New here - Charge Conference - Babies? Siblings?

[Guest guest]

I've been reading posts here for a couple of months. Our daughter,

, was born 1/16/07 and has CHARGE. She spent her first 3 1/2

weeks in 3 different hospitals and was back in for a heart repair

surgery that went great. She is a little trooper and doing ok. We

don't take her anywhere except to the UW hospital/doctors and her pedi

to avoid getting sick since there she has so many medical issues.

We are thinking of going to the Charge conference in CA. My mom is

helping out while I work a few days a week and has offered to watch

while my husband and I go to the conference. Are others with

babies (under a year) bringing the babies? I would definately want to

take her to the next conference when she is 2 1/2. Are there siblings

attending the conference? 's 13 year old brother is

interested in going.

Margaret, mother of , 20, Dale, 13, and , 3 month CHARGEr

[Guest guest]

Hi Margaret!

We're planning on coming with our 3 children. My daughter Jordyn is

12, son Malik is 3 and daughter Rasha, who has CHARGE, is 20 months.

Hope to meet you there!

Janay from IL

>

> I've been reading posts here for a couple of months. Our

daughter,

> , was born 1/16/07 and has CHARGE. She spent her first 3

1/2

> weeks in 3 different hospitals and was back in for a heart repair

> surgery that went great. She is a little trooper and doing ok.

We

> don't take her anywhere except to the UW hospital/doctors and her

pedi

> to avoid getting sick since there she has so many medical issues.

>

> We are thinking of going to the Charge conference in CA. My mom

is

> helping out while I work a few days a week and has offered to

watch

> while my husband and I go to the conference. Are others

with

> babies (under a year) bringing the babies? I would definately want

to

> take her to the next conference when she is 2 1/2. Are there

siblings

> attending the conference? 's 13 year old brother is

> interested in going.

>

> Margaret, mother of , 20, Dale, 13, and , 3 month

CHARGEr

>

[Guest guest]

Margaret,

You would love the conference.. So much info there that will help you prepare

for the stuff you will have coming up, and finding a whole new family you didn't

jknow you had. as for sibs going, your son will find many kindred spirits

there, plenty of othere sibs, many his age.. I'm not sure about this conference

but past ones have had sessions for sibs and other activities for them.

Welcome to the list.

Casey

Mom to Dawn 28, Ken 17, and my not so little anymore CHARGEr 15

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[Guest guest]

Hi Margaret,

I too have an infant(7, almost 8 mos old) as well as a ten year old

CHARGEr(and a coupleof other kiddos in between:). I would strongly encourage

you to bring your son who is expressing an interest. There are always a lot

of sibs there and it's great for all involved. I can't stress enough how

wonderful the conferences are! I hope it all works out for you. This will

be our fifth conference. We're more excited than ever because we've made so

many new friends with the birth of our latest CHARGEr.

Hope to meet you there!

Corrie Young

mom to Peyton CHARGE 10, Cy 7, 4 and Tate CHARGE almost

8mos.

>

> I've been reading posts here for a couple of months. Our daughter,

> , was born 1/16/07 and has CHARGE. She spent her first 3 1/2

> weeks in 3 different hospitals and was back in for a heart repair

> surgery that went great. She is a little trooper and doing ok. We

> don't take her anywhere except to the UW hospital/doctors and her pedi

> to avoid getting sick since there she has so many medical issues.

>

> We are thinking of going to the Charge conference in CA. My mom is

> helping out while I work a few days a week and has offered to watch

> while my husband and I go to the conference. Are others with

> babies (under a year) bringing the babies? I would definately want to

> take her to the next conference when she is 2 1/2. Are there siblings

> attending the conference? 's 13 year old brother is

> interested in going.

>

> Margaret, mother of , 20, Dale, 13, and , 3 month CHARGEr

>

>

>

[Guest guest]

First Welcome to CHARGEland!!

This will be our 1st confernece also and I am bringing all my kids.

My daughter is 2 today and we are bringing her and her 2 brother who

are 11 and 4. I have to tell you I am so excited about it!!

Also you said UW hospital where are you from?

I hope to meet you there,

Crystal mom to (11), (4), and Eva (2 yr old CHARGEr)

wife to Dan in Illinois

>

> I've been reading posts here for a couple of months. Our

daughter,

> , was born 1/16/07 and has CHARGE. She spent her first 3

1/2

> weeks in 3 different hospitals and was back in for a heart repair

> surgery that went great. She is a little trooper and doing ok.

