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Hi There!

I am brand new here, as well as to the diagnosis of breast cancer at

the age of 57. A couple months ago, I found a small palpable spot in

my right breast which I thought was probably scar tissue from surgery

years ago. My primary care physician could feel nothing, and repeat

mammograms showed no changes compared with previous years. But they

wisely referred me to a breast surgeon for further testing, saying

that a woman knows her body best. So I had an ultrasound with needle

biopsy, and they also took one from the other side... for good

measure.

On February 13th, you could have bowled me over when the pathology

results of the breast biopsies were confirmed as Invasive Ductal

Carcinoma in BOTH!! How common is it to have a first occurance of

cancer in BOTH breasts???

On February 18th, I went for Breast Specific Gamma Imaging. How many

of you have gotten your first clear view of your cancers using this

imaging method? No other spots were found in either breast, but the

lymph nodes do not show up in this procedure.

Now I am scheduled for surgery next Thursday (March 1st), for a

sentinel lymph node biopsy. Only then will we know the stage of the

cancer(s).

I have many decisions to make and I can sure use some input from

those who are also going through their trials or have gotten past the

worst of it.

My reaction since diagnosis is to get these " disgusting things " off

my body... " the gals on my chest " have let me down and I have no more

use for them. Is this a common reaction? I am antsy and just want to

get the ball rolling faster than it does.

Here's the crazy thing... almost two years ago, my neurologist told

me she thought I had all the symptoms of PARANEOPLASTIC SYNDROME, but

with no sign of the accompanying cancer. She ordered several MRIs

(chest, brain, and I forget what else) to see if there were any signs

of it, but they came up negative. She told me that sometimes the

cancer shows up later, so to keep vigilent. Then I lost insurance for

a year and had to quit seeing her. When I called to tell her the

recent diagnosis, she said that it sure seems to confirm her previous

diagnosis.

So here's another question for you all... is anyone in this group

familiar with Paraneoplastic Syndrome (please look up the info

online)? And if so, what can you tell me about your own experience

with it?

Penny (in Houston)

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I was 47- both breasts 5mm and 1mm. Came back 3 years later both

breasts again! 6mm and 6mm. Bilateral mastectomy done If only I had

known I would have done the mastectomy sooner. Marcia

>

> Hi There!

>

> I am brand new here, as well as to the diagnosis of breast cancer at

> the age of 57. A couple months ago, I found a small palpable spot in

> my right breast which I thought was probably scar tissue from surgery

> years ago. My primary care physician could feel nothing, and repeat

> mammograms showed no changes compared with previous years. But they

> wisely referred me to a breast surgeon for further testing, saying

> that a woman knows her body best. So I had an ultrasound with needle

> biopsy, and they also took one from the other side... for good

> measure.

>

> On February 13th, you could have bowled me over when the pathology

> results of the breast biopsies were confirmed as Invasive Ductal

> Carcinoma in BOTH!! How common is it to have a first occurance of

> cancer in BOTH breasts???

>

> On February 18th, I went for Breast Specific Gamma Imaging. How many

> of you have gotten your first clear view of your cancers using this

> imaging method? No other spots were found in either breast, but the

> lymph nodes do not show up in this procedure.

>

> Now I am scheduled for surgery next Thursday (March 1st), for a

> sentinel lymph node biopsy. Only then will we know the stage of the

> cancer(s).

>

> I have many decisions to make and I can sure use some input from

> those who are also going through their trials or have gotten past the

> worst of it.

>

> My reaction since diagnosis is to get these " disgusting things " off

> my body... " the gals on my chest " have let me down and I have no more

> use for them. Is this a common reaction? I am antsy and just want to

> get the ball rolling faster than it does.

>

> Here's the crazy thing... almost two years ago, my neurologist told

> me she thought I had all the symptoms of PARANEOPLASTIC SYNDROME, but

> with no sign of the accompanying cancer. She ordered several MRIs

> (chest, brain, and I forget what else) to see if there were any signs

> of it, but they came up negative. She told me that sometimes the

> cancer shows up later, so to keep vigilent. Then I lost insurance for

> a year and had to quit seeing her. When I called to tell her the

> recent diagnosis, she said that it sure seems to confirm her previous

> diagnosis.

>

> So here's another question for you all... is anyone in this group

> familiar with Paraneoplastic Syndrome (please look up the info

> online)? And if so, what can you tell me about your own experience

> with it?

