A new member with CHARGE adult

Posted April 4, 2007 · April 4, 2007

Yes, I came for a summer vacation one year and skiing in Steamboat, I think,

another year. Absolutely beautiful!

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

michele sinopoli

Sent: Wednesday, April 04, 2007 8:40 AM

To: CHARGE

Subject: Re: A new member with CHARGE adult

Of course yes Denver is more scenic. Have you been in Denver before? Live by

the mountain it easy to tell which is east, weat, south and north. Michele

S.

RE: A new member with CHARGE adult

Michele S-

I am in IL. Denver is much more scenic than the flat plains where I live!

Michele W

Posted April 4, 2007 · April 4, 2007

Isn't it weird how our minds don't age with our bodies. I still think

I am young, shapely, and gorgeous but that old lady in the mirror

keeps calling me a lier. Makes me just want to smack the old broad.

LOL

mom to (31)

> >

> > Michele S-

> > I am 43 right now. So we are close in age, besides sharing names.

And, no,

> > 42 is not old!!!

> >

> > :-)

> >

> > Michele W

> >

Posted April 4, 2007 · April 4, 2007

That's a prefect Hallmark card! You know, Maxine or whatever her name is -

this is perfect! I may use this on the next card I make for a friend's

birthday!

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

artthrobgracie10

Sent: Wednesday, April 04, 2007 10:26 AM

To: CHARGE

Subject: Re: A new member with CHARGE adult

Isn't it weird how our minds don't age with our bodies. I still think

I am young, shapely, and gorgeous but that old lady in the mirror

keeps calling me a lier. Makes me just want to smack the old broad.

LOL

mom to (31)

Posted April 4, 2007 · April 4, 2007

Ha Ha, I don't know if happen to all young charge adults. It happen to me a lot

of most people thought I'm around younger than 40s even they thought I'm 20, I

was like " thank you that was nice. I could have said little smarty pant but I

didn't so I'm being too nice. Michele S.

Re: A new member with CHARGE adult

Isn't it weird how our minds don't age with our bodies. I still think

I am young, shapely, and gorgeous but that old lady in the mirror

keeps calling me a lier. Makes me just want to smack the old broad.

LOL

mom to (31)

> >

> > Michele S-

> > I am 43 right now. So we are close in age, besides sharing names.

And, no,

> > 42 is not old!!!

> >

> > :-)

> >

> > Michele W

> >

Posted April 4, 2007 · April 4, 2007

Ah nice side family. I seven sisters and one brother they were between 61 down

to 42 also my two sisiters are twin. Yes my sister teri was an audioloist

because of me. I wonder how the most chargers born from, i mean what make them

born that way? well, my parents were around 40s and i was born in late age my

mom was 43. My parents and my sisters said two things, i guess the doctor told

my parents that i got from german measle but now my sisters told me it probably

from late age. well i don't know who is right. Well i heard in late 60s like

around 65 to 67 german measle spread some countries that cause lot of deaf that

what i know of so i didn't get all much information. Also my parents just passed

away, my father died of pnemous (sp) of age 79 seven years ago and my mom died

azlemher's (sp) age of 83 two years ago sorry sharing information. Michele S

RE: A new member with CHARGE adult

Hello MIchele S.

It is nice to learn more about you and your family! I have a twin sister (we

are the oldest--55) and then a younger sister who is 49 and a brother (our baby)

who is 42. There is no one with CHARGE in my family. How interesting that your

sister work for cochlear implant business--is this something she became

interested in because of you? I am glad you and your sister found us!

I am glad you are with us and have actively joined our other lovely CHARGE

adults!

pam

Posted April 4, 2007 · April 4, 2007

,

thanks for welcome me in and nice to meet you and . Are you going to

conference on July? Couldn't wait to meet.

michele S.

RE: A new member with CHARGE adult

>

> Welcome, Michele! My name is also Michele! I sign as " Michele W "

so

> hopefully people will be able to keep us straight :-) I have a 9-

year-old

> daughter, Aubrie, with CHARGE. I'm thrilled that you have found

us!

