Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I have a couple of questions, I hope someone could answer for me pls. Do charge babies all have problems with swollowing? Is it true that if the child survives beyound that all or most of the symtoms go away? Talking to Ellen, I'm starting to think the genetisist ( dealing with my daughter) doesn't know much about charge at all. Along with charge do they have other major problems? > _________________________________________________________________ House hunt online now! http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Fninemsn%2Erealestate%2Ecom%2Eau%\ 2Fcgi%2Dbin%2Frsearch%3Fa%3Dbhp%26t%3Dres%26cu%3DMSN & _t=758874163 & _r=HM_EndText_\ Oct06 & _m=EXT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Not all babies/children with CHARGE have swallowing issues. I dont think most of the symptoms go away. Vision and hearing dosnt go away. Neither does swallowing nessisarily. Sometimes it improves for some people. others it stays the same or gets better then worse again. Heart defects can be corrected sometimes, other times it cant. Facial palsy is another one that can stay forever. I guess i dont understand fully what you mean by the syptoms go away. Sure the life threghning stuff does but the other symptoms dont go away. Plus the charge teens and adults will develop new health issues as adults too. I hope this answers a few questions. Chantelle (CHARGE adult) > > I have a couple of questions, I hope someone could answer for me pls. Do > charge babies all have problems with swollowing? Is it true that if the > child survives beyound that all or most of the symtoms go away? Talking to > Ellen, I'm starting to think the genetisist ( dealing with my daughter) > doesn't know much about charge at all. Along with charge do they have > other > major problems? > > > -- > My spelling's kinda wobbly. It's good spelling but the letters wobble and > end up in the wrong places. - Winnie the Pooh > > My Blog Space: http://neutralufo.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Thank you Chantelle, You have answered them. I was sent papers after my little girl had past, that when the child reaches the age of 5 that most or all symptoms will disappear. It wasn't making sence to me when talking with you guys. I now know not to belive sooo much in what was sent to me. Thanks again. > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Questions >Date: Wed, 18 Oct 2006 09:41:29 -0400 > >Not all babies/children with CHARGE have swallowing issues. I dont think >most of the symptoms go away. Vision and hearing dosnt go away. Neither >does >swallowing nessisarily. Sometimes it improves for some people. others it >stays the same or gets better then worse again. Heart defects can be >corrected sometimes, other times it cant. Facial palsy is another one that >can stay forever. I guess i dont understand fully what you mean by the >syptoms go away. Sure the life threghning stuff does but the other symptoms >dont go away. Plus the charge teens and adults will develop new health >issues as adults too. > > >I hope this answers a few questions. > >Chantelle (CHARGE adult) > > > > > > > I have a couple of questions, I hope someone could answer for me pls. Do > > charge babies all have problems with swollowing? Is it true that if the > > child survives beyound that all or most of the symtoms go away? Talking >to > > Ellen, I'm starting to think the genetisist ( dealing with my daughter) > > doesn't know much about charge at all. Along with charge do they have > > other > > major problems? > > > > > > -- > > My spelling's kinda wobbly. It's good spelling but the letters wobble >and > > end up in the wrong places. - Winnie the Pooh > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 i'll tell you what - it sounds to me like you could really do with some correct and appropriate literature on CHARGE - if not the charge manual then at the least some of the websites... i'm sure there are some favorites here... but the charge foundation link would likely be a good place to start... of course i just looked for my bookmark and i can't find it right now but i suspect someone else could help... ugh, and i'm the www bookmark queen - also some of the family pages from here could be informative - i'll look for appropriate links when i get home from school - but in the interim maybe look under the links file of this group's main page... or maybe someone else will jump in as well. sorry i'm not more help Cole > > Thank you Chantelle, > > You have answered them. I was sent papers after my little girl had past, > that when the child reaches the age of 5 that most or all symptoms will > disappear. It wasn't making sence to me when talking with you guys. I now > know not to belive sooo much in what was sent to me. Thanks again. > > >From: " Chantelle McLaren " <Peppermint.Chey@...