Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 Hi, Darlene: The pain started for me a little at a time about the third day after starting Arimidex. It started in my left knee for some strange reason. Then it started in my left hip and back on the left side. Just this past week the pain started in my right knee and had progressed to my hands and fingers. I have experienced swelling in my calf of the left leg and thigh. The worst pain, almost unbearable, is in the left knee. It feels like someone is trying to put a hot searing fire poker through my knee cap from the side. What kind of things are you experiencing? Jan K andwemet03 andwemet03@...> wrote: Hi, Can I ask a couple questions? When did your pain start? Was it only after starting the Arimidex? And does your pain travel to different places in the body? Like: sometimes it's worse in the back, them maybe worse somewhere else? I'm surious because I too have pain issues. I'll be watching the posts to follow...... thanks, Darlene jkoelsch1950 jkoelsch1950@...> wrote: I did contact my new oncologist yesterday because the pain in my knees, hips, back and the new pains and swelling in my hands and legs were getting worse. The doctor told me to discontinue the Arimidex for one or two weeks. He wants to see if it is the medication or something else. At least he is listening to my concerns. I hope that the pain eases. --------------------------------- Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 I had the same experience with my bul mail, too. What gives with that? Glad I checked my bulk mail. How do I handle the pain? I don't know. I just do. I have had numerous things in my life that created pain for a time so I guess I get used to it and keep going because I have to. The pain I have now has started since the Arimidex. Since the doctor stopped it on a trial basis, it is less but still intense. The searing and burning pain in my left knee is much less. I will be interested in what the pain is like after two weeks. I learned from my oncologist that my chances of cancer coming back is 78.5% without any kind of adjutant therapy like Arimidex. With Arimidex it only increases the chances by 9.2% or about 88%. Not much difference with it or without it. Since the percentage is really good without it, I am considering stopping it altogether. However, I am going to wait til after my three month mammogram and ultrasound. Hope you have good health and wholeness through all this. Take care and my prayers are that you will many pain free days. Jan K andwemet03 andwemet03@...> wrote: Hey there, Geez......for some reason I just checked my " bulk " mail......and there are some e-mails from the group....low and behold one of them from you......guess I need to check that more often.....wonder why that happened? Never has before.......Anyway..... I have a physiodrist (?spelling) that's a doc that specializing in pain, on board. She helps quite a bit with all her needle's and all........Geez..7 on a pain scale is QUITE bad.....how do you handle it? Your right.......one does appreciate the little things....let me tell you. Being able to bend with out pain......so on and so on.....I have been on SO many meds..nothing seemed to work therefor now the oxy. It doesn't make me feel wierd in any way though......just eases the pain. I truly don't believe that it's the Arimidex that causes my pain..as I started having it WAY before I started taking the Arimidex......I actually stopped taking it for a bit to see if there would be any lessening of pain..NOPE. So I went back on it.....Don't dare stop it.....Know what I mean? The Arimidex hasn't lessened my appetite......I LOVE to eat!!!!! Today has been a pretty good one pain wise....AMEN to that.......Yes, let me know what you find out.......That would be great.......You take care as well thanks again, Darlene Jan Koelsch jkoelsch1950@...> wrote: Hey, Girlfriend, I fully understand about the pain. Does seem strange that this started after finishing chemo. Have you thought about a pain management type doctor? My oncologist brought in a doctor of that nature at my next to the last appointment. I don't think his recommendation helped but maybe the new oncologist will figure something out. My pain on a good day, on a 1 to 10 scale, is about 7. Funny how the little things can be so appreciated when we don't have them, like a pain free day. I can't imagine being on oxycodone 4x a day at any dosage. I wonder if there is any meds in the arthritis or rumathoid (sp?) arthritis field that would help. I would be tempted to contact the manufacturer of Arimidex to see if there is anything they suggest to ease the " bone pain " problem. I may try that tomorrow. I will let you know what I find out. Have you looked at any websites on Arimidex for further information? I found with food allergies that the more I read and the more information I gathered the more it helped me. And besides that, it took my mind off the problems with the allergies. I do know with Arimidex I have less appetite. And for me that is a good thing. You take care of yourself and maybe together with suggestions from other people we can make life with Arimidex viable. Jan K andwemet03 andwemet03@...> wrote: Hi Jan, Wierd, but my pain started right after finishing chemo... I started having massive pain in my back....there is where it all started......little by little it worsend thru rad......it has continued since..........it was SO bad at one point that I couldn't dress/take care of myself...Imagine.......through every test there was...there was no dx. except for " long term side effects of tx....go figure.......I was put on Femera and the doc's thought maybe that was it.......yet the pain had started before so I don't know why they thought that was it......anyway ...went off that..........no change..........ended up on Arimidex.........had stopped that for a spell and didn't help. It's just constant, period......on a scale of 1 to 10 I run about a 5 on a good day...imagine? And that's with meds for pain.........I'm on oxycodone........5mg. I usually take 4 a day..that's the average....