Re: Need advice/opinions please.....(long sorry)

[Guest guest]

Hi , (you and I are learning to listen to our bodies)

When you mentioned some of the things you did in this reply some

really hit home to me. Some being the very reason my body (maybe my

adrenals who knows) must have said to me " Okay you have now had 2

years of freedom to do all the activity you wish (after 8 years of a

special lets call it a fatigue syndrome which had lifted from me to my

delight). Well I was back to climbing stairs (not crumbling or crying

or hyperventilating from fatigue while sitting on every other step).

I even was able to take employment and even go so far as to skip the

elevators and go up to the 2nd floor with heavy brief case in hand and

smile when I got to the top as if to say. Well all cured I guess.

Not only was my mystery fatigue problem gone but so was the stabbing

groin reaction gone that used to act up if I managed to do too much

in the rt leg muscles area and no treadmill or else I would be

thrustinto a 3 day groin stabbing crutch or walker scenario.

I used to jokingly refer to that groin attack as being caused by " an

old football injury " and just leave it at that for lack of explanation

and to stop questions I could not answer from continuing during the

years that I was having about 3 of those attacks per year. Usually

when I had company coming in from out of town to stay over or if

attempting to go on a plane trip. I had already quit my line of work

and soon quit anything that caused activities requiring any little

extra muscle strength (due to my mystery fatigue disorder).

Well like I say when the fatigue disorder suddenly relented it also to

my delight seemed that I no longer had any

threats of getting that knife stabbing knock down one groin pain back

so " woopy dang " it was " no holds (activities) barred " for me. I did

not go on any treadmill to test that groin === was to busy hapilly

seeking and engaging in being able to accept gainful employment again

in my profession.

Well as with you one day after about 1-2 years of this pursit of leg

and stride and muscle and all functional freedom returned to me----I

was in my kitchen when my knee (on that formerly groin stabbing leg's

side )just caved inward on me as I placed it far forward to walk and I

grabbed the counter to prevent falling and straightened back up and

had no idea what had happened (there was absolutely no pain) until I

went out to the chain stores and a hair appointment later that

day.etc. Darned if I had not totally lost my long stride ability on

that one leg (just like I avoided doing with a treadmill when I was

babying it for the groin's sake for the 8 years prior) only

now I absolutely was not even capable of a long stride in my normal

everyday life anymore). So the return of my muscle strength and over

all muscle endurance and the disappearance of my knock down stabbing

groin reactions caused me to feel too free and in no time I guess you

might say I was brought down to the used of only one knee for my long

stride ability or loose my balance or fall or suffer knee pain. Take

my choice.

That was how I ended up in P.T. to have the muscles I use changed

over to the not so great but seeming to improve ones that I am using

for that one leg now. I am no kid and this secondary muscle set can

tire easily but it can also revive nicely and quickly with rest and I

think I might even have grown some new supports thinking that maybe

something just said we are shutting down these supports and if you

can't think of a better way to be nice to this damaged aspect of your

leg then tough luck for you. Hence my ortho doc must have understood

my inability with my skin sensitivities to wear the custom or any knee

brace he ordered for me and so got the P.T. to teach me how to use

other muscles to walk with on that leg. I have to baby one and then

sometimes the other depending on what I have been up to and if I have

or have not been using something for support. I see all to well that

both my legs are so dependent on and affected by what the other on can

or cannot or should or should not be doing. I have to let them have

their way or support them so they don't decide or plan to have an all

out delayed devious attack against me.

It's me against (going to feel free and win out over them) my legs and

feet vs my legs and feet against me (going to get even with me( all

the time. So I just have to use more supports after I have been

thinking I could do more with less etc. etc.

I wonder how much the adrenal have to do with the above. I am sure

they must be one of the major players to be sure. But this problem I

mentioned is even more reason that I am working on doing some changes

with my thyroid dosage to see if I can rid my OTHER leg of the

potential for periostiitis (comes when fasciitis is ignored too

long)and heel spur etc. That threat is not very compatible with my

other leg functions and my wt as I am trying to live with them both

today. I suppose I just might have to baby my legs the rest of my life

even if I do rid myself of the fasciitis and heel spur threats and get

back to being able to wearing a real live shoe on each foot.

Lee

>

> Its

> a judgement call.

>

> You're numbers aren't too far off... so you are in the 'mild' category,

> IMHO.

>

> Hydrocortisone.. has side affects.. as in if you do it wrong you can do

> more harm than good.

>

> A lot of folks use cortisol.

>

> I use a whole desiccated adrenal, which happens to be OTC, no

> prescription required and doesn't have the 'shut down factor' of

> hydrocortisone.

>

> Here is what it boils down to.

>

> Adding an adrenal support/supplement makes it easier for your body to

> handle the increase in thyroid hormone. How much of an affect it will

> have depends on a few different things.

