Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 My boyfriend and I had a really bad go around, because he pushes me and pushes me to get moving and I feel like a lazy, fat cow. I just am not well and I am scared I am dying. I finally wrote him a letter (easiest way for me) and explained that my thyroid is messed up royally and that is why I am the way I am, etc. He seems to be more understanding for now. I just feel like crap. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Barb, What is your medical history for those of us who do not know? ~Kate > > My boyfriend and I had a really bad go around, because he pushes me > and pushes me to get moving and I feel like a lazy, fat cow. I just > am not well and I am scared I am dying. I finally wrote him a letter > (easiest way for me) and explained that my thyroid is messed up > royally and that is why I am the way I am, etc. He seems to be more > understanding for now. I just feel like crap. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 --I have been having a horrible time getting my thyroid under control for the past several months. The TSH was over 100 and now down to 80, but I was on synthroid for years and it worked, but doesn't now. They started me on Armour for about a week and then now on Levoxal. I have blood sugar, blood pressure problems. I tend to fall down a lot and very tired and exhausted and moody and there is a list of 100 other things. I am so tired waiting. My family doctor sent me to a endo. last week and he started me on the 400mcg of Levoxal. I am not happy with him, but that is the only one in my town that takes my insurance. I am currently without a car and have tremendous stress in my life. Barbara Ann Buckey-Tewart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 > First I'm sorry you're feeling so bad-when I first started my thyroid hormone (levoxyl) my tsh was 59-and I had myxedema--I dont know why you are on such a high dose so soon-thats a LOT. All I can tell you is I had a list of symptoms a mile long and it took quite awhile to get back to semi-normal. You are going to have to be very patient and kind to yourself. I worked for a doctor-and he always told me " it takes your body a really long time to heal and people have to be patient. " Your body is in healing mode-and I imagine you are dumping all sorts of toxins. Also try and get to a better doctor-where are you? Maybe someone on here can suggest someone. Oh yeah-and by the way, my husband was NOT empathetic - I felt like you feel now- Take care-you're not the only one > --I have been having a horrible time getting my thyroid under control for the past several months. The TSH was over 100 and now down to 80, but I was on synthroid for years and it worked, but doesn't now. They started me on Armour for about a week and then now on Levoxal. > > I have blood sugar, blood pressure problems. I tend to fall down a lot and very tired and exhausted and moody and there is a list of 100 other things. I am so tired waiting. My family doctor sent me to a endo. last week and he started me on the 400mcg of Levoxal. I am not happy with him, but that is the only one in my town that takes my insurance. I am currently without a car and have tremendous stress in my life. > > Barbara Ann Buckey-Tewart > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Barb, I have not been diagnosed but if the problem I have is thyroid...****! this small butterfly gland is very potent!! Wow, obviously you're quite out there with levels. I will say, that underneath my seemingly calm/complacent exterior...is a very angry person. Angry at the medical profession and angry at people who don't understand/refuse to understand ( just can't " hear it " .)...who try to pigeon hole another human being into what you " should " feel i.e idealist individuals (or just plain stupid/mean). Yes, ideally we'd all be well. If not, it would be nice that medication took us there. Just take a pill and yeah, it subsides. IDEALLY. That isn't realistic. I wouldn't wish this condition on anybody...but if only we could cause them to feel the same for at least a week. They'd be singing a different tune. In my mind, a lazy person just doesn't want to do the " dirty " stuff, the no fun stuff. When a person isn't up to doing what you know what they would like...that isn't lazy, that's something else. Did you read the " spoons " thread? Perhaps you should share that with your boyfriend. I hope you find wellness and sooner, rather than later. Best, ~Kate > > --I have been having a horrible time getting my thyroid under control for the past several months. The TSH was over 100 and now down to 80, but I was on synthroid for years and it worked, but doesn't now. They started me on Armour for about a week and then now on Levoxal. > > I have blood sugar, blood pressure problems. I tend to fall down a lot and very tired and exhausted and moody and there is a list of 100 other things. I am so tired waiting. My family doctor sent me to a endo. last week and he started me on the 400mcg of Levoxal. I am not happy with him, but that is the only one in my town that takes my insurance. I am currently without a car and have tremendous stress in my life. > > Barbara Ann Buckey-Tewart > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 They had you on Armour for only a week? That's not long enough to see if it's helping... what dose was it? Topper () On Tue, 1 May 2007 20:21:06 -0700 Barbara Tewart frombarb44@...