Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 It is the first time she has ever noticed herself doing it. I felt so bad for her. I have looked up Tourette's Syndrome, it just doesn't seem to fit. Why not? She has done this since about the age of three. She also has facial tics. Especially given what you write above. Tourette's is very commonly co-morbid with Asperger's. My oldest has a dx of Tourette's as well as AS; has a couple with Tourette's. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 >> She has done this since about the age of three. She also has facial tics. > > Especially given what you write above. Tourette's is very commonly > co-morbid with Asperger's. My oldest has a dx of Tourette's as > well as AS; > has a couple with Tourette's. Yes, what Salli said. I too am curious why Tourette's doesn't seem to fit? I don't know of any other things that cause the symptoms you describe. But I'm not a neurologist. Have you seen one about this? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 And why wouldn't her phsychatrist mention this, I am so aggervated. Thanks for all your help. [>>] ******** My own experience tells me that sometimes doctors just suck. I know there must be a lot of good doctors out there, but why I haven’t known that much I cant tell. You have to be informed and this sometime is complicated. I hope you find some help for your child. This is obviously bothering her. Keep us inform, Cecilia, from Peru (mom to Dessiree 3½ yo) Lovely husband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 > I just re-looked at Tourette's and it very much does fit, my > husband and I have not looked into it for a couple of years > because of her neurologist, he said it would be arms flapping, Oh how frustrating. I'm sorry. It is awful what we have to go through to get our kids the proper dxs and treatments! TS is very much related to Asperger's and ADHD and I suppose you could consider many of the symptoms to be part of those dxs. Try to remember that her dx doesn't change WHO SHE IS. It only changes what you can do for her. also has a list of dxs after autism and that list seems to keep growing. It can be very frustrating and even frightening - how can a child with so many, many issues overcome them all and become a functioning member of society? But I try to see them as tools for getting him the services and treatments that he needs, rather than...labels...or limitations...though it would help if the services he needs were actually available here...but anyway. I hope I am making a little bit of sense here and not just rambling, or worse, offending you. -Sara. Wife to Matt SAHM to (3.5, autism) Gabe (21 mos, speech delay) and 'Punkin' due late May! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 And alittle upset, maybe I just wanted to believe it was part of Asperger Syndrome. It is just she has such a long dx already. And why wouldn't her phsychatrist mention this, I am so aggervated. Thanks for all your help. Tourette's, in my opinion, is relatively minor. One of the two psychologists who dx'ed Enrique with AS has Tourette's himself and dx'ed Enrique with that as well. Some Tourette's is really wild, but most is just ticc-y and there has to be some vocal stuff to get the dx, but it isn't that bad. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 My own experience tells me that sometimes doctors just suck. Yes. I know there must be a lot of good doctors out there, There are but they can be hard to find. but why I haven't known that much I cant tell. You have to be informed and this sometime is complicated. Yes, you have to do your homework before there is any point in talking to many professionals. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 I am not sure where to go from here. My husband just told me I need to stop doing all of this and not worry. Now THAT'S useful advice! But I can't there is so much going on with her that I need to find out everything and read about it all so that I can help her the best I can. I am just ready to crawl in the corner and cry! And knowing she is noticing it just plain out upsets me. Yeah, that would bother me too. I just don't have any way to help her most of the time and it sucks! There are some things you can do for Tourette's; I have never looked into it for Enrique cuz the AS was so much more of a problem, but if it is bothering her, there are some things to try. I just don't happen to know what they are as I pretty much forgot what Dr. Carr told me after Enrique was dx'ed. Enrique's Tourette's is pretty mild at the moment, I think, or maybe I am just used to him! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 > You are right, it really doesn't compare to the AS. And it is > not that big of deal to me, if she wasn't noticing it and it > wasn't bothering her. I will have to ask her doctor if he has Maybe just knowing what it is and that it's nothing to worry about will help her? I hope so anyway. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 Both of my sons do this type of thing. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 I have looked up Tourette's Syndrome, it just doesn't seem to fit. She has done this since about the age of three. She also has facial tics. Why doesn't it fit? No offense. Just wondering because it sounds very Tourette's-like to me. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 > I just re-looked at Tourette's and it very much does fit, my > > husband and I have not looked into it for a couple of years > > because of her neurologist, he said it would be arms flapping, <sigh> Some doctors! Besides, I thought arms flapping was a sign of autism. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 He probably just doesn't want you to be upset. You do what you need to do for your daughter. Sissi Quote Link to comment Share on other sites More sharing options...
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