Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Michele, i must have missed this about Aubrey's ear reconstruction. Can you please tell me again what you did. thanks CAthie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Good to here about the surgery results -- It does hurt, I know. Kindness and caring, love, kind of melts all those defences and then all the hurt and need comes up and it HURTS. It's natural to want to keep those feelings down, and the defenses up. That's why it's easier to try to make people hate us. We can cope with people beign angry with us or whatever, but kindness just cuts through all those walls. My Blog Space: http://neutralufo.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Great news Michele! Keep updating as you can. www.chargesyndrome.info > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in > her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too > loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > The audiologist at school did a hearing check today. She didn't get to > send > the audiogram home and I was expecting it so I didn't listen really well > as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > For now, we are still using the bone conduction (softband BAHA) aid > because > it is of benefit. When we go on Monday, we'll take her regular hearing > aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > We are so excited! > > Lots to be thankful for this year! > > Michele W > Aubrie's mom 9 yrs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Michele, I hope you get some answers on Monday and all turns out well. Sounds like she is doing alittle bit better each day. Hugs, Crystal mom to (10), (3), and Eva (19 month old CHARGEr) wife to Dan in Illinois > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > > > The audiologist at school did a hearing check today. She didn't get to send > the audiogram home and I was expecting it so I didn't listen really well as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > > > For now, we are still using the bone conduction (softband BAHA) aid because > it is of benefit. When we go on Monday, we'll take her regular hearing aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > > > We are so excited! > > > > Lots to be thankful for this year! > > > > Michele W > Aubrie's mom 9 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Wow! Not only the changes in hearing, but the conversation you and Aubrie are having about her hearing. ) Smiles for you, smiles for Aubrie and thank you for the smiles you gave me! with love, Yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 so glad it's going well--hugs to all maria Aubrie's hearing Hi! You know, Aubrie had inner ear reconstruction several weeks ago. We go for the follow-up visit on Monday. Immediately post-op, when I whispered in her good ear, she could hear me fine. When I whispered in her bad ear (which had the surgery), she couldn't understand any of my words. About 2 weeks later, she asked to not use the FM system at school because it was too loud. So I tried the test again. When I whispered in her bad ear, she could hear and understand my words, but not as well as in her good ear. This morning, when I whispered in her good and then her bad ear, she couldn't tell which was better. I then whispered the Ling sounds (a sound from each frequency level) in each ear. She accurately heard all sounds in both ears. Then I did the Ling from a few feet away with her hearing aid off and with it on. She heard all sounds with and without the aid and couldn't tell which was better! Before surgery, without her hearing aid, she could not hear the " f " sound. The audiologist at school did a hearing check today. She didn't get to send the audiogram home and I was expecting it so I didn't listen really well as she told me the results by phone I think she said she had a 35db or so improvement in her bad ear. And the difference between her 2 ears is now small enough that she doesn't have to mask her good ear when testing the bad. If I remember right, the threshold for that is a 40db difference - if the difference is 40db or above, masking is required. So. we seem to be having real changes - big changes! For now, we are still using the bone conduction (softband BAHA) aid because it is of benefit. When we go on Monday, we'll take her regular hearing aids to see if they can be reset to meet her needs now. I'm not sure with kind of amplification will make sense. And I'm not sure how much more things will improve and how long the healing process continues before we hit the peak of improvement. We are so excited! Lots to be thankful for this year! Michele W Aubrie's mom 9 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 WOW WOW WOW!!! great news. pam Aubrie's hearing Hi! You know, Aubrie had inner ear reconstruction several weeks ago. We go for the follow-up visit on Monday. Immediately post-op, when I whispered in her good ear, she could hear me fine. When I whispered in her bad ear (which had the surgery), she couldn't understand any of my words. About 2 weeks later, she asked to not use the FM system at school because it was too loud. So I tried the test again. When I whispered in her bad ear, she could hear and understand my words, but not as well as in her good ear. This morning, when I whispered in her good and then her bad ear, she couldn't tell which was better. I then whispered the Ling sounds (a sound from each frequency level) in each ear. She accurately heard all sounds in both ears. Then I did the Ling from a few feet away with her hearing aid off and with it on. She heard all sounds with and without the aid and couldn't tell which was better! Before surgery, without her hearing aid, she could not hear the " f " sound. The audiologist at school did a hearing check today. She didn't get to send the audiogram home and I was expecting it so I didn't listen really well as she told me the results by phone I think she said she had a 35db or so improvement in her bad ear. And the difference between her 2 