Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 I have not posted anything about in a long time. His condition changes so often and he is IN and OUT of the hospital so much, It is hard to keep up with updates. After his 3 heart surgeries, and the Nissen for reflux we thought he was out of the woods, but then he started having seizures, and several episodes of life threatening blue spells, he has coded and been brought back. Last night while in the hospital his heart stopped. They managed to start it again, and he is at Doernbecker. He is now 9 months old, and he has spent most of his life in and out of the hospital. The longest time at home was one month, after he first came home from NICU. Every other time he comes home from the hospital he ends up going back within a few days, usually due to respiratory distress or blue spells, and now with the seizures. Leon and Racheal, have ended up losing their business and are claiming bankrupcy. with the incredible emotional stress since was born, they continue to have a positive attitude and continue to grow in their +personal lives, becoming stronger. And as for me,'s grandma, I cry alot and pray for my family to be able to survive this tragedy. I wold like to ask if anyone here have children who have survived a cardiac arrest? has there been brain injury? Anyone with pacemakers? seizures that started around 6 months which have been very difficult to control? And to be honest with you, I think these super specialists really are confused and really dont know what is going on with . Wishing you All the very best for your families,even though I have not posted for some time, I do read as much as possible about you all. Liz Quote Link to comment Share on other sites More sharing options...
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