> How hypo (how low are your actual thyroid hormones) are you?

> How long have you been hypo?

> How severe is your level of adrenal fatigue?

> How much thyroid hormone replacement are you starting on (doesn't matter

> if it's Armour (natural) or synthetic (like Synthroid)?

>

> It's suggested (even on many of the thyroid hormone bottle inserts) that

> adrenal function be tested before started on thyroid hormone

replacement.

> Is that a good idea, yes. Again, depending on how severe your adrenal

> insufficiency is it can have a pretty significant impact.

>

> Is it better to do this under the supervision of a doctor? YES, if he

> knows what he's doing.

>

> Can you start thyroid hormone without adrenal support? Yes, if the

> adrenal function isn't too bad you just take the thyroid hormone

> adjustments in reasonable amounts (1/4 to 1/2 for natural.. 25 mcg to 50

> mcg for synthetic T4 --- the higher the dose the smaller the increments

> should be). You'll also do better, in the long run, leaving enough time

> between adjustments in thyroid hormone to allow your body to adjust, and

> that includes allowing the adrenals to become accustomed as well. That

> ends up being 4 to 6 weeks, with 6 weeks being better for your body in

> the long run.. for some, like me, I'm sensitive to adjustments and the

> higher my dosage gets, the closer to optimal it gets, the longer period

> of time I need between adjustments... When I'm in the 3 1/2 grain

per day

> and over range I do better with 12 weeks between adjustments.

>

> Is it frustrating giving your body extra time? DUH, Yeah.... is it worth

> doing things in a way that reduces the stress to you body and allows it

> to readjust things and get back to a healthy level of function... DUH..

> yeah...

>

> So it ends up being YOUR decision. You have to decide what you are more

> comfortable with. You're the one that has to sit down with your doc and

> discuss adding the extra support, or opt to self treat.

> You're the one that knows how you feel, how your body does, or does not,

> tolerate the adjustments.

> You're the one that lives your life and is able to judge the impact all

> this stuff is having on your life.

>

> Lots of folks get really adamant about how you HAVE to do it this way or

> that. I have my own strong opinions on stuff as well..... but it's not

> for any of us to TELL you what to do.. or put it in an 'or else'

> scenario'.

>

> Am I glad that I went on adrenal support.. oh yeah.. .a thousand times

> yes.... but I did it wrong, for me, when I first started. Scared the

> dickens out of myself, learned a valuable lesson. I'll give the short

> version of this story, cuz what I just said sounds a lot scarier that it

> should. I started with the OTC glandular adrenal. I was smart and split

> the tabs in half, to be starting out slow. That was good. Oh my gosh, I

> felt wonderful on them. I'd been on thyroid hormone, for a few months,

> after being without for nearly three years, and I just can't

describe how

> much better I felt. I was able to do things, I WANTED to do things,

and I

> did them. I was doing chores around the house I was working on long put

> off projects. I was working extra fun stuff.. just a busy little bee

> compared to how I'd been for a long, long time. One day I was walking

> down the hall and fell down. My legs just kinda gave out. I got

myself up

> and kept on heading for the bathroom, I'd just gotten out of bed... and

> fell again. Got myself up, finished the nature run.. seemed to be okay.

> Later that day I was peeling apples or potatoes, don't remember which,

> anyway, my hands cramped up, like claws, and locked... took forever

> (maybe a half hour) for them to relax and be able to move them again.

> This falling and cramping when on intermittently for about a week. Then

> one night I was having a bear of a time staying on my feet... that's

when

> I got scared. That was the night I got online to find a support group.

> Found one, laid out my symptoms. The gals all confabbed and came up with

> a theory. The adrenal supplement on top of the thyroid hormone was

> exactly what I needed, but, I felt too good, too fast and didn't pace

> myself. My body couldn't keep up with what I wanted to do. So the only

> way it had to slow me down was to fall me down, or lock up my hands to

> make me stop.

>

> I stopped the adrenal AND SLOWED MY BUTT DOWN. Basically took a month of

> R&R to recover from what amounted to muscle fatigue and exhaustion.

>

> Then I was fine. Started back up on a quarter tab of the adrenal.

Learned

> to pace myself and allow my body to gain some strength and endurance.

>

> It was during the one month hiatus that and I (who met that

night I

> was online looking for help) became friends and started this group. (

> lookin up at the sky, waving... Hey Pard! )

>

> How any of this, low thyroid (or no) thyroid function, and low adrenal

> function affects us is very individual. There is no pat answer for

> everyone.

>

> Do you have to make a decision today, this week? I don't think so. IMHO.

> Your numbers aren't grossly off. You aren't so incapacitated as to be

> flat on your back or anything like that, so your body isn't showing that

> it's grasping at straws just trying to stay alive.

>

> You have some time to study, ask questions, observe how your body is

> responding... think...