ears is now small enough that she doesn't have to mask her good ear when testing the bad. If I remember right, the threshold for that is a 40db difference - if the difference is 40db or above, masking is required. So. we seem to be having real changes - big changes! For now, we are still using the bone conduction (softband BAHA) aid because it is of benefit. When we go on Monday, we'll take her regular hearing aids to see if they can be reset to meet her needs now. I'm not sure with kind of amplification will make sense. And I'm not sure how much more things will improve and how long the healing process continues before we hit the peak of improvement. We are so excited! Lots to be thankful for this year! Michele W Aubrie's mom 9 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 , could you remind me what kind of reconstruction Aubrie had done. I am so excited reading the news and hope the appointment on Monday goes great!!! Murray mom to twin Chargers and and wife to Jay Aubrie's hearing Hi! You know, Aubrie had inner ear reconstruction several weeks ago. We go for the follow-up visit on Monday. Immediately post-op, when I whispered in her good ear, she could hear me fine. When I whispered in her bad ear (which had the surgery), she couldn't understand any of my words. About 2 weeks later, she asked to not use the FM system at school because it was too loud. So I tried the test again. When I whispered in her bad ear, she could hear and understand my words, but not as well as in her good ear. This morning, when I whispered in her good and then her bad ear, she couldn't tell which was better. I then whispered the Ling sounds (a sound from each frequency level) in each ear. She accurately heard all sounds in both ears. Then I did the Ling from a few feet away with her hearing aid off and with it on. She heard all sounds with and without the aid and couldn't tell which was better! Before surgery, without her hearing aid, she could not hear the " f " sound. The audiologist at school did a hearing check today. She didn't get to send the audiogram home and I was expecting it so I didn't listen really well as she told me the results by phone I think she said she had a 35db or so improvement in her bad ear. And the difference between her 2 ears is now small enough that she doesn't have to mask her good ear when testing the bad. If I remember right, the threshold for that is a 40db difference - if the difference is 40db or above, masking is required. So. we seem to be having real changes - big changes! For now, we are still using the bone conduction (softband BAHA) aid because it is of benefit. When we go on Monday, we'll take her regular hearing aids to see if they can be reset to meet her needs now. I'm not sure with kind of amplification will make sense. And I'm not sure how much more things will improve and how long the healing process continues before we hit the peak of improvement. We are so excited! Lots to be thankful for this year! Michele W Aubrie's mom 9 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 - The doctor didn't know what to expect when he went in her ear. What he found was a very normal structure with just the middle bone (anvil) misshapen. So he carved it to the right shape, reset it, and then hoped for good healing. He said is was a straight forward procedure that he performs constantly with great results. Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of Jayem14@... Sent: Tuesday, November 14, 2006 7:57 PM To: CHARGE Subject: Re: Aubrie's hearing , could you remind me what kind of reconstruction Aubrie had done. I am so excited reading the news and hope the appointment on Monday goes great!!! Murray mom to twin Chargers and and wife to Jay Aubrie's hearing Hi! You know, Aubrie had inner ear reconstruction several weeks ago. We go for the follow-up visit on Monday. Immediately post-op, when I whispered in her good ear, she could hear me fine. When I whispered in her bad ear (which had the surgery), she couldn't understand any of my words. About 2 weeks later, she asked to not use the FM system at school because it was too loud. So I tried the test again. When I whispered in her bad ear, she could hear and understand my words, but not as well as in her good ear. This morning, when I whispered in her good and then her bad ear, she couldn't tell which was better. I then whispered the Ling sounds (a sound from each frequency level) in each ear. She accurately heard all sounds in both ears. Then I did the Ling from a few feet away with her hearing aid off and with it on. She heard all sounds with and without the aid and couldn't tell which was better! Before surgery, without her hearing aid, she could not hear the " f " sound. The audiologist at school did a hearing check today. She didn't get to send the audiogram home and I was expecting it so I didn't listen really well as she told me the results by phone I think she said she had a 35db or so improvement in her bad ear. And the difference between her 2 ears is now small enough that she doesn't have to mask her good ear when testing the bad. If I remember right, the threshold for that is a 40db difference - if the difference is 40db or above, masking is required. So. we seem to be having real changes - big changes! For now, we are still using the bone conduction (softband BAHA) aid because it is of benefit. When we go on Monday, we'll take her regular hearing aids to see if they can be reset to meet her needs now. I'm not sure with kind of amplification will make sense. And I'm not sure how much more things will improve and how long the healing process continues before we hit the peak of improvement. We are so excited! Lots to be thankful for this year! Michele W Aubrie's mom 9 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Great News Michele, Aubrie and Family!!!!!!! Hugs from Janay, Rasha and the Mohamed Crew > > - > > The doctor didn't know what to expect when he went in her ear. What he > found was a very normal structure with just the middle bone (anvil) > misshapen. So