Myers Saga

[Guest guest]

Thank you for your support for me and . I feel so isolated with this and

it is so nice to have you as support with your reaching out and suggestions.

Here's the latest on ......and my opinions.....

First of all, is not aggressive when she is not in pain, however, she will

go after her sisters when she is jealous of the others getting attention!!!

Facts:

has a blocked sinus / sinus infection in the sinus that is near the base

of her brain (I can't remember the name) and she is having another CT scan on

11/1 to see if the medication cleared the infection.

She is on nebulized ceftazadine day 5 of 21 (this usually starts working in a

couple of days)

Her temp is still in the low 100's

She is aggressive and is very tense. She bends her fingers back and jams her

fingers, toes, and feet into the ground or chair and seems to be extremely tense

She normally goes to sleep around 8 - she's been staying up until around 10

She has crying fits where she holds her head (Saturday night)

I give her Motrin almost around the clock. I've started giving her Sudafed in

the morning.

She is on Migraine for migraines and cyclical vomiting

She is on a blended diet and on probotics. I am starting to limit her dairy

intake.

She is more aggressive at home and does well at school but attacks kids there

too

She is non stop at home - running around the kitchen in circles - won't get

dressed in the morning - tries to destroy anything and everything - tries to

pull things off the counter - all while laughing hysterically! You can't turn

your back on her!

I think that's it.

We did have two good days last week.....

Ideas:

She is very frustrated because her communication - or our understanding - is

limited.

She has a throbbing headache!

She is teething her 6 year molars

She seems fine gastro wise.

I'm very open to ideas and I really appreciate your time, unconditional support,

and opinions!

Lori Myers

Spouse - Trent, Children - (9), (6, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04!, and Emma (4 on the 24!)

Dallas, Texas