>

> You seem to have good common sense. Someone said something to you that

> didn't 'feel right' and you asked around, here.. you're smart enough to

> be able to make an educated choice without being pushed into something

> blindly.

>

> Well, that's my thoughts....

>

> Topper ()

>

> On Sun, 06 May 2007 15:46:33 -0000 " freckly3321 "

> writes:

> > , and anyone who has an opinion,

> >

> > I'm not sure if you remember but I recently had my adrenals checked.

> >

> > I thought since I had mild adrenal fatigue I could get by starting

> > Armour without any additional adrenal support. I posted on a

> > different site last night and was told I needed to start

> > hydrocortisone because with my test results I wouldn't do well on

> > Armour unless I did. These are my test results (sorry for posting

> > them again):

> >

> > 7-8am 11 depressed 13-24

> > 11-12pm 11 elevated 5-10

> > 4-5pm 2 depressed 3-8

> > 11-midnight 3 normal 1-4

> >

> > cortisol burden 27 range 23-42

> > DHEA 5 normal range 3-10

> >

> > I'm really unsure what to do....at my last doctors visit we didn't

> > discuss this at all. Hydrocortisone can only be bought with a

> > script and I'm not sure my doctor would do that.

> >

> > Lori

>

[Guest guest]

Isn't it fascination how our bodies work?

Can't remember who I was gabbing with, but a week or so ago I commented

to someone about my stride length. I used to have a 36 inch stride, I'm

5'10. Now.. I don't know if it's even 12 inches. It's that hesitancy,

that fear, of the legs taking a vacation that keeps me from taking the

long strides and leaving myself in a hazardous postilion. With a short

stride, if a leg quits I go down in a safe crumple.. with a long stride I

go down in a heap and more often than not pulls stuff on the way down..

Then I'm dealing with all the muscle and tissue damage from that too.

You're talking of that groin pain.. I can relate to that... for me it was

not a pleasant thing.. the muscles involved were the ones used for

sitting. So if sitting in a chair it meant using the arms of the chair to

both sit down and stand up. That's doable, even if humiliating... but

what was horrid.. was using a toilet... to sit down and stand up with

nothing to grab onto if that set of muscles cramped up and the leg on

that side wasn't able to bear weight to stand, or sit.....

Ohhhhh I just cringe remembering that one.

But as we learn more, and understand our bodies more... I guess, you,

just like me, are learning to do things a different way.

It's not this way for everyone.. the sooner they get their levels where

they need to be so that their bodies work right again.. they don't end up

with this chronic damage stuff going on. Guess that's why I'm still here,

folks ask me every once in a while why I am.... it's cuz sharing the

stories, the experiences, every once in a while it clicks in someone's

head and they can take the steps to keep it from happening to them.

Sometimes it just takes a nudge for a person to get brave enough to stand

up and say this is BS!!! We need to get this taken care of!!!

*blush*

... sliding soap box back into corner...

sorry

Topper ()

On Sun, 06 May 2007 18:49:24 -0000 " leecaroler " leecaroler@...>

writes:

> Hi , (you and I are learning to listen to our bodies)

> When you mentioned some of the things you did in this reply some

> really hit home to me. Some being the very reason my body (maybe

> my

> adrenals who knows) must have said to me " Okay you have now had 2

> years of freedom to do all the activity you wish (after 8 years of a

> special lets call it a fatigue syndrome which had lifted from me to

> my delight). Well I was back to climbing stairs (not crumbling or

> crying

> or hyperventilating from fatigue while sitting on every other step).

>

> I even was able to take employment and even go so far as to skip

> the

> elevators and go up to the 2nd floor with heavy brief case in hand

> and

> smile when I got to the top as if to say. Well all cured I guess.

> Not only was my mystery fatigue problem gone but so was the

> stabbing

> groin reaction gone that used to act up if I managed to do too much

> in the rt leg muscles area and no treadmill or else I would be

> thrustinto a 3 day groin stabbing crutch or walker scenario.

> I used to jokingly refer to that groin attack as being caused by

> " an old football injury " and just leave it at that for lack of

> explanation

> and to stop questions I could not answer from continuing during the

> years that I was having about 3 of those attacks per year. Usually

> when I had company coming in from out of town to stay over or if

> attempting to go on a plane trip. I had already quit my line of

> work

> and soon quit anything that caused activities requiring any little

> extra muscle strength (due to my mystery fatigue disorder).

>

> Well like I say when the fatigue disorder suddenly relented it also

> to my delight seemed that I no longer had any

> threats of getting that knife stabbing knock down one groin pain

> back

> so " woopy dang " it was " no holds (activities) barred " for me. I did

> not go on any treadmill to test that groin === was to busy hapilly

> seeking and engaging in being able to accept gainful employment

> again in my profession.