> writes: > --I have been having a horrible time getting my thyroid under control > for the past several months. The TSH was over 100 and now down to > 80, but I was on synthroid for years and it worked, but doesn't now. > They started me on Armour for about a week and then now on > Levoxal. > > I have blood sugar, blood pressure problems. I tend to fall down a > lot and very tired and exhausted and moody and there is a list of > 100 other things. I am so tired waiting. My family doctor sent > me to a endo. last week and he started me on the 400mcg of Levoxal. > I am not happy with him, but that is the only one in my town that > takes my insurance. I am currently without a car and have > tremendous stress in my life. > > Barbara Ann Buckey-Tewart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Barb, you aren't the only one in that position. If he's willing, have him read this... It was written by the husband of a thyroid 'victim' to be read by other husbands. It's written in a way that a guy can relate to and understand. www.thyrophoenix.com/misunderstood.htm Topper () On Wed, 02 May 2007 02:43:04 -0000 " Barb " frombarb44@...> writes: > My boyfriend and I had a really bad go around, because he pushes me > and pushes me to get moving and I feel like a lazy, fat cow. I > just > am not well and I am scared I am dying. I finally wrote him a > letter > (easiest way for me) and explained that my thyroid is messed up > royally and that is why I am the way I am, etc. He seems to be > more > understanding for now. I just feel like crap. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 That's exactly it.... a lazy person will worm their way out of working, doing chores, going to work, to school..... But have that energy back when it's to go out to play... a movie, shopping... whatever twangs their inner happy. A person that is fatigued and hurting will struggle to do the things that they HAVE to and then pass up the 'fun things' They will guilt themselves into washing the dishes, cooking the meal, going to work.. then collapse, unable to do the simple shower cuz it's too much work. But 'they' don't notice that. 'They' only see that they worked and you didn't. They fail to notice that you didn't play either. They fail to notice that the exhaustion, fatigue, pain never lets up. Often cuz they are out doing things and don't see that that's the way you are almost all the time. It's so sad. I've been there. You fight so hard to do something. You feel such pride when you are able to finish a task and not fall on your face... then someone comes a long and belts out... 'what did you do, sit on your butt all day? Why don't you ever do anything around here?' You there you sit. Tired, hurting... and then you get bashed into the ground. Is it so surprising that one of the symptoms of chronic hypo is depression? How much is brought on by hormonal imbalance and fatigue and how much is brought on by our 'loved ones' not 'getting it'? One of the members of this household broke her wrist. It was painful, she was sleeping a lot.. understandable, she's in her 70s. She made a comment one day. Well, several things. One was how crappy her sleep was cuz of hurting and not finding a comfortable way to sleep... hmmmm I deal with that a lot when my levels are off... Another... How hard it was to have to do things 'funny' not being able to use that hand and arm. Hmmmm I do that a lot when I over do or sleep wrong and an arm or leg is cramped up... of for those months I was dealing with my leg tendons seizing and couldn't straighten my leg. No one gave a hoot for me. Another... That there is never any relief from it. It's 24/7 for weeks and she never gets a break. I stopped and turned and looked at her. I was MAD. I mean REALLY mad! In a calm voice .... " welcome to my world. I deal with that every day and have for years. When I ask for help I'm laughed at. When I ask you to turn down the TV at night so I can sleep more than three hours you won't. When I say I did too much and hurt you tell me to get a good nights sleep and I'll feel better tomorrow or you giggle and make a comment about me getting older. Your cast comes off in a couple of weeks. It's gonna take me a year to get my levels back up IF I can get more meds. " Did it help? No.. she napped all morning. Stayed up with the TV up too loud half the night. Then asked me the next day to empty the ice cube trays cuz it was too hard for her to do. Sorry... had to get that out. As my levels are coming up again and I'm able to do more things, I'm having fewer occasions where I have to carefully dole out my spoons. Part of that is that I'm better at spreading tasks out over several days and breaking things up between standing type work and sitting type work. Whenever possible I try to work on things ahead of time so that I don't end up in that position as often anymore where I HAVE to do it now 'or else'. Yet, when involved with a special project. What did I do? Reached wrong, lifted wrong. Over and over and over for days.. pushing to finish that project and the cost? Gimpy arm. How may days (weeks?) will I be challenged with it? sigh Topper () On Wed, 02 May 2007 03:50:39 -0000 " Kate " p2sgirl@...> writes: > Barb, > > I have not been diagnosed but if the problem I have is > thyroid...