(I've tried SO many things for pain and this is the only thing that has helped me).......some days more cuz the pain is unbearable.........I just don't get it..neither do any of my doc's. They all say it's from agressive treatment that I had and how it affected me.......No wonder I am depressed is what I say........My physicality is limited to a great degree. Something I am NOT used to.......and continue to struggle with.......UGH!!!!! If it wasn't for the mind stuff and the pain........I'd feel better........DAH!!!! Dunno.......take each day as it comes...... Through all this I have not had any swelling though........thank goodness there. As I said just taking each day as it comes........ Sorry to be such a drag........my glass ALWAYS used to be halffull.........Don't know what to do with myself anymore... Darlene Jan Koelsch jkoelsch1950@...> wrote: Hi, Darlene: The pain started for me a little at a time about the third day after starting Arimidex. It started in my left knee for some strange reason. Then it started in my left hip and back on the left side. Just this past week the pain started in my right knee and had progressed to my hands and fingers. I have experienced swelling in my calf of the left leg and thigh. The worst pain, almost unbearable, is in the left knee. It feels like someone is trying to put a hot searing fire poker through my knee cap from the side. What kind of things are you experiencing? Jan K andwemet03 andwemet03@...> wrote: Hi, Can I ask a couple questions? When did your pain start? Was it only after starting the Arimidex? And does your pain travel to different places in the body? Like: sometimes it's worse in the back, them maybe worse somewhere else? I'm surious because I too have pain issues. I'll be watching the posts to follow...... thanks, Darlene jkoelsch1950 jkoelsch1950@...> wrote: I did contact my new oncologist yesterday because the pain in my knees, hips, back and the new pains and swelling in my hands and legs were getting worse. The doctor told me to discontinue the Arimidex for one or two weeks. He wants to see if it is the medication or something else. At least he is listening to my concerns. I hope that the pain eases. --------------------------------- Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 > > I learned from my oncologist that my chances of cancer coming back is 78.5% without any kind of adjutant therapy like Arimidex. With Arimidex it only increases the chances by 9.2% or about 88%. > Not much difference with it or without it. Since the percentage is really good without it, I am > considering stopping it altogether. However, I am going to wait til after my three month mammogram and ultrasound. Jan K --------------------------------------------------- Hi Jan, I think you have your numbers reversed, lol, taking Arimidex INCREASES your chance of recurrance??? I know what you meant, but I had to laugh at your post. Like you, I didn't need chemo or rad, and I'm on approx the same time line as you. My onc said my chances of recurrance " might " be decreased by 5% by taking Arimidex. I asked about refusing treatment, and was told it was her job to offer what was available...maybe a CYA? I have the scrip and haven't filled it to date. I don't like the idea of cutting of all the little estrogen I still produce and dealing with the side effects. I have decided on a careful wait and watch strategy. This next info won't apply to most here other than Jan....taking Arimidex will require adjustments to your Synthroid dosaging if you are being kept medically suppressed (hyperthyroid) due to thycan and this opens up a whole new can of worms. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Oops! Thanks for the post, Kathleen. I was super tired that day and had brain fog, too. With Arimidex my chances of recurrence will be 88% less. I am interested in what you said about the thryoid stuff. I have been on either real thryoid replacement or synthetic replacement since 1979. My thryoid was removed because of a nodule that was considered to be 99% malgnant but wasn't. Parathyroid was taken, too. Before breast cancer, I was having problems with dosages. Thyroid can cause similar problems that one experiences in menopause (hot flashes or power surges). I just had my dosage changed prior to breast cancer. I do know, too, that I have to take my thyroid by itself without any food and for an hour before meals. Juggling medications has become quite an issue. My thyroid is taken at bedtime to ensure proper absorption. What has been your experience in all this? fantur2 katschell@...> wrote: > > I learned from my oncologist that my chances of cancer coming back is 78.5% without any kind of adjutant therapy like Arimidex. With Arimidex it only increases the chances by 9.2% or about 88%. > Not much difference with it or without it. Since the percentage is really good without it, I am > considering stopping it altogether. However, I am going to wait til after my three month mammogram and ultrasound. Jan K --------------------------------------------------- Hi Jan, I think you have your numbers reversed, lol, taking Arimidex INCREASES your chance of recurrance??? I know what you meant, but I had to laugh at your post. Like you, I didn't need chemo or rad, and I'm on approx the same time line as you. My onc said my chances of recurrance " might " be decreased by 5% by taking Arimidex. I asked about refusing treatment, and was told it was her job to offer what was available...maybe a CYA? I have the scrip and haven't filled it to date. I don't like the idea of cutting of all the little estrogen I still produce and dealing with the side effects. I have decided on a careful wait and watch strategy. This next info won't apply to most here other than Jan....taking Arimidex will require adjustments to your Synthroid dosaging if you are being kept medically suppressed (hyperthyroid) due to thycan and this opens up a whole new can of worms. Kathleen Jan Koelsch --------------------------------- Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
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