Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Hi Everyone- has anyone made their own food to be administered either by g or j tube?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 yes! We have been doing it for years... Here's a reprint I wrote a coupleof years back: I make it using a " Vitamix " blender (www.vitamix.com) With that blender, you can put lots of good food in without having to water it down too much, as it is very powerful (Baskin Robbins uses them!) Now, you can probably use a regular blender, but if you want to get meat in there, you have to water it down a LOT if the blender will even do it. The Vitamix was expensive but is worth it - we have had ours for years! I just put in veggies (anything you can think of), fruit (same goes, any fruit), meat (mostly chicken or pork as beef tends to be really stiff drawing it up the tube) or fish (lots of salmon, but trout, tuna, haddock, pollock, as well), and olive oil. I also add some supplements I feel help her: ground flax seed, acidophilus, and calcium & Vitamin D (as per her pediatrician, Dr. Blake). We " top it off " with a few cans of pediasure. If it needs a bit of extra fluid, we'll drop a bit of pulpy orange juice in. I know, it sounds like a lot, but it's really not, we've got it down to a science (?) ha ha and once you get used to it, it's no big deal. We usually make enough for 2 lunches & 2 suppers from that, so we make it every couple of days. You could use your own formula just as a 'topping off' for the food you use. Introduce new foods just as you would a baby, only one at a time if they've never had it to check for allergies. Now, sometimes we DO cheat if we're in a hurry, etc and we'll throw in a can (gasp!) of Chunky chicken soup and a banana and call that lunch but most of the time, it's whole food, or if we're travelling we just buy baby food sometimes and mix it up with formula in a shaker bottle so we don't have to lug the Vitamix. She has also had leftover lasagnas, casseroles, etc - I put pretty much anything into her, but prefer the meat, veggie, fruit, oil & supplement routine... Please check with your child's doctor and dietician before going ahead on this, I'm not a doctor, just a bit adventurous! I still believe Kennedy will eat (she wants her medicine in her mouth now!) so I wanted her body to be used to processing all different foods, not just one specific formula if and when the day comes. Every so often (maybe once a year now as she grows) I will call the dietician with a " usual " mix up of the food and how many meals it lasts and she plugs it into the computer to see what we're missing. Recently, I discovered she was pretty low on fat, so we upped the olive oil and that brought everything up to snuff. It's important to keep a check on things as they grow. Hope this helps! http://www.chargesyndrome.info > > Hi Everyone- has anyone made their own food to be administered either > by g or j tube?? > > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Just a point of clarification as you're new: Kennedy is G tube fed; I'm not sure how this would go over with a j tube. She gets a " breakfast " , " lunch " , and " supper " in bolus feeds via a g tube, http://www.chargesyndrome.info > > yes! We have been doing it for years... > Here's a reprint I wrote a coupleof years back: > > I make it using a " Vitamix " blender (www.vitamix.com) With that blender, > you can put lots of good food in without having to water it down too much, > as it is very powerful (Baskin Robbins uses them!) Now, you can probably > use a regular blender, but if you want to get meat in there, you have to > water it down a LOT if the blender will even do it. The Vitamix was > expensive but is worth it - we have had ours for years! > > I just put in veggies (anything you can think of), fruit (same goes, any > fruit), meat (mostly chicken or pork as beef tends to be really stiff > drawing it up the tube) or fish (lots of salmon, but trout, tuna, haddock, > pollock, as well), and olive oil. I also add some supplements I feel help > her: ground flax seed, acidophilus, and calcium & Vitamin D (as per her > pediatrician, Dr. Blake). We " top it off " with a few cans of pediasure. If > it needs a bit of extra fluid, we'll drop a bit of pulpy orange juice in. > I know, it sounds like a lot, but it's really not, we've got it down to a > science (?) ha ha and once you get used to it, it's no big deal. We usually > make enough for 2 lunches & 2 suppers from that, so we make it every couple > of days. You could use your own formula just as a 'topping off' for the > food you use . > > Introduce new foods just as you would a baby, only one at a time if > they've never had it to check for allergies. Now, sometimes we DO cheat if > we're in a hurry, etc and we'll throw in a can (gasp!) of Chunky chicken > soup and a banana and call that lunch but most of the time, it's whole food, > or if we're travelling we just buy baby food sometimes and mix it up with > formula in a shaker bottle so we don't have to lug the Vitamix. She has also > had leftover lasagnas, casseroles, etc - I put pretty much anything into > her, but prefer the meat, veggie, fruit, oil & supplement routine... > > Please check with your child's doctor and dietician before going ahead on > this, I'm not a