****! this small butterfly gland is very potent!! Wow, > obviously you're quite out there with levels. > > I will say, that underneath my seemingly calm/complacent > exterior...is a very angry person. > Angry at the medical profession and angry at people who don't > understand/refuse to understand ( just can't " hear it " .)...who try > to > pigeon hole another human being into what you " should " feel i.e > idealist individuals (or just plain stupid/mean). > > Yes, ideally we'd all be well. If not, it would be nice that > medication took us there. Just take a pill and yeah, it subsides. > IDEALLY. That isn't realistic. > > I wouldn't wish this condition on anybody...but if only we could > cause them to feel the same for at least a week. They'd be singing a > different tune. > > In my mind, a lazy person just doesn't want to do the " dirty " stuff, > the no fun stuff. When a person isn't up to doing what you know what > they would like...that isn't lazy, that's something else. > > Did you read the " spoons " thread? Perhaps you should share that with > your boyfriend. > > I hope you find wellness and sooner, rather than later. > > Best, > ~Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Glad that you could vent. People just don't get it. On top of everything I have fibro and am in pain 50 hours a day, well the pain gets the best of me sometimes. Yaelle's other grandma says to our Mara, your mother isn't really sick, she likes the attention and doesn't want to do things. Mara told her to call our PCP. Anyway, how wonderful these groups are. Who could have ever dreamed of things like this when I was born in 1945. Best, Bubbe Gittel************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 I'm proud of you Topper for saying these things. That's not being hateful, that's just saying it the way it is. We have to take up for ourselves when we know it is the right thing to do. I've not heard this from you before now, not exactly like this. Re: Re: exhausted > That's exactly it.... a lazy person will worm their way out of working, > doing chores, going to work, to school..... But have that energy back > when it's to go out to play... a movie, shopping... whatever twangs their > inner happy. > > A person that is fatigued and hurting will struggle to do the things that > they HAVE to and then pass up the 'fun things' They will guilt themselves > into washing the dishes, cooking the meal, going to work.. then collapse, > unable to do the simple shower cuz it's too much work. > > But 'they' don't notice that. 'They' only see that they worked and you > didn't. They fail to notice that you didn't play either. They fail to > notice that the exhaustion, fatigue, pain never lets up. Often cuz they > are out doing things and don't see that that's the way you are almost all > the time. > > It's so sad. I've been there. You fight so hard to do something. You feel > such pride when you are able to finish a task and not fall on your > face... then someone comes a long and belts out... 'what did you do, sit > on your butt all day? Why don't you ever do anything around here?' > > You there you sit. Tired, hurting... and then you get bashed into the > ground. > > Is it so surprising that one of the symptoms of chronic hypo is > depression? How much is brought on by hormonal imbalance and fatigue and > how much is brought on by our 'loved ones' not 'getting it'? > > One of the members of this household broke her wrist. It was painful, she > was sleeping a lot.. understandable, she's in her 70s. > > She made a comment one day. Well, several things. > > One was how crappy her sleep was cuz of hurting and not finding a > comfortable way to sleep... hmmmm I deal with that a lot when my levels > are off... > > Another... How hard it was to have to do things 'funny' not being able to > use that hand and arm. Hmmmm I do that a lot when I over do or sleep > wrong and an arm or leg is cramped up... of for those months I was > dealing with my leg tendons seizing and couldn't straighten my leg. No > one gave a hoot for me. > > Another... That there is never any relief from it. It's 24/7 for weeks > and she never gets a break. > > I stopped and turned and looked at her. I was MAD. I mean REALLY mad! > > In a calm voice .... " welcome to my world. I deal with that every day and > have for years. When I ask for help I'm laughed at. When I ask you to > turn down the TV at night so I can sleep more than three hours you won't. > When I say I did too much and hurt you tell me to get a good nights > sleep and I'll feel better tomorrow or you giggle and make a comment > about me getting older. Your cast comes off in a couple of weeks. It's > gonna take me a year to get my levels back up IF I can get more meds. " > > Did it help? No.. she napped all morning. Stayed up with the TV up too > loud half the night. Then asked me the next day to empty the ice cube > trays cuz it was too hard for her to do. > > Sorry... had to get that out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 I said it.. but it won't do any good.. If it's something that they can't see....if it's something that never had you in the hospital, that no one had to cut you open for .. it doesn't count. All I did was take a pill one day and got sent home. No big deal. That was the RAI.. Since I didn't have to stay in the hospital, it didn't count. You