Re: New member with questions on LID

[Guest guest]

> Keep in mind, there are different versions of the LID floating

> around. My LID forbid me to have soda, but allowed me to have 8 oz.

> of milk a day. The LID on the thyca site doesn't allow milk, but

> does allow soda.

It's odd that we see so many LID variations that do give to ok to

dairy products. This repost from Dr. Ain pretty much says it all with

regards to dairy! A glass of milk probably blows the whole day's good

intentions.

- " No milk products should be consumed on a low iodine diet.

Of course, the diet is low iodine [not NO iodine]; however milk

products have high iodine content and would provide more iodine

than the rest of the entire day of an otherwise careful low

iodine diet. "

Marilyn

(Who hates milk and hasn't had a glass since 1960. Ick).

[Guest guest]

Hi, Barbra-Sue, and welcome!

> I had my thyroidectomy 3 weeks ago and am preparing to travel out of

> state to Washington for my RAI (we live in Alaska).

What hospital and city are you having your RAI in ? (I know it's not

where mine was, because of the long LID they want you to do)

> Basically they are all connected to canned fruits and veggies. My

> diet says I can have canned fruits and veggies with no added salt and

> no red dye #3, but I think I read in your site someplace that wasn't

>permissible.

There used to be an issue with cans, and I still avoid them (but then

I'm obsessive about the LID), but the latest word from the experts

here is that cans are not a problem. Here's info on the history of

" cans or no cans " :

http://groups.yahoo.com/group/Thyca/message/21267

> My hospital is also making me endure this diet for over 30

> days...which seems longer than I've read anywhere else.

This is not needed - I would be on the phone asking why, and unless

they can come up with valid reasoning that disputes the info from both

Ian and Dr Ain (and I know we'd love to hear their reasoning), I'd

just do it for 2 weeks. Not suggesting that YOU ignore your

hospital's suggestion, but that's what I'D do. Not only is it

unnecessary, but you are more likely to 'cheat' as time goes on and

you're feeling more deprived. The most important time to do it right

is the last few days before and just after getting the dose.

Here are posts from Ian and Dr Ain about this issue, so you can decide

for yourself. :

How long is it really necessary to do the LID?

http://groups.yahoo.com/group/Thyca/message/17755 (Ian)

http://groups.yahoo.com/group/Thyca/message/26276 (Dr Ain)

> My other question is about juice concentrates...are they permissible

> or do I need to purchase fresh juice?

Concentrates should be fine, if they don't have any forbidden ingredients

> I know I need to read labels, but honestly I've never seen a label

> listsome of these things I am to watch for...will they specifically

> list iodized salt, sea salt, iodates, iodides, algin, alginates,

> carageenan, agar and erythrosine. I've looked at a few cans in the

> house and they list salt..which I assume means No No

Yep, you're correct - it MAY not be iodized, but you don't know for sure

> .... but not sure if I will actually find these terms listed.

Most fruits and veggies probably don't have most of those things, but

labels will list many of them (don't forget you need to avoid anything

with soy or derivatives like lecithin

> I'm concerned about being hypo.... I really don't know what

> to expect.... I am homeschooling my oldest daughter so I need to be

> someone coherent to do so not to mention cooking for myself and my

> husband hopes for the family.

It's hard to say how you'll react to being hypo, because it varies a

lot. Some people hardly notice a difference, some can barely

function, and the rest of us are somewhere inbetween. Unfortunately,

you'll just need to play it by ear. One nice thing is you work at

home, so maybe the lessons will be shorter, slower, or different for

part of the time.

Frozen Healthy choice dinners are wonderful, nutritious, and something

they can make. Alternately, it's not a bad idea to cook now and

freeze things for close to the end of the time.

One thing that's hard in cooking for them is that you have to eat

differently (unless they're willing to do the LID along with you).

Too easy to grab the iodized salt shaker and put it in your food as

well as theirs.

At the least, try to make easy dishes.

> My doctor has put me on cytomel as my

> thyroid replacement...I'm taking two 25mg pills a day. I have

> trouble remembering the 2nd pill...I'm just not good with meds.

> Seems I read though that they give this to you when you are hypo

> like it wasn't a thyroid replacement drug...is it???