>

> Well as with you one day after about 1-2 years of this pursit of

> leg and stride and muscle and all functional freedom returned to

> me----I

> was in my kitchen when my knee (on that formerly groin stabbing

> leg's

> side )just caved inward on me as I placed it far forward to walk and

> I

> grabbed the counter to prevent falling and straightened back up and

> had no idea what had happened (there was absolutely no pain) until

> I went out to the chain stores and a hair appointment later that

> day.etc. Darned if I had not totally lost my long stride ability on

> that one leg (just like I avoided doing with a treadmill when I was

> babying it for the groin's sake for the 8 years prior) only

> now I absolutely was not even capable of a long stride in my normal

> everyday life anymore). So the return of my muscle strength and

> over all muscle endurance and the disappearance of my knock down

> stabbing

> groin reactions caused me to feel too free and in no time I guess you

> might say I was brought down to the used of only one knee for my long

> stride ability or loose my balance or fall or suffer knee pain.

> Take my choice.

>

> That was how I ended up in P.T. to have the muscles I use changed

> over to the not so great but seeming to improve ones that I am using

> for that one leg now. I am no kid and this secondary muscle set can

> tire easily but it can also revive nicely and quickly with rest and I

> think I might even have grown some new supports thinking that maybe

> something just said we are shutting down these supports and if you

> can't think of a better way to be nice to this damaged aspect of your

> leg then tough luck for you. Hence my ortho doc must have understood

> my inability with my skin sensitivities to wear the custom or any

> knee

> brace he ordered for me and so got the P.T. to teach me how to use

> other muscles to walk with on that leg. I have to baby one and then

> sometimes the other depending on what I have been up to and if I

> haveor have not been using something for support. I see all to well

> that

> both my legs are so dependent on and affected by what the other on

> can or cannot or should or should not be doing. I have to let them

> have

> their way or support them so they don't decide or plan to have an

> all out delayed devious attack against me.

> It's me against (going to feel free and win out over them) my legs

> and

> feet vs my legs and feet against me (going to get even with me( all

> the time. So I just have to use more supports after I have been

> thinking I could do more with less etc. etc.

>

> I wonder how much the adrenal have to do with the above. I am sure

> they must be one of the major players to be sure. But this problem

> I mentioned is even more reason that I am working on doing some

> changes

> with my thyroid dosage to see if I can rid my OTHER leg of the

> potential for periostiitis (comes when fasciitis is ignored too

> long)and heel spur etc. That threat is not very compatible with my

> other leg functions and my wt as I am trying to live with them both

> today. I suppose I just might have to baby my legs the rest of my

> life

> even if I do rid myself of the fasciitis and heel spur threats and

> get back to being able to wearing a real live shoe on each foot.

> Lee

[Guest guest]

<<<

>>>>>

My present one leg IS like yours but it was NOT like yours before and

this one as with yours was not directly only related to my being on

full replacement T or to do with any RAI. Lets just say I am sure of

it. I guess your elbow flare up (if it was to continue for years)

would be more like what my pre knee cave in groin flare up involved

(the groin football playing injury LOL that I blame it on to prevent

telling my really clutsy and unlady like humiliating story of how it

happened).

I had a doctor once tell me something. He simply said " sometimes the

tissues remember " . Andthat was his only explanation for what I had

called him about with a family members seemingly too long after post

op pain and inflammatory crisis at the surgical area.

Well the first time my groin tissue " remembered " my football injury

(which I had long forgotten) was when we arrived in Honalulu and I got

off the plane. I barely got myself to my room believing my groin was

literally trying to stab me with a long spear or stake right smack

into the ground and stop me from walking dead in my tracks or making

me fall while trying not to let that happen. I asked for crutches and

no one knew where I could find any until one sweet gal at the front

desk offerred to bring a pair in from home the next morning. I used

them for the threee meazly vacation days we had to ourselves. After

that first one I got to know it would be a three day event and no

longer so I learned not to do anything to cause it and equiped myself

for when it happened

unavoidably so.

This my latest final knee stride thing on same leg is more exactly

like what you describe (to a tee)(nothing like the groin thing above

was) but only with one leg not two with same problem as you have (my

other leg has no knee trouble but has multiple podiatric and nerve and

probable metabolic issues) and is the one that can as with yours

causes the old no longer used tendons and ligaments and muscles to

get stiff (from not being used anymore I think). If sitting, and my 4

ring phone rings and if I forget that I cannot run for the phone

anymore without stretching my non used (formerly used) behind the knee

tendons and ligamnets and lower leg and foot muscles first. I think

you must have the same issue but in both of your legs and since you

were 18-19. So that is double of the same trouble for you I am

thinking. I have normal stride on the one leg which I had the

meniscus repaired on. Only the one legs stride is shortened and I do

not know how much. Maybe when I get to the gym I will ask her to

measure my one legs stride vs the other ones knee stride so I can see

the difference between my normal stride on the one vs my lacking strid

e on the other.