doctor, just a bit adventurous! I still believe Kennedy > will eat (she wants her medicine in her mouth now!) so I wanted her body to > be used to processing all different foods, not just one specific formula if > and when the day comes. Every so often (maybe once a year now as she grows) > I will call the dietician with a " usual " mix up of the food and how many > meals it lasts and she plugs it into the computer to see what we're > missing. Recently, I discovered she was pretty low on fat, so we upped > the olive oil and that brought everything up to snuff. It's important to > keep a check on things as they grow. > > > Hope this helps! > > http://www.chargesyndrome.info > > > > > > > Hi Everyone- has anyone made their own food to be administered either > > by g or j tube?? > > > > > > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Yes, Amita is oral now but we did something similar to lisa's method and basically gave her the food that we ate through her g-tube. I am not sure what is a j-tube or how this method would work with one. Talk to a nurse/doctor before you try anything.We have Amita even now on a very very restricted diet since she is allergic to a endless array of foods. she still has the g-tube as a back up just in case. deepta > > > > > > Hi Everyone- has anyone made their own food to be administered either > > > by g or j tube?? > > > > > > > > > > > > > > > > > -- > > " It is far better to grasp the universe as it really is than to persist in > > delusion, however satisfying and reassuring. " --Carl Sagan > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Hi ! Thanks so much for the answer. I have to tell you that your website on little Kennedy was the first thing I came across when I found out that my son, Aiden, has CHARGE. It was so helpful to me and I was inspired by you and your family! Anyway, Aiden is one year old now and has been fed breastmilk fortified with enfamil through his j-tube for the past year. We are switching him onto big-boy food now but I was shocked and disappointed when it (nutren jr) arrived...one of the biggest components of it was sugar. Since this is going to be his only source of nutrition, I was hoping there were more options out there. I spoke with Aiden's nutritionist today and she recommended trying Compleat pediatric blenderized formula which is amde from real food. With making homemade food, the nutritionist was concerned about clogging the tube since he is on continuous feeds. I am just going to have to do some experimenting with consistencies until I find the right one before trying it. Thanks again for the help! Beth > > > > > > Hi Everyone- has anyone made their own food to be administered either > > > by g or j tube?? > > > > > > > > > > > > > > > > > -- > > " It is far better to grasp the universe as it really is than to persist in > > delusion, however satisfying and reassuring. " --Carl Sagan > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Hi my name is , mom to a 18 monthold baby girl charger whos my little angel. Anyhow, there is a website that is also a message board like this that have parents who chose to take a blenderized diet route. You may want to take a look at it. http://health.groups.yahoo.com/group/Blenderized-Diet/ > Hi Everyone- has anyone made their own food to be administered either > by g or j tube?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Compleat is a good first step for sure. Glad you saw the web site - we couldn't really find much when K was born. I wondered about putting the food through a j tube - but at least Compleat is real food, better than nothing! Is there any talk of him going to a gtube sometime in the future? www.chargesyndrome.info > > Hi ! Thanks so much for the answer. I have to tell you that your > website on little Kennedy was the first thing I came across when I > found out that my son, Aiden, has CHARGE. It was so helpful to me and > I was inspired by you and your family! > Anyway, Aiden is one year old now and has been fed breastmilk > fortified with enfamil through his j-tube for the past year. We are > switching him onto big-boy food now but I was shocked and disappointed > when it (nutren jr) arrived...one of the biggest components of it was > sugar. Since this is going to be his only source of nutrition, I was > hoping there were more options out there. I spoke with Aiden's > nutritionist today and she recommended trying Compleat pediatric > blenderized formula which is amde from real food. With making > homemade food, the nutritionist was concerned about clogging the tube > since he is on continuous feeds. I am just going to have to do some > experimenting with consistencies until I find the right one before > trying it. Thanks again for the help! Beth > > > > > > > > > > Hi Everyone- has anyone made their own food to be administered > either > > > > by g or j tube?? > > > > > > > > > > > > > > > > > > > > > > > > -- > > > " It is far better to grasp the universe as it really is than to > persist in > > > delusion, however satisfying and reassuring. " --Carl Sagan > > > > > > > > > > -- > > " It is far better to grasp the universe as it really is than to > persist in > > delusion, however satisfying and reassuring. " --Carl Sagan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , thanks so much- I'll check it out! Beth > > Hi my name is , mom to a 18 monthold baby girl charger whos my > little angel. Anyhow, there is a website that is also a message > board like this that have parents who chose to take a blenderized diet > route. You may want to take a look at it. > > http://health.groups.yahoo.com/group/Blenderized-Diet/ > > > > Hi Everyone- has anyone made their own food to be administered either > > by g or j tube?? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Hey there! We just put through our order for a Vitamix mixer. One piece of info that will help you save money. If you can get your Dr. to write a letter or script saying that your child is strictly g-tube fed then you get one for $270. This is a reconditioned Super 5000 (without the dry canister, but that can be purchased additionally). I've also heard nothing but great things about this product. We haven't started giving Wyatt anything but Pediasure, but I'm anxious to get started. We hunt so the only meat we eat is wild game, and chicken (we have chickens, too). I'm hoping that this new diet will help him grow and thrive much more so than the pediasure. I would love to chat with y'all more about different recipes and such. Feel free to write me at wendyemond@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , that's great news - we paid about $650 for Kennedy's so that's AWESOME you got it for $270 http://www.chargesyndrome.info > > Hey there! > > We just put through our order for a Vitamix mixer. One piece of info > that will help you save money. If you can get your Dr. to write a > letter or script saying that your child is strictly g-tube fed then you > get one for $270. This is a reconditioned Super 5000 (without the dry > canister, but that can be purchased additionally). I've also heard > nothing but great things about this product. We haven't started giving > Wyatt anything but Pediasure, but I'm anxious to get started. We hunt > so the only meat we eat is wild game, and chicken (we have chickens, > too). I'm hoping that this new diet will help him grow and thrive much > more so than the pediasure. > > I would love to chat with y'all more about different recipes and > such. Feel free to write me at wendyemond@...<wendyemond%40hughes.net> > . > > > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 I used to make erikas food from natural foods, blend in blender etc. It was such a pain, the fish would always get stuck in the tube, in order to get it thin enough to pass iw ould have to add so much water. i finally gave up and only do fruits. What i have done is added lots and lots of natural vitamin supplements (omega 3,6,9, psp+ glyconutrients, Dr foster's greens, juice plus, encell, inflamax, img2000! also, i switched her to Soy bright beginings 3x/day. This has really decreased her secretions. Cathie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 You eat wild game??? YUM!!!!!!!!!!!!!!!!!!!!!!!! Sorry i know some ppl on this list might not like wild game but its soooooo yummmyyyyy! Ive had bear and moose. its been a while since ive had deer though. Bear is the best ) Chantelle > > > > Hey there! > > > > We just put through our order for a Vitamix mixer. One piece of info > > that will help you save money. If you can get your Dr. to write a > > letter or script saying that your child is strictly g-tube fed then you > > get one for $270. This is a reconditioned Super 5000 (without the dry > > canister, but that can be purchased additionally). I've also heard > > nothing but great things about this product. We haven't started giving > > Wyatt anything but Pediasure, but I'm anxious to get started. We hunt > > so the only meat we eat is wild game, and chicken (we have chickens, > > too). I'm hoping that this new diet will help him grow and thrive much > > more so than the pediasure. > > > > I would love to chat with y'all more about different recipes and > > such. Feel free to write me at wendyemond@... > <wendyemond%40hughes.net> > > . > > > > > > > > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2006 Report Share Posted November 11, 2006 do you grow your own vegetables too? just curious? Cole > > Hey there! > > We just put through our order for a Vitamix mixer. One piece of info > that will help you save money. If you can get your Dr. to write a > letter or script saying that your child is strictly g-tube fed then you > get one for $270. This is a reconditioned Super 5000 (without the dry > canister, but that can be purchased additionally). I've also heard > nothing but great things about this product. We haven't started giving > Wyatt anything but Pediasure, but I'm anxious to get started. We hunt > so the only meat we eat is wild game, and chicken (we have chickens, > too). I'm hoping that this new diet will help him grow and thrive much > more so than the pediasure. > > I would love to chat with y'all more about different recipes and > such. Feel free to write me at wendyemond@...<wendyemond%40hughes.net> > . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 I wish we could have a garden. Our growing season is to short. I thought about doing a greenhouse but the winds we get here would destroy it. Quote Link to comment Share on other sites More sharing options...
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