ADD and apraxia

[Guest guest]

Looking for inf about how to use Efas in my ADD 9 years old son, I

found this site. I was so surprised because my son has also speech

delay!!!. Is anyone in this group that knows about the relation

between apraxia, ADD and the use of EFAs?? We want to try the EFA

treatment, but although I've been reading a lot about oils, flax,

Proefa, flex, etc. I don't still quite understand how to use them and

the dosis of EPA, GLA, Omega3, Omega 6 I should begin with. I also saw

that most of this comercial products are only sold inside the USA and

we live in Mexico City.

[Guest guest]

Hi and welcome!

Do I know about ADD and language delays and EFAs? (she said with a

smile) I have a brother and one son with ADHD, another son with

apraxia, some nieces and nephews with speech delays or impairments.

While ADHD was there before with my brother, speech impairments

weren't in our family till this generation, for my family at least.

http://www.cherab.org/news/Save.html

Here's an article I wrote that was OK'd by the CHERAB advisors

http://www.cherab.org/information/speechlanguage/advisoryboard.html

ADHD and speech and language problems

Why underlying speech and language disorders in conditions from ADHD

and autism to dyslexia and DSI need to be addressed

http://www.cherab.org/information/adhd-speech.html

As far as where to get EFAs in Mexico City. Are there any health

food stores near you? Run this by your child's ped. Name brand

doesn't matter -just formula, dosage, and quality of the oils. Most

of us found success with the following formula:

DHA about 100 mg Omega 3

EPA about 150 mg Omega 3

GLA about 30-40 mg. Omega 6

If you don't have a place to buy from near you -you can purchase

online. Here are some sources

http://www.cherab.org/information/dietaryeffects/efabasics.html

Nordic Naturals ProEFA from the US and Equazen from the UK are two

very good formulas, and good quality oils.

(Efalex is good too)

Here's an archive with more on it!

From: " kiddietalk " <kiddietalk@...>

Date: Sat Oct 1, 2005 9:22 am

Subject: Re: ProEFA good for ADHD? kiddietalk

Marcy I have one child with apraxia and one with ADHD. Both are

using the exact same oils in different formula's and dosages with

beautiful results. I just posted how my ADHD son Dakota gets 2

hours a night of homework. Well he does it independently most

times, and his grades so far this year in 6th grade are all in the

90s. (As) He has some awesome teachers this year, think he has 6

or 7, and they are all so proud of him too!

If you are sure the ProEFA is making your child hyper -stop the oils

and see how he does without them. Observe any changes. How is his

focus, speech, motor skills without the oils? Wait a few weeks to a

few months if possible. (if he regresses like many do that may not

be possible) Then put him back on and observe again.

Your other option is to reduce the oils. And in my opinion you also

have no downside to trying other formulas doing it the same way as

above. Most of us as parents do try other brands and formulas -and

most find out that ProEFA works the best at the lowest dosage for

some reason. Other formulas that are similar in results are Efalex

and EyeQ.

Nobody here would be able to say if for sure your child was apraxic

since he was only 2 when diagnosed, (did he show signs of oral

apraxia) or is ADHD now since he is 3 and that's a bit early for

that diagnosis as well. Only you as the parents and the

professionals that work closet with you and your son would know.

I'd seek second opinions if you have not already for more than the

obvious reason. If you have a neuroMD that isn't knowledgeable

about fish oils you may want to find one that is. (most of the

leading MDs are today)

Here's a book you may want (read this page here)

http://www.drstordy.com/stories.html You may also want to study

this before published results

http://www.bbc.co.uk/science/humanbody/mind/articles/intelligenceandmemory/omega\

_three.shtml

after

http://www.durhamtrial.org

http://www.equazen.com/default.aspx?pid=120

(for our UK members -EyeQ is a similar formula to ProEFA)

More EFA 101 information here

http://www.cherab.org/information/indexinformation.html#diet

And yes I agree -Early Intervention is key!

Below is a recent message I sent out about fish oils and my boys.

From: " kiddietalk " <kiddietalk@...>

Date: Fri May 27, 2005 7:41 pm

Subject: Re: [ ], what kind of EFA are your

kids taking?

Dakota is 10 and Tanner is 8. Both started on the same one capsule

of ProEFA everyone else starts with. Both boys are top students with

lots of friends. However both show regression to this day if off

the oils, but heart disease runs in both my family and my husband's

family -so it's good for the boys to take the fish oils every day

regardless. Fortunately -they ask for if we forget to give it to

them!

