it to decrease >secretions in his trachea (to complement the Botox in his salivary >glands). I will have to give him a nebulizer treatment 3 times a day, >which we haven't done before... Also any side effects of note? > >Thanks for your help! > > > _________________________________________________________________ Get free, personalized commercial-free online radio with MSN Radio powered by Pandora http://radio.msn.com/?icid=T002MSN03A07001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 , no she had a lensectomy and an iridectomy. This was to help with the intraocular pressure and to open the angle. the thickness of the anterior chamber also makes the pressure higher. she is on azopt 2x/day , alphagan 2x/day and xalatan 1/day. this is the max for what they can do. they are constantly coming up with new things they can do, this proceudre they are doing in Germany sounds promising. i would like them to have more experience with it first. so the longer we can keep her pressures the down, the better and the more time they have to find new things. it seems after a while she becomes reslient to the drops, that is why we have added new and more. we have the pressures checked every 3 months at CHOPS. Unfortunately, this eye was the better seeing eye before they removed the lens. so as i said, we try to stay away from medications that can increase the pressure, but sometimes we have to weigh what is more pressing at the time. going back to atrovent - it did make a difference, and help w/inflamtion and secretions. Cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Cathie, I had no idea--that is so much for her and you to go through. Three meds is considered " maximum medical therapy " for glaucoma--it sounds like you are there and then some. When you say she had a drain put in, do you mean a filtering bleb (looks like a blister/bubble on the white part of the eye, usually superiorly)? Did the bleb fail? I will keep you guys in my thoughts and prayers, and hope she doesn't need a shunt (I'm curious what the new procedure in Germany is). Thanks for humoring my questions. (mom to Evan, 16 months) NPTQueenie@... wrote: , Yes has had a lensectomy and the drain put it, now the pressures have continued to rise. she is on 5 drops a day. we have been fearing a shunt for the last 2 years. We actually, just recently heard about a procedure they are doing in Germany that ehy may be able to do her soon. The angle closure glaucoma is an indirect result of the eye defect, never developing completely and the smallness to the iris, and it being to " tight " in their allowing the fluid to release. This hit us by surprise a bout 5 years ago at a regular semi annual opthamologic check up, the next day we were on our way to Boston. We now are followed in Philly. We stay away from medications that are not good for glaucoma, occassionally, if she is really sick we have to give her something to get her breathing under control. Cathie, mom to Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.