: to , Janay, Ellen, , and everyone

[Guest guest]

To all:

I needed your help, and you delivered. I want to write a lot now but

cannot. phoned, and we talked for over an hour. I remember a

time when I think she wanted to pretend that didn't exist (long ago);

well, that's ended. actually slapped a staff member today (Pam,

help!!!), and E. opined, probably correctly, that she had learned that from

someone. As far as Andy and I know has never been slapped nor

has she seen anyone slapped. I'm just so damn sad. E. wants to be

included via conference call on all of our regular team meetings. This is

great (she and my niece will eventually be K's guardians), but I truly don't

know if she's capable of being civil as we work through things.

I talked to the agency person responsible for the house today and

actually filled her in on all of the problems with the " primary " . We all have

a lot to think about and we'll do so and then talk on Monday.

, was it you who asked where we are: Springfield, Missouri. We

are " well connected " - years on the board of an arm of the Dept. of Mental

Health, along with other groups. A friend of mine started a home for folks

with autism years ago and now has many, many homes --- and swears

that she just cannot find good people to hire as staff. This isn't a

problem but a huge one locally in general. is not in a group home.

Right now, she's the only client in the house, but we hope to add one

other eventually. Housemates, not group home.

I will respond more directly to the suggestions ya'll sent as soon as I

can. Lord knows I need help, but is home for the weekend, and

things will be busy.

You know, I think with transition/adulthood issues the biggest thing is

probably checking on needed staff/supports (no matter the functioning

level of your CHARGEr), availability, problems, what you as parents can

do, etc. You'll be told that nothing can be done until your " child " enters the

adult services system, but that's hog wash.

Now, I must calm down.

Cannot begin to express how much you've meant to me today. Now, if

you can also tell me how to teach E. to be at least somewhat diplomatic.

Martha

[Guest guest]

she doesnt need to b diplomatic i dotn think she needs to b e if she is

anything like u r or y mum is my mum is anything but diplomatic LOL love u

>

> To all:

> I needed your help, and you delivered. I want to write a lot now but

> cannot. phoned, and we talked for over an hour. I remember a

> time when I think she wanted to pretend that didn't exist (long

> ago);

> well, that's ended. actually slapped a staff member today (Pam,

> help!!!), and E. opined, probably correctly, that she had learned that

> from

> someone. As far as Andy and I know has never been slapped nor

> has she seen anyone slapped. I'm just so damn sad. E. wants to be

> included via conference call on all of our regular team meetings. This is

> great (she and my niece will eventually be K's guardians), but I truly

> don't

> know if she's capable of being civil as we work through things.

> I talked to the agency person responsible for the house today and

> actually filled her in on all of the problems with the " primary " . We all

> have

> a lot to think about and we'll do so and then talk on Monday.

> , was it you who asked where we are: Springfield, Missouri. We

> are " well connected " - years on the board of an arm of the Dept. of Mental

>

> Health, along with other groups. A friend of mine started a home for folks

>

> with autism years ago and now has many, many homes --- and swears

> that she just cannot find good people to hire as staff. This isn't a

>

> problem but a huge one locally in general. is not in a group home.

> Right now, she's the only client in the house, but we hope to add one

> other eventually. Housemates, not group home.

> I will respond more directly to the suggestions ya'll sent as soon as I

> can. Lord knows I need help, but is home for the weekend, and

> things will be busy.

> You know, I think with transition/adulthood issues the biggest thing is

> probably checking on needed staff/supports (no matter the functioning

> level of your CHARGEr), availability, problems, what you as parents can

> do, etc. You'll be told that nothing can be done until your " child " enters

> the

> adult services system, but that's hog wash.

> Now, I must calm down.

> Cannot begin to express how much you've meant to me today. Now, if

> you can also tell me how to teach E. to be at least somewhat diplomatic.

> Martha

>

>

[Guest guest]

Martha,

I can tell you that finding good caregivers PERIOD is hard just about

everywhere. I'm sure I posted several months ago about the five

different Easter Seals personal assistants we had in Hawaii for

who seemed as if they were hired right off the street corner.

Also, my great-aunt is in a hospice in Chicago (to the tune of $3000

per month) and the nurses/aides there come in in the middle of the

night and steal petty things like hairspray, food and soap from her. I

give you kudos for wanting to deal with restraint and diplomacy.

Heaven knows if that was me, I'd be pleading temporary insanity in a

courtroom because I would not be able to keep myself from physically

hurting one of these people. I don't have any suggestions for you, but

please know that I'm thinking about you and your family.