How does all this relate to thyroid? Well if have to be more careful

about my med taking then I used to be for now if I let myself forget

to take my thyroid meds once to often or maybe eat the wrong foods to

often which could somehow cause me to lower my T blood levels I really

could easily subject myself to unnecessary painful inflammation from

what I experience as whiplash to the problem knee joint and that in

turn might also cause my podiatric problems on my other legs foot to

flare up.

So I am dedicating myself to having my T bottle in my face and taking

it first thing every morning like I should do so I can start taking

meaningful notes and concerning myself only about what I ate if I have

any flarups of Rt knee or Left Foot/Ankle.

Lee

>

> Isn't it fascination how our bodies work?

>

> Can't remember who I was gabbing with, but a week or so ago I commented

> to someone about my stride length. I used to have a 36 inch stride, I'm

> 5'10. Now.. I don't know if it's even 12 inches. It's that hesitancy,

> that fear, of the legs taking a vacation that keeps me from taking the

> long strides and leaving myself in a hazardous postilion. With a short

> stride, if a leg quits I go down in a safe crumple.. with a long

stride I

> go down in a heap and more often than not pulls stuff on the way down..

> Then I'm dealing with all the muscle and tissue damage from that too.

>

> You're talking of that groin pain.. I can relate to that... for me

it was

> not a pleasant thing.. the muscles involved were the ones used for

> sitting. So if sitting in a chair it meant using the arms of the

chair to

> both sit down and stand up. That's doable, even if humiliating... but

> what was horrid.. was using a toilet... to sit down and stand up with

> nothing to grab onto if that set of muscles cramped up and the leg on

> that side wasn't able to bear weight to stand, or sit.....

>

> Ohhhhh I just cringe remembering that one.

>

> But as we learn more, and understand our bodies more... I guess, you,

> just like me, are learning to do things a different way.

>

> It's not this way for everyone.. the sooner they get their levels where

> they need to be so that their bodies work right again.. they don't

end up

> with this chronic damage stuff going on. Guess that's why I'm still

here,

> folks ask me every once in a while why I am.... it's cuz sharing the

> stories, the experiences, every once in a while it clicks in someone's

> head and they can take the steps to keep it from happening to them.

>

> Sometimes it just takes a nudge for a person to get brave enough to

stand

> up and say this is BS!!! We need to get this taken care of!!!

>

> *blush*

>

> .. sliding soap box back into corner...

>

> sorry

>

> Topper ()

>

> On Sun, 06 May 2007 18:49:24 -0000 " leecaroler "

> writes:

> > Hi , (you and I are learning to listen to our bodies)

> > When you mentioned some of the things you did in this reply some

> > really hit home to me. Some being the very reason my body (maybe

> > my

> > adrenals who knows) must have said to me " Okay you have now had 2

> > years of freedom to do all the activity you wish (after 8 years of a

> > special lets call it a fatigue syndrome which had lifted from me to

> > my delight). Well I was back to climbing stairs (not crumbling or

> > crying

> > or hyperventilating from fatigue while sitting on every other step).

> >

> > I even was able to take employment and even go so far as to skip

> > the

> > elevators and go up to the 2nd floor with heavy brief case in hand

> > and

> > smile when I got to the top as if to say. Well all cured I guess.

> > Not only was my mystery fatigue problem gone but so was the

> > stabbing

> > groin reaction gone that used to act up if I managed to do too much

> > in the rt leg muscles area and no treadmill or else I would be

> > thrustinto a 3 day groin stabbing crutch or walker scenario.

> > I used to jokingly refer to that groin attack as being caused by

> > " an old football injury " and just leave it at that for lack of

> > explanation

> > and to stop questions I could not answer from continuing during the

> > years that I was having about 3 of those attacks per year. Usually

> > when I had company coming in from out of town to stay over or if

> > attempting to go on a plane trip. I had already quit my line of

> > work

> > and soon quit anything that caused activities requiring any little

> > extra muscle strength (due to my mystery fatigue disorder).

> >

> > Well like I say when the fatigue disorder suddenly relented it also

> > to my delight seemed that I no longer had any

> > threats of getting that knife stabbing knock down one groin pain

> > back

> > so " woopy dang " it was " no holds (activities) barred " for me. I did

> > not go on any treadmill to test that groin === was to busy hapilly

> > seeking and engaging in being able to accept gainful employment

> > again in my profession.

