Jump to content
RemedySpot.com

A web site for my little CHARGEr

Rate this topic


Guest guest

Recommended Posts

Very cute - love the glasses. ,did you know that CHARGE is officially

a " Syndrome " now and not an Association anymore? A genetic cause was found

in 2004 making it officially a syndrome. I'm surprised with being

born in '05 that the docs told you Association. Maybe they didn't have the

up to date literature.

I also LOVE the pictures of he and his sissy, you can see how very much she

loves him and vice versa. Thanks so much for sharing!!!

http://www.chargesyndrome.info

>

> i made a website for my little man if you would like to meet

> him feel free to take a look www.babysites.com/sites/nicolemacdougal

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

Link to comment
Share on other sites

lisa i havent heard of it as asociation that much but i admit is is said out

here but it is usualy referent to as the charge syndrome assoication in

other words the foundation in aus get it love u ellen

>

> Very cute - love the glasses. ,did you know that CHARGE is

> officially

> a " Syndrome " now and not an Association anymore? A genetic cause was found

> in 2004 making it officially a syndrome. I'm surprised with being

> born in '05 that the docs told you Association. Maybe they didn't have the

> up to date literature.

>

> I also LOVE the pictures of he and his sissy, you can see how very much

> she

> loves him and vice versa. Thanks so much for sharing!!!

>

> http://www.chargesyndrome.info

>

> On 10/18/06, MacDougal

<nicolemacdougal@...<nicolemacdougal%40yahoo.com>>

> wrote:

> >

> > i made a website for my little man if you would like to meet

> > him feel free to take a look www.babysites.com/sites/nicolemacdougal

> >

> >

> >

>

> --

> " It is far better to grasp the universe as it really is than to persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

Link to comment
Share on other sites

Ellen,

I just re-read that and I sound snotty and I don't mean to at all; it annoys

me when doctors do not make themselves stay up to date on info, especially

when making an initial diagnosis for a family when it is something that they

are unfamiliar with. This is what happened on DAY one with Kennedy and I'll

never forget it.

http://www.chargesyndrome.info

>

> lisa i havent heard of it as asociation that much but i admit is is said

> out

> here but it is usualy referent to as the charge syndrome assoication in

> other words the foundation in aus get it love u ellen

>

> On 19/10/06, Weir <kawfolks@... <kawfolks%40gmail.com>> wrote:

> >

> > Very cute - love the glasses. ,did you know that CHARGE is

> > officially

> > a " Syndrome " now and not an Association anymore? A genetic cause was

> found

> > in 2004 making it officially a syndrome. I'm surprised with being

> > born in '05 that the docs told you Association. Maybe they didn't have

> the

> > up to date literature.

> >

> > I also LOVE the pictures of he and his sissy, you can see how very much

> > she

> > loves him and vice versa. Thanks so much for sharing!!!

> >

> > http://www.chargesyndrome.info

> >

> > On 10/18/06, MacDougal

<nicolemacdougal@...<nicolemacdougal%40yahoo.com>

> <nicolemacdougal%40yahoo.com>>

> > wrote:

> > >

> > > i made a website for my little man if you would like to meet

> > > him feel free to take a look www.babysites.com/sites/nicolemacdougal

> > >

> > >

> > >

> >

> > --

> > " It is far better to grasp the universe as it really is than to persist

> in

> > delusion, however satisfying and reassuring. " --Carl Sagan

> >

> >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...