Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 I have been having this for a few years but never knew what it was. Everyone asks me if I am stressed out and why am I sighing. Recently it's become so bad that I can't sleep b/c I am gasping for air. I keep trying to find a position that will let me breath, but sometimes if I start to fall asleep, I jerk awake struggling for air. I have a " normal " TSH (2.3) so I can't get any thyroid help, and I am just wondering how dangerous this is? I sometimes feel like I am dying but I try to tough it out b/c I don't know what other option I have. Thanks, Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Eve, I think it's a hypo thing for me. I sigh a lot also and as my levels are coming up it's getting better. Your TSH is not normal. I always thought it was anything over 2. that you need to have antibodies tested and should be on meds. Can you go to a different doc? I had to beg my doc for a dose increase. I felt like I was dying a couple of months ago. I knew I was in major crisis and my levels were screwed. My TSH was 3.74 in the normal range. GGGRRRRR.... I find out out my new labs tomorrow I hope they are where I want them since the doc is a quack. Maybe Topper will tell you about Nesting and sleeping (Hint! Hint!) Hope this helps. Below is some references also. Sami This is from www.thyroidmanager. org it is written by Endo's for Endo's with regards to thyroid and is considered by many to be as close to the thyroid bible as you can get.. 4. TSH (Thyroid Stimulating Hormone/Thyrotropin ) Assays Then to (b.) - TSH Reference Ranges Excerpt: The new TSH upper limit of 2.5 mIU/L is supported by the data from the Whickham follow-up study that found an increased risk of hypothyroidism in individuals with serum TSH > 2.0 mU/L, especially if TPOAb was present 182. This report suggests that when longitudinal study data are available, the TSH upper reference limit may fall further. http://www.thyroidmanager.org/FunctionTests/assay-text.htm Treatment of subclinical hypothyroidism remains controversial, and recent arguments for and against treatment have been proposed (19,21). We believe that treatment is indicated in patients with TSH levels >10 µIU/mL or in patients with TSH levels between 5 and 10 µIU/mL in conjunction with goiter or positive anti-thyroid peroxidase antibodies (or both). These patients have the highest rates of progression to overt hypothyroidism. An initial dosage of levothyroxine of 25 to 50 µg/day can be used, the serum TSH level should be measured in 6 to 8 weeks, and the levothyroxine dose should be adjusted as necessary. The target TSH level should be between 0.3 and 3.0 µIU/mL. Once a stable TSH level is achieved, annual examination is appropriate. From:AMERICAN ASSOCIATION OF CLINICAL ENDOCRINOLOGISTS MEDICAL GUIDELINES FOR CLINICAL PRACTICE FOR THE EVALUATION AND TREATMENT OF HYPERTHYROIDISM AND HYPOTHYROIDISM The Journal of Clinical Endocrinology & Metabolism Vol. 90, No. 9 5483-5488 Copyright © 2005 by The Endocrine Society CONTROVERSY IN CLINICAL ENDOCRINOLOGY The Evidence for a Narrower Thyrotropin Reference Range Is Compelling Leonard Wartofsky and A Dickey Department of Medicine, Washington Hospital Center, Washington, D.C. 20010; Uniformed Services University of the Health Sciences, Bethesda, land 20814; and town University School of Medicine, Washington, D.C. 20006 Address all correspondence and requests for reprints to: Dr. Leonard Wartofsky, Department of Medicine, Washington Hospital Center, 110 Irving Street NW, Washington, D.C. 20010-2975. E-mail: leonard.wartofsky@.... Debate and controversy currently surround the recommendations of a recent consensus conference that considered issues related to the management of early, mild, or so-called subclinical hypothyroidism and hyperthyroidism. Intimately related to the controversy is the definition of the normal reference range for TSH. It has become clear that previously accepted reference ranges are no longer valid as a result of both the development of more highly sensitive TSH assays and the appreciation that reference populations previously considered normal were contaminated with individuals with various degrees of thyroid dysfunction that served to increase mean TSH levels for the group. Recent laboratory guidelines from the National Academy of Clinical Biochemistry indicate that more than 95% of normal individuals have TSH levels below 2.5 mU/liter. The remainder with higher values are outliers, most of whom are likely to have