<Peppermint.Chey%40gmail.com> > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > >To: CHARGE <CHARGE%40yahoogroups.com> > >Subject: Re: Questions > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > >Not all babies/children with CHARGE have swallowing issues. I dont think > >most of the symptoms go away. Vision and hearing dosnt go away. Neither > >does > >swallowing nessisarily. Sometimes it improves for some people. others it > >stays the same or gets better then worse again. Heart defects can be > >corrected sometimes, other times it cant. Facial palsy is another one > that > >can stay forever. I guess i dont understand fully what you mean by the > >syptoms go away. Sure the life threghning stuff does but the other > symptoms > >dont go away. Plus the charge teens and adults will develop new health > >issues as adults too. > > > > > >I hope this answers a few questions. > > > >Chantelle (CHARGE adult) > > > > > >On 18/10/06, raine bowkett <angel_raine@...<angel_raine%40hotmail.com>> > wrote: > > > > > > I have a couple of questions, I hope someone could answer for me pls. > Do > > > charge babies all have problems with swollowing? Is it true that if > the > > > child survives beyound that all or most of the symtoms go away? > Talking > >to > > > Ellen, I'm starting to think the genetisist ( dealing with my > daughter) > > > doesn't know much about charge at all. Along with charge do they have > > > other > > > major problems? > > > > > > > > > -- > > > My spelling's kinda wobbly. It's good spelling but the letters wobble > >and > > > end up in the wrong places. - Winnie the Pooh > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 soem go away soem jsut get better im one who has gotten better over the years xxxxx > > i'll tell you what - it sounds to me like you could really do with some > correct and appropriate literature on CHARGE - if not the charge manual > then > at the least some of the websites... i'm sure there are some favorites > here... but the charge foundation link would likely be a good place to > start... of course i just looked for my bookmark and i can't find it right > now but i suspect someone else could help... ugh, and i'm the www bookmark > queen - also some of the family pages from here could be informative - > i'll > look for appropriate links when i get home from school - but in the > interim > maybe look under the links file of this group's main page... or maybe > someone else will jump in as well. > sorry i'm not more help > Cole > > On 10/18/06, raine bowkett <angel_raine@...<angel_raine%40hotmail.com>> > wrote: > > > > Thank you Chantelle, > > > > You have answered them. I was sent papers after my little girl had past, > > that when the child reaches the age of 5 that most or all symptoms will > > disappear. It wasn't making sence to me when talking with you guys. I > now > > know not to belive sooo much in what was sent to me. Thanks again. > > > > >From: " Chantelle McLaren " <Peppermint.Chey@...<Peppermint.Chey%40gmail.com> > <Peppermint.Chey%40gmail.com> > > > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > >To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > >Subject: Re: Questions > > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > > > >Not all babies/children with CHARGE have swallowing issues. I dont > think > > >most of the symptoms go away. Vision and hearing dosnt go away. Neither > > >does > > >swallowing nessisarily. Sometimes it improves for some people. others > it > > >stays the same or gets better then worse again. Heart defects can be > > >corrected sometimes, other times it cant. Facial palsy is another one > > that > > >can stay forever. I guess i dont understand fully what you mean by the > > >syptoms go away. Sure the life threghning stuff does but the other > > symptoms > > >dont go away. Plus the charge teens and adults will develop new health > > >issues as adults too. > > > > > > > > >I hope this answers a few questions. > > > > > >Chantelle (CHARGE adult) > > > > > > > > >On 18/10/06, raine bowkett <angel_raine@...