Re: apraxia and other sibblings

[Guest guest]

Hi :

I have two sons one is apraxic and the other has been talking non-

stop since he was 11 months old. They have two different birth

stories though. My personal opinion on this is there are so many

different possibilities why some kids are born having apraxia and

others aren't. In my case, I believe it was due to birth problems.

We don't have any speech problems on either side of the family.

Tina

[Guest guest]

,

We have several things in common: my daughter, almost 2, has hypotonia, and

developmental delays. This is it so far. We are also going to our devel. Ped. in

March, our first visit. I don't know the answer to apraxia being genetic. I am

adopted and do not know my side of the equation. However, my 6 year old is for

sure not apraxic. In fact, except for talking too much, is really normal in

every way! I would be interested to know if this can be genetic, as I have heard

of cases where siblings are apraxic. Incidentally, I do not know why our

daughter has her delays. There was nothing out of the ordinary with her birth

and pregnancy. Do other people have apraxic children where the origin is

unknown?

Guerrero

mark112102 <mark112102@...> wrote:

We live in Clavert County MD. My son (3yr, 2mo) has just started

babbling with use of pro-efas. He is labeled " developmentally

delayed. " He has significant cognitive delays and some gross and fine

motor delays. He also has been diagnosed with hypotonia (really only

seen in his face).His speech therapist at school said it was hard to

diagnose apraxia because he is non-verbal at this point (but still

only recieves 1/2 hour speech per week). I have taken him to a

private therapist and she says she is not ruling apraxia out, but it

is difficult because he is non-verbal. She says she has to see him

for more sessions before she can rule it in or out. We are going to

see a dev. ped in April. Hopefully with these outside reports, I can

get him more speech services in school.

My question is, if he does have apraxia, what are the chances of

other siblings having it as well? Are there genetic factors? Thank

you for any answers you can give or stories you can share.

PS If anyone knows of any good therapists or pediatricians in Calvert

County MD, I would love to know.

mom to Mark (3 yr. with DD) and Hailey (10.5 months)

[Guest guest]

Thank you. Mark also had problems during birth. I guess I am overly

sensitive now that Hailey is getting to the talking stage (10.5 months)

and she has not said words yet and imitates very little, but babbles

and " talks " nonsense all the time. I guess I can help but worry. Thank

you for your response.

[Guest guest]

,

Wow - only 30 minutes of speech per week seems really low! Is this

because he has a lot of other therapies to get in too, or is that

all they'll give him? My daughter Meg is 3 years 4 months and

receives 60 minutes of speech through her (public) preschool and 60

minutes of private therapy. She also gets 30 minutes of OT at

school and 45 minutes privately. This schedule is working out

really well for her - she's made tons of progress, and is probably

almost 50% intelligible to a stranger now. So it seems to me that

if Meg is getting this much and she's talking all the time, a child

who's nonverbal should be getting a lot more, unless it would mean

therapy overload.

By the way, both speech therapists we've worked with have inquired

about my other daughter's (19 months) speech and have said that it's

pretty common for younger siblings to have the same (if not worse)

speech problems. But so far, Kate's been doing great - exceeding

all the developmental milestones. Hopefully our younger ones won't

have problems, but if they do I guess we'll be super prepared for

them!

Kerri

>

> We live in Clavert County MD. My son (3yr, 2mo) has just started

> babbling with use of pro-efas. He is labeled " developmentally

> delayed. " He has significant cognitive delays and some gross and

fine

> motor delays. He also has been diagnosed with hypotonia (really

only

> seen in his face).His speech therapist at school said it was hard

to

> diagnose apraxia because he is non-verbal at this point (but still

> only recieves 1/2 hour speech per week). I have taken him to a

> private therapist and she says she is not ruling apraxia out, but

it

> is difficult because he is non-verbal. She says she has to see him

> for more sessions before she can rule it in or out. We are going

to

> see a dev. ped in April. Hopefully with these outside reports, I

can

> get him more speech services in school.