>

> Penny (in Houston)

>

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Penny welcome to the group. I am glad you went to the breast surgeon but sorry

to hear about cancer in both breasts.

I had infiltrating ductal carcinoma, 1 bad node out of 23, 6 mo of chemo (12

treatments) no radiation or reconstruction. That was back in 1990 and I am doing

fine. I was 44 at that time.

I opted for a mastectomy with no reconstruction and never regretted it. The only

thing I do regret is not having both breasts removed. At that time we didn't

have a computer plus I didn't know of anyone with breast cancer. I will keep you

in my prayers.

Hugs

nne

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http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

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Check out my other ornaments at

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BRAND NEW HERE

Hi There!

I am brand new here, as well as to the diagnosis of breast cancer at

the age of 57. A couple months ago, I found a small palpable spot in

my right breast which I thought was probably scar tissue from surgery

years ago. My primary care physician could feel nothing, and repeat

mammograms showed no changes compared with previous years. But they

wisely referred me to a breast surgeon for further testing, saying

that a woman knows her body best. So I had an ultrasound with needle

biopsy, and they also took one from the other side... for good

measure.

On February 13th, you could have bowled me over when the pathology

results of the breast biopsies were confirmed as Invasive Ductal

Carcinoma in BOTH!! How common is it to have a first occurance of

cancer in BOTH breasts???

On February 18th, I went for Breast Specific Gamma Imaging. How many

of you have gotten your first clear view of your cancers using this

imaging method? No other spots were found in either breast, but the

lymph nodes do not show up in this procedure.

Now I am scheduled for surgery next Thursday (March 1st), for a

sentinel lymph node biopsy. Only then will we know the stage of the

cancer(s).

I have many decisions to make and I can sure use some input from

those who are also going through their trials or have gotten past the

worst of it.

My reaction since diagnosis is to get these " disgusting things " off

my body... " the gals on my chest " have let me down and I have no more

use for them. Is this a common reaction? I am antsy and just want to

get the ball rolling faster than it does.

Here's the crazy thing... almost two years ago, my neurologist told

me she thought I had all the symptoms of PARANEOPLASTIC SYNDROME, but

with no sign of the accompanying cancer. She ordered several MRIs

(chest, brain, and I forget what else) to see if there were any signs

of it, but they came up negative. She told me that sometimes the

cancer shows up later, so to keep vigilent. Then I lost insurance for

a year and had to quit seeing her. When I called to tell her the

recent diagnosis, she said that it sure seems to confirm her previous

diagnosis.

So here's another question for you all... is anyone in this group

familiar with Paraneoplastic Syndrome (please look up the info

online)? And if so, what can you tell me about your own experience

with it?

Penny (in Houston)

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Dear Lucinda,

I just wanted to tell you how much I enjoyed your post...it's refreshing to

see someone with your incredible sense of humor!! I had a double in 6/04 and

other than tennis, which I never did anyway, I have NO regrets. I wish you

all things beautiful as you proceed with treatment. I've been blessed with

an incredible man in my life for 25 years (April)...he wasn't a " boob " man

either! It's your heart, sister, not your boobs that make you a woman...

Best,

************************************** AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Welcome, Penny!

I want to respond to:

" My reaction since diagnosis is to get these " disgusting things " off

my body... " the gals on my chest " have let me down and I have no more

use for them. Is this a common reaction? I am antsy and just want to

get the ball rolling faster than it does. "

Me! Me! I want them off too! I have a tumor on the right breast, and

when I discussed options with my Breast surgeon (yes, that's all she

works with), she said I could have the whole breast removed and

reconstructed. I asked her what about just going ahead and removing

both with NO reconstruction? Or just do reductions so both would

match smaller(I wear a 40D bra and that's not very comfortable). She

said that was also an option. She questioned my feelings about my

breasts. I told that at my age (54), they serve no function except to

keep me from looking bottom heavy (I guess I'll have to work on the

belly & butt, right? LOL!) My husband was sitting right there, and

the look on his face was priceless! So the doctor asked him how he

felt, and I treasure his reply. " I'd rather have her " boobless " and

around for a long time. " Hmmmmm...he always said he was a leg and

thigh man...I thought he was just referring to chicken!

As far as a time line goes for me, I'm having chemo first, then the

surgery about mid-June. This works out just fine for me, since I'm a

teacher, and I have been able to keep up with school pretty well. I

take the Friday off for chemo, and then have the weekend and Monday

to recover. Then it's back to school for another 2-1/2 weeks until

the next treatment.

