Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 and I am so embarrassed that I wrote hear instead of here!! > > I haven't been hear in awhile - I thought things were fine but I am > now remembering that the nasty little thyroid is responsible for many > things. > > I had a total thyroidectomy in the summer of 2004 - this was due to 2 > nodules, one on each side, that couldn't be biopsied. Since my > throid hadn't worked well in years (hypothyroid) and they were in > there anyway, they decided to remove the whole thing in case the > nodules were cancerous (they weren't). > > The reason I started with the endo prior to the surgery was because I > was having difficulty breathing (have to yawn to take full breath - > breath never really catching). I read in Shomon's book it could > be thyroid related. Then one thing lead to another, the surgery was > done and once the smoke cleared I still couldn't breath well. My > endo says it has nothing to do with my thyroid. > > I have been to pulmonary doctors who have sent me for various tests - > stress tests - pulmonary function tests yada yada. The say all is > well, although I have read hear about MVP and might ask about that at > my next visit. It is over 3 years since this started and I still > can't breath normally. Some times it is horrible - a pressure in the > center of my chest and I can not catch a breath without trying 3 or 4 > times. On a regular day it takes one very deep breath or yawn. > > My gut instinct tells me it is somehow thyroid related, but what if > it is? How can they improve it? Is it medicine related? Does > anyone else have this? > > I am sorry this is so long but it is really affecting my life now- > well, it has always affected my life, but now my patience is gone. > > Thank you all in advance > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 It sounds like air hunger check out this link: http://www.drlowe.com/jcl/comentry/breathingproblems.htm > > I haven't been hear in awhile - I thought things were fine but I am > now remembering that the nasty little thyroid is responsible for many > things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 First things first, do a test----Count the # of breaths you're normally taking per minute. I always use a 15 second count and then ultiply that by four. But make sure you're in a relaxed mode, sitting down relaxing for a few minutes before you start this count. The normal respiration should be around about 18 breaths a minute, as an average. Some people are normal at 20, but 10 to 14 breaths per minute is NEVER normal. The reason I ask you to do this is because when I went severely hypo for the SECOND time, due to being out of medication for a couple of months, this is one of the things that I knew to look for, and sure enough, my breaths slowed down to about 12 or so. The effect this slowed breathing had on me was not ever getting enough air in because the mechanism was not fast enough. This has happened to other hypo people as well. It can also happen if you are OVERmedicated. This being said, what are your full thyroid test results (FREE T3 and FREE T3 and TSH, altogether) most recently, plus how much and what you're taking for it, and any other abnormal test results and let us know what the results of your respiration are. breathing difficulties - long but please read >I haven't been hear in awhile - I thought things were fine but I am > now remembering that the nasty little thyroid is responsible for many > things. > > I had a total thyroidectomy in the summer of 2004 - this was due to 2 > nodules, one on each side, that couldn't be biopsied. Since my > throid hadn't worked well in years (hypothyroid) and they were in > there anyway, they decided to remove the whole thing in case the > nodules were cancerous (they weren't). > > The reason I started with the endo prior to the surgery was because I > was having difficulty breathing (have to yawn to take full breath - > breath never really catching). I read in Shomon's book it could > be thyroid related. Then one thing lead to another, the surgery was > done and once the smoke cleared I still couldn't breath well. My > endo says it has nothing to do with my thyroid. > > I have been to pulmonary doctors who have sent me for various tests - > stress tests - pulmonary function tests yada yada. The say all is > well, although I have read hear about MVP and might ask about that at > my next visit. It is over 3 years since this started and I still > can't breath normally. Some times it is horrible - a pressure in the > center of my chest and I can not catch a breath without trying 3 or 4 > times. On a regular day it takes one very deep breath or yawn. > > My gut instinct tells me it is somehow thyroid related, but what if > it is? How can they improve it? Is it medicine related? Does > anyone else have this? > > I am sorry this is so long but it is really affecting my life now- > well, it has always affected my life, but now my patience is gone. > > Thank you all in advance > Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 You know most of us have had the " word play " thing, mixing words up, forgetting spellings of common words, plus doing a word search for meanings that we've always known, lol, it's my favorite game lately. I think nothing of it because it's all part of hypo, to me. And I was an A+ student in spelling and English, hehe. Re: breathing difficulties - long but please read > and I am so embarrassed that I wrote hear instead of here!