SAMI (and all)

[Guest guest]

Hi Sami,

I had severe allergic reactions to ATD (PTU and

Tapazole)--so bad that I ended up in the ER--hives,

not breathing, swelling, itching, the works. I'm

allergic to five different classes of antibiotics (I

didn't know there were that many!), so when the

reactions to the ATDs started, I knew what was

happening and was immediately able to get help. It

was one year after the allergic reaction to PTU that

we did the RAI--in pill form.

Is Selenium over-the-counter or prescription? Should I

ask my doctor about it?

Stress doesn't help, I know, and I'm trying to reduce

the stressors in my life. I really conciously, take a

lot of deep breaths to just get through the day and

literally crash into bed at night. I don't have

support from my husband, and even though I've tried to

explain what I'm going through and to give him

snippets to read, he just doesn't want to listen. SO,

I don't say anything anymore to him.

I need to go back to work, because our money is

running out (especially with gas going up again), but

this up and down thyroid situation makes me unfocused,

tired and not able to work. I just don't know what to

do somedays.

Rightnow, I don't wish that I hadn't had the RAI, I

was so severly hyPER, that it was affecting my heart

and my doc was concerned about heart damage. While

the Inderal was helping, I was up to four Inderal per

day, wasn't sleeping, my mind and body were going 30

miles per minute, my hair was falling out, and RAI

really was the last resort as far as choice of

procedures went.

I do need a massage and was hoping for a gift

certificate from my husband on mother's day. I will

have to get a massage on my own. Stuff happened last

night after my son's baseball game which upset me

greatly and I had to finally let go and realize that

people will be people and that I really don't have to

be a part of it. My husband is the nicest the guy in

the world and would do anything for anybody, but he

tends to forgot that his wife and family need him

also. So, I came home, got the boys in bed and

relaxed with some chamomille tea. (THEN crashed into

bed!).

I just wish I could remember to take they synthroid

every morning. It's always on an empty stomach

(because somedays i literally forget to eat), but not

at the same time...sometimes 6:30 a.m., sometimes not

until 8:50 a.m. My short term memory loss is my

scariest symptom right now. The weight gain, I can

deal with and I hope it's temporary, but the memory

loss and lack of coordination is frightening somedays.

I'd better take my synthroid and get the rest of the

boys up.

TTYL,

Dot

--- Sami samkelly729@...> wrote:

> Dot,

> Something else to consider did they overdose you

> with the ATD to get

> the TSH to move? Then they gave you the RAI and

> that also made you

> really hypo. That is a game the docs like to do to

> Grave patients

> also after the RAI they will let you get really hypo

> trying to get the

> TSH to move when it can be surpressed for years.

> The more I read

> about RAI it should only be used as a last resort

> and for thyroid

> cancer. Sigh...can you tell I wish I had never done

> it?

>

> Lab ranges are different with every lab.

> Disregarding the TSH. Your

> T4 is about in the middle of the range and the T3 is

> clear at the

> bottom. You definitly need an increase in meds. I

> wonder if you are

> having conversion problems too. They say graves

> patients don't

> usually have problems there. I don't believe that

> anymore since I'm

> starting to have problems there also.

>

> Are you taking Selenium? That helps your body

> convert the T4 into T3

> which is what your body uses.

>

> Stress...Big Subject! I turned down a church

> position a few months

> before I ended up in the hospital with the Graves.

> I think I knew

> even then that something was wrong. I used to be

> the family

> peacemaker. Not anymore...I can't handle stress of

> any kind. Of

> course now I'm a caretaker for an 82 year old father

> and stress is an

> everyday thing with him. So I deal with what I can

> and the rest I

> pass to my sisters to deal with.

>

> Stress Wisdom from the groups.....yoga, Tai Chi,

> massages, acupunture,

> Tension Tamer tea, and Rescue Remedy.

>

> So far the only one I have tried is the Rescue

> Remedy once. I think I

> had an allergic reaction to it. So don't know if I

> will try that

> again. I was really upset when I tried it. It did

> help but my lips

> started to swell.

>

> Now that I have you totally confused...Why can't

> this be easier?????

>

> Sami

>

> >

> > Hey Sami,

> >

> > Are the ranges the same or different for everyone?

> On

> > my lab sheet it lists the ranges as:

> > TSH range: 0.350-5.500 and mine was 7.894 (In

> January

> > BEFORE the RAI, my TSH was .005!)

> >

> > T4, Free (direct) range: 0.61-1.76 and mine was

> 1.05

> >

> > Triiodothyronine, free, serum range 2.3-4.2 and

> mine

> > was 2.2.