It is a thyroid replacement drug..in fact, it is the actual hormone

the body uses. We get T4 normally (Synthroid, Levoxyl, etc), which the

thyroid usually makes, and converts into T3 (that's what Cytomel is)

in the body.

However, the Cytomel at this point is only to help you be less hypo

for part of the time you need to be off meds. Not everyone even takes

it, so it's not that vital that you take any particular amount, as

long as you don't use MORE than those 2 a day. I often just used one

in the morning.

> One last thing...I've picked up most of the abbreviations but I can

> not figure out TT...what's that stand for?

Total Thyroidectomy :-) Here's a link to abbreviations:

http://groups.yahoo.com/group/Thyca/message/18465

I have some things I ate during my LID in the posts after my sig..they

may be helpful.

Cheers,

Alisa

Currently - TSH 0.02, 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

[Guest guest]

Subject: Re: New member with questions on LID

> One thing that's hard in cooking for them is that you have to eat

differently (unless they're willing to do the LID along with you). Too easy

to grab the iodized salt shaker and put it in your food as well as theirs.

>

Would it really be so bad for the rest of the family to use only un-iodized

salt for 2 weeks? So you could just banish ALL other salt from the house (at

least stash it in the back of the basement or some such)?

bj

[Guest guest]

Thank you everyone who took time to answer my questions. I am learning a

lot from you already.

I think i am going to chance it with canned fruits (as fresh fruit is

very expensive...we eat some but not much) . I looked at a can of tomatoes

with no salt added and it said on the label..... not a sodium free food.....

so that will be good enough for me to learn how to add fresh tomatoes

instead.

Thanks also for the Cytomel info. I am actually thinking I may be

experiencing some hypo symptoms now..... I have been very forgettful most of

my life but today I cannot think clearly. I have also been cold, especially

my feet and nauseous all day. When I see my endo in Washington I am going

to bring it up then.

I was surprised to see mayo on the ok list.... I looked at one tonight

and it's made with soybean oil..... so I guess I will be learning to enjoy

balsamic dressing and that yummy looking french recipe.

I'm going to ask my nuclear meds about the length of the diet. I may

begin it early as they suggest but I think I will be doing it as a practice

run for the last 2 weeks. I will still be on my thyroid meds at that point

so I hope it's easier to cope with.

Alisa also asked where I was being seen in Washington. I am going to

Madigan Army Hospital outside of Seattle. My husband is in the Air Force.

Thankfully I have a dear friend in Seattle which I am thrilled to meet......

I just hope I feel good so I can enjoy seeing her.

The best part.....my daughter's doc called today from Washington and has

finally settled on her diagnosis (after months of monitoring her) and we

will be hypo together....such joy...I was hoping she would keep me on track!

It should be fun to homeschool..... neither of us thinking clearly.

I also spent some time today looking at files and really enjoyed reading

the diaries of people on LID....it gave me some insight to being hypo and

they were very helpful...thanks to those of you who submitted them.

Tonight I went grocery shopping and I found myself buying things I won

t be able to have soon..... hope that doesn't make it worse! LOL Thanks

all!

Blessings Friend!!

Barbra-Sue of Alaska )

" Trust in the Lord with all your heart, " Proverbs 3:5

[Guest guest]

> From: " aproctorus "

> Subject: Re: New member with questions on LID

>

> > One thing that's hard in cooking for them is that you have to eat

> > differently (unless they're willing to do the LID along with you).

> > Too easy to grab the iodized salt shaker and put it in your food as

> > well as theirs.

>

> Would it really be so bad for the rest of the family to use only

> un-iodized salt for 2 weeks? So you could just banish ALL other salt

> from the house (at least stash it in the back of the basement or some

> such)? bj

When I read this, for some reason I thought of the Boston Tea Party.

SINK THE IODIZED SALT!! :-)

Cheers,

Alisa

[Guest guest]

<<<<

[Guest guest]

> I think i am going to chance it with canned fruits (as fresh fruit is

very expensive...we eat some but not much) .

>

During the winter I buy frozen plain fruit. (It's available in the summer

but why bother!) Check the store freezer section. It may be more expensive

than canned, but does come in berries, which I don't think you can get

canned.

> I looked at a can of tomatoes with no salt added and it said on the

label..... not a sodium free food..... so that will be good enough for me to

learn how to add fresh tomatoes instead.

