Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 I'm wondering, of those PSCers who administer their own meds, on average, how compliant are you with your medication? The allure of freedom has made me down right delinquent! My " freedom " has had some consequences lately, but if you ask me if it was worth it for those brief few weeks of no meds, living like a normal person, I think it may have been. CD in Boston UC 1995 PSC 00/01 (I can never remember) Acute necrotizing pancreatitis leading to partial pancreas removal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 HI, I have no compliance problems with pills, never forget as they are easy. I'm not real good with inhalers etc, especially if they are steroid based so you have to gargle etc after. Seems too much bother...then when the asthma flares up I think..gee I've been a bit slack lately! Lectures about compliance don't help, you've got to be happy taking the meds you are on to make it easy. Good luck, Penny T (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 Nearly 100%. For me, " normal " is when I DO take my meds. Freedom is feeling good - as in " normal " bathroom habits, " normal " breathing (I have asthma), etc. When I was first diagnosed with UC, I did try to taper off the sulfasalazine. It just doesn't work, at least for me. I rarely even think about meds any more - it's just about automatic. Arne 56 UC 1977, PSC 2000 Alive and well in Minnesota ---- dirranecor wrote: ============= I'm wondering, of those PSCers who administer their own meds, on average, how compliant are you with your medication? The allure of freedom has made me down right delinquent! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 I've heard from early on that your chances of getting a liver transplant, should you need one, are dependent in part on proving that you can be compliant - i.e. follow doctor's orders, especially when it comes to taking your meds. It doesn't help much to say that you'll be compliant. You need a solid history of being compliant. Thus, even though this was freeing, I wouldn't suggest continuing on the course you're on. Being compliant can be a factor in whether or not you'll even be listed for a liver transplant. There are other factors as well that count as to whether or not you'll be listed, but compliance is a huge factor. There will be lots of meds to take if you get a liver transplant, so the docs need to know you'll take your meds. Otherwise, one of those rare livers will go to someone else who has proved already that they'll be compliant. I went w/o meds for a short time after my colectomy in 2000 - I was following doctor's orders, although I suspected the docs were wrong - I still had some of large intestine left and still had UC. Turns out I still needed the UC meds, and then some. But for a brief period I went w/o meds, and yes, it was freeing. -Marie > > >I'm wondering, of those PSCers who administer their own meds, on >average, how compliant are you with your medication? The allure of >freedom has made me down right delinquent! > >My " freedom " has had some consequences lately, but if you >ask me if it was worth it for those brief few weeks of no meds, living >like a normal person, I think it may have been. > >CD in Boston >UC 1995 >PSC 00/01 (I can never remember) >Acute necrotizing pancreatitis leading to partial pancreas removal > _________________________________________________________________ http://liveearth.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 While I agree that going med-free would feel like true freedom, I think that remembering to take my meds is a small price to pay for maintaining remission of UC and feeling better in spite of the PSC. I do admit to forgetting to take them on occasion even though I pre-pour my pills once a week into a Dossette and it's easy to forget the once-a-week meds. Overall though, I think my compliance is fairly high. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.