We

> don't take her anywhere except to the UW hospital/doctors and her

pedi

> to avoid getting sick since there she has so many medical issues.

>

> We are thinking of going to the Charge conference in CA. My mom

is

> helping out while I work a few days a week and has offered to

watch

> while my husband and I go to the conference. Are others

with

> babies (under a year) bringing the babies? I would definately want

to

> take her to the next conference when she is 2 1/2. Are there

siblings

> attending the conference? 's 13 year old brother is

> interested in going.

>

> Margaret, mother of , 20, Dale, 13, and , 3 month

CHARGEr

>

[Guest guest]

Hi Margaret!

I'm so glad you'll be coming to the conference, there really is nothing like

it to me. As for the baby, lots of babies have come to the conferences

before and been right in the sessions with us in their strollers or with a

grandma/other caregiver. My son is 16 and will be coming; my other son came

also a few years back at age 14 and really enjoyed himself. The siblings

seem to have a great time and I think it's great for them to see so many

other families who experience the same things their family does. When my

older son went a few years ago, he chummed around with another sib-brother

whose mom also participates on the list; maybe your boy can chum with them

this time!

www.chargesyndrome.info

>

> I've been reading posts here for a couple of months. Our daughter,

> , was born 1/16/07 and has CHARGE. She spent her first 3 1/2

> weeks in 3 different hospitals and was back in for a heart repair

> surgery that went great. She is a little trooper and doing ok. We

> don't take her anywhere except to the UW hospital/doctors and her pedi

> to avoid getting sick since there she has so many medical issues.

>

> We are thinking of going to the Charge conference in CA. My mom is

> helping out while I work a few days a week and has offered to watch

> while my husband and I go to the conference. Are others with

> babies (under a year) bringing the babies? I would definately want to

> take her to the next conference when she is 2 1/2. Are there siblings

> attending the conference? 's 13 year old brother is

> interested in going.

>

> Margaret, mother of , 20, Dale, 13, and , 3 month CHARGEr

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan Hi

[Guest guest]

My 11 year old daughter is really looking forward to returning for her

3rd conference & re-connecting with the other siblings (and daughters

of one of the presenters) she's met. It's a great experience for the

whole family. It helps to normalize everything that you feel like

you're experiencing all alone. We had our charger, Eddie, in the pool

wearing a t-shirt and a little boy asked if he had a g-tube button

under there Don't hesitate to bring your son.

joanne

> I've been reading posts here for a couple of months. Our daughter,

> , was born 1/16/07 and has CHARGE. She spent her first 3 1/2

> weeks in 3 different hospitals and was back in for a heart repair

> surgery that went great. She is a little trooper and doing ok. We

> don't take her anywhere except to the UW hospital/doctors and her pedi

> to avoid getting sick since there she has so many medical issues.

>

> We are thinking of going to the Charge conference in CA. My mom is

> helping out while I work a few days a week and has offered to watch

> while my husband and I go to the conference. Are others with

> babies (under a year) bringing the babies? I would definately want to

> take her to the next conference when she is 2 1/2. Are there siblings

> attending the conference? 's 13 year old brother is

> interested in going.

>

> Margaret, mother of , 20, Dale, 13, and , 3 month

> CHARGEr

[Guest guest]

welcome to charge land

>

> My 11 year old daughter is really looking forward to returning for her

> 3rd conference & re-connecting with the other siblings (and daughters

> of one of the presenters) she's met. It's a great experience for the

> whole family. It helps to normalize everything that you feel like

> you're experiencing all alone. We had our charger, Eddie, in the pool

> wearing a t-shirt and a little boy asked if he had a g-tube button

> under there Don't hesitate to bring your son.

> joanne

>

>

>

> > I've been reading posts here for a couple of months. Our daughter,

> > , was born 1/16/07 and has CHARGE. She spent her first 3 1/2

> > weeks in 3 different hospitals and was back in for a heart repair

> > surgery that went great. She is a little trooper and doing ok. We

> > don't take her anywhere except to the UW hospital/doctors and her pedi

> > to avoid getting sick since there she has so many medical issues.

> >

> > We are thinking of going to the Charge conference in CA. My mom is

> > helping out while I work a few days a week and has offered to watch

> > while my husband and I go to the conference. Are others with

> > babies (under a year) bringing the babies? I would definately want to

> > take her to the next conference when she is 2 1/2. Are there siblings

> > attending the conference? 's 13 year old brother is

> > interested in going.

> >

> > Margaret, mother of , 20, Dale, 13, and , 3 month

> > CHARGEr

>

>