> My question is, if he does have apraxia, what are the chances of

> other siblings having it as well? Are there genetic factors? Thank

> you for any answers you can give or stories you can share.

>

> PS If anyone knows of any good therapists or pediatricians in

Calvert

> County MD, I would love to know.

>

>

> mom to Mark (3 yr. with DD) and Hailey (10.5 months)

>

[Guest guest]

Thought I should chime in here. I have 3 boys. My oldest who is (almost) 6yrs

old has no speech problems or other problems what so ever. My 4yr old has CAS

among many other speech related disorders along with SI. He had delayed speech

and said his first words after he was 2yrs old but they where just a few and

didn't just " pick up " speaking. He was saying enough words at 3yrs old to be dx

with Apraxia and is now getting speech 5 times a week when he's feeling well

(thats a whole other story) but has made great progress (in my eyes). Now my

21month old son was dx with Apraxia and SI in November, yet I will disagree with

that. He was not talking " real words " just baby babble ALL THE TIME. Yet he

seemed to use the same babble for certin things. I just truely think he is a

" late talker " he didn't have the desire to speak yet. Since Jan he has said

" ball " " baba " " eat " " gage " " Kaleb " " mom " " dada " " Blue " " doodlebops " and has even

said " i go bye " and " blue go that way " he will try

to mimic what is said on cartoons and doesn't speak when ppl are around just

like to talk in private to the tv or toys. Some words he has only said once

(that I've heard) but that to me is still better than none at all.

So don't let ppl say it is Apraxia too early, late talkers are a true thing

and it CAN just be something as simple as that.

Ash

mark112102 <mark112102@...> wrote:

Thank you. Mark also had problems during birth. I guess I am overly

sensitive now that Hailey is getting to the talking stage (10.5 months)

and she has not said words yet and imitates very little, but babbles

and " talks " nonsense all the time. I guess I can help but worry. Thank

you for your response.

[Guest guest]

I have four children ages 9-boy, 8-girl, 6-girl, and 2 1/2-boy. My

youngest was born with Poland's Syndrome, Hypospadia, and has been

diagnosed with apraxia and dysarthria. (He has low tone in his

cheeks too. He gets 30 minutes of speech therapy twice a week

through private insurance.) My first three are normal children; my

firstborn was tested and found to be " profoundly gifted " but we just

find him to be a constant chatterbox! We are done having children

because our genetic counselor told us our chances of having a baby

with birth defects increases when you have already had one with

birth defects.

Sincerely, Debra

[Guest guest]

my fourth who was born with birth defects was the best most

natural intervention free birth at a freestanding birthing center. My

others were born at hospitals with multiple unnecessary interventions;

for instance my third was born with the assistance of a vacuum

extractor and forceps. (All my pregnancies were symptom free; I never

had morning sickness or any complaints.)

I thought being a mother of 4 would make me more confident but my

fourth makes me unsure of myself at times and I feel like a first time

mom!

I have read that traumatic births affect children. I hope your

daughter turns out fine!

Sincerely,

Debra

>

> Thank you. Mark also had problems during birth. I guess I am overly

> sensitive now that Hailey is getting to the talking stage (10.5

months)

> and she has not said words yet and imitates very little, but babbles

> and " talks " nonsense all the time. I guess I can help but worry.

Thank

> you for your response.

>

>

>

[Guest guest]

Two things: First of all....1/2 hr a week of speech!? My 2 yr 2 mo

child is already getting 2 hrs a week of speech with early

intervention and 2 sessions a week with a private therapist (covered

by ins) on the SUSPICION of apraxia, because everyone dealing with

him agrees that he shows the signs and " probably " has it but like

your child, he does not yet have enough language to meet the

clinical criteria for it.

Second, about the family history...I don't know what the liklihood

is of having another child with apraxia, but if you use my family as

a test case, having one child with a neurological disorder increases

your chances of having another.

I have 3 boys; the oldest (11) has Asperger's, the middle (9) has

Tourette's, and the youngest (2) has sensory integration disorder at

the least, and most likely has verbal apraxia.