underlying Hashimoto thyroiditis or other causes of elevated TSH. Importantly, data indicating that African-Americans with very low incidence of Hashimoto thyroiditis have a mean TSH level of 1.18 mU/liter strongly suggest that this value is the true normal mean for a normal population. Recognition and establishment of a more precise and true normal range for TSH have important implications for both screening and treatment of thyroid disease in general and subclinical thyroid disease in particular. http://jcem.endojournals.org/cgi/content/abstract/90/9/5483 > > I have been having this for a few years but never knew what it was. > Everyone asks me if I am stressed out and why am I sighing. > Recently it's become so bad that I can't sleep b/c I am gasping for > air. I keep trying to find a position that will let me breath, but > sometimes if I start to fall asleep, I jerk awake struggling for air. > I have a " normal " TSH (2.3) so I can't get any thyroid help, and I am > just wondering how dangerous this is? I sometimes feel like I am > dying but I try to tough it out b/c I don't know what other option I > have. > > Thanks, > Eve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Thanks Sami, I actually did have the antibodies tested and was negative. The whole panel was: TSH 2.3 FT3 1.1 (0.8-1.8) FT4 260 (230-420) TPO anti: 20 (<35) Thyroglobulin anti: <20 I have lower CO2 also [21 (21-33)] which I think I read may be b/c of the air hunger. I went to a holistic doc, supposedly a great office and spent almost $5000 with no answers. I've given up for now...I guess I just have to wait until I get bad enough to treat. -Eve- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Hi Eve, I remember my mother had this same exact problem, but it was a reaction to the drug Lopressor that she was taking for hypertension. She suffered with this for many months while several doctors attributed it to anxiety. They even went so far as to do respiratory tests and then concluded that it was anxiety. I knew it wasn't and soon after found a doctor that would take her off the Lopressor. The air hunger resolved within 2-3 days of going off the drug and she never had it again. Definitely go to your doctor and insist that she investigate the cause. Good luck, -----Original Message-----From: The_Thyroid_Support_Group [mailto:The_Thyroid_Support_Group ] On Behalf Of GREEKEVESent: Tuesday, April 24, 2007 12:16 PMTo: The_Thyroid_Support_Group Subject: Can air hunger kill you? I have been having this for a few years but never knew what it was. Everyone asks me if I am stressed out and why am I sighing. Recently it's become so bad that I can't sleep b/c I am gasping for air. I keep trying to find a position that will let me breath, but sometimes if I start to fall asleep, I jerk awake struggling for air. I have a "normal" TSH (2.3) so I can't get any thyroid help, and I am just wondering how dangerous this is? I sometimes feel like I am dying but I try to tough it out b/c I don't know what other option I have.Thanks,Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Do you have enlarged Palantine tonsils (side of throat)or Lingual tonsils (base & behind tongue)and prone to snore? > > I have been having this for a few years but never knew what it was. > Everyone asks me if I am stressed out and why am I sighing. > Recently it's become so bad that I can't sleep b/c I am gasping for > air. I keep trying to find a position that will let me breath, but > sometimes if I start to fall asleep, I jerk awake struggling for air. > I have a " normal " TSH (2.3) so I can't get any thyroid help, and I am > just wondering how dangerous this is? I sometimes feel like I am > dying but I try to tough it out b/c I don't know what other option I > have. > > Thanks, > Eve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 What thyroid meds are you on? Micki Health Eating and Living Together http://health.groups.yahoo.com/group/he2gether_/ www.stopthethyroidmadness.com Re: Can air hunger kill you? Thanks Sami, I actually did have the antibodies tested and was negative. The whole panel was: TSH 2.3 FT3 1.1 (0.8-1.8) FT4 260 (230-420) TPO anti: 20 (<35) Thyroglobulin anti: <20 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Once my holistic doctor told me that my sighing was due to low magnesium and when I supplemented with magnesium, the sighing went away. wrote: Hi Eve, I remember my mother had this same exact problem, but it was a reaction to the drug Lopressor that she was taking for hypertension. She