Hypo ? Hyper? What am I????

May 10, 2007

Hi Group

I went to my doc to discuss the findings of the uptake and the

radiologist's findings were that I am hyper possibly due to Graves

disease. Origanally they told me I was hypo. My frees are normal and

believe me I asked and double asked the doc to go over my blood

results. he has now ordered for me to have an MRI to rule out any

pituatary disease. He says that my thyoid is working and trying to

handle all of the TSH the pituartary is putting out and wants to find

out why it isn't listening. Or is it the throid? And could it be

Graves or Hasimotos? No antibodies were found.

What now???? Please respond with any insight you may have on this

matter. I am totally exhausted!

Ali

May 10, 2007

Ali.. we need to ogle your lab results.. did you get copies?

Things that can show high TSH as well as high thyroid hormones can be

anything from a sick gland (dealing with antibodies) to hormone

resistance.. to a trashed thyroid feedback loop.. to the doc not reading

the numbers right or not taking the right tests.

TSH lags behind on what the body is up to too... so if you are in flux

the TSH might not have caught up yet.

Antibody levels fluctuate and could be at 'low tide' at the time of the

blood draw.

The doc might falsely thing that as long as the thyroid levels are 'in

normal range' that all is well and then feels a high TSH is showing

something else is wrong.. it could just as easily be that the TSH is high

cuz your thyroid hormone levels are too low and it's trying to get your

gland to put out more but it can't....

... so if the levels are low and the thyroid can't put on more.. the TSH

stays high.

Seeing your labs, so we know what he tested and what the levels look like

will help to answer some of the questions.

Topper ()

On Thu, 10 May 2007 20:38:48 -0000 " Alison Ahmuty " alioop11@...>

writes:

> Hi Group

>

> I went to my doc to discuss the findings of the uptake and the

> radiologist's findings were that I am hyper possibly due to Graves

> disease. Origanally they told me I was hypo. My frees are normal and

> believe me I asked and double asked the doc to go over my blood

> results. he has now ordered for me to have an MRI to rule out any

> pituatary disease. He says that my thyoid is working and trying to

> handle all of the TSH the pituartary is putting out and wants to

> find

> out why it isn't listening. Or is it the throid? And could it be

> Graves or Hasimotos? No antibodies were found.

> What now???? Please respond with any insight you may have on this

> matter. I am totally exhausted!

> Ali

May 10, 2007

-

Hi TOpper

YOu are totally talking like the doc. He explained the blood draw

and tide thing, too. I am confident in him thinking either Graves or

some other auto immune condition like Hashi's. I am not experiencing

hyper symptoms as much as the hypo symptoms. I am tired and slowing

down. However, I did loose 3 pounds from the other week. I am glad

he wants to do the MRI to check for a pituatary disease (i.e. tumor)

it will just be a long week until I have more answers.

Latest Levels:

TSH: 6.303

Free T3 84

free T4: 1.05

ANA negative

THis blood work originally indicate Hypo

US results are enlarged thyroid. No masses, nodules

Re-uptake Iodine scan: " Findings comparable w/ HYPERthyroidism most

likely on the basis of GRAVES Disease. " Uptake @ 4 hours is 29.3%.

Uptake @24hours is 54.4%.

What do you think? The Doc was pretty much blown away.

Thanks, Ali

-- In The_Thyroid_Support_Group , topper2@... wrote:

>

> Ali.. we need to ogle your lab results.. did you get copies?

>

> Things that can show high TSH as well as high thyroid hormones can

be

> anything from a sick gland (dealing with antibodies) to hormone

> resistance.. to a trashed thyroid feedback loop.. to the doc not

reading

> the numbers right or not taking the right tests.

>

> TSH lags behind on what the body is up to too... so if you are in

flux

> the TSH might not have caught up yet.

>

> Antibody levels fluctuate and could be at 'low tide' at the time of

the

> blood draw.

>

> The doc might falsely thing that as long as the thyroid levels

are 'in

> normal range' that all is well and then feels a high TSH is showing

> something else is wrong.. it could just as easily be that the TSH

is high

> cuz your thyroid hormone levels are too low and it's trying to get

your

> gland to put out more but it can't....

>

> .. so if the levels are low and the thyroid can't put on more.. the

TSH

> stays high.

>

> Seeing your labs, so we know what he tested and what the levels

look like

> will help to answer some of the questions.

>

> Topper ()

>

> On Thu, 10 May 2007 20:38:48 -0000 " Alison Ahmuty "

> writes:

> > Hi Group

> >

> > I went to my doc to discuss the findings of the uptake and the

> > radiologist's findings were that I am hyper possibly due to

Graves

> > disease. Origanally they told me I was hypo. My frees are normal

and

> > believe me I asked and double asked the doc to go over my blood

> > results. he has now ordered for me to have an MRI to rule out

any

> > pituatary disease. He says that my thyoid is working and trying

to

> > handle all of the TSH the pituartary is putting out and wants to

> > find

> > out why it isn't listening. Or is it the throid? And could it be

> > Graves or Hasimotos? No antibodies were found.