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 > > I haven't been hear in awhile - I thought things were fine but I am > now remembering that the nasty little thyroid is responsible for many > things. > > I had a total thyroidectomy in the summer of 2004 - this was due to 2 > nodules, one on each side, that couldn't be biopsied. Since my > throid hadn't worked well in years (hypothyroid) and they were in > there anyway, they decided to remove the whole thing in case the > nodules were cancerous (they weren't). > > The reason I started with the endo prior to the surgery was because I > was having difficulty breathing (have to yawn to take full breath - > breath never really catching). I read in Shomon's book it could > be thyroid related. Then one thing lead to another, the surgery was > done and once the smoke cleared I still couldn't breath well. My > endo says it has nothing to do with my thyroid. > > I have been to pulmonary doctors who have sent me for various tests - > stress tests - pulmonary function tests yada yada. The say all is > well, although I have read hear about MVP and might ask about that at > my next visit. It is over 3 years since this started and I still > can't breath normally. Some times it is horrible - a pressure in the > center of my chest and I can not catch a breath without trying 3 or 4 > times. On a regular day it takes one very deep breath or yawn. > > My gut instinct tells me it is somehow thyroid related, but what if > it is? How can they improve it? Is it medicine related? Does > anyone else have this? > > I am sorry this is so long but it is really affecting my life now- > well, it has always affected my life, but now my patience is gone. > > Thank you all in advance > Suzi > Suzi, my mom has a under active thyroid same as myself and new now adding to the family is my younger sister. My mother battles this nasty little problem plus many others she has a condition called Sarcoid it is a rare problem that is the inflamatiin of her lung tissue and causes her the same breathing troubles you describe. Please ask your doctor to look at this as a possibility as it may be the culprit. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 This sounds like it exactly - now how do I find a doctor who will listen to me?! - Thank you so much for this > > > > I haven't been hear in awhile - I thought things were fine but I am > > now remembering that the nasty little thyroid is responsible for many > > things. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 I am waiting for them to send them to me in the mail - I had an appt on Tuesday and forgot to take them. I will post as soon as I do - as always, you guys have shown me the light at the end of the tunnel! > > First things first, do a test----Count the # of breaths you're normally > taking per minute. I always use a 15 second count and then ultiply that by > four. But make sure you're in a relaxed mode, sitting down relaxing for a > few minutes before you start this count. The normal respiration should be > around about 18 breaths a minute, as an average. Some people are normal at > 20, but 10 to 14 breaths per minute is NEVER normal. The reason I ask you > to do this is because when I went severely hypo for the SECOND time, due to > being out of medication for a couple of months, this is one of the things > that I knew to look for, and sure enough, my breaths slowed down to about 12 > or so. The effect this slowed breathing had on me was not ever getting > enough air in because the mechanism was not fast enough. This has happened > to other hypo people as well. It can also happen if you are OVERmedicated. > This being said, what are your full thyroid test results (FREE T3 and FREE > T3 and TSH, altogether) most recently, plus how much and what you're taking > for it, and any other abnormal test results and let us know what the results > of your respiration are. > > > > breathing difficulties - long but > please read > > > >I haven't been hear in awhile - I thought things were fine but I am > > now remembering that the nasty little thyroid is responsible for many > > things. > > > > I had a total thyroidectomy in the summer of 2004 - this was due to 2 > > nodules, one on each side, that couldn't be biopsied. Since my > > throid hadn't worked well in years (hypothyroid) and they were in > > there anyway, they decided to remove the whole thing in case the > > nodules were cancerous (they weren't). > > > > The reason I started with the endo prior to the surgery was because I > > was having difficulty breathing (have to yawn to take full breath - > > breath never really catching). I read in Shomon's book it could > > be thyroid related. Then one thing lead to another, the surgery was > > done and once the smoke cleared I still couldn't breath well. My > > endo says it has nothing to do with my thyroid. > > > > I have been to pulmonary doctors who have sent me for various tests - > > stress tests - pulmonary function tests yada yada. The say all is > > well, although I have read hear about MVP and might ask about that at > > my next visit. It is over 3 years since this started and I still > > can't breath normally. Some times it is horrible - a pressure in the > > center of my chest and I can not catch a breath without trying 3 or 4 > > times. On a regular day it takes one very deep breath or yawn. > > > > My gut instinct tells me it is somehow thyroid related, but what if > > it is? How can they improve it? Is it medicine related? Does > > anyone else have this? > > > > I am sorry this is so long but it is really affecting my life now- > > well, it has always affected my life, but now my patience is gone. > > > > Thank you all in advance > > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 I was a teacher! That's why it kills me - Again, I forget about how the thyroid affects everything and I get complacent and think everything is " just me " - well, it is, but with an underlying reason! > > You know most of us have had the " word play " thing, mixing words up, > forgetting spellings of common words, plus doing a word search for meanings > that we've always known, lol, it's my favorite game lately. I think nothing > of it because it's all part of hypo, to me. And I was an A+ student in > spelling and English, hehe. > > > > Re: breathing difficulties - long but > please read > > > > and I am so embarrassed that I wrote hear instead of here!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 > > I was a teacher! That's why it kills me - > > Again, I forget about how the thyroid affects everything and I get > complacent and think everything is " just me " - well, it is, but with > an underlying reason! > My brain goes to fast for my fingers..lol or at least that is my excuse..I will type away and then look at it and go..oops did I just type that. My boys are at the stage in school where they are working on proper sentence order, paragraph order etc. and I get after them on it for homework then come on here and make everything a jumbled mess...too many thoughts, too little space and tracking of what? Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 thank you - it is on my NEW list of things to ask > > > > I haven't been hear in awhile - I thought things were fine but I > am > > now remembering that the nasty little thyroid is responsible for > many > > things. > > > > I had a total thyroidectomy in the summer of 2004 - this was due > to 2 > > nodules, one on each side, that couldn't be biopsied. Since my > > throid hadn't worked well in years (hypothyroid) and they were in > > there anyway, they decided to remove the whole thing in case the > > nodules were cancerous (they weren't). > > > > The reason I started with the endo prior to the surgery was > because I > > was having difficulty breathing (have to yawn to take full breath - > > > breath never really catching). I read in Shomon's book it > could > > be thyroid related. Then one thing lead to another, the surgery > was > > done and once the smoke cleared I still couldn't breath well. My > > endo says it has nothing to do with my thyroid. > > > > I have been to pulmonary doctors who have sent me for various > tests - > > stress tests - pulmonary function tests yada yada. The say all is > > well, although I have read hear about MVP and might ask about that > at > > my next visit. It is over 3 years since this started and I still > > can't breath normally. Some times it is horrible - a pressure in > the > > center of my chest and I can not catch a breath without trying 3 > or 4 > > times. On a regular day it takes one very deep breath or yawn. > > > > My gut instinct tells me it is somehow thyroid related, but what > if > > it is? How can they improve it? Is it medicine related? Does > > anyone else have this? > > > > I am sorry this is so long but it is really affecting my life now- > > well, it has always affected my life, but now my patience is > gone. > > > > Thank you all in advance > > Suzi > > > Suzi, my mom has a under active thyroid same as myself and new now > adding to the family is my younger sister. My mother battles this > nasty little problem plus many others she has a condition called > Sarcoid it is a rare problem that is the inflamatiin of her lung > tissue and causes her the same breathing troubles you describe. > Please ask your doctor to look at this as a possibility as it may be > the culprit. > > Good luck > Quote Link to comment Share on other sites More sharing options...
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