he carved it to the right shape, reset it, and then hoped for > good healing. He said is was a straight forward procedure that he performs > constantly with great results. > > > > Michele W > > > > _____ > > From: CHARGE [mailto:CHARGE ] On Behalf Of > Jayem14@... > Sent: Tuesday, November 14, 2006 7:57 PM > To: CHARGE > Subject: Re: Aubrie's hearing > > > > , could you remind me what kind of reconstruction Aubrie had done. I > am so excited reading the news and hope the appointment on Monday goes > great!!! > Murray mom to twin Chargers and and wife to Jay > > > Aubrie's hearing > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > The audiologist at school did a hearing check today. She didn't get to send > the audiogram home and I was expecting it so I didn't listen really well as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > For now, we are still using the bone conduction (softband BAHA) aid because > it is of benefit. When we go on Monday, we'll take her regular hearing aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > We are so excited! > > Lots to be thankful for this year! > > Michele W > Aubrie's mom 9 yrs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 yay great stuff > > Great News Michele, Aubrie and Family!!!!!!! > > Hugs from Janay, Rasha and the Mohamed Crew > > > > > > - > > > > The doctor didn't know what to expect when he went in her ear. > What he > > found was a very normal structure with just the middle bone (anvil) > > misshapen. So he carved it to the right shape, reset it, and then > hoped for > > good healing. He said is was a straight forward procedure that he > performs > > constantly with great results. > > > > > > > > Michele W > > > > > > > > _____ > > > > From: CHARGE <CHARGE%40yahoogroups.com> [mailto: > CHARGE <CHARGE%40yahoogroups.com>] On > Behalf Of > > Jayem14@... > > Sent: Tuesday, November 14, 2006 7:57 PM > > To: CHARGE <CHARGE%40yahoogroups.com> > > Subject: Re: Aubrie's hearing > > > > > > > > , could you remind me what kind of reconstruction Aubrie > had done. I > > am so excited reading the news and hope the appointment on Monday > goes > > great!!! > > Murray mom to twin Chargers and and wife to Jay > > > > > > Aubrie's hearing > > > > Hi! > > You know, Aubrie had inner ear reconstruction several weeks ago. > We go for > > the follow-up visit on Monday. Immediately post-op, when I > whispered in her > > good ear, she could hear me fine. When I whispered in her bad ear > (which > > had the surgery), she couldn't understand any of my words. About 2 > weeks > > later, she asked to not use the FM system at school because it was > too loud. > > So I tried the test again. When I whispered in her bad ear, she > could hear > > and understand my words, but not as well as in her good ear. > > > > This morning, when I whispered in her good and then her bad ear, > she > > couldn't tell which was better. I then whispered the Ling sounds > (a sound > > from each frequency level) in each ear. She accurately heard all > sounds in > > both ears. Then I did the Ling from a few feet away with her > hearing aid > > off and with it on. She heard all sounds with and without the aid > and > > couldn't tell which was better! Before surgery, without her > hearing aid, > > she could not hear the " f " sound. > > > > The audiologist at school did a hearing check today. She didn't > get to send > > the audiogram home and I was expecting it so I didn't listen > really well as > > she told me the results by phone I think she said she had a 35db > or so > > improvement in her bad ear. And the difference between her 2 ears > is now > > small enough that she doesn't have to mask her good ear when > testing the > > bad. If I remember right, the threshold for that is a 40db > difference - if > > the difference is 40db or above, masking is required. So. we seem > to be > > having real changes - big changes! > > > > For now, we are still using the bone conduction (softband BAHA) > aid because > > it is of benefit. When we go on Monday, we'll take her regular > hearing aids > > to see if they can be reset to meet her needs now. I'm not sure > with kind > > of amplification will make sense. And I'm not sure how much more > things > > will improve and how long the healing process continues before we > hit the > > peak of improvement. > > > > We are so excited! > > > > Lots to be thankful for this year! > > > > Michele W > > Aubrie's mom 9 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Yes, this is really amazing and phenomenal news, Michele! I'm so pleased to hear how well everything is going for Aubrie. and Kendra Re: Aubrie's hearing Great news Michele! Keep updating as you can. www.chargesyndrome.info > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in > her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too > loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > The audiologist at school did a hearing check today. She didn't get to > send > the audiogram home and I was expecting it so I didn't listen really well > as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > For now, we are still using the bone conduction (softband BAHA) aid > because > it is of benefit. When we go on Monday, we'll take her regular hearing > aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > We are so excited! > > Lots to be thankful for this year! > > Michele W > Aubrie's mom 9 yrs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Oh, Michele, Andy and I are so happy and excited for you! Hugs all around. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 wow, my heart was beating so fast when I read your post. got goosebumps, wow!! how wonderful!!!So happy for all of you. Deepta > > WOW WOW WOW!!! great news. > pam > > > Aubrie's hearing > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > > > The audiologist at school did a hearing check today. She didn't get to send > the audiogram home and I was expecting it so I didn't listen really well as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > > > For now, we are still using the bone conduction (softband BAHA) aid because > it is of benefit. When we go on Monday, we'll take her regular hearing aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > > > We are so excited! > > > > Lots to be thankful for this year! > > > > Michele W > Aubrie's mom 9 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Cathy- We did a trial with a bone conduction aid and Aubrie loved it! There was improvement in her speech, and she didn't want to go back to regular aids. We planned surgery to place a screw for the BAHA abutment. But first, the dr took a look in her ear in case he could fix anything in there that was causing the conductive loss. He found everything in order except the 2nd middle ear bone (the incus). He reshaped it - actually sculpted the bone she had - and reset everything. So now, you know, I can't help looking back and wondering why we didn't know this sooner. If this slight malformation was the culprit all along, how could we have known that earlier and fixed it? If this makes as huge a difference as we hope, imagine if we'd have done it when she was 2! Michele W Aubrie's mom 9 yrs _____ From: CHARGE [mailto:CHARGE ] On Behalf Of NPTQueenie@... Sent: Tuesday, November 14, 2006 8:52 PM To: CHARGE Subject: Re: Aubrie's hearing Michele, i must have missed this about Aubrey's ear reconstruction. Can you please tell me again what you did. thanks CAthie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Hi Michele That's great news about Aubrie's hearing - I went to tell Flo (she had asked me to keep her up to date on news from the listserv) and I discovered that she had read it already. She had signed in as me! Best wishes Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 Michele, This, again, is fabulous news. I can't help thinking, however, what it would/could have meant if this technology had been available for 22 years ago. Now, her hearing tests are flat. Shortly after birth she was corrected to boarderline normal in her right ear and severe in her left. I wonder if anything can be done after the damage of all of the years of infections. The wonderful ENT we eventually hooked up with in Boston (after many horrid drs even there), didn't seem to think that anything could be done, but even that was several years ago now. I don't think anyone ever examined 's ears the way it seems to be done now. Makes me sad. Does anyone know whether something could possibly be done???Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 Our doctor said that the kind of thing he saw in Aubrie is most often seen as a result of infections damaging the bone. In her case, he thinks it was congenital since her hearing has been consistent since birth. Seems like it's worth looking inside to see what's going on, doesn't it? Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of lewcap@... Sent: Wednesday, November 15, 2006 7:51 PM To: CHARGE Subject: RE: Aubrie's hearing Michele, This, again, is fabulous news. I can't help thinking, however, what it would/could have meant if this technology had been available for 22 years ago. Now, her hearing tests are flat. Shortly after birth she was corrected to boarderline normal in her right ear and severe in her left. I wonder if anything can be done after the damage of all of the years of infections. The wonderful ENT we eventually hooked up with in Boston (after many horrid drs even there), didn't seem to think that anything could be done, but even that was several years ago now. I don't think anyone ever examined 's ears the way it seems to be done now. Makes me sad. Does anyone know whether something could possibly be done???Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 thats whats great about it all sometimes!! the good days are great - you must be really pleased with her progress. love Les x > > Hi! > You know, Aubrie had inner ear reconstruction several weeks ago. We go for > the follow-up visit on Monday. Immediately post-op, when I whispered in > her > good ear, she could hear me fine. When I whispered in her bad ear (which > had the surgery), she couldn't understand any of my words. About 2 weeks > later, she asked to not use the FM system at school because it was too > loud. > So I tried the test again. When I whispered in her bad ear, she could hear > and understand my words, but not as well as in her good ear. > > This morning, when I whispered in her good and then her bad ear, she > couldn't tell which was better. I then whispered the Ling sounds (a sound > from each frequency level) in each ear. She accurately heard all sounds in > both ears. Then I did the Ling from a few feet away with her hearing aid > off and with it on. She heard all sounds with and without the aid and > couldn't tell which was better! Before surgery, without her hearing aid, > she could not hear the " f " sound. > > The audiologist at school did a hearing check today. She didn't get to > send > the audiogram home and I was expecting it so I didn't listen really well > as > she told me the results by phone I think she said she had a 35db or so > improvement in her bad ear. And the difference between her 2 ears is now > small enough that she doesn't have to mask her good ear when testing the > bad. If I remember right, the threshold for that is a 40db difference - if > the difference is 40db or above, masking is required. So. we seem to be > having real changes - big changes! > > For now, we are still using the bone conduction (softband BAHA) aid > because > it is of benefit. When we go on Monday, we'll take her regular hearing > aids > to see if they can be reset to meet her needs now. I'm not sure with kind > of amplification will make sense. And I'm not sure how much more things > will improve and how long the healing process continues before we hit the > peak of improvement. > > We are so excited! > > Lots to be thankful for this year! > > Michele W > Aubrie's mom 9 yrs > > Quote Link to comment Share on other sites More sharing options...
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