>

> We live in Clavert County MD. My son (3yr, 2mo) has just started

> babbling with use of pro-efas. He is labeled " developmentally

> delayed. " He has significant cognitive delays and some gross and

fine

> motor delays. He also has been diagnosed with hypotonia (really

only

> seen in his face).His speech therapist at school said it was hard

to

> diagnose apraxia because he is non-verbal at this point (but still

> only recieves 1/2 hour speech per week). I have taken him to a

> private therapist and she says she is not ruling apraxia out, but

it

> is difficult because he is non-verbal. She says she has to see him

> for more sessions before she can rule it in or out. We are going

to

> see a dev. ped in April. Hopefully with these outside reports, I

can

> get him more speech services in school.

> My question is, if he does have apraxia, what are the chances of

> other siblings having it as well? Are there genetic factors? Thank

> you for any answers you can give or stories you can share.

>

> PS If anyone knows of any good therapists or pediatricians in

Calvert

> County MD, I would love to know.

>

>

> mom to Mark (3 yr. with DD) and Hailey (10.5 months)

>

[Guest guest]

There certainly does seem to be some genetic predisposition at work,

though I think it is the genetics combined with environmental factors.

I've known a number of families who have a child with apraxia and

another child with autism spectrum disorder, ADHD or dyslexia. My

youngest has/had apraxia and ASD, and my oldest has ASD. If I was in

your position, I'd consider delaying vaccinations and using the gfcf

diet with my youngest in an attempt to avoid developmental problems

for her. Does your little one get EFAs also?

[Guest guest]

Hi

FWIW,

my eldest child is extremely smart and a happy sociable boy. We have

noticed as he gets older that he seems to have some minor sensory

issues. His vaccination schedule was stopped as soon as we saw

Charlie ( our second son) regress after his MMR. Charlie had all his

jabs and was developing normally until his MMR ( following chicken

pox) in April 1997. Charlie developed severe symptoms of autism and

was also diagnosed with apraxia. He has been gfcf since 1998 and is

currently chelating. He is doing really well.

On the grounds that I didn't ever believe that his autism had

anything to do with genetics ( other than immune issues) we decided

to have another baby in 2002 and Madeleine now 3 is very takative and

has no issues whatsoever. She is verbally precocious and socially

very adept. She has not had any vaccines at all and has been taking

EFA's/ omegas since birth. I would not hesitate to have another baby

for genetic reasons as long as I was able to refuse jabs ( but she is

my last as I am too old and knackered !!)

regards

Deborah

PS epsom salt baths are more for provoking sulphation rather than

detox of heavy metals arn't they. I use a cup in Charlies bath

whnever I remember ( and whenever I can get him into the bath...)

[Guest guest]

Hi Deborah,

Since I have a 3 month old, I'm thinking of at least delaying the

vaccinations. Are you planning on giving any to her prior to

school? I thought that you couldn't send them without

vaccinations. Is there a way to get around that? I'm trying to

weigh all our options.

>

> Hi

> FWIW,

> my eldest child is extremely smart and a happy sociable boy. We

have

> noticed as he gets older that he seems to have some minor sensory

> issues. His vaccination schedule was stopped as soon as we saw

> Charlie ( our second son) regress after his MMR. Charlie had all

his

> jabs and was developing normally until his MMR ( following chicken

> pox) in April 1997. Charlie developed severe symptoms of autism

and

> was also diagnosed with apraxia. He has been gfcf since 1998 and

is

> currently chelating. He is doing really well.

> On the grounds that I didn't ever believe that his autism had

> anything to do with genetics ( other than immune issues) we

decided

> to have another baby in 2002 and Madeleine now 3 is very takative

and

> has no issues whatsoever. She is verbally precocious and socially

> very adept. She has not had any vaccines at all and has been

taking

> EFA's/ omegas since birth. I would not hesitate to have another

baby

> for genetic reasons as long as I was able to refuse jabs ( but she

is

> my last as I am too old and knackered !!)

> regards

> Deborah

> PS epsom salt baths are more for provoking sulphation rather than

> detox of heavy metals arn't they. I use a cup in Charlies bath

> whnever I remember ( and whenever I can get him into the bath...)

