Re: nne and all of you great gals...

[Guest guest]

Thanks for the info. Wanted you and the other gals to know I woke up this

morning feeling a bit better..Thank Goodness......Yesterday " was " a bad

day........today is better. Slept most of the day......that's ok........must

have needed it

I want to say a " BIG THANK YOU " for all the support I get from all of

you........It means the world to me........

thanks again,

Darlene

& nne Svihlik moochie1@...> wrote:

Darlene,

I had a friend who suffered from Lupus for many years. They put a pump in her

back somewhere that she could press something and get an extra does of morphine,

I think it was. Of course you couldn't keep pumping away. Only so amny times in

an hour. Continued prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: Arimidex to Jan from Darlene

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that as helped me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do any

of my doc's. They all say it's from agressive treatment that I had and how it

affected me.......No wonder I am depressed is what I say........My physicality

is limited to a great degree. Something I am NOT used to.......and continue to

struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be halffull.........Don't

know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

[Guest guest]

Darlene glad to hear that you are doing better. We are always here when you need

us.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: Arimidex to Jan from Darlene

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that as helpd me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do

any of my doc's. They all say it's from agressive treatment that I had and how

it affected me.......No wonder I am depressed is what I say........My

physicality is limited to a great degree. Something I am NOT used to.......and

continue to struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness

there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be

halffull.........Don't know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

[Guest guest]

Glad that you are better today. Seems like this is a roller coaster. Sometimes

I wish the ride would just stop.

Will continue to keep you in my prayers.

andwemet03 andwemet03@...> wrote:

Thanks for the info. Wanted you and the other gals to know I woke up

this morning feeling a bit better..Thank Goodness......Yesterday " was " a bad

day........today is better. Slept most of the day......that's ok........must

have needed it

I want to say a " BIG THANK YOU " for all the support I get from all of

you........It means the world to me........

thanks again,

Darlene

& nne Svihlik moochie1@...> wrote:

Darlene,

I had a friend who suffered from Lupus for many years. They put a pump in her

back somewhere that she could press something and get an extra does of morphine,

I think it was. Of course you couldn't keep pumping away. Only so amny times in

an hour. Continued prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: Arimidex to Jan from Darlene

Hi Jan,

Wierd, but my pain started right after finishing chemo... I started having

massive pain in my back....there is where it all started......little by little

it worsend thru rad......it has continued since..........it was SO bad at one

point that I couldn't dress/take care of myself...Imagine.......through every

test there was...there was no dx. except for " long term side effects of tx....go

figure.......I was put on Femera and the doc's thought maybe that was

it.......yet the pain had started before so I don't know why they thought that

was it......anyway ...went off that..........no change..........ended up on

Arimidex.........had stopped that for a spell and didn't help. It's just

constant, period......on a scale of 1 to 10 I run about a 5 on a good

day...imagine? And that's with meds for pain.........I'm on

oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried

SO many things for pain and this is the only thing that as helped me).......some

days more cuz the pain is unbearable.........I just don't get it..neither do any

of my doc's. They all say it's from agressive treatment that I had and how it

affected me.......No wonder I am depressed is what I say........My physicality

is limited to a great degree. Something I am NOT used to.......and continue to

struggle with.......UGH!!!!!

If it wasn't for the mind stuff and the pain........I'd feel

better........DAH!!!!

Dunno.......take each day as it comes......

Through all this I have not had any swelling though........thank goodness there.

As I said just taking each day as it comes........

Sorry to be such a drag........my glass ALWAYS used to be halffull.........Don't

know what to do with myself anymore...

Darlene

Jan Koelsch jkoelsch1950@...> wrote:

Hi, Darlene:

The pain started for me a little at a time about the third day after starting

Arimidex. It started in my left knee for some strange reason. Then it started in

my left hip and back on the left side. Just this past week the pain started in

my right knee and had progressed to my hands and fingers. I have experienced

swelling in my calf of the left leg and thigh. The worst pain, almost

unbearable, is in the left knee. It feels like someone is trying to put a hot

searing fire poker through my knee cap from the side.

What kind of things are you experiencing?

Jan K

andwemet03 andwemet03@...> wrote:

Hi,

Can I ask a couple questions? When did your pain start? Was it only after

starting the Arimidex? And does your pain travel to different places in the

body? Like: sometimes it's worse in the back, them maybe worse somewhere else?

I'm surious because I too have pain issues. I'll be watching the posts to

follow......

thanks,

Darlene

jkoelsch1950 jkoelsch1950@...> wrote:

I did contact my new oncologist yesterday because the pain in my

knees, hips, back and the new pains and swelling in my hands and legs

were getting worse. The doctor told me to discontinue the Arimidex for

one or two weeks. He wants to see if it is the medication or something

else. At least he is listening to my concerns. I hope that the pain

eases.

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

[Guest guest]

Darlene,

Have you thought about seeing if your plan covers someone you could see for

" pain management " ? I can almost feel your pain through your posts and there

must be something that can be done as this is so unfair to you.

Hang in there!

************************************** AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

,

I see a physiadrist (a pain doc) for the pain...she's a lot of help at

times.......sometimes the pain is just SO overwhelming....it's crazy.........I

DO have good days though........NOT all are bad...........that's a good thing.

thanks,

Darlene

ssist@... wrote:

Darlene,

Have you thought about seeing if your plan covers someone you could see for

" pain management " ? I can almost feel your pain through your posts and there

must be something that can be done as this is so unfair to you.

Hang in there!

************************************** AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.