>

The " not a sodium free food " may be just to point out that while there is no

salt *added* there is some naturally occuring; this would be important for

people on low *sodium* diets. If you're willing to go with cans, the natural

sodium shouldn't be a concern. You might also find some dried tomatoes that

you can use.

> I was surprised to see mayo on the ok list.... I looked at one tonight and

it's made with soybean oil.....

>

I've never seen mayo that didn't involve egg yolks, which are also non-LID

anyway, so the type of oil wouldn't matter.

> The best part.....my daughter's doc called today from Washington and has

finally settled on her diagnosis (after months of monitoring her) and we

will be hypo together....such joy...I was hoping she would keep me on track!

> It should be fun to homeschool..... neither of us thinking clearly.

How old is your daughter? Can you do some Creative Curriculum Adjustment for

the duration? or are you locked in to a certain sequence of material?

Good luck.

bj

[Guest guest]

BJ,

I also thought the eggs had to be a factor which is why I checked the

label today.... I didn't think it could be an allowable food, but it is on

the list my nuclear meds clinic gave me..... glad I checked.

I did wonder is some of the sodium in the canned tomatoes might be

natural.... but didn't think I should chance it.

As to my daughter. We will take it easy with homeschooling if we need.

I want to try and stay on schedule as much as possible or she will do a lot

of schooling while her brother and sister are out of school (they both

attend public schools)..... but we'll take it easy if we need to. She is 11

and going into the 6th grade. She had such a horrible year last year

(because of her illness), I want so badly for this year to be better...

thankfully we know the cause of her school problems and we're getting her

the medical care she needs. Looking forward to the day, this is all behind

us!

Blessings Friend!!

Barbra-Sue of Alaska )

" Trust in the Lord with all your heart, " Proverbs 3:5

[Guest guest]

Just be careful the rest of the family doesn't start to develop goiters or hypo

symptoms. I remember reading a post about someone who went on the LID with her

partner and began to go hypo.

Wishing you the best,

Mabel

Re: New member with questions on LID

> One thing that's hard in cooking for them is that you have to eat

differently (unless they're willing to do the LID along with you). Too easy

to grab the iodized salt shaker and put it in your food as well as theirs.

>

Would it really be so bad for the rest of the family to use only un-iodized

salt for 2 weeks? So you could just banish ALL other salt from the house (at

least stash it in the back of the basement or some such)?

bj

[Guest guest]

We don't have any iodized salt in the house because I had read long ago

that Kosher salt (non-iodized) tasted better.

********************************+

+ Bronstein +

+Associate Professor of History +

+New Mexico State University +

+Las Cruces, NM USA**************

>

> Subject: Re: New member with questions on LID

>

> > One thing that's hard in cooking for them is that you have to eat

> differently (unless they're willing to do the LID along with you). Too easy

> to grab the iodized salt shaker and put it in your food as well as theirs.

> >

>

> Would it really be so bad for the rest of the family to use only un-iodized

> salt for 2 weeks? So you could just banish ALL other salt from the house (at

> least stash it in the back of the basement or some such)?

> bj

>

>

>

> This e-mail support group is one of many free services of ThyCa: Thyroid

Cancer Survivors' Association, Inc. . If you do not

wish to belong to this group, you may UNSUBSCRIBE by

> sending a blank e-mail to:

> thyca-unsubscribe

>

>

>

[Guest guest]

I can't wait for the LID to end so that I can go back to Real Salt. It's a

slightly pink natural sea salt that comes from an ancient sea bed about 40 miles

from here in Redmond. It has some iodine in it, but none added. It's sweeter

than the Morton stuff. -Kelley

Re: New member with questions on LID

>

> > One thing that's hard in cooking for them is that you have to eat

> differently (unless they're willing to do the LID along with you). Too easy

> to grab the iodized salt shaker and put it in your food as well as theirs.

> >

>

> Would it really be so bad for the rest of the family to use only un-iodized

> salt for 2 weeks? So you could just banish ALL other salt from the house (at

> least stash it in the back of the basement or some such)?

> bj

>

>

>

> This e-mail support group is one of many free services of ThyCa: Thyroid

Cancer Survivors' Association, Inc. . If you do not

wish to belong to this group, you may UNSUBSCRIBE by

> sending a blank e-mail to:

> thyca-unsubscribe

>

>

>