> >

> > Well as with you one day after about 1-2 years of this pursit of

> > leg and stride and muscle and all functional freedom returned to

> > me----I

> > was in my kitchen when my knee (on that formerly groin stabbing

> > leg's

> > side )just caved inward on me as I placed it far forward to walk and

> > I

> > grabbed the counter to prevent falling and straightened back up and

> > had no idea what had happened (there was absolutely no pain) until

> > I went out to the chain stores and a hair appointment later that

> > day.etc. Darned if I had not totally lost my long stride ability on

> > that one leg (just like I avoided doing with a treadmill when I was

> > babying it for the groin's sake for the 8 years prior) only

> > now I absolutely was not even capable of a long stride in my normal

> > everyday life anymore). So the return of my muscle strength and

> > over all muscle endurance and the disappearance of my knock down

> > stabbing

> > groin reactions caused me to feel too free and in no time I guess you

> > might say I was brought down to the used of only one knee for my long

> > stride ability or loose my balance or fall or suffer knee pain.

> > Take my choice.

> >

> > That was how I ended up in P.T. to have the muscles I use changed

> > over to the not so great but seeming to improve ones that I am using

> > for that one leg now. I am no kid and this secondary muscle set can

> > tire easily but it can also revive nicely and quickly with rest and I

> > think I might even have grown some new supports thinking that maybe

> > something just said we are shutting down these supports and if you

> > can't think of a better way to be nice to this damaged aspect of your

> > leg then tough luck for you. Hence my ortho doc must have understood

> > my inability with my skin sensitivities to wear the custom or any

> > knee

> > brace he ordered for me and so got the P.T. to teach me how to use

> > other muscles to walk with on that leg. I have to baby one and then

> > sometimes the other depending on what I have been up to and if I

> > haveor have not been using something for support. I see all to well

> > that

> > both my legs are so dependent on and affected by what the other on

> > can or cannot or should or should not be doing. I have to let them

> > have

> > their way or support them so they don't decide or plan to have an

> > all out delayed devious attack against me.

> > It's me against (going to feel free and win out over them) my legs

> > and

> > feet vs my legs and feet against me (going to get even with me( all

> > the time. So I just have to use more supports after I have been

> > thinking I could do more with less etc. etc.

> >

> > I wonder how much the adrenal have to do with the above. I am sure

> > they must be one of the major players to be sure. But this problem

> > I mentioned is even more reason that I am working on doing some

> > changes

> > with my thyroid dosage to see if I can rid my OTHER leg of the

> > potential for periostiitis (comes when fasciitis is ignored too

> > long)and heel spur etc. That threat is not very compatible with my

> > other leg functions and my wt as I am trying to live with them both

> > today. I suppose I just might have to baby my legs the rest of my

> > life

> > even if I do rid myself of the fasciitis and heel spur threats and

> > get back to being able to wearing a real live shoe on each foot.

> > Lee

>

[Guest guest]

You and I may have to spend some time off list, unless others are

interested, talking about legs, tendons, muscles, range of motion and

exercises to increase usability in the lower limbs....

You are the first one in all these years that is familiar with all these

little 'isms' that I've been dealing with... My legs used to be... well

cool... I was a biker (averaging 100 miles plus a day on a 10 speed), a

body builder... my jobs were very physical... I was a truck driver, a

swamp stomper (worked for mosquito control as a county 'crew man' lots of

lifting, hiking hauling). I could throw 150 pounds on my shoulder and go

up, or down, a flight of stairs... Load material in helicopter bins

(that's 25 to 50 pounds of granular material swung chest high and dumped

in the bin 5 to 15 sacks at a loading) Now... I hold on to a rail to go

up and down steps. Granted. I can at least go up and down them down.. a

dozen times a day, without sitting at the bottom to rest.

But there are things that I miss... going for walks, hiking, fishing. No

more loading a back pack, parking at the head of the trail and taking off

for the day.

Trick I use for measuring stride? Fresh snow fall... I walk across the

driveway at my now normal stride and then measure. I haven't done it in a

along time... I mean when you look down at your feet and the heal of the

lead foot is only a couple inches ahead of the trailing foot... not much

need to measure.

I'm doing really good, comparatively, now... I can get up and down from

sitting without grabbing anything, in fact I can collect my meal

containers back here and with a stack of them in hand can still stand up

just fine... That's one of my 'tells' that I'm feeling stronger, that I'm

not nervous about collecting stuff before standing up.

My walking this last week has gone well... it's been one week... tonight.

As soon as I get off the puter... I head off to bed. I do an hour of lazy

in bed watching TV time, and also that is my time to do bedxercises and

MLD. I have done much of either since I had to cut back on meds.. but I'm

feeling strong enough to get started again... anyway.. tonight I'll start

the range of motion and stretching for the lower body. Just a few

minutes, remind the body parts how far we can go and find my start point

and I start working on things again.

Can't do the upper body yet... still have to be careful with gimpy

arm....