know what I was told when I blew my stack when the first letter came from the FDA that my meds were stopped? That I should just pick up some vitamins from Puritan's Pride... About a week after the pills came from Nutri-Meds, guess what was said? ... back on your pills now so every thing is back to normal? Ummmm no... It's gonna take me a year to get my dosage and levels back up, provided I can get more pills.... Blank stare. They don't get it.. Maybe that's why the circle of people I interact with is so small... I just have reached a point where I can't take that BS anymore.. in the last three years I've fired four really good friends. At least I thought they were good friends. One told me that I'd hurt less if I'd just get out and go walking and get rid of some of the fat. One told me that if I got some exercise and didn't sit around all day I'd not only get more done I'd feel better. The guy that told me to go walking, he was the first I fired.... I invited him to go for a walk.. with a couple hundred pounds of feed sacks on his shoulders and some tacks in his shoes and tell me how much he enjoyed his walk. Surprisingly he thought that was a dumb idea... But.... you just told me to do it? Oh I could into a full blown rant right now... I'll stop with one last one I fired... The comments made about how I dose meds and supplements and my pills boxes... I was told that I do that for 'show' to make it a bigger deal than it is... If I'd just take my vitamins in the morning like everyone else I wouldn't be able to play the pity card. Wasn't he surprised when he walked out the door and instead of me following I closed the door, locked it, pulled the blinds and left him standing there. It takes me a while to be mad enough to 'fire' a friend... but behavior like that isn't friendship.. after a while, if you are the only one being a friend, and you get nothing back but lip, insults, and malicious hurt.. The friendship dies. Once it's dead... I dont' have to take the lip anymore, do I? Good thing I have you guys... you understand.. You are dealing with the same stuff.. Now... I'm gonna go reread Max's post.. and get to guffaw mode again... I've put the donut away so I won't have to be getting another rag... getting half chewed donut spray from between the keys is NOT fun! *wink* Topper () On Wed, 2 May 2007 14:08:05 -0500 " " marin@...> writes: > I'm proud of you Topper for saying these things. That's not being > hateful, > that's just saying it the way it is. We have to take up for > ourselves when > we know it is the right thing to do. I've not heard this from you > before now, not exactly like this. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Hi , Now you have some time to you, so make the most of it and know that all here do understand how it is. Try to only concern yourself with the things that you can change and have some control of. We cannot change others and we are not able to have them walk in our shoes even for one day, which would really be nice so that they could feel as we do. You are getting more like you used to be even though it is a slow process and soon you will be in the best form ever. Try to put those thoughtless words into the garbage where they belong and turn to face a new day full of life and love from all of us that are here, not only ourselves but for you too. Remember those that have said those words to you have not done a fraction of the good for others that you have done. I am sure if I was to take a vote right now of who on this list has been helped by you we would not be able to keep up with all the posts and mine would be the first one on the list. You have been through more than a nightmare but now you use that experience to be a fountain of information which you freely give to those in need. You are achieving more in one day of sitting on your butt and doing all that you do, than others do in a year. For us to survive as best we can then we have to break with those that would bring us down and when we can't, to let their words go into oblivion without letting them rest in our minds. You are a much better man gunga din!!!!!!!!!! Dawn ThyroCanuck > > I said it.. but it won't do any good.. > > If it's something that they can't see....if it's something that never had > you in the hospital, that no one had to cut you open for .. it doesn't > count. > > All I did was take a pill one day and got sent home. No big deal. That > was the RAI.. Since I didn't have to stay in the hospital, it didn't > count. > > You know what I was told when I blew my stack when the first letter came > from the FDA that my meds were stopped? > > That I should just pick up some vitamins from Puritan's Pride... > > About a week after the pills came from Nutri-Meds, guess what was said? > > .. back on your pills now so every thing is back to normal? > > Ummmm no... It's gonna take me a year to get my dosage and levels back > up, provided I can get more pills.... > > Blank stare. > > They don't get it.. Maybe that's why the circle of people I interact with > is so small... I just have reached a point where I can't take that BS > anymore.. in the last three years I've fired four really good friends. At > least I thought they were good friends. > > One told me that I'd hurt less if I'd just get out and go walking and get > rid of some of the fat. > > One told me that if I got some exercise