>

[Guest guest]

Hello,

I am very lucky and live in the UK. Over here all vaccinations are

voluntary. She attends nursery and I have of course notified them

that she is unvaccinated - they have no problem with that. She will

start school in Sept 2007 and again I have already spoken to the

school we hope she will attend and they have absoloutely no issue

either.

I researched each vaccination by looking at the illness it is

intended to prevent and then weighing up which represented the

greatest risk to her - the illness or the vaccine. A vaccine schedule

which insists on 26 vaccines before the age of five is clearly now

ludicrous. The issue must of course contain respect for our social

responsibilty but i think society has rather waived its responsibilty

to our children by deciding that they can be vaccinated against

illnesses that do not represent any realistic danger to them . I

think vaccines to prevent a likely illness are sensible and prudent

but a vaccine for remotes issues - however terrible that outcome-

should be weighed carefully. Vaccinating a child solely to protect an

adult or even another child also causes me some difficulty.( I

remeber my father being absoloutely furious when he found that the

govt here were planning to vaccinate every toddler against chicken

pox , an illness that killed 8 people in the preceeding five years -

all of them elderly. All these issues are very difficult because as

parents we would prefer to deal only in certainty and there IS no

certainty around this issue. There is no such thing as a 100% safe

vaccine and there is no guarenteee that having waived a vaccine your

child will not develop that illness.

We have to be responsible and proportionate. That may sound strange

coming from a woman who has not vaccinated her child at all but my

husband and I weighed this issue long and hard and are very

comfortable with the decisions we have made. We continue to review

and consider as these things change all the time - for example were

Madeleine to cut herself in the garden I would get her a tetanus jab

and, when she starts at school I will revisit that particular

immunisation any way. I will probably request that she has the

rubella vaccine when she reaches child bearing age. She will never

have a vaccine for mumps or for chicken pox or hep B or measles -

again my opinion is that these either represent no significant

probable risk to her. The reality is that most kids who do get

measles in middle class western homes are just fine.

I have had cause to really assess this when Madeleine was suddenly

taken very ill aged 18months. she had a lumber puncture and

menengitis was a possibility - so I DO know what the threats are and

I still knew that Ihad acted in her best interests, however it turned

out.

Be aware that if you choose not to vaccinate there is a price to pay.

You will be lectured if you ever have to go to the hospital.( given

what they do I understand their passion). You will also encounter

people who will give you the tragic story of a child who died from

one of the diseases that you are not protecting against. They have a

point and they are always acting from the most genuine of motives.

But they are not you and their child is not your child. I KNOW that

my Madeleine has weak immunity and had many of the preconditions that

so tragicly tipped my Charlie over the edge. I have no doubt that had

I vaccinated she too would have been autistic ( her exczema and her

braething problems are just two clues, her predisposition to crohns

and her poor IgA results are more). OF COURSE I would prefer that she

were like every other kid with her Developmental book all ticked by a

smiling health visitor like everyone else. But she is not that child

and my kids are vulnerable so I have done my best and made the best

choices I can.

You may pick and choose the ones you think appropriate and you may

ultimately decide to give them all - that is your choice and whatever

you choose will be the right thing for you and your child. Maybe you

may just want to space and delay them - you will need to get advice

in the USA as to how this can be done

Good luck

Deborah

( other than immune issues) we

> decided

> > to have another baby in 2002 and Madeleine now 3 is very takative

> and

> > has no issues whatsoever. She is verbally precocious and socially

> > very adept. She has not had any vaccines at all and has been

> taking

> > EFA's/ omegas since birth. I would not hesitate to have another

> baby

> > for genetic reasons as long as I was able to refuse jabs ( but

she

> is

> > my last as I am too old and knackered !!)

> > regards

> > Deborah

> > PS epsom salt baths are more for provoking sulphation rather than

> > detox of heavy metals arn't they. I use a cup in Charlies bath

> > whnever I remember ( and whenever I can get him into the bath...)

> >

>