Topper ()

On Mon, 07 May 2007 01:17:54 -0000 " leecaroler " leecaroler@...>

writes:

> <<<

sitting

> in a chair it meant using the arms of the chair to both sit down

> and

> stand up.>>>>>>

>

> My present one leg IS like yours but it was NOT like yours before

> and

> this one as with yours was not directly only related to my being on

> full replacement T or to do with any RAI. Lets just say I am sure

> of

> it. I guess your elbow flare up (if it was to continue for years)

>

> would be more like what my pre knee cave in groin flare up

> involved

> (the groin football playing injury LOL that I blame it on to

> prevent

> telling my really clutsy and unlady like humiliating story of how

> it

> happened).

> I had a doctor once tell me something. He simply said " sometimes

> the

> tissues remember " . Andthat was his only explanation for what I had

> called him about with a family members seemingly too long after

> post

> op pain and inflammatory crisis at the surgical area.

>

> Well the first time my groin tissue " remembered " my football injury

> (which I had long forgotten) was when we arrived in Honalulu and I

> got

> off the plane. I barely got myself to my room believing my groin

> was

> literally trying to stab me with a long spear or stake right smack

> into the ground and stop me from walking dead in my tracks or

> making

> me fall while trying not to let that happen. I asked for crutches

> and

> no one knew where I could find any until one sweet gal at the front

> desk offerred to bring a pair in from home the next morning. I

> used

> them for the threee meazly vacation days we had to ourselves.

> After

> that first one I got to know it would be a three day event and no

> longer so I learned not to do anything to cause it and equiped

> myself

> for when it happened

> unavoidably so.

>

> This my latest final knee stride thing on same leg is more exactly

> what you describe (to a tee)(nothing like the groin thing above

> was) but only with one leg not two with same problem as you have

> (my

> other leg has no knee trouble but has multiple podiatric and nerve

> and

> probable metabolic issues) and is the one that can as with yours

> causes the old no longer used tendons and ligaments and muscles to

> get stiff (from not being used anymore I think). If sitting, and my

> 4

> ring phone rings and if I forget that I cannot run for the phone

> anymore without stretching my non used (formerly used) behind the

> knee

> tendons and ligamnets and lower leg and foot muscles first. I

> think

> you must have the same issue but in both of your legs and since you

> were 18-19. So that is double of the same trouble for you I am

> thinking. I have normal stride on the one leg which I had the

> meniscus repaired on. Only the one legs stride is shortened and I

> do

> not know how much. Maybe when I get to the gym I will ask her to

> measure my one legs stride vs the other ones knee stride so I can

> see

> the difference between my normal stride on the one vs my lacking

> strid

> e on the other.

> How does all this relate to thyroid? Well if have to be more

> careful

> about my med taking then I used to be for now if I let myself

> forget

> to take my thyroid meds once to often or maybe eat the wrong foods

> to

> often which could somehow cause me to lower my T blood levels I

> really

> could easily subject myself to unnecessary painful inflammation

> from

> what I experience as whiplash to the problem knee joint and that in

> turn might also cause my podiatric problems on my other legs foot

> to

> flare up.

> So I am dedicating myself to having my T bottle in my face and

> taking

> it first thing every morning like I should do so I can start taking

>

> meaningful notes and concerning myself only about what I ate if I

> have

> any flarups of Rt knee or Left Foot/Ankle.

> Lee

[Guest guest]

Topper,

I agree we are rarie's with the leg issues here so in future I will be

happy to contact you should any potentially endocrine related foot and

leg issues come up as time goes on. For now I for one am eager to

have my trial of increased thyroid med dosage (had an FT3 of 222 so

have room to play with to see how my conversion increases with a T4

med increase of .25mgs) and eager to start and get onto the recumbent

bike at the gym. P.T. introduced me to that one and I found it very

comfortable and a good workout which might be something that would

tell me about any noticeable change in my sense that my breathing

efficiency or BMR is improving or changing for the better during

exercise with this .25 mg addition. .

Lee

>

> You and I may have to spend some time off list, unless others are

> interested, talking about legs, tendons, muscles, range of motion and

> exercises to increase usability in the lower limbs....

>

> You are the first one in all these years that is familiar with all these

> little 'isms' that I've been dealing with... My legs used to be... well

> cool... I was a biker (averaging 100 miles plus a day on a 10 speed), a

> body builder... my jobs were very physical... I was a truck driver, a

> swamp stomper (worked for mosquito control as a county 'crew man'

lots of

> lifting, hiking hauling). I could throw 150 pounds on my shoulder and go

> up, or down, a flight of stairs... Load material in helicopter bins

> (that's 25 to 50 pounds of granular material swung chest high and dumped

> in the bin 5 to 15 sacks at a loading) Now... I hold on to a rail to go

> up and down steps. Granted. I can at least go up and down them down.. a

> dozen times a day, without sitting at the bottom to rest.

>

> But there are things that I miss... going for walks, hiking, fishing. No

> more loading a back pack, parking at the head of the trail and

taking off

> for the day.