and didn't sit around all day I'd > not only get more done I'd feel better. > > The guy that told me to go walking, he was the first I fired.... I > invited him to go for a walk.. with a couple hundred pounds of feed sacks > on his shoulders and some tacks in his shoes and tell me how much he > enjoyed his walk. Surprisingly he thought that was a dumb idea... But.... > you just told me to do it? > > Oh I could into a full blown rant right now... > > I'll stop with one last one I fired... > > The comments made about how I dose meds and supplements and my pills > boxes... I was told that I do that for 'show' to make it a bigger deal > than it is... If I'd just take my vitamins in the morning like everyone > else I wouldn't be able to play the pity card. > > Wasn't he surprised when he walked out the door and instead of me > following I closed the door, locked it, pulled the blinds and left him > standing there. > > It takes me a while to be mad enough to 'fire' a friend... but behavior > like that isn't friendship.. after a while, if you are the only one being > a friend, and you get nothing back but lip, insults, and malicious hurt.. > The friendship dies. Once it's dead... I dont' have to take the lip > anymore, do I? > > Good thing I have you guys... you understand.. You are dealing with the > same stuff.. > > Now... I'm gonna go reread Max's post.. and get to guffaw mode again... > I've put the donut away so I won't have to be getting another rag... > getting half chewed donut spray from between the keys is NOT fun! > > *wink* > > Topper () > > On Wed, 2 May 2007 14:08:05 -0500 " " writes: > > I'm proud of you Topper for saying these things. That's not being > > hateful, > > that's just saying it the way it is. We have to take up for > > ourselves when > > we know it is the right thing to do. I've not heard this from you > > before now, not exactly like this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 You made me cry. Now my nose is all stuffed up. Don't know what to say.... I get as much from the group as anyone... You guys are always here for me.. I could almost... almost accept a hug right now... Topper () *hugaphobe* On Thu, 03 May 2007 00:17:24 -0000 " dawn prince " dwnprince@...> writes: > Hi , > Now you have some time to you, so make the most of it and know that > all here do understand how it is. Try to only concern yourself with > the things that you can change and have some control of. We cannot > change others and we are not able to have them walk in our shoes > even > for one day, which would really be nice so that they could feel as > we > do. You are getting more like you used to be even though it is a > slow process and soon you will be in the best form ever. Try to put > those thoughtless words into the garbage where they belong and turn > to face a new day full of life and love from all of us that are here, > not only ourselves but for you too. Remember those that have said > those words to you have not done a fraction of the good for others > that you have done. I am sure if I was to take a vote right now of > who on this list has been helped by you we would not be able to keep > up with all the posts and mine would be the first one on the list. > You have been through more than a nightmare but now you use that > experience to be a fountain of information which you freely give to > those in need. You are achieving more in one day of sitting on your > butt and doing all that you do, than others do in a year. For us to > survive as best we can then we have to break with those that would > bring us down and when we can't, to let their words go into oblivion > without letting them rest in our minds. You are a much better man > gunga din!!!!!!!!!! > Dawn > ThyroCanuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 > > I could almost... almost accept a hug right now... > > Topper () > *hugaphobe* I was going to say you are starting to feel better, the soap box is out of the corner,dusted off, you are talking more, spending more time on the computer and slowly coming out of the fog.. really hoping this med adjustment was not going to take as long as before as this time you were at a healthier starting point with more experience behind you.. Then you go and post you want a hug.... Guess we need to wait a littel longer for you to build those meds up.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 It's going pretty good.. You're right.. I was in much better shape this time when I got back on meds. I was able to slowly reduce my dose before running out too, I think that made a HUGE difference. My body had a chance to slow things down and get adjusted to lower levels instead of having it stop all at once. I think it allowed it to do things that kept me 'safer' when I was out of meds. But.. I'm back to myself again... still the hugaphobe.. hehehe Topper () On Fri, 04 May 2007 06:36:23 -0000 " kats3boys " kats3boys@...