Keep us posted with how things are going. Can't say I'm having

a " blast " with this, but it sure is an interesting " lump in the road " !

Lucinda in VA

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I had cancer only in my left breast. When the doctor offered

either breast conserving surgery or a mastectomy, I chose a

mastectomy. And then I told him that if my insurance would cover

it, I'd like the right side removed as well. My surgery was in

December.

Now I'm flat and don't regret what I've done. I love not having to

wear a bra. I was a D cup, but only 5'3'', so I look more balanced

now, I think. I haven't even gotten prothesis (prothesises???) yet.

I'm able to wear shirts that button up the front w/o gapping. I'm

able to wear tight fitting shirts w/o looking like I'm advertising

my boobs. It is actually fun to shop for clothes now since I can

wear shirts that fit across the shoulders.

>

> Hi There!

>

> I am brand new here, as well as to the diagnosis of breast cancer

at

> the age of 57. A couple months ago, I found a small palpable spot

in

> my right breast which I thought was probably scar tissue from

surgery

> years ago. My primary care physician could feel nothing, and

repeat

> mammograms showed no changes compared with previous years. But

they

> wisely referred me to a breast surgeon for further testing, saying

> that a woman knows her body best. So I had an ultrasound with

needle

> biopsy, and they also took one from the other side... for good

> measure.

>

> On February 13th, you could have bowled me over when the pathology

> results of the breast biopsies were confirmed as Invasive Ductal

> Carcinoma in BOTH!! How common is it to have a first occurance of

> cancer in BOTH breasts???

>

> On February 18th, I went for Breast Specific Gamma Imaging. How

many

> of you have gotten your first clear view of your cancers using

this

> imaging method? No other spots were found in either breast, but

the

> lymph nodes do not show up in this procedure.

>

> Now I am scheduled for surgery next Thursday (March 1st), for a

> sentinel lymph node biopsy. Only then will we know the stage of

the

> cancer(s).

>

> I have many decisions to make and I can sure use some input from

> those who are also going through their trials or have gotten past

the

> worst of it.

>

> My reaction since diagnosis is to get these " disgusting things "

off

> my body... " the gals on my chest " have let me down and I have no

more

> use for them. Is this a common reaction? I am antsy and just want

to

> get the ball rolling faster than it does.

>

> Here's the crazy thing... almost two years ago, my neurologist

told

> me she thought I had all the symptoms of PARANEOPLASTIC SYNDROME,

but

> with no sign of the accompanying cancer. She ordered several MRIs

> (chest, brain, and I forget what else) to see if there were any

signs

> of it, but they came up negative. She told me that sometimes the

> cancer shows up later, so to keep vigilent. Then I lost insurance

for

> a year and had to quit seeing her. When I called to tell her the

> recent diagnosis, she said that it sure seems to confirm her

previous

> diagnosis.

>

> So here's another question for you all... is anyone in this group

> familiar with Paraneoplastic Syndrome (please look up the info

> online)? And if so, what can you tell me about your own experience

> with it?

>

> Penny (in Houston)

>

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>

> My reaction since diagnosis is to get these " disgusting things " off

> my body... " the gals on my chest " have let me down and I have no

more

> use for them. Is this a common reaction? I am antsy and just want

to

> get the ball rolling faster than it does.

--------------------------------

Hi Penny,

I can't answer your other questions, but, like you, my first reaction

was to get rid of a part of my body that had " betrayed " me.

Interestingly, I wanted to get *him* off my chest.....my breast had

changed sexes!! My hubby's reaction was to get that *thing* in the

trash can asap, soas to extend my life.

As to reconstruction, I just wanted to get the removal done without

complications and make that decision later...it's only been a few

months and still haven't decided.

Deal what's on your plate now, the future will take care of itself.

The sun will come out again for you.

Kathleen

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You wonederful, gracious ladies! What a blessing it is to share this life after

cancer with you all.

Thanks for bringing humor to the group.

ssist@... wrote:

Dear Lucinda,

I just wanted to tell you how much I enjoyed your post...it's refreshing to

see someone with your incredible sense of humor!! I had a double in 6/04 and

other than tennis, which I never did anyway, I have NO regrets. I wish you

all things beautiful as you proceed with treatment. I've been blessed with

an incredible man in my life for 25 years (April)...he wasn't a " boob " man

either! It's your heart, sister, not your boobs that make you a woman...

Best,

************************************** AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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