Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hello, I was taking .15 mg myself and was really feeling tired. I actually felt better taking cytomel. Anyways, at the last visit I had bloodwork done and my endo lowered it down to 0.125. I feel alot more energized. Good news for me is that the bloodwork showed my TSH to be less than 0.8 which is great. No measurable thyroid activity aka NO BAD CELLS DETECTED. I have follow-up now in 6 months. If that's clear, we may go to 1 year. Whooaa....Take Care Bob > Hi! > > It's been a few weeks since I posted because I've not felt worth a > darn to do anything once I get home from work, but I'm taking a lunch > today and wanted to let everyone know how much I appreciate your > responses before and after my TT. > > The good news is that my parathyroids have kicked back in. > Hallelujah!!! No more Rocaltrol & calcium!! And I'm feeling better > (not great...but better). I'm still having some nasty stomach > cramping every day, a dull headache and some fatigue but we're still > trying to get my synthroid adjusted. I'm able to work and do most of > my normal stuff now even though I don't feel totally up to snuff. > > Last time my synthroid was too low at 100mcg. Then the doc upped it > to 150mcg which made my T4 quite high--off the chart--according to > the lab sheet. (I can't remember what my TSH was.) Now, as of today, > I'm at 125mcg. All of this running back and forth to the hospital > for blood work and check ups is wearing me out, figuratively > speaking; but it beats the alternative. > > I've noticed that some people take varying dosages of their thyroid > replacement hormone from one week to the next...why is that, and how > would my doctor know if I need that kind of variable dosing schedule? > Can y'all tell me what blood level range for > TSH/T4/T3/Calcium/Magnesium/Phosphorous is typically better on most > folks? > > I've heard so much that I can't really grasp where most people do and > don't feel their best...and how long it usually takes to get to a > comfortable range? I appreciate any insights, and hope everyone is > doing well. > > Cheers! > > Michele (in TX) > TT 07/21/03 Follicular Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Subject: GOOD NEWS! > I've noticed that some people take varying dosages of their thyroid replacement hormone from one week to the next...why is that, and how would my doctor know if I need that kind of variable dosing schedule? > Can y'all tell me what blood level range for TSH/T4/T3/Calcium/Magnesium/Phosphorous is typically better on most folks? > Hi, , Glad you're feeling better and things are looking up. Varying the dose is a way to get " in between " pill-sizes. Sometimes you just want a very small overall average (per week) change in your dose. I went from 150mcg/day, to 150x6 days + 75 on the 7th, to 150 on 6 days (anothe option would have been 150x 5 days + 75 on the other 2). (note -- this is 128/day, which is probably " close enough " to 125, but doing the variation thing saved me from having to keep buying new pills!) Blood test about 7 weeks after each adjustment, of course, to make sure that TSH was suppressed enough but the FT4 wasn't too high. I don't know about the calcium,etc. test numbers -- I would imagine that you want them " normal " . But then, I didn't have any para problems. And, depending on your age/menopause status, keeping up with DEXA scan annually at least for a while. Mine has went from fairly stable to a definite downward change this year, so I've started good ole Fosamax (another good reason to have one day without another empty-stomach med, since Fosa has to be not only on empty stomach first in the a.m. but by itself & wait to eat or take any other meds!) bj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 > What is a DEXA scan? It's a bone density scan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Congratulations, Bob, on your TSH of 0.8! You must be feeling really good about that. Mine is .74 (lower than .8) too. So, are you taking Cytomel now, or something else? Why is it that some doctors don't like to give cytomel? Mine says that the American Medical Association recommends against it, but I've heard so many people say that it helped them tremendously. At this point, I'm willing to try anything to get my mind and energy back. I'll keep my fingers crossed and say a little prayer that things are good for you in 6 months...and a year from now! Take care, Michele (in TX) TT 07/21/03 Follicular > > Hi! > > > > It's been a few weeks since I posted because I've not felt worth a > > darn to do anything once I get home from work, but I'm taking a > lunch > > today and wanted to let everyone know how much I appreciate your > > responses before and after my TT. > > > > The good news is that my parathyroids have kicked back in. > > Hallelujah!!! No more Rocaltrol & calcium!! And I'm feeling better > > (not great...but better). I'm still having some nasty stomach > > cramping every day, a dull headache and some fatigue but we're > still > > trying to get