> writes: > > > > I could almost... almost accept a hug right now... > > > > Topper () > > *hugaphobe* > > I was going to say you are starting to feel better, the soap box is > out > of the corner,dusted off, you are talking more, spending more time > on > the computer and slowly coming out of the fog.. really hoping this > med > adjustment was not going to take as long as before as this time you > > were at a healthier starting point with more experience behind > you.. > Then you go and post you want a hug.... > Guess we need to wait a littel longer for you to build those meds > up.. > > Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Topper, In reading this, my heart sank down to my ankles. When I think of this, I find myself emotionally " swinging " . First hurt and then later, mad. Very mad. In reading what you wrote, it would seem to me that you are dealing with someone who feels entitled. For her, it must be, " me first. " To acknowledge that you genuinely have a problem that can and often is debilitating, would mean that she'd have to take a back seat, at times. Not conducive to a person who believes they should come first. At least, that is my impression. In reading your post, you have a great knack for saying/explaining in a most excellent way, what others think & feel. It's bad enough to have this problem and compounded when other's either disbelieve or try to minimalize how you think/feel. It's a very cruel thing to do. ~Kate > > That's exactly it.... a lazy person will worm their way out of working, > doing chores, going to work, to school..... But have that energy back > when it's to go out to play... a movie, shopping... whatever twangs their > inner happy. > > A person that is fatigued and hurting will struggle to do the things that > they HAVE to and then pass up the 'fun things' They will guilt themselves > into washing the dishes, cooking the meal, going to work.. then collapse, > unable to do the simple shower cuz it's too much work. > > But 'they' don't notice that. 'They' only see that they worked and you > didn't. They fail to notice that you didn't play either. They fail to > notice that the exhaustion, fatigue, pain never lets up. Often cuz they > are out doing things and don't see that that's the way you are almost all > the time. > > It's so sad. I've been there. You fight so hard to do something. You feel > such pride when you are able to finish a task and not fall on your > face... then someone comes a long and belts out... 'what did you do, sit > on your butt all day? Why don't you ever do anything around here?' > > You there you sit. Tired, hurting... and then you get bashed into the > ground. > > Is it so surprising that one of the symptoms of chronic hypo is > depression? How much is brought on by hormonal imbalance and fatigue and > how much is brought on by our 'loved ones' not 'getting it'? > > One of the members of this household broke her wrist. It was painful, she > was sleeping a lot.. understandable, she's in her 70s. > > She made a comment one day. Well, several things. > > One was how crappy her sleep was cuz of hurting and not finding a > comfortable way to sleep... hmmmm I deal with that a lot when my levels > are off... > > Another... How hard it was to have to do things 'funny' not being able to > use that hand and arm. Hmmmm I do that a lot when I over do or sleep > wrong and an arm or leg is cramped up... of for those months I was > dealing with my leg tendons seizing and couldn't straighten my leg. No > one gave a hoot for me. > > Another... That there is never any relief from it. It's 24/7 for weeks > and she never gets a break. > > I stopped and turned and looked at her. I was MAD. I mean REALLY mad! > > In a calm voice .... " welcome to my world. I deal with that every day and > have for years. When I ask for help I'm laughed at. When I ask you to > turn down the TV at night so I can sleep more than three hours you won't. > When I say I did too much and hurt you tell me to get a good nights > sleep and I'll feel better tomorrow or you giggle and make a comment > about me getting older. Your cast comes off in a couple of weeks. It's > gonna take me a year to get my levels back up IF I can get more meds. " > > Did it help? No.. she napped all morning. Stayed up with the TV up too > loud half the night. Then asked me the next day to empty the ice cube > trays cuz it was too hard for her to do. > > Sorry... had to get that out. > > As my levels are coming up again and I'm able to do more things, I'm > having fewer occasions where I have to carefully dole out my spoons. Part > of that is that I'm better at spreading tasks out over several days and > breaking things up between standing type work and sitting type work. > Whenever possible I try to work on things ahead of time so that I don't > end up in that position as often anymore where I HAVE to do it now 'or > else'. > > Yet, when involved with a special project. What did I do? Reached wrong, > lifted wrong. Over and over and over for days.. pushing to finish that > project and the cost? Gimpy arm. How may days (weeks?) will I be > challenged with it? > > sigh > > Topper () > > On Wed, 02 May 2007 03:50:39 -0000 " Kate " writes: > > Barb, > > > > I have not been diagnosed but if the problem I have is > > thyroid...****! this small butterfly gland is very potent!! Wow, > > obviously you're quite out there with levels. > > > > I will say, that underneath my seemingly calm/complacent > > exterior...is a very angry person. > > Angry at the medical profession and angry at people who don't > > understand/refuse to understand ( just can't " hear it " .)