<angel_raine%40hotmail.com> > <angel_raine%40hotmail.com>> > > wrote: > > > > > > > > I have a couple of questions, I hope someone could answer for me > pls. > > Do > > > > charge babies all have problems with swollowing? Is it true that if > > the > > > > child survives beyound that all or most of the symtoms go away? > > Talking > > >to > > > > Ellen, I'm starting to think the genetisist ( dealing with my > > daughter) > > > > doesn't know much about charge at all. Along with charge do they > have > > > > other > > > > major problems? > > > > > > > > > > > > -- > > > > My spelling's kinda wobbly. It's good spelling but the letters > wobble > > >and > > > > end up in the wrong places. - Winnie the Pooh > > > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 hi Ellen, the problems that go away, have they ever appeared again? > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Questions >Date: Thu, 19 Oct 2006 16:14:09 +1000 > >soem go away soem jsut get better im one who has gotten better over the >years xxxxx > > > > > > i'll tell you what - it sounds to me like you could really do with >some > > correct and appropriate literature on CHARGE - if not the charge manual > > then > > at the least some of the websites... i'm sure there are some favorites > > here... but the charge foundation link would likely be a good place to > > start... of course i just looked for my bookmark and i can't find it >right > > now but i suspect someone else could help... ugh, and i'm the www >bookmark > > queen - also some of the family pages from here could be informative - > > i'll > > look for appropriate links when i get home from school - but in the > > interim > > maybe look under the links file of this group's main page... or maybe > > someone else will jump in as well. > > sorry i'm not more help > > Cole > > > > On 10/18/06, raine bowkett ><angel_raine@...<angel_raine%40hotmail.com>> > > wrote: > > > > > > Thank you Chantelle, > > > > > > You have answered them. I was sent papers after my little girl had >past, > > > that when the child reaches the age of 5 that most or all symptoms >will > > > disappear. It wasn't making sence to me when talking with you guys. I > > now > > > know not to belive sooo much in what was sent to me. Thanks again. > > > > > > >From: " Chantelle McLaren " ><Peppermint.Chey@...<Peppermint.Chey%40gmail.com> > > <Peppermint.Chey%40gmail.com> > > > > > > > >Reply-To: CHARGE ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > ps.com> > > > >To: CHARGE ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > ps.com> > > > >Subject: Re: Questions > > > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > > > > > >Not all babies/children with CHARGE have swallowing issues. I dont > > think > > > >most of the symptoms go away. Vision and hearing dosnt go away. >Neither > > > >does > > > >swallowing nessisarily. Sometimes it improves for some people. others > > it > > > >stays the same or gets better then worse again. Heart defects can be > > > >corrected sometimes, other times it cant. Facial palsy is another one > > > that > > > >can stay forever. I guess i dont understand fully what you mean by >the > > > >syptoms go away. Sure the life threghning stuff does but the other > > > symptoms > > > >dont go away. Plus the charge teens and adults will develop new >health > > > >issues as adults too. > > > > > > > > > > > >I hope this answers a few questions. > > > > > > > >Chantelle (CHARGE adult) > > > > > > > > > > > >On 18/10/06, raine bowkett ><angel_raine@...<angel_raine%40hotmail.com> > > <angel_raine%40hotmail.com>> > > > wrote: > > > > > > > > > > I have a couple of questions, I hope someone could answer for me > > pls. > > > Do > > > > > charge babies all have problems with swollowing? Is it true that >if > > > the > > > > > child survives beyound that all or most of the symtoms go away? > > > Talking > > > >to > > > > > Ellen, I'm starting to think the genetisist ( dealing with my > > > daughter) > > > > > doesn't know much about charge at all. Along with charge do they > > have > > > > > other > > > > > major problems? > > > > > > > > > > > > > > > -- > > > > > My spelling's kinda wobbly. It's good spelling but the letters > > wobble > > > >and > > > > > end up in the wrong places. - Winnie the Pooh > > > > > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 soem have some havent its mostly just reflux thats sometiems worse than others > > hi Ellen, > the problems that go away, have they ever appeared again? > > >From: " ellen howe " <ellen.howe@... <ellen.howe%40gmail.com>> > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > >To: CHARGE <CHARGE%40yahoogroups.com> > >Subject: Re: Questions > >Date: Thu, 19 Oct 2006 16:14:09 +1000 > > > >soem go away soem jsut get better im one who has gotten better over the > >years xxxxx > > > >On 19/10/06, Angelcole <Angelcole@... <Angelcole%40gmail.com>> > wrote: > > > > > > i'll tell you what - it sounds to me like you could really do with > >some > > > correct and appropriate literature on CHARGE - if not the charge > manual > > > then > > > at the least some of the websites... i'm sure there are some favorites > > > here... but the charge foundation link would likely be a good place to > > > start... of course i just looked for my bookmark and i can't find it > >right > > > now but i suspect someone else could help... ugh, and i'm the www > >bookmark > > > queen - also some of the family pages from here could be informative - > > > i'll > > > look for appropriate links when i get home from school - but in the > > > interim > > > maybe look under the links file of this group's main page... or maybe > > > someone else will jump in as well. > > > sorry i'm not more help > > > Cole > > > > > > On 10/18/06, raine bowkett > ><angel_raine@... <angel_raine%40hotmail.com> > <angel_raine%40hotmail.com>> > > > wrote: > > > > > > > > Thank you Chantelle, > > > > > > > > You have answered them. I was sent papers after my little girl had > >past, > > > > that when the child reaches the age of 5 that most or all symptoms > >will > > > > disappear. It wasn't making sence to me when talking with you guys. > I > > > now > > > > know not to belive sooo much in what was sent to me. Thanks again. > > > > > > > > >From: " Chantelle McLaren " > ><Peppermint.Chey@... <Peppermint.Chey%40gmail.com>< > Peppermint.Chey%40gmail.com> > > > <Peppermint.Chey%40gmail.com> > > > > > > > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > ps.com> > > > > >To: CHARGE <CHARGE%40yahoogroups.com> > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > ps.com> > > > > >Subject: Re: Questions > > > > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > > > > > > > >Not all babies/children with CHARGE have swallowing issues. I dont > > > think > > > > >most of the symptoms go away. Vision and hearing dosnt go away. > >Neither > > > > >does > > > > >swallowing nessisarily. Sometimes it improves for some people. > others > > > it > > > > >stays the same or gets better then worse again. Heart defects can > be > > > > >corrected sometimes, other times it cant. Facial palsy is another > one > > > > that > > > > >can stay forever. I guess i dont understand fully what you mean by > >the > > > > >syptoms go away. Sure the life threghning stuff does but the other > > > > symptoms > > > > >dont go away. Plus the charge teens and adults will develop new > >health > > > > >issues as adults too. > > > > > > > > > > > > > > >I hope this answers a few questions. > > > > > > > > > >Chantelle (CHARGE adult) > > > > > > > > > > > > > > >On 18/10/06, raine bowkett > ><angel_raine@... <angel_raine%40hotmail.com> > <angel_raine%40hotmail.com> > > > <angel_raine%40hotmail.com>> > > > > wrote: > > > > > > > > > > > > I have a couple of questions, I hope someone could answer for me > > > pls. > > > > Do > > > > > > charge babies all have problems with swollowing? Is it true that > > >if > > > > the > > > > > > child survives beyound that all or most of the symtoms go away? > > > > Talking > > > > >to > > > > > > Ellen, I'm starting to think the genetisist ( dealing with my > > > > daughter) > > > > > > doesn't know much about charge at all. Along with charge do they > > > have > > > > > > other > > > > > > major problems? > > > > > > > > > > > > > > > > > > -- > > > > > > My spelling's kinda wobbly. It's good spelling but the letters > > > wobble > > > > >and > > > > > > end up in the wrong places. - Winnie the Pooh > > > > > > > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 hi again, do you live by your self and do you have a job? what sort of help is there for you? Do you have to go to the docs regularly or just when you feeel something is wrong? > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Questions >Date: Thu, 19 Oct 2006 16:23:29 +1000 > >soem have some havent its mostly just reflux thats sometiems worse than >others > > > > > > hi Ellen, > > the problems that go away, have they ever appeared again? > > > > >From: " ellen howe " <ellen.howe@... <ellen.howe%40gmail.com>> > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > > >To: CHARGE <CHARGE%40yahoogroups.com> > > >Subject: Re: Questions > > >Date: Thu, 19 Oct 2006 16:14:09 +1000 > > > > > >soem go away soem jsut get better im one who has gotten better over the > > >years xxxxx > > > > > >On 19/10/06, Angelcole <Angelcole@... <Angelcole%40gmail.com>> > > wrote: > > > > > > > > i'll tell you what - it sounds to me like you could really do with > > >some > > > > correct and appropriate literature on CHARGE - if not the charge > > manual > > > > then > > > > at the least some of the websites... i'm