>

> Trick I use for measuring stride? Fresh snow fall... I walk across the

> driveway at my now normal stride and then measure. I haven't done it

in a

> along time... I mean when you look down at your feet and the heal of the

> lead foot is only a couple inches ahead of the trailing foot... not much

> need to measure.

>

> I'm doing really good, comparatively, now... I can get up and down from

> sitting without grabbing anything, in fact I can collect my meal

> containers back here and with a stack of them in hand can still stand up

> just fine... That's one of my 'tells' that I'm feeling stronger,

that I'm

> not nervous about collecting stuff before standing up.

>

> My walking this last week has gone well... it's been one week...

tonight.

> As soon as I get off the puter... I head off to bed. I do an hour of

lazy

> in bed watching TV time, and also that is my time to do bedxercises and

> MLD. I have done much of either since I had to cut back on meds..

but I'm

> feeling strong enough to get started again... anyway.. tonight I'll

start

> the range of motion and stretching for the lower body. Just a few

> minutes, remind the body parts how far we can go and find my start point

> and I start working on things again.

>

> Can't do the upper body yet... still have to be careful with gimpy

> arm....

>

> Topper ()

>

> On Mon, 07 May 2007 01:17:54 -0000 " leecaroler "

> writes:

> > <<<

> sitting

> > in a chair it meant using the arms of the chair to both sit down

> > and

> > stand up.>>>>>>

> >

> > My present one leg IS like yours but it was NOT like yours before

> > and

> > this one as with yours was not directly only related to my being on

> > full replacement T or to do with any RAI. Lets just say I am sure

> > of

> > it. I guess your elbow flare up (if it was to continue for years)

> >

> > would be more like what my pre knee cave in groin flare up

> > involved

> > (the groin football playing injury LOL that I blame it on to

> > prevent

> > telling my really clutsy and unlady like humiliating story of how

> > it

> > happened).

> > I had a doctor once tell me something. He simply said " sometimes

> > the

> > tissues remember " . Andthat was his only explanation for what I had

> > called him about with a family members seemingly too long after

> > post

> > op pain and inflammatory crisis at the surgical area.

> >

> > Well the first time my groin tissue " remembered " my football injury

> > (which I had long forgotten) was when we arrived in Honalulu and I

> > got

> > off the plane. I barely got myself to my room believing my groin

> > was

> > literally trying to stab me with a long spear or stake right smack

> > into the ground and stop me from walking dead in my tracks or

> > making

> > me fall while trying not to let that happen. I asked for crutches

> > and

> > no one knew where I could find any until one sweet gal at the front

> > desk offerred to bring a pair in from home the next morning. I

> > used

> > them for the threee meazly vacation days we had to ourselves.

> > After

> > that first one I got to know it would be a three day event and no

> > longer so I learned not to do anything to cause it and equiped

> > myself

> > for when it happened

> > unavoidably so.

> >

> > This my latest final knee stride thing on same leg is more exactly

> > what you describe (to a tee)(nothing like the groin thing above

> > was) but only with one leg not two with same problem as you have

> > (my

> > other leg has no knee trouble but has multiple podiatric and nerve

> > and

> > probable metabolic issues) and is the one that can as with yours

> > causes the old no longer used tendons and ligaments and muscles to

> > get stiff (from not being used anymore I think). If sitting, and my

> > 4

> > ring phone rings and if I forget that I cannot run for the phone

> > anymore without stretching my non used (formerly used) behind the

> > knee

> > tendons and ligamnets and lower leg and foot muscles first. I

> > think

> > you must have the same issue but in both of your legs and since you

> > were 18-19. So that is double of the same trouble for you I am

> > thinking. I have normal stride on the one leg which I had the

> > meniscus repaired on. Only the one legs stride is shortened and I

> > do

> > not know how much. Maybe when I get to the gym I will ask her to

> > measure my one legs stride vs the other ones knee stride so I can

> > see

> > the difference between my normal stride on the one vs my lacking

> > strid

> > e on the other.

> > How does all this relate to thyroid? Well if have to be more

> > careful

> > about my med taking then I used to be for now if I let myself

> > forget

> > to take my thyroid meds once to often or maybe eat the wrong foods

> > to

> > often which could somehow cause me to lower my T blood levels I

> > really

> > could easily subject myself to unnecessary painful inflammation

> > from

> > what I experience as whiplash to the problem knee joint and that in

> > turn might also cause my podiatric problems on my other legs foot

> > to

> > flare up.

> > So I am dedicating myself to having my T bottle in my face and

> > taking

> > it first thing every morning like I should do so I can start taking

> >

> > meaningful notes and concerning myself only about what I ate if I

> > have

> > any flarups of Rt knee or Left Foot/Ankle.

> > Lee

>