Today -years after starting them, Dakota takes both ProEFA and

ProEPA each day. He also takes one capsule of each ProEFA and

ProEPA around lunch each day at school which is left with the school

nurse

under advisement from the school child psychologist. It became

apparent to Dr. ___ through his AM and PM teachers (boys are in a

college prep elementary school) that Dakota was more focused in his

morning classes after taking his EFAs in the AM and she's a huge

believer in EFAs for ADHD which is what Dakota has. Once on EFAs for

the PM -Dakota's PM teachers were amazed how his focus increased.

Dakota takes all together 3 to 5 capsules of 'each' a day -so 6 to

10 capsules a day. It sounds like a lot -but we went to that over

time and that's how much he needs to stay off medications. We chose

the EFAs and the MDs agreed as long as it works. Dakota needs a one

to one ratio of ProEFA to ProEPA.

Tanner on the other hand needs a two to one ratio of ProEFA over

ProEPA. Every day he takes two ProEPA and four ProEFA. We again

got to this dosage over time -and this is today the dosage that

works best for him -speech, school work etc.

(Fortunately both of my boys can swallow the capsules now!)

Other than that pretty much nothing else out of the norm. Other

than Tanner drinks 'POM wonderful'

http://webreprints.djreprints.com/1206691112192.html

http://www.pomwonderful.com/ juice every day -which like " magic fish

oil " is supposed to have " magical qualities " as well they say. No

more constipation for way over a year -that's magic enough for me!

And for the person that asked -yes our whole family is on ProEFA.

For any of you that have not tried it. Take one or two a day and

you tell us if you ever walk into a room again and forget why you

are there. You'll just feel more focused and ...happy...taking

them. I say no wonder you can stick a goldfish in a paper cup and

they look happy -they are full of EFAs!

Tanner's page

http://www.cherab.org/information/familiesrelate/letter.html

Dakota's page

http://www.cherab.org/information/familiesrelate/workandfamily.html

=====

[Guest guest]

---

Hi there,

My daughter is on Adderal XR for the ADHD. With the apraxia, ADHD,

Sensory Integration, etc., she and I don't get a whole lot of sleep.

School is an issue and I will be keeping her back for 1st grade. It's

a hard decision but I'd rather do it now then later. Any others?

Help please?? Anyone? I'm desperate, depressed and feeling like I

failed her somewhere. She had a very traumatic birth.

Thanks.

In , Pronovost

<cscz@...> wrote:

>

> Hi Kim,

>

> No great advice, but I just wanted to say I am in the same spot. I

have

> really learned a lot about ADHD / ADD from the book " Taking Charge

of

> ADHD " by Barkley. It is a good educational book. Not the

> easiest to read ut very informative. Good Luck in your journey and

keep

> us updated!! I am working on getting a psychiatrist to see my son

for

> ADHD. Good Luck!

>

>

> > Does anyone have a child with both ADD and Apraxia?

> >

> >

> >

>

[Guest guest]

Kim,

Are you sure your child has ADD? When my daughter was 6 I had her diagnosed

with ADHD. Later I discovered that all her symptoms could be sensory

integration dysfunstion, or auditory processing disorder, receptive & expressive

language delays, or dypraxia. She is 15 now and I know she has Language and

reading disabilities, OCD and Anxiety, Sensory integration dysfunction is mostly

under control, and dyspraxia is mostly resolved, but ADD or ADHD has been ruled

out. I was in a rush to diagnose her at 5 because I thought it would help her

educationally. I was so wrong. The school looked at the ADHD diagnosis and

then refused to look into special language programs that they had available.

They liked the ADHD label, it got them off the hook for a while. The OCD and

anxiety is because the school district makes kids stress out so much before they

will lend a helping hand. She was literally pulling her hair out in fourth

grade because she was so stressed out. She was put in a con

tained class then and now she is successful in mainstreaming in PE, math and

French. She still struggles with Reading, and Writing so she continues to get

help in those areas.

Good Luck,

Lorraine

-------------- Original message --------------

From: " kim kufus " <kimann@...>

Does anyone have a child with both ADD and Apraxia? I have been doing a lot of

thinking about this issue, and I wonder if anyone knows the difference between

how language is affected in ADD with anxiety, versus Apraxia.

Thanks,

Kim, Mommy to Josiah and iel

Micah 6:8

[Guest guest]

>

> Does anyone have a child with both ADD and Apraxia?

Hi,

My 10 year-old daughter had a severe speech delay that looked like

Apraxia, but she never had a formal diagnosis of Apraxia. At one point

he SLP thought maybe it was Systemic language impairment. At age 7

she was diagnosed with inattentive ADD and the from the very first day

she was given stimulant medicine, she was able to talk. Before that

day, her connected speech was unintelligible. It took her several

years to catch up from that delay, but she is doing well now.

I now have a 2.5 year-old with speech delay, but this is looking more

like autism than ADD. Looks like another long road ahead of us.

