Re: We're back from Norway

[Guest guest]

Welcome home !

You've been missed! Sounds like a great time was had by all. I agree that

Elisabet should not have to suffer from these headaches. Good for you to

keep on the pursuit to get it resolved. Hugs, Rita

[Guest guest]

I'm so happy you all had a good time and that Elisabet did well on the

trip. I hope the neurologist will give you some much needed answers. I

suffered from migraines as a child and still do on occasion....mine are

triggered by hormone changes. I get them about 24 hrs before my cycle starts

and again about 24hrs before it ends. Going on birth control pills helped mine

for years but now that I'm off of them I get them again.

Good luck with it and welcome home.

Amy G.

We're back from Norway

We're home, and I just finished scanning through the more than 700

messages posted to this site during the three weeks we were away (it

took a while - we got back Monday evening). I can't say I read every

one, but I did my best to scan through most of them. I was so eager

to hear how everyone has been doing. It's always like coming home to

friends, when I've been away ... I rejoice with those with good news,

and send my prayers to those with sad news.

We had a wonderful time in Norway. Elisabet did great with taking her

medication and the time change both going and returning. We adjusted

the time of her prednisone gradually over several days and she didn't

have any problems. Her headaches were about the same as they are when

we are at home. She even held up okay during our 26 hour driving

marathon (16 hours one day and 10 hours the next) when we went up to

visit my husband's brother and his family way up north. The roads are

so narrow and curvy, we literally averaged 35 mph. during the

entire trip. The scenery is so spectacular though, the drive was more

than worth it. We took an extra day on the trip back down to his

mother's house. Thanks again for all the suggestions regarding

traveling. You all are fabulous role models for not letting this

disease limit you and what you can do in life.

Back to the headaches for a minute, I have scheduled an appointment

with a pediatric neurologist. I am just not satisified with the fact

that Elisabet lives with chronic headache pain. Her GP just

wants to try different meds, one at a time, to " diagnose " her that

way. He says a neurologist won't do anything different. Do any of

you have experience with this? Since the family doc wouldn't give us

a referral, I asked for one from her kidney doc. It will be

interesting to see what the neurologist says. I'd like to know more

of " why " it hurts before we just start trying different meds (we've

tried several already with no success yet).

In reading the many posts, there were so many I wanted to respond to,

but this is long already. , I'm so sorry to hear your latest lab

results. You will continue to be in my prayers. Welcome to all the

many new members. It's good to be home.

B., mom of Elisabet, 13

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