> > What now???? Please respond with any insight you may have on

this

> > matter. I am totally exhausted!

> > Ali

>

May 11, 2007

What are the ranges on the Free T4 and the Free T3.

Grave's.. maybe.. but with a TSH that high? Seems odd. I'd lean more

toward Hashi's.. that would account for the swings...

See if you can scrounge your ranges, that will help...

Good that he's curious and not just throwing in the towel. Curious is a

LOT better than indifference.

Topper ()

On Fri, 11 May 2007 02:34:09 -0000 " Alison Ahmuty " alioop11@...>

writes:

> -

> Hi TOpper

> YOu are totally talking like the doc. He explained the blood draw

> and tide thing, too. I am confident in him thinking either Graves

> or

> some other auto immune condition like Hashi's. I am not

> experiencing

> hyper symptoms as much as the hypo symptoms. I am tired and slowing

> down. However, I did loose 3 pounds from the other week. I am glad

> he wants to do the MRI to check for a pituatary disease (i.e.

> tumor)

>

> it will just be a long week until I have more answers.

> Latest Levels:

> TSH: 6.303

> Free T3 84

> free T4: 1.05

> ANA negative

>

> THis blood work originally indicate Hypo

> US results are enlarged thyroid. No masses, nodules

> Re-uptake Iodine scan: " Findings comparable w/ HYPERthyroidism most

> likely on the basis of GRAVES Disease. " Uptake @ 4 hours is 29.3%.

> Uptake @24hours is 54.4%.

>

> What do you think? The Doc was pretty much blown away.

>

> Thanks, Ali

May 11, 2007

Hi Topper

free ranges are

free T3 84 (85-205) This may look low, but he considers it normal

until a repeat,

free T4 1.05 (.61-1.76)

No Anirbodiees were found, could it still be hashi's?

Thanks for all of your help

Ali

- In The_Thyroid_Support_Group , topper2@... wrote:

>

> What are the ranges on the Free T4 and the Free T3.

>

> Grave's.. maybe.. but with a TSH that high? Seems odd. I'd lean more

> toward Hashi's.. that would account for the swings...

>

> See if you can scrounge your ranges, that will help...

>

> Good that he's curious and not just throwing in the towel. Curious

is a

> LOT better than indifference.

>

> Topper ()

>

> On Fri, 11 May 2007 02:34:09 -0000 " Alison Ahmuty "

> writes:

> > -

> > Hi TOpper

> > YOu are totally talking like the doc. He explained the blood

draw

> > and tide thing, too. I am confident in him thinking either

Graves

> > or

> > some other auto immune condition like Hashi's. I am not

> > experiencing

> > hyper symptoms as much as the hypo symptoms. I am tired and

slowing

> > down. However, I did loose 3 pounds from the other week. I am

glad

> > he wants to do the MRI to check for a pituatary disease (i.e.

> > tumor)

> >

> > it will just be a long week until I have more answers.

> > Latest Levels:

> > TSH: 6.303

> > Free T3 84

> > free T4: 1.05

> > ANA negative

> >

> > THis blood work originally indicate Hypo

> > US results are enlarged thyroid. No masses, nodules

> > Re-uptake Iodine scan: " Findings comparable w/ HYPERthyroidism

most

> > likely on the basis of GRAVES Disease. " Uptake @ 4 hours is

29.3%.

> > Uptake @24hours is 54.4%.

> >

> > What do you think? The Doc was pretty much blown away.

> >

> > Thanks, Ali

>

May 11, 2007

Look at the Free T3. Two guidelines aren't being met... the Free T3 is

below range.. NOT good.... it should be near the top.... having a free T3

lower in it's range than the Free T4 is in it's is for sure showing hypo.

Combine that with the TSH being over 6 and your symptoms you are hypo

right now. No doubt about it...

Where the thyroid levels fall in their ranges and how they compare to

each other, and symptoms, is the tell...

Topper ()

On Fri, 11 May 2007 11:31:51 -0000 " Alison Ahmuty " alioop11@...>

writes:

> Hi Topper

> free ranges are

>

> free T3 84 (85-205) This may look low, but he considers it normal

> until a repeat,

> free T4 1.05 (.61-1.76)

> No Anirbodiees were found, could it still be hashi's?

> Thanks for all of your help

> Ali

May 12, 2007

Your doc says there were no antibodies found, but I guess I'm just not

remembering where you posted results of antibodies testing. Did you ask him

to call out the particular test names and results to you, or did he just say

no antibodies found? I think it's very good that he's doing that MRI now,

as so many docs don't even know that it's routine with other forms of

thyroid disease. If your TSH is high, that means that the pituitary IS

working. If it was zilch nada zip, that would mean it's not working to

stimulate your thyroid gland. However, there are antibodies that work at

the site of the pituitary and the hypothalamus. It gets complicated

diagnosing all this, and you really need someone who knows what they're

doing. I think that Topper has the genetic quirk with no antibodies. The

pituitary stimulates, and the thyroid runs a hundred miles per hour, yet no

antibodies. The genetic thyroid resistance symdrome has the picture of

normal of high or normal TSH (without being treated with meds), high