sure there are some >favorites > > > > here... but the charge foundation link would likely be a good place >to > > > > start... of course i just looked for my bookmark and i can't find it > > >right > > > > now but i suspect someone else could help... ugh, and i'm the www > > >bookmark > > > > queen - also some of the family pages from here could be informative >- > > > > i'll > > > > look for appropriate links when i get home from school - but in the > > > > interim > > > > maybe look under the links file of this group's main page... or >maybe > > > > someone else will jump in as well. > > > > sorry i'm not more help > > > > Cole > > > > > > > > On 10/18/06, raine bowkett > > ><angel_raine@... <angel_raine%40hotmail.com> > > <angel_raine%40hotmail.com>> > > > > wrote: > > > > > > > > > > Thank you Chantelle, > > > > > > > > > > You have answered them. I was sent papers after my little girl had > > >past, > > > > > that when the child reaches the age of 5 that most or all symptoms > > >will > > > > > disappear. It wasn't making sence to me when talking with you >guys. > > I > > > > now > > > > > know not to belive sooo much in what was sent to me. Thanks again. > > > > > > > > > > >From: " Chantelle McLaren " > > ><Peppermint.Chey@... <Peppermint.Chey%40gmail.com>< > > Peppermint.Chey%40gmail.com> > > > > <Peppermint.Chey%40gmail.com> > > > > > > > > > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > > ps.com> > > > > > >To: CHARGE <CHARGE%40yahoogroups.com> > > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > > ps.com> > > > > > >Subject: Re: Questions > > > > > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > > > > > > > > > >Not all babies/children with CHARGE have swallowing issues. I >dont > > > > think > > > > > >most of the symptoms go away. Vision and hearing dosnt go away. > > >Neither > > > > > >does > > > > > >swallowing nessisarily. Sometimes it improves for some people. > > others > > > > it > > > > > >stays the same or gets better then worse again. Heart defects can > > be > > > > > >corrected sometimes, other times it cant. Facial palsy is another > > one > > > > > that > > > > > >can stay forever. I guess i dont understand fully what you mean >by > > >the > > > > > >syptoms go away. Sure the life threghning stuff does but the >other > > > > > symptoms > > > > > >dont go away. Plus the charge teens and adults will develop new > > >health > > > > > >issues as adults too. > > > > > > > > > > > > > > > > > >I hope this answers a few questions. > > > > > > > > > > > >Chantelle (CHARGE adult) > > > > > > > > > > > > > > > > > >On 18/10/06, raine bowkett > > ><angel_raine@... <angel_raine%40hotmail.com> > > <angel_raine%40hotmail.com> > > > > <angel_raine%40hotmail.com>> > > > > > wrote: > > > > > > > > > > > > > > I have a couple of questions, I hope someone could answer for >me > > > > pls. > > > > > Do > > > > > > > charge babies all have problems with swollowing? Is it true >that > > > > >if > > > > > the > > > > > > > child survives beyound that all or most of the symtoms go >away? > > > > > Talking > > > > > >to > > > > > > > Ellen, I'm starting to think the genetisist ( dealing with my > > > > > daughter) > > > > > > > doesn't know much about charge at all. Along with charge do >they > > > > have > > > > > > > other > > > > > > > major problems? > > > > > > > > > > > > > > > > > > > > > -- > > > > > > > My spelling's kinda wobbly. It's good spelling but the letters > > > > wobble > > > > > >and > > > > > > > end up in the wrong places. - Winnie the Pooh > > > > > > > > > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 im at the drs every few months for soemthing for to get meds or soemthing and i live with mum and dad i got a job with disalbed people like me its a factory we do packaging its great fun ther ei love it > > hi again, > do you live by your self and do you have a job? what sort of help is there > > for you? Do you have to go to the docs regularly or just when you feeel > something is wrong? > > >From: " ellen howe " <ellen.howe@... <ellen.howe%40gmail.com>> > >Reply-To: CHARGE <CHARGE%40yahoogroups.com> > >To: CHARGE <CHARGE%40yahoogroups.com> > >Subject: Re: Questions > >Date: Thu, 19 Oct 2006 16:23:29 +1000 > > > >soem have some havent its mostly just reflux thats sometiems worse than > >others > > > >On 19/10/06, raine bowkett <angel_raine@...