Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 I dont think I even really told you guys we were going on a trip. LOL Jeff and I and the kids went to Kansas City for a few days this week. We went to the University of Kansas to be part of a study on infants who have siblings with autism. So they wanted to see Miss Yessenia's brain waves. The plane trips both times were very good. The kids were great. Alec and Yessenia slept both times almost the entire way and no drugs even! But they were both still getting over some pretty bad colds. Greggory loved the plane trip but hated the pressure on his ears and head when we were landing. The day after we got there was very long. Testing for almost 11 hours. ugh. But we survived and Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the testing. LOL But what a verbal breakthrough! Yessenia cried most of the day. ugh. I believe she was bored stiff and very irritated at all of it. Greggory was as good as could be. They even measured my brain waves. Turns out that nuerologically I have a very extreme reaction to stimuli but dont seem to show it at all in my day to day life. Weird. But the dr was very concerned about Yessenia and thinks she needs therapy now. She beleives Yessenia is at very, very high risk for developing autism(if that is the right way to say it). Also BiPolar. ugh. I was very upset when she said that Yessenia is developmentally delayed as much as 4 months. That is alot for a 7 month old. Anyway, I will be back on the list for a few days and then I need to take a break. I hope (and I am sure you do) understand why I need to take this time. Jacquie H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 > Turns out that nuerologically I have a very extreme > reaction to stimuli but dont seem to show it at all in my day to day > life. Nerves of steel, huh? Weird. But the dr was very concerned about Yessenia and thinks > she needs therapy now. What??? She beleives Yessenia is at very, very high > risk for developing autism (if that is the right way to say it). Also > BiPolar. BUT SHE'S JUST A BABY!!! Jacquie, some doctors are alarmists. Surely she's too young for them to know this??? ugh. I was very upset when she said that Yessenia is > developmentally delayed as much as 4 months. That is alot for a 7 > month old. Was this based on testing or something else? Maybe she was just having a bad day? Anyway, I will be back on the list for a few days and then > I need to take a break. (((((((((Jacquie))))))))) Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 In a message dated 2/23/03 12:31:53 AM Eastern Standard Time, jacquie_harris@... writes: Jacquie I am so very sorry. You will be in our prayers. I so hope he's wrong. Hugs wendy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 ((((((((Jacquie)))))))) Big hugs to you. Have you been worried at all about Yessenia?? I may have missed it but haven't heard/read anything about it from you. I'm thinking this doc was being a little too cautious or an alarmist?? I realize I'm new to ASD and all the goes with it but I can't imagine a baby showing signs of anything like that yet. I do understand your need for a break and please know that I'm praying for you and thinking about you!!! Love, prayers and heart hugs... Debbie (Dawsonville, GA) - Mom to Evan (9/7/98) ToF, repair surgery on 2/11/99, Absent Pulmonary Valve, RBBB, Asthma, Autism, and , born 4/13/02....another miracle baby! And, of course, my three angel babies (10/16/95; 4/26/96; 10/5/00) who I will meet when God says it's time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Oh, Jacquie! I wish I had known you were here! I live in the town you were at: Lawrence, Kansas! Unless you were in Kansas City, Kansas at the University of Kansas medical center and even then you were about 30 miles away. I have been home with a sick kid since Wed. am, but we could have talked. If you ever have to come back for retesting, call me! Did they pay your way here? I know you are worried about Yessenia, but remember she IS only 7 months old and has a big future ahead of her. Nobody knows how she will be in 6mos, 1 year, 10 years, etc. not even the experts! You have experience and patience and knowledge about autism that none of those doctors have. You hang in there and coem to chat whenever you can for relief. Oh, man, I can't believe I missed seeing you'all. Leggs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 I need to take a break. I hope (and I am sure you do) understand why > I need to take this time. > Jacquie H (((((Jacquie))))) of course we understand....im sorry you got that news...but i guess its good that you can start getting help right away... Please keep in touch with us... I'll be thinking of You... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 > I dont think I even really told you guys we were going on a trip. LOL No, you didn't! I've been wondering where you were!! > Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the Woo-HOO!!! Go Alec! Wow!!! =) > life. Weird. But the dr was very concerned about Yessenia and thinks > she needs therapy now. She beleives Yessenia is at very, very high Oh, gosh. I'm so sorry. That must have been so very hard to hear. (( Where do you go from here? What kind of therapy was the dr talking about? And of course we understand you need some time. Just remember we're here to listen anytime. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 But we survived and > Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the > testing. LOL But what a verbal breakthrough! Great stuff! Yessenia cried most > of the day. ugh. I believe she was bored stiff and very irritated at > all of it. Greggory was as good as could be. They even measured my > brain waves. Turns out that nuerologically I have a very extreme > reaction to stimuli but dont seem to show it at all in my day to day > life. Weird. Truly! But the dr was very concerned about Yessenia and thinks > she needs therapy now. She beleives Yessenia is at very, very high > risk for developing autism(if that is the right way to say it). Also > BiPolar. ugh. I was very upset when she said that Yessenia is > developmentally delayed as much as 4 months. Hmm. Well, naturally you knew she was somewhat at risk, given that she has two ASD brothers. How is she delayed? And what kind of therapy? It must be hard for you to know whether there is any validity since you have only had autistic babies... I have heard that there are some very definite ways that you can show autism in a baby, but I do not remember the details. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 I wish I had remembered to tell you too. LOL We were on 42nd st in Kansas City. But we didnt have a car or anything. It was a pain in the butt! But we will be going back in 4 months. Anbd that time we will have a rental car the entire time! I agree that we just dont know what will happen with Yessenia down the road. I still think it is too early to tell. I do worry about some things but mostly I feel I just cant tell. I never thought she was behind in anything but babbling. ugh. Jacquie H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Thanks. I will be popping in from time to time. I just feel stressed right now and want to focus on really watching yessenia and making a journal to see what she is actually doing during the day and week. Jacquie H Re: Back from the trip I need to take a break. I hope (and I am sure you do) understand why > I need to take this time. > Jacquie H (((((Jacquie))))) of course we understand....im sorry you got that news...but i guess its good that you can start getting help right away... Please keep in touch with us... I'll be thinking of You... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Thanks. Me too! Jacquie H Re: Back from the trip In a message dated 2/23/03 12:31:53 AM Eastern Standard Time, jacquie_harris@... writes: Jacquie I am so very sorry. You will be in our prayers. I so hope he's wrong. Hugs wendy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 But we will be going back in 4 months. > >Oh, wow! Like in June when I am off school and Brandt is still in summer school? Like when I have time on my hands and can drive anywhere to visit as long as I pick him up by 4:00-4:30? Oh, wow! I may actually get to meet all of you that I have seen pictures of! Delightful! Keep me in mind for when you are here again. My phone number is (home) and . I live not too far off of the I-70 exit in Lawrence and I'd love to see you! Leggs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 I dont think I even really told you guys we were going on a trip. LOL Jeff and I and the kids went to Kansas City for a few days this week. We went to the University of Kansas to be part of a study on infants who have siblings with autism. So they wanted to see Miss Yessenia's brain waves. The plane trips both times were very good. The kids were great. Alec and Yessenia slept both times almost the entire way and no drugs even! But they were both still getting over some pretty bad colds. Greggory loved the plane trip but hated the pressure on his ears and head when we were landing. The day after we got there was very long. Testing for almost 11 hours. ugh. But we survived and Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the testing. LOL But what a verbal breakthrough! [>>] Really a breakthrough. Yessenia cried most of the day. ugh. I believe she was bored stiff and very irritated at all of it. Greggory was as good as could be. They even measured my brain waves. Turns out that nuerologically I have a very extreme reaction to stimuli but dont seem to show it at all in my day to day life. Weird. [>>] Yeah. Weird. But the dr was very concerned about Yessenia and thinks she needs therapy now. [>>] What kind of therapy? She beleives Yessenia is at very, very high risk for developing autism(if that is the right way to say it). Also BiPolar. ugh. [>>] Why