...who try > > to > > pigeon hole another human being into what you " should " feel i.e > > idealist individuals (or just plain stupid/mean). > > > > Yes, ideally we'd all be well. If not, it would be nice that > > medication took us there. Just take a pill and yeah, it subsides. > > IDEALLY. That isn't realistic. > > > > I wouldn't wish this condition on anybody...but if only we could > > cause them to feel the same for at least a week. They'd be singing a > > different tune. > > > > In my mind, a lazy person just doesn't want to do the " dirty " stuff, > > the no fun stuff. When a person isn't up to doing what you know what > > they would like...that isn't lazy, that's something else. > > > > Did you read the " spoons " thread? Perhaps you should share that with > > your boyfriend. > > > > I hope you find wellness and sooner, rather than later. > > > > Best, > > ~Kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 You may be right about the 'me first' thing... What I see most of is that my situation, health, whatever you want to call it.... just isn't significant. The criteria for importance involve return doc visits and hospitalization. Obviously if I've not had to see a doc for 10 years.... it was in May of 97 that I last went... It was either the 5th or the 11th.. can't remember right now.... I was never hospitalized... so therefore, obviously, there isn't anything wrong with me. I don't have a thyroid gland anymore... but.. don't have to see a doc, so that's no big deal, right? Sounds like I'm making excuses for their point of view... I'm not. Honest. Just that's the crappolla that I hear.. heard... now when someone starts with that speech I'm more likely to give them the 'evil stare', turn my back and walk away. I guess I just perceive a higher value in a person that has compassion for others than I do for the ones that look down from their pedestals.... ... mean snot, ain't I? Topper () On Fri, 04 May 2007 17:16:29 -0000 " Kate " p2sgirl@...> writes: > Topper, > > In reading this, my heart sank down to my ankles. When I think of > this, I find myself emotionally " swinging " . First hurt and then > later, mad. Very mad. > > In reading what you wrote, it would seem to me that you are dealing > with someone who feels entitled. For her, it must be, " me first. " To > acknowledge that you genuinely have a problem that can and often is > debilitating, would mean that she'd have to take a back seat, at > times. Not conducive to a person who believes they should come > first. > > At least, that is my impression. > > In reading your post, you have a great knack for saying/explaining > in a most excellent way, what others think & feel. > > It's bad enough to have this problem and compounded when other's > either disbelieve or try to minimalize how you think/feel. > > It's a very cruel thing to do. > > ~Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 If you are mean...in this case, it's only because you have to be. ;-) I have to say, that I have grown real crochety towards some people and for the same reasons. Ignorance is one thing but ignorance, coupled with arrogance and coldness...don't fly over well with me. There are days that I look out and think, we are living in a cold world, everybody has taken doubt/distrust far & wide and to an unreasonable level. I understand a level of it and will not say that it is unwarranted but well...I just think we've gone to far. ~Kate > > You may be right about the 'me first' thing... > > What I see most of is that my situation, health, whatever you want to > call it.... just isn't significant. The criteria for importance involve > return doc visits and hospitalization. Obviously if I've not had to see a > doc for 10 years.... it was in May of 97 that I last went... It was > either the 5th or the 11th.. can't remember right now.... I was never > hospitalized... so therefore, obviously, there isn't anything wrong with > me. > > I don't have a thyroid gland anymore... but.. don't have to see a doc, so > that's no big deal, right? > > Sounds like I'm making excuses for their point of view... I'm not. > Honest. Just that's the crappolla that I hear.. heard... now when > someone starts with that speech I'm more likely to give them the 'evil > stare', turn my back and walk away. > > I guess I just perceive a higher value in a person that has compassion > for others than I do for the ones that look down from their pedestals.... > > .. mean snot, ain't I? > > Topper () > > On Fri, 04 May 2007 17:16:29 -0000 " Kate " writes: > > Topper, > > > > In reading this, my heart sank down to my ankles. When I think of > > this, I find myself emotionally " swinging " . First hurt and then > > later, mad. Very mad. > > > > In reading what you wrote, it would seem to me that you are dealing > > with someone who feels entitled. For her, it must be, " me first. " To > > acknowledge that you genuinely have a problem that can and often is > > debilitating, would mean that she'd have to take a back seat, at > > times. Not conducive to a person who believes they should come > > first. > > > > At least, that is my impression. > > > > In reading your post, you have a great knack for saying/explaining > > in a most excellent way, what others think & feel. > > > > It's bad enough to have this problem and compounded when other's > > either disbelieve or try to minimalize how you think/feel. > > > > It's a very cruel thing to do. > > > > ~Kate > Quote Link to comment Share on other sites More sharing options...
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