<angel_raine%40hotmail.com>> > wrote: > > > > > > hi Ellen, > > > the problems that go away, have they ever appeared again? > > > > > > >From: " ellen howe " <ellen.howe@... <ellen.howe%40gmail.com> < > ellen.howe%40gmail.com>> > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > > >To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > > >Subject: Re: Questions > > > >Date: Thu, 19 Oct 2006 16:14:09 +1000 > > > > > > > >soem go away soem jsut get better im one who has gotten better over > the > > > >years xxxxx > > > > > > > >On 19/10/06, Angelcole <Angelcole@... <Angelcole%40gmail.com><Angelcole%40gmail.com>> > > > wrote: > > > > > > > > > > i'll tell you what - it sounds to me like you could really do with > > > >some > > > > > correct and appropriate literature on CHARGE - if not the charge > > > manual > > > > > then > > > > > at the least some of the websites... i'm sure there are some > >favorites > > > > > here... but the charge foundation link would likely be a good > place > >to > > > > > start... of course i just looked for my bookmark and i can't find > it > > > >right > > > > > now but i suspect someone else could help... ugh, and i'm the www > > > >bookmark > > > > > queen - also some of the family pages from here could be > informative > >- > > > > > i'll > > > > > look for appropriate links when i get home from school - but in > the > > > > > interim > > > > > maybe look under the links file of this group's main page... or > >maybe > > > > > someone else will jump in as well. > > > > > sorry i'm not more help > > > > > Cole > > > > > > > > > > On 10/18/06, raine bowkett > > > ><angel_raine@... <angel_raine%40hotmail.com><angel_raine%40hotmail.com> > > > <angel_raine%40hotmail.com>> > > > > > wrote: > > > > > > > > > > > > Thank you Chantelle, > > > > > > > > > > > > You have answered them. I was sent papers after my little girl > had > > > >past, > > > > > > that when the child reaches the age of 5 that most or all > symptoms > > > >will > > > > > > disappear. It wasn't making sence to me when talking with you > >guys. > > > I > > > > > now > > > > > > know not to belive sooo much in what was sent to me. Thanks > again. > > > > > > > > > > > > >From: " Chantelle McLaren " > > > ><Peppermint.Chey@... <Peppermint.Chey%40gmail.com> < > Peppermint.Chey%40gmail.com>< > > > Peppermint.Chey%40gmail.com> > > > > > <Peppermint.Chey%40gmail.com> > > > > > > > > > > > > > >Reply-To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > > > ps.com> > > > > > > >To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > > ><CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > > > > > ps.com> > > > > > > >Subject: Re: Questions > > > > > > >Date: Wed, 18 Oct 2006 09:41:29 -0400 > > > > > > > > > > > > > >Not all babies/children with CHARGE have swallowing issues. I > >dont > > > > > think > > > > > > >most of the symptoms go away. Vision and hearing dosnt go away. > > > >Neither > > > > > > >does > > > > > > >swallowing nessisarily. Sometimes it improves for some people. > > > others > > > > > it > > > > > > >stays the same or gets better then worse again. Heart defects > can > > > be > > > > > > >corrected sometimes, other times it cant. Facial palsy is > another > > > one > > > > > > that > > > > > > >can stay forever. I guess i dont understand fully what you mean > > >by > > > >the > > > > > > >syptoms go away. Sure the life threghning stuff does but the > >other > > > > > > symptoms > > > > > > >dont go away. Plus the charge teens and adults will develop new > > > >health > > > > > > >issues as adults too. > > > > > > > > > > > > > > > > > > > > >I hope this answers a few questions. > > > > > > > > > > > > > >Chantelle (CHARGE adult) > > > > > > > > > > > > > > > > > > > > >On 18/10/06, raine bowkett > > > ><angel_raine@... <angel_raine%40hotmail.com><angel_raine%40hotmail.com> > > > <angel_raine%40hotmail.com> > > > > > <angel_raine%40hotmail.com>> > > > > > > wrote: > > > > > > > > > > > > > > > > I have a couple of questions, I hope someone could answer > for > >me > > > > > pls. > > > > > > Do > > > > > > > > charge babies all have problems with swollowing? Is it true > >that > > > > > > >if > > > > > > the > > > > > > > > child survives beyound that all or most of the symtoms go > >away? > > > > > > Talking > > > > > > >to > > > > > > > > Ellen, I'm starting to think the genetisist ( dealing with > my > > > > > > daughter) > > > > > > > > doesn't know much about charge at all. Along with charge do > >they > > > > > have > > > > > > > > other > > > > > > > > major problems? > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > > > > > My spelling's kinda wobbly. It's good spelling but the > letters > > > > > wobble > > > > > > >and > > > > > > > > end up in the wrong places. - Winnie the Pooh > > > > > > > > > > > > > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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