suffered with this for many months while several doctors attributed it to anxiety. They even went so far as to do respiratory tests and then concluded that it was anxiety. I knew it wasn't and soon after found a doctor that would take her off the Lopressor. The air hunger resolved within 2-3 days of going off the drug and she never had it again. Definitely go to your doctor and insist that she investigate the cause. Good luck, Can air hunger kill you? I have been having this for a few years but never knew what it was. Everyone asks me if I am stressed out and why am I sighing. Recently it's become so bad that I can't sleep b/c I am gasping for air. I keep trying to find a position that will let me breath, but sometimes if I start to fall asleep, I jerk awake struggling for air. I have a "normal" TSH (2.3) so I can't get any thyroid help, and I am just wondering how dangerous this is? I sometimes feel like I am dying but I try to tough it out b/c I don't know what other option I have. Thanks, Eve __________ NOD32 2107 (20070311) Information __________ This message was checked by NOD32 antivirus system. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I'm not on anything. I'm told my thyroid is " just fine. " > > What thyroid meds are you on? > > Micki > > Health Eating and Living Together > http://health.groups.yahoo.com/group/he2gether_/ > > www.stopthethyroidmadness.com > > > > > > Re: Can air hunger kill you? > > Thanks Sami, I actually did have the antibodies tested and was > negative. The whole panel was: > TSH 2.3 > FT3 1.1 (0.8-1.8) > FT4 260 (230-420) > TPO anti: 20 (<35) > Thyroglobulin anti: <20 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Yes I have massive tonsils!! But they have been huge my entire life. The air hunger only started a couple years ago, around the same time my hair started falling out and started gaining weight. -Eve- > > Do you have enlarged Palantine tonsils (side of throat)or Lingual > tonsils (base & behind tongue)and prone to snore? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I'm going to try this. It can't hurt! -Eve > > Once my holistic doctor told me that my sighing was due to low magnesium > and when I supplemented with magnesium, the sighing went away. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 They are in range and for a basic dtr they would say you are fine, but I know on those labs I would feel like crap. Might be worth looking into one of the guru dtrs. I finally did and glad I did. The only thing that sucks is they don't normally take insurance. I know the one I go to if you have out of network then some of it is covered, but my insurance does not have that option. So it's all out of pocket for me. I know I'm no help, but trust in how you feel. hugs Micki Health Eating and Living Together http://health.groups.yahoo.com/group/he2gether_/ www.stopthethyroidmadness.com Re: Can air hunger kill you? > > Thanks Sami, I actually did have the antibodies tested and was > negative. The whole panel was: > TSH 2.3 > FT3 1.1 (0.8-1.8) > FT4 260 (230-420) > TPO anti: 20 (<35) > Thyroglobulin anti: <20 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Eve, I had huge tonsils too and before they were taken out, my lingual tonsils had swelled some too. This didn't resolve my issues, though I no longer snore. Prior to their removal, there were a few times that I had woke up struggling for air. Felt like I was being held under water. It wasn't due to nightmares. Strangely and for whatever reason, shortly after surgery (tonsils)I had air hunger. It was distressing and yes, it worried me. Fortunately it stopped. The only other thing that I can think of, do you have LPR (acid reflux?) it's a " silent " form of reflux, actually. This may not be the case at all, in fact...not suggesting it, other than a possibility and one that can be tested yourself with OTC Prilosec. Which is why I mention it. ~Kate > > > > Do you have enlarged Palantine tonsils (side of throat)or Lingual > > tonsils (base & behind tongue)and prone to snore? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 First thing off, take your respirations for a full minute. What are they per minute? This is very important, but even the MOST important thing is that you have to find a doc who will do the proper tests. No doc is worth dying for. When hypo, the respirations slow down quite a lot, to the point that sometimes one breathes out, but gets startled awake or even WHILE awake, doesn't breathe back in until they MAKE themselves breathe back in. This is hypo at it's very finest. Do those respirations, then go find another doc. I am self treating beCAUSE one is directly unavailable to me in my area who knows what they are doing. Not to say that I feel good, but I feel better than I used to in some ways. However, I still need a good thyroid doc. Can air hunger kill you? >I have been having this for a few years but never knew what it was. > Everyone asks me if I am stressed out and why am I sighing. > Recently it's become so bad that I can't sleep b/c I am gasping for > air. I keep trying to find a position that will let me breath, but > sometimes if I start to fall asleep, I jerk awake struggling for air. > I have a " normal " TSH (2.3) so I can't get any thyroid help, and I am > just wondering how dangerous this is? I sometimes feel like I am > dying but I try to tough it out b/c I don't know what other option I > have. > > Thanks, > Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Oh my god ! That's exactly how i feel!!! I sometimes " forget " to breath while I am awake and sometimes it's a conscious thing to force myself to take a breath. I breath very shallow too and every 5-10 breaths or so, I struggle for a deeper breath (like a yawn). I can rarely get that satisfying deep breath I feel I need. I wonder if, when I fall asleep, I'm unconscious so I can't " remember " to breath? I am about 11 breaths/minute by the way. Kate I do have acid reflux too. But it comes and goes. I am not on any medication for it. It started about the time all my other crazy symptoms started, so I wonder if everything is related? -Eve- > When hypo, the respirations slow down quite a lot, to the point > that sometimes one breathes out, but gets startled awake or even WHILE > awake, doesn't breathe back in until they MAKE themselves breathe back in. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 > I am about 11 breaths/minute by the way. > -Eve- This is exactly what I'm talking about. Your breaths should be around about 18 or so per minute. You are definitely hypo. I don't even have any of my little geriatric patients who are breathing this slowly, Eve, not even those who are up in their 90s or close to 100 or so. Most of them breathe right around the 18 to 20 breaths per minute, some way too fast, but none of them at 11 to 12 breaths a minute. You are HYPO HYPO HYPO. Did you say what your pulse was already? Some doctors try to claim that a slow HRate is " athlete's heart " . That is hogwash! Some people MIGHT have a " normal " 68 BPM, but average healthy while having been resting for 15 to 20 minutes or so is going to be around 70-80, no higher or lower, give or take a palpitation or two in there. When I went without any thyroid meds for 2 to 3 months or so (very hypo), mine went down anywhere from 53-58 per minute. I could feel the difference and in my breaths, too. I knew what was going on there because I had experienced it before I was ever treated, yrs before that, along with the air hunger. When I get air hunger now is during subtle asthma attacks or with sinus problems, which I have plenty of, or even when the thyroid does it's swelling act. Re: Can air hunger kill you? > Oh my god ! That's exactly how i feel!!! I sometimes " forget " to > breath while I am awake and sometimes it's a conscious thing to force > myself to take a breath. I breath very shallow too and every 5-10 > breaths or so, I struggle for a deeper breath (like a yawn). I can > rarely get that satisfying deep breath I feel I need. > I wonder if, when I fall asleep, I'm unconscious so I can't " remember " > to breath? > I am about 11 breaths/minute by the way. > > Kate I do have acid reflux too. But it comes and goes. I am not on > any medication for it. It started about the time all my other crazy > symptoms started, so I wonder if everything is related? > > -Eve- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I just counted my pulse at 68. And no I am not an athlete! I am 100+ lbs overweight. I know I am hypo. I can feel it. So many " ah-ha " moments when I started researching...it can't be a coincidence. -Eve- > > You are HYPO HYPO HYPO. Did you say what > your pulse was already? Some doctors try to claim that a slow HRate is > " athlete's heart " . That is hogwash! Some people MIGHT have a " normal " 68 > BPM, but average healthy while having been resting for 15 to 20 minutes or > so is going to be around 70-80, no higher or lower, give or take a > palpitation or two in there. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.