New to the list,

[Guest guest]

>

> That is a good question.

> They seem to go hand and hand.

>

>

>

>

[Guest guest]

Hello,

My daughter goes to see the neurologist on Monday.

I suspect she has ADHD in addition to her Apraxia. Her older brother

has ADHD. I suspect my son also has Apraxia. I had him evaluated,

but the SlP who tested him gave a subjective final opinion. He was

born with Cleft lip and palate and she said that she was going to

stick with his Cleft/articulation diagnosis due to her training. I

was informed that if I brought him to another SLP, they might

diagnosis the Apraxia. Her main reasoning was his errors were

consistent, but my daughter's therapist made a good point. My son is

7yrs old, so he has programmed those errors, and hence the

conisistency.

>

> Does anyone have a child with both ADD and Apraxia? I have been

doing a lot of thinking about this issue, and I wonder if anyone

knows the difference between how language is affected in ADD with

anxiety, versus Apraxia.

>

> Thanks,

>

> Kim, Mommy to Josiah and iel

> Micah 6:8

>

>

[Guest guest]

Wow, sounds like my Hannah! ADHD, apraxia, SID, possible PDD, plus

hearing loss and still checking for AN or APD. How did you get thru

it? I'm the one pulling out my hair right now!!

Thanks!

Mom to Hannah (7) plus 3 more kids!

>

> Kim,

> Are you sure your child has ADD? When my daughter was 6 I had her

diagnosed with ADHD. Later I discovered that all her symptoms could

be sensory integration dysfunstion, or auditory processing disorder,

receptive & expressive language delays, or dypraxia. She is 15 now

and I know she has Language and reading disabilities, OCD and

Anxiety, Sensory integration dysfunction is mostly under control, and

dyspraxia is mostly resolved, but ADD or ADHD has been ruled out. I

was in a rush to diagnose her at 5 because I thought it would help

her educationally. I was so wrong. The school looked at the ADHD

diagnosis and then refused to look into special language programs

that they had available. They liked the ADHD label, it got them off

the hook for a while. The OCD and anxiety is because the school

district makes kids stress out so much before they will lend a

helping hand. She was literally pulling her hair out in fourth grade

because she was so stressed out. She was put in a con

> tained class then and now she is successful in mainstreaming in PE,

math and French. She still struggles with Reading, and Writing so

she continues to get help in those areas.

> Good Luck,

> Lorraine

>

> -------------- Original message --------------

> From: " kim kufus " <kimann@...>

> Does anyone have a child with both ADD and Apraxia? I have been

doing a lot of thinking about this issue, and I wonder if anyone

knows the difference between how language is affected in ADD with

anxiety, versus Apraxia.

>

> Thanks,

>

> Kim, Mommy to Josiah and iel

> Micah 6:8

>

>

[Guest guest]

>

> Is inattentive ADD different than the typical diagnosis of ADD or

ADHD?

It is ADD...without the H. These are the individuals who daydream a

lot, are disorganized, have a hard time following directions, but

don't necessarily exhibit signs of hyperactivity.

My daughter takes Concerta. We never expected improved speech and

language as a benefit of the stimulant medication, but boy were we

ever grateful. It was just short of miraculous and helped validate

our decision to use medication to treat her ADD. She was 7 at the

time though so she was old enough to start the stimulant family of

medications.

I hope you find a solution for your son.

-

My son is EXTREMELY hyper - can run back and forth seemingly forever

just for the joy of running. He also has a very low attention span -

a minute of focusing on something that doesn't make noise is really

good for him. His developmental ped is already calling him severely

ADHD at 3 y/o. We tried Clonadine for his activity level and it was

a disaster - overly tired (yep, wiped that activity right out of him

but made him virtually non-functional) and aggressive. Tenex is the

next drug we are to consider but I'm reluctant. Neither of these are

in the stimulant family. The neuro is worried about stimulant meds

at his age. What did your son take that helped so much?

>

> , mom to Cordis, 3 y/o, dx Infantile Spasms (severe seizure

disorder) @ 6.5 mos, now seizure free, developmental delays, non-

verbal, ADHD

[Guest guest]

I just finished a class on children with brain disorders. The

facilator mentioned the medical literature moving to use Adhd to cover

Add and Adhd, because your brain is always in an hyperactive state.

Talk about confusing!

In , " hae_mom " <hae_mom@...> wrote:

>

>

> >

> > Is inattentive ADD different than the typical diagnosis of ADD or

> ADHD?

>

> It is ADD...without the H. These are the individuals who daydream a

> lot, are disorganized, have a hard time following directions, but

> don't necessarily exhibit signs of hyperactivity.

>