> >

> > Can I get rid of stress? You KNOW i had to laugh

> out

> > loud! LOLOL! I DID turn over my volunteer

> concession

> > duties (44 hours per week---ALL volunteer time

> since

> > mid-March!) on Thursday night when my husband's

> father

> > died. It was hard for me to do that, since I'm

> very

> > type A and somewhat controlling when it comes to

> > making money and things I'm in charge over. BUT,

> by

> > the third day of not having to worry about the

> > concession stand, it really felt like a load was

> > lifted off my shoulders. I've begged for help in

> > there all season (tried to get help from the other

> > volunteer board members and other parents in our

> > league) and no one would ever step up. Now that

> I'm

> > not there, it is funny to me to see their emails

> > begging for help! BUT, I'm not stressed over that

> > anymore and I hope it improves my health.

> >

> > I need to start going to the gym again, I'm hoping

> > that will not only improve my weight and shape,

> but

> > also give me some energy. I had started working

> out

> > in January (after the ablation) and was doing fine

> > until the beginning of April--when I started the

> > Synthroid and hurt my knee at Parris Island with

> the

> > high school JROTC field trip. Thankfully, my knee

> has

> > healed and without the pain associated with that,

> I

> > should be able to start off slowly again with

> > exercise.

> >

> > I'll look at that Graves support group, too. I

> wish

> > we had a local " live " group in town, but I'm

> always

> > thankful for this one.

> >

> > :-)

> > Dot

> >

> >

>

>

>

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[Guest guest]

Dot,

Usually if you can't take PTU, you can can take Tapazole or vice

versa. Another game docs play with graves is to overdose you so that

you get the hives and then tell you Allergic have to do the RAI when

all you need is a dose decrease. Sigh.....they see this so often at

the graves group it's just sad.

Selenium is a vitamin supplement you can buy at the store.

It is surprising how much stress affects us all! Computer time is my

escape mostly. And I belong to a few fun groups where I have met some

really neat people. Can't do health all the time, have to balance it

out. My family doesn't understand my health at all either. I don't

bring it up around them anymore. Especially when they are going to do

something fun and I know I'm just not up to doing it. They don't get it!

Taking your meds is important....I keep mine right next to my bed with

a bottle of water and every morning before I get out of bed I take my

pill. I take my supplements with dinner and sometimes I do forget

them but I know my thyroid pill is the most important one I take so I

plan it for when I know I won't forget. I also do the pill cases so

if I start second guessing myself (which I do a lot). I only have to

look to see if I took it. Now if only I could get my father to use

pill cases. I think he forgets his meds often and he won't let me

help him. I think that is one of the last independent things he can

do still. Big Sigh!

Sami

>

> Hi Sami,

>

> I had severe allergic reactions to ATD (PTU and

> Tapazole)--so bad that I ended up in the ER--hives,

> not breathing, swelling, itching, the works. I'm

> allergic to five different classes of antibiotics (I

> didn't know there were that many!), so when the

> reactions to the ATDs started, I knew what was

> happening and was immediately able to get help. It

> was one year after the allergic reaction to PTU that

> we did the RAI--in pill form.

>

> Is Selenium over-the-counter or prescription? Should I

> ask my doctor about it?

>

> Stress doesn't help, I know, and I'm trying to reduce

> the stressors in my life. I really conciously, take a

> lot of deep breaths to just get through the day and

> literally crash into bed at night. I don't have

> support from my husband, and even though I've tried to

> explain what I'm going through and to give him

> snippets to read, he just doesn't want to listen. SO,

> I don't say anything anymore to him.

>

> I need to go back to work, because our money is

> running out (especially with gas going up again), but

> this up and down thyroid situation makes me unfocused,

> tired and not able to work. I just don't know what to

> do somedays.

>

> Rightnow, I don't wish that I hadn't had the RAI, I

> was so severly hyPER, that it was affecting my heart

> and my doc was concerned about heart damage. While

> the Inderal was helping, I was up to four Inderal per

> day, wasn't sleeping, my mind and body were going 30

> miles per minute, my hair was falling out, and RAI

> really was the last resort as far as choice of

> procedures went.

>

> I do need a massage and was hoping for a gift

> certificate from my husband on mother's day. I will

> have to get a massage on my own. Stuff happened last

> night after my son's baseball game which upset me

> greatly and I had to finally let go and realize that

> people will be people and that I really don't have to

> be a part of it. My husband is the nicest the guy in

> the world and would do anything for anybody, but he

> tends to forgot that his wife and family need him

> also. So, I came home, got the boys in bed and

> relaxed with some chamomille tea. (THEN crashed into

> bed!).

>

> I just wish I could remember to take they synthroid

> every morning. It's always on an empty stomach

> (because somedays i literally forget to eat), but not

> at the same time...sometimes 6:30 a.m., sometimes not

> until 8:50 a.m. My short term memory loss is my

> scariest symptom right now. The weight gain, I can

> deal with and I hope it's temporary, but the memory

> loss and lack of coordination is frightening somedays.

> I'd better take my synthroid and get the rest of the

> boys up.

>

> TTYL,

> Dot

>