my synthroid adjusted. I'm able to work and do most > of > > my normal stuff now even though I don't feel totally up to snuff. > > > > Last time my synthroid was too low at 100mcg. Then the doc upped > it > > to 150mcg which made my T4 quite high--off the chart--according to > > the lab sheet. (I can't remember what my TSH was.) Now, as of > today, > > I'm at 125mcg. All of this running back and forth to the hospital > > for blood work and check ups is wearing me out, figuratively > > speaking; but it beats the alternative. > > > > I've noticed that some people take varying dosages of their thyroid > > replacement hormone from one week to the next...why is that, and > how > > would my doctor know if I need that kind of variable dosing > schedule? > > Can y'all tell me what blood level range for > > TSH/T4/T3/Calcium/Magnesium/Phosphorous is typically better on most > > folks? > > > > I've heard so much that I can't really grasp where most people do > and > > don't feel their best...and how long it usually takes to get to a > > comfortable range? I appreciate any insights, and hope everyone is > > doing well. > > > > Cheers! > > > > Michele (in TX) > > TT 07/21/03 Follicular Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 That's very interesting, BJ! Amazing the things that can be done in medicine, huh? Hopefully, I won't have to keep up with that kind of schedule. I have a hard enough time remembering to take the pill, much less trying to remember what dose! Thanks for the info. Michele > From: " michelecruse " > Subject: GOOD NEWS! > > > I've noticed that some people take varying dosages of their thyroid > replacement hormone from one week to the next...why is that, and how would > my doctor know if I need that kind of variable dosing schedule? > > Can y'all tell me what blood level range for > TSH/T4/T3/Calcium/Magnesium/Phosphorous is typically better on most folks? > > > > Hi, , > Glad you're feeling better and things are looking up. > > Varying the dose is a way to get " in between " pill-sizes. Sometimes you just > want a very small overall average (per week) change in your dose. > > I went from 150mcg/day, to 150x6 days + 75 on the 7th, to 150 on 6 days > (anothe option would have been 150x 5 days + 75 on the other 2). (note -- > this is 128/day, which is probably " close enough " to 125, but doing the > variation thing saved me from having to keep buying new pills!) > > Blood test about 7 weeks after each adjustment, of course, to make sure that > TSH was suppressed enough but the FT4 wasn't too high. > > I don't know about the calcium,etc. test numbers -- I would imagine that you > want them " normal " . But then, I didn't have any para problems. And, > depending on your age/menopause status, keeping up with DEXA scan annually > at least for a while. Mine has went from fairly stable to a definite > downward change this year, so I've started good ole Fosamax (another good > reason to have one day without another empty-stomach med, since Fosa has to > be not only on empty stomach first in the a.m. but by itself & wait to eat > or take any other meds!) > bj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 > That's very interesting, BJ! Amazing the things that can be done in > medicine, huh? Hopefully, I won't have to keep up with that kind of > schedule. I have a hard enough time remembering to take the pill, > much less trying to remember what dose! Thanks for the info. > > Michele > It's really not that hard :-). I keep one of those 7 day pill containers by my bed. Every Sunday, I fill it. Half tablet for Friday, full tablet for the rest. Couldn't survive without that pill box (actually, I have 3 of them - one for the levoxyl, another for my lunch time meds and vitamins, and a third for my evening meds and vitamins (dinner time is a Viactiv calcium chew, which doesn't fit in a pill box :-)) Cheers, Alisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Way to Go ! It feels so good to get back into the swing of things, eh? I just dropped my daughter off at Pre-School and it felt wonderful to start back into our routine. Congrats on getting back to school. By the way, I'd love to hear some of the kids' responses on how you got your scar! LOL in PA age 30 (6/21) dx Hashimoto's 5/2000 dx pap by FNA 6/27/03 TT 7/17/03-main lesion 2.1x1.9x1.0cm on isthmus, multi-focal-pinpoint (1-3mm) lesions throughout both lobes, 1 lymph node removed, lesion from neck wall Accidentally got a parathyroid, couldn't remove from thyroid Currently on Cytomel, RAI scheduled 10/7/03 ~Our lives can change with every breathe we take... let go of the past... and embrace the future.~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 That's awesome !!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 Hi Turkey, Glad to hear your kidney function is good. That's great news. I didn't chime in before, but I suppose I also have adult HSP. Other than the kidney problems the rest of the symptoms seem to have went away. I say I suppose I have it because I did have the classic purpuric rash and it came and went every few days for about 3-4 months getting less intense each time. It finally went away and didn't come back but the hematuria (and every once in a while slight proteinuria) has stuck around. Based on kidney biopsy I definitely have IgA deposits so I'm being treated for mild IgAN at the moment. Funny you should mention the shortness of breath. My doctors chalk it up to stress but I have shortness of breath that seems to come and go for no rhyme or reason. I don't think it is characteristic of IgAN (unless maybe you have severely decreased kidney function), but it could *potentially* be associated with HSP because it can affect other organs. The lungs aren't a likely area to be affected but it can happen. I went through the whole x-ray, echocardiogram, chest MRI, etc spiel for it and they didn't find anything. Maybe it is stress, but it doesn't seem to coincide with stressful events. -Jack > I talked to my neph yesterday and last week's test results show that my > kidney function is unimpaired, my creatine(SP?) level is normal and the > protein level has been cut in half! I don't know what GFR is or what my > levels are. Still have breakouts of " the rash " ....hope it all just goes > away. Prednisone level has been cut to 25mg a day. > The cardiologist is next. Last nite I dreamt I had a heart attack and was > in the hospital! > > Thanks for all your posts, I'm learning more here than anywhere. > > I'm coping with all this, maybe not as well as I should, but coping. Since > this March I was misdiagnosed twice (ah, it's just an allergy) was then in > the hospital for 6 days trying to get diagnosed (and receiving IV > Prednisone) then got pneumonia (104 fever for 4 days), out of work for a > month, then the biopsy and the HSP diagnosis, now the shortness of breath. > I try not to take it out on the family. We were on vacation in Wyoming > (the best ever) and when I feel depressed or sorry for myself I go > outside, walk around and realize that there are a lot of people worse off > than me and I ask God to help me cope and thank Him for all the good > things we have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Hi Turkey, That is great to hear that your kidney function is unimpaired with a normal creatinine. That is the best possible news, and coupled with your protein being cut in half I'd say you are in good shape for now as far as the kidneys are concerned. Please do let us know what the cardiologist says. In a message dated 8/3/2005 6:15:12 A.M. Pacific Daylight Time, turkey@... writes: I talked to my neph yesterday and last week's test results show that my kidney function is unimpaired, my creatine(SP?) level is normal and the protein level has been cut in half! I don't know what GFR is or what my levels are. Still have breakouts of " the rash " ....hope it all just goes away. Prednisone level has been cut to 25mg a day. The cardiologist is next. Last nite I dreamt I had a heart attack and was in the hospital! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Hi Amy, How was your visit up to the top of Pikes Peak? I hope you could enjoy your sisters being there with you. Is the paranoia better? Bless your heart you just win the prize for the hardest time with the Prednisone. I can't wait until you are completely weaned off it! In a message dated 8/3/2005 9:43:19 P.M. Pacific Daylight Time, purrfect@... writes: I had a lousy night last night (nasty paranoia set in on my mind again and I couldn't sleep) then my sisters arrived a day early....I looked and felt like death warmed over but we went out anyhow and had a wonderful time. They cut today's visit short so I could get some rest and hopefully I'll get some good sleep tonight as they want to go up to the top of Pikes Peak tomorrow via the cog railway....it's really what I could use right now, looking down from the top of a 14,000+ foot mountain makes all your troubles sort of melt away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 I posted a few days ago about the results from my biopsy, but I think it got lost....weird. Anywho, great news! I am in the clear, nothing is wrong. the lump they removed contains no cancer. Soo, thank you to everyone for your prayers and encourgement and I will keep popping in here every now and then cause you are all amazing women!! Hugs, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 Jen excellent news! Big congratulations. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Good News! I posted a few days ago about the results from my biopsy, but I think it got lost....weird. Anywho, great news! I am in the clear, nothing is wrong. the lump they removed contains no cancer. Soo, thank you to everyone for your prayers and encourgement and I will keep popping in here every now and then cause you are all amazing women!! Hugs, Jen ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.412 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 Quote Link to comment Share on other sites More sharing options...
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