>

> Michele W

> Aubrie's mom

>

Posted April 5, 2007 · April 5, 2007

Michele

Yes, and I are going to conference. We are arriving in Ca

on July 25th and staying until the 31st. Yipee is so excited

about meeting all the other adults who are CHARGE like him. He has

never met anyone before with CHARGE. My email is

artthrob@... you can email me direct and I will send you

's email. He emails directly because the amount of emails

through the list overwhelms him. I know he would like to communicate

with you. He already does with some of the others.

mom to (31)

>

> ,

>

> thanks for welcome me in and nice to meet you and . Are you

going to conference on July? Couldn't wait to meet.

> michele S.

> ----- Original Message -----

Posted April 5, 2007 · April 5, 2007

, those are the dates past and I will be there. we are going w/o kids,

so you won't get to meet tim, but I'll bring pics. we were supposed to go away

last summer for our 15th anniv. but had to cancel--so this is our trip.

Re: A new member with CHARGE adult

Michele

Yes, and I are going to conference. We are arriving in Ca

on July 25th and staying until the 31st. Yipee is so excited

about meeting all the other adults who are CHARGE like him. He has

never met anyone before with CHARGE. My email is

artthrob@... you can email me direct and I will send you

's email. He emails directly because the amount of emails

through the list overwhelms him. I know he would like to communicate

with you. He already does with some of the others.

mom to (31)

>

> ,

>

> thanks for welcome me in and nice to meet you and . Are you

going to conference on July? Couldn't wait to meet.

> michele S.

> ----- Original Message -----

Posted April 5, 2007 · April 5, 2007

,

So happy. Good that you are getting a get away alone. It was

many,many years before Henry and I ever got the chance. We were in Ca

9 years ago for our 25th wedding aniversary. Daughter, Dawn, was

living in L.A. at the time and we had with us. Henry and I

drove to Vegas alone for weekend while we were there. Dawn kept

for us. It was soooo nice. Will you be staying at the Hilton the

whole time? We are if I can get the lower rate for the entire time.

Flying into the Wayne Airport. Henry and I are also going to

Oklahoma for 2 weeks in June. Going to take our time driving and are

going to visit with some friends for an old fasion fish fry weekend.

Throw some agility dog shows and 's horse back riding

competetion (4 days at Penn State if he qualifies) our summer is

looking busy. Well you take care and be well.

mom to (31)

> >

> > ,

> >

> > thanks for welcome me in and nice to meet you and . Are

you

> going to conference on July? Couldn't wait to meet.

> > michele S.

> > ----- Original Message -----

>

Posted April 8, 2007 · April 8, 2007

Hi Michele S.

You sure have a big family!!

It is interesting that your sister is an audiologist because of you--nice that

you could influence her career!

There are two things I know about in the world: German Measles and CHARGE.

These are two VERY different things. CHARGE is genetic and German measles is

from the virus. WIth German measles (Rubella) the mother gets sick (sometimes

she does not know she is sick) from being exposed to someone with German measles

and if she is pregnant, her baby gets the virus, too. The baby can have

cataracts at birth, hearing loss, heart problems, learning problems, and other

things. With Rubella, there are no facial differences or outside ear

differences or colobomas or many of the problems associated with CHARGE.

With CHARGE, and you can get much information from the CHARGE website, there are

many problems from birth--some mild, some severe--several of which are very

noticeable such as facial palsy, odd shaped ears, breathing and swallowing

problems. We know now that CHARGE is a genetic condition; German Measles is

not.

There are tests that can be done to see if you have CHARGE or Rubella. Perhaps

a talk with your doctor will help figure this out for you. I am sure if you

have more questions about CHARGE, Meg Hefner the geneticist here will be able to

answer them for you. If you want more information about german measles

--Rubella--or it's other name--Congenital Rubella Syndrome--feel free to contact

me off-line.

pam

Posted April 8, 2007 · April 8, 2007

yeah thanks Pam, i got a messages from Meg H. she told me all about CHARGE and

rubella like you said and I asked her some of the questions well very good

questions. