RE: - a little update (and the rest of us) - Cochlear implant etc

[Guest guest]

Simon-

It's great to hear your update! I'm glad 's showing real benefit

from the CI. How cool is that? Although you're all busy as ever - it

sounds as if it's all good busy. Can't ask more!

Enjoy the weekend. Try not to agonize over every detail. You know all the

families will be thrilled to be together and won't notice if a few things

here and there don't go just as planned. I hope it is smooth sailing so

that you can truly enjoy it along with them!

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

simon howard

Sent: Tuesday, November 14, 2006 5:34 PM

To: CHARGE

Subject: - a little update (and the rest of us) - Cochlear

implant etc

Hi everyone

Well I'm just about maintaining control of all the posts here but have not

been able to really reply to any since I have been busy with the Support

Group here. I have been arranging a family day in London for this coming

Saturday. There are over 20 families coming which is the second largest

gathering in this country. I am looking forward to it although it is going

to be busy. We are holding it at Sense's family centre in London and they

have have not had more than 60 people at the centre before - there are going

to be 100! This centre has specialist hydrotherapy pool, gym, sensory, arts

and music rooms.

Back to before talking about her implant I want to tell a cute story

that also shows how much has developed and is aware of what is going

on. Tonight was downstairs while Elly had just gone to bed. Flo and

I were also upstairs - J came upstairs opened Elly's bedroom door (we were

thinking what's she up to) and in the dark went over to Elly in bed to kiss

her goodnight. Elly was so chuffed.

's cochlear implant - good luck with Meagan's implant -

hopefully what I am about to say will give you comfort. Although nothing was

apparent on her CT or MRI scan nothing was where it should be or formed

correctly be it bone, nerve or ear 's surgeon was very pleased with

the actual operation. This was in March, at her latest visit to the implant

team it is clear that she can hear sounds across the range and very quiet

sounds (she has a thin auditory nerve). She has been very successful at

their tests. Outside of this environment is very happy to have her

implant on, has to her name on several occasions and when we've been doing

mouth shape work she has really tried to copy us.

For those wondering how Flo is - she's knackered! She has a student at work

and is also doing the practice teaching course to go with him. And Elly,

well she is loving school learning to read etc.

Simon

[Guest guest]

It's great to hear an update even if it is just once in awhile to

know how everyone is.

Sounds like everyone and everything is well and I am glad to hear it!

Crystal mom to (10), (3), and Eva (19 month old CHARGEr)

wife to Dan in Illinois

>

> Hi everyone

>

> Well I'm just about maintaining control of all the posts here but

have not

> been able to really reply to any since I have been busy with the

Support

> Group here. I have been arranging a family day in London for this

coming

> Saturday. There are over 20 families coming which is the second

largest

> gathering in this country. I am looking forward to it although it

is going

> to be busy. We are holding it at Sense's family centre in London

and they

> have have not had more than 60 people at the centre before - there

are going

> to be 100! This centre has specialist hydrotherapy pool, gym,

sensory, arts

> and music rooms.

>

> Back to before talking about her implant I want to tell a

cute story

> that also shows how much has developed and is aware of

what is going

> on. Tonight was downstairs while Elly had just gone to

bed. Flo and

> I were also upstairs - J came upstairs opened Elly's bedroom door

(we were

> thinking what's she up to) and in the dark went over to Elly in

bed to kiss

> her goodnight. Elly was so chuffed.

>

> 's cochlear implant - good luck with Meagan's

implant -

> hopefully what I am about to say will give you comfort. Although

nothing was

> apparent on her CT or MRI scan nothing was where it should be or

formed

> correctly be it bone, nerve or ear 's surgeon was very

pleased with

> the actual operation. This was in March, at her latest visit to

the implant

> team it is clear that she can hear sounds across the range and

very quiet

> sounds (she has a thin auditory nerve). She has been very

successful at

> their tests. Outside of this environment is very happy to

have her

> implant on, has to her name on several occasions and when we've

been doing

> mouth shape work she has really tried to copy us.

>

> For those wondering how Flo is - she's knackered! She has a

student at work

> and is also doing the practice teaching course to go with him. And

Elly,

> well she is loving school learning to read etc.

>

> Simon

>

>

>

[Guest guest]

What does chuffed mean? like happy? lol sorry, only referencded ive heard to

" chuff " is like marijuana

That is great that jessica is doing well, hope elly is doing well to?

and thats really good about the charge gathering there as well

Belinda

[Guest guest]

Simon,

thank yo so much for this update!! I have been missing you all and now I know

why!!!

Take care and hopefully you will get a break soon!

Lovely story of the girls!!!

pam

- a little update (and the rest of us) - Cochlear

implant etc

Hi everyone

Well I'm just about maintaining control of all the posts here but have not

been able to really reply to any since I have been busy with the Support

Group here. I have been arranging a family day in London for this coming

Saturday. There are over 20 families coming which is the second largest

gathering in this country. I am looking forward to it although it is going

to be busy. We are holding it at Sense's family centre in London and they

have have not had more than 60 people at the centre before - there are going

to be 100! This centre has specialist hydrotherapy pool, gym, sensory, arts

and music rooms.

Back to before talking about her implant I want to tell a cute story

that also shows how much has developed and is aware of what is going

on. Tonight was downstairs while Elly had just gone to bed. Flo and

I were also upstairs - J came upstairs opened Elly's bedroom door (we were

thinking what's she up to) and in the dark went over to Elly in bed to kiss

her goodnight. Elly was so chuffed.

's cochlear implant - good luck with Meagan's implant -

hopefully what I am about to say will give you comfort. Although nothing was

apparent on her CT or MRI scan nothing was where it should be or formed

correctly be it bone, nerve or ear 's surgeon was very pleased with

the actual operation. This was in March, at her latest visit to the implant

team it is clear that she can hear sounds across the range and very quiet

sounds (she has a thin auditory nerve). She has been very successful at

their tests. Outside of this environment is very happy to have her

implant on, has to her name on several occasions and when we've been doing

mouth shape work she has really tried to copy us.

For those wondering how Flo is - she's knackered! She has a student at work

and is also doing the practice teaching course to go with him. And Elly,

well she is loving school learning to read etc.

Simon

[Guest guest]

Ohhh bel, this is like rooted. giggle, i love australian and british

slanguage too funny. Gotta love it when i hear " im rooting for you! "

>

> What does chuffed mean? like happy? lol sorry, only referencded ive heard

> to

> " chuff " is like marijuana

>

>

> That is great that jessica is doing well, hope elly is doing well to?

> and thats really good about the charge gathering there as well

>

>

> Belinda

>

>

>

[Guest guest]

hahaha, Belinda. Who knows what they are REALLY doing over there in Jolly Old

England!

pam

Re: Re: - a little update (and the rest of us) -

Cochlear implant etc

What does chuffed mean? like happy? lol sorry, only referencded ive heard to

" chuff " is like marijuana

That is great that jessica is doing well, hope elly is doing well to?

and thats really good about the charge gathering there as well

Belinda

[Guest guest]

Ummm belinda is in Australia...

Chantelle

>

> hahaha, Belinda. Who knows what they are REALLY doing over there in Jolly

> Old England!

> pam

>

>

--

It does hurt, I know. Kindness and caring, love, kind of melts all those

defences and then all the hurt and need comes up and it HURTS. It's natural

to want to keep those feelings down, and the defenses up. That's why it's

easier to try to make people hate us. We can cope with people beign angry

with us or whatever, but kindness just cuts through all those walls. ~

Para...

Faith, no matter what we believe in is an important motivator in life. There

are reasons why something is the way it is, though we dont always know why.

Problems are never a way to punish us, sometimes they are a way of making us

better and stronger, more compasionate and knowlegable people inside. We

may worry, we may feel down on the world but we must always remember that

faith is what brings us together and that god, no matter what we call him or

her has not punnished us, only trusted us with an extra special gift. ~ Me

My Blog Space: http://neutralufo.blogspot.com/

[Guest guest]

Chantelle,

yes, but Simon is in England.

pam

Re: Re: - a little update (and the rest of us) -

Cochlear implant etc

Ummm belinda is in Australia...

Chantelle

>

> hahaha, Belinda. Who knows what they are REALLY doing over there in Jolly

> Old England!

> pam

>

>

--

It does hurt, I know. Kindness and caring, love, kind of melts all those

defences and then all the hurt and need comes up and it HURTS. It's natural

to want to keep those feelings down, and the defenses up. That's why it's

easier to try to make people hate us. We can cope with people beign angry

with us or whatever, but kindness just cuts through all those walls. ~

Para...

Faith, no matter what we believe in is an important motivator in life. There

are reasons why something is the way it is, though we dont always know why.

Problems are never a way to punish us, sometimes they are a way of making us

better and stronger, more compasionate and knowlegable people inside. We

may worry, we may feel down on the world but we must always remember that

faith is what brings us together and that god, no matter what we call him or

her has not punnished us, only trusted us with an extra special gift. ~ Me

My Blog Space: http://neutralufo.blogspot.com/

[Guest guest]

LOL shows weve still got soem of the englo lingo lol great news bout the

implant love u all xxxxxxxxxxxxxxxxxxxxxx

>

> Ummm belinda is in Australia...

>

> Chantelle

>

> On 14/11/06, pamela.ryan@... <pamela.ryan%40perkins.org> <

> pamela.ryan@... <pamela.ryan%40perkins.org>> wrote:

> >

> > hahaha, Belinda. Who knows what they are REALLY doing over there in

> Jolly

> > Old England!

> > pam

> >

> >

>

> --

> It does hurt, I know. Kindness and caring, love, kind of melts all those

> defences and then all the hurt and need comes up and it HURTS. It's

> natural

> to want to keep those feelings down, and the defenses up. That's why it's

> easier to try to make people hate us. We can cope with people beign angry

> with us or whatever, but kindness just cuts through all those walls. ~

> Para...

>

> Faith, no matter what we believe in is an important motivator in life.

> There

> are reasons why something is the way it is, though we dont always know

> why.

> Problems are never a way to punish us, sometimes they are a way of making

> us

> better and stronger, more compasionate and knowlegable people inside. We

> may worry, we may feel down on the world but we must always remember that

> faith is what brings us together and that god, no matter what we call him

> or

> her has not punnished us, only trusted us with an extra special gift. ~ Me

>

> My Blog Space: http://neutralufo.blogspot.com/

>

>

[Guest guest]

it was explained to me as " really really pleased "

Cole

>

> What does chuffed mean? like happy? lol sorry, only referencded ive

> heard to

> " chuff " is like marijuana

>

> That is great that jessica is doing well, hope elly is doing well to?

> and thats really good about the charge gathering there as well

>

>

> Belinda

>

>

[Guest guest]

Oi.YOu cant say " root " ! its a dirty word!!!

>

> it was explained to me as " really really pleased "

> Cole

>

>

> On 11/14/06, _Belinda _ <belindalouise@...<belindalouise%40gmail.com>>

> wrote:

> >

> > What does chuffed mean? like happy? lol sorry, only referencded ive

> > heard to

> > " chuff " is like marijuana

> >

> > That is great that jessica is doing well, hope elly is doing well to?

> > and thats really good about the charge gathering there as well

> >

> >

> > Belinda

> >

> >

[Guest guest]

Hi Simon Flo and girls,

this is very reassuring as we are now being passed on to the surgeons for

the next stage of Amelies implant, we know that her auditory canal is narrow

from CT scan and nothings normal looking on it, but the surgeons want an MRI

scan, so i presumed they were negative and about to say no!! but this is

promising if 's still went ahead, i will keep my fingers crossed its

not over yet!!

cheers Simon and have a great day Saturday maybe next year Amelie will be

older stronger etc and we can join you in London! love Les x

>

> Hi everyone

>

> Well I'm just about maintaining control of all the posts here but have not

> been able to really reply to any since I have been busy with the Support

> Group here. I have been arranging a family day in London for this coming

> Saturday. There are over 20 families coming which is the second largest

> gathering in this country. I am looking forward to it although it is going

> to be busy. We are holding it at Sense's family centre in London and they

> have have not had more than 60 people at the centre before - there are

> going

> to be 100! This centre has specialist hydrotherapy pool, gym, sensory,

> arts

> and music rooms.

>

> Back to before talking about her implant I want to tell a cute

> story

> that also shows how much has developed and is aware of what is

> going

> on. Tonight was downstairs while Elly had just gone to bed. Flo

> and

> I were also upstairs - J came upstairs opened Elly's bedroom door (we were

> thinking what's she up to) and in the dark went over to Elly in bed to

> kiss

> her goodnight. Elly was so chuffed.

>

> 's cochlear implant - good luck with Meagan's implant -

> hopefully what I am about to say will give you comfort. Although nothing

> was

> apparent on her CT or MRI scan nothing was where it should be or formed

> correctly be it bone, nerve or ear 's surgeon was very pleased with

> the actual operation. This was in March, at her latest visit to the

> implant

> team it is clear that she can hear sounds across the range and very quiet

> sounds (she has a thin auditory nerve). She has been very successful at

> their tests. Outside of this environment is very happy to have her

> implant on, has to her name on several occasions and when we've been doing

> mouth shape work she has really tried to copy us.

>

> For those wondering how Flo is - she's knackered! She has a student at

> work

> and is also doing the practice teaching course to go with him. And Elly,

> well she is loving school learning to read etc.

>

> Simon

>

>