did they make that conclusión? Is it something that came out of the testing or it is just because of her family history. I was very upset when she said that Yessenia is developmentally delayed as much as 4 months. That is alot for a 7 month old. [>>] I can imagine how worried you are. {{{{{{{{{{{Jacquie}}}}}}}}}}} Anyway, I will be back on the list for a few days and then I need to take a break. I hope (and I am sure you do) understand why I need to take this time. [>>] We understand. [>>] Cecilia, from Peru (mom to Dessiree 3½ yo) Lovely husband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Jacquie, I don't really know what to say. I'm really sorry the trip was such a downer. I'll be thinking good thoughts about Yessenia, and hopefully things will turn out okay. I also know all about taking a break. I needed to, but unlike you, I took the easy way out, and just went no-mail without telling anyone. I hope you can get some rest. Take care. HUGS!! MAryellen --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.456 / Virus Database: 256 - Release Date: 02/18/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Jacquie, I really hope that doc is wrong. Just what kind of therapy would he suggest for a 7 month old? Tuna ... sending good thoughts ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 > > I really hope that doc is wrong. Just what kind of > therapy would he suggest for a 7 month old? Tuna, started his Early Intervention through our school district at 6 months of age and at 9 months. They begin with PT and sensory integration therapy, body massage, etc., then have some time in small groups...the parents participate at this age. As they get older, they add OT if needed and the kids do more group activities where they are more into the singing, hand movements etc., then add speech. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 > They begin with PT and sensory integration therapy, body massage, etc., then have some time in small groups...the parents participate at this age. < sounds kind of fun, actually. i'm not really one for play groups, but at least you'd all have a common bond at this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 > Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the > testing. LOL But what a verbal breakthrough! It sure was! How WONDERFUL! >But the dr was very concerned about Yessenia and thinks > she needs therapy now. Whoa. Did you expect anything like that at all? It must have been such a blow. What kind of therapy does the Dr recommend for a 7 month old? Is it something you can access where you are? How is Jeff handling it? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 It's not a play group. It's a teacher leading parents in all of the activities we had. The parents were there to be the care givers of the little ones, help seat them, take directions, etc.. During music we would help the kids do hand motions (a bit older, of course). They would have the kids experience their hands in pudding, whipped cream, etc.. The kids in my kids groups had a different types of disabilities. But yes, you are right about at least having a common bond with the parents at this program. I must say, I sometimes wonder where my kids would be right now if they hadn't been in a program so very early... was in it for almost 5 years before we ever got to the autism diagnosis and you know how long it took for .... Sue ----- Original Message ----- > sounds kind of fun, actually. i'm not really one for play groups, but at least you'd all have a common bond at this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 I have been worried that Yessenia is not babbling yet and that she doesnt seem to want to coo back and forth with me and Jeff anymore. She did as a very small infant. She has just been very busy reaching alot of milestones so hopefully that is it. She was really very sick for about 5 weeks and that is when she stopped the cooing back and forth and really almost all cooing completely. Other than that I felt that she wasnt making good eye contact but I dont think that anymore. She seems to make really good eye contact but it usually isnt for very long. She seems to be very busy trying to take everything in. Jacquie H Re: Back from the trip ((((((((Jacquie)))))))) Big hugs to you. Have you been worried at all about Yessenia?? I may have missed it but haven't heard/read anything about it from you. I'm thinking this doc was being a little too cautious or an alarmist?? I realize I'm new to ASD and all the goes with it but I can't imagine a baby showing signs of anything like that yet. I do understand your need for a break and please know that I'm praying for you and thinking about you!!! Love, prayers and heart hugs... Debbie (Dawsonville, GA) - Mom to Evan (9/7/98) ToF, repair surgery on 2/11/99, Absent Pulmonary Valve, RBBB, Asthma, Autism, and , born 4/13/02....another miracle baby! And, of course, my three angel babies (10/16/95; 4/26/96; 10/5/00) who I will meet when God says it's time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 LOL...I guess I was so busy getting ready to go on my trip I forgot to tell anyone. Alec was incredible! He was so direct in his speaking. I wish I could have heard him or seen it but I wasnt there. He did it with Jeff. But he seems to have started speaking more again. This is good. As for Yessenia, I am still in a little bit of shock. I dont know if I really feel that this dr is accurate about Yessenia as I disagree with some of the sensory things she said Yessenia has. But I could just be in denial although it really isnt like me to be so. The dr was talking about ST to help train yessenia's mouth muscles to help her to babble. She also thought OT would help with sensory issues. Jacquie H RE: Back from the trip > I dont think I even really told you guys we were going on a trip. LOL No, you didn't! I've been wondering where you were!! > Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the Woo-HOO!!! Go Alec! Wow!!! =) > life. Weird. But the dr was very concerned about Yessenia and thinks > she needs therapy now. She beleives Yessenia is at very, very high Oh, gosh. I'm so sorry. That must have been so very hard to hear. (( Where do you go from here? What kind of therapy was the dr talking about? And of course we understand you need some time. Just remember we're here to listen anytime. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Thanks. Jacquie H RE: Back from the trip I dont think I even really told you guys we were going on a trip. LOL Jeff and I and the kids went to Kansas City for a few days this week. We went to the University of Kansas to be part of a study on infants who have siblings with autism. So they wanted to see Miss Yessenia's brain waves. The plane trips both times were very good. The kids were great. Alec and Yessenia slept both times almost the entire way and no drugs even! But they were both still getting over some pretty bad colds. Greggory loved the plane trip but hated the pressure on his ears and head when we were landing. The day after we got there was very long. Testing for almost 11 hours. ugh. But we survived and Alec actually said " NO! ANGRY! " to jeff. He did NOT want to do the testing. LOL But what a verbal breakthrough! [>>] Really a breakthrough. Yessenia cried most of the day. ugh. I believe she was bored stiff and very irritated at all of it. Greggory was as good as could be. They even measured my brain waves. Turns out that nuerologically I have a very extreme reaction to stimuli but dont seem to show it at all in my day to day life. Weird. [>>] Yeah. Weird. But the dr was very concerned about Yessenia and thinks she needs therapy now. [>>] What kind of therapy? She beleives Yessenia is at very, very high risk for developing autism(if that is the right way to say it). Also BiPolar. ugh. [>>] Why did they make that conclusión? Is it something that came out of the testing or it is just because of her family history. I was very upset when she said that Yessenia is developmentally delayed as much as 4 months. That is alot for a 7 month old. [>>] I can imagine how worried you are. {{{{{{{{{{{Jacquie}}}}}}}}}}} Anyway, I will be back on the list for a few days and then I need to take a break. I hope (and I am sure you do) understand why I need to take this time. [>>] We understand. [>>] Cecilia, from Peru (mom to Dessiree 3½ yo) Lovely husband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Thanks. I am feeling better today. Jacquie H RE: Back from the trip Jacquie, I don't really know what to say. I'm really sorry the trip was such a downer. I'll be thinking good thoughts about Yessenia, and hopefully things will turn out okay. I also know all about taking a break. I needed to, but unlike you, I took the easy way out, and just went no-mail without telling anyone. I hope you can get some rest. Take care. HUGS!! MAryellen --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.456 / Virus Database: 256 - Release Date: 02/18/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 I hope the dr is wrong too. The therapy is ST and OT. To help with muscle training for her mouth and to help her with her tactile defensiveness that I really dont see at all. Hmmmmm Jacquie H Re: Back from the trip Jacquie, I really hope that doc is wrong. Just what kind of therapy would he suggest for a 7 month old? Tuna ... sending good thoughts ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Oh yes! It feels like I have completely forgotten what the NT world is really like. NTness is it's own sort of disorder in this house. Jacquie H Re: Back from the trip >And if she is NT then we we deal with that too. << > LOL! How that line tickled me! Yes, I imagine NT would (will) bring unprecedented challenges to your household!!! :-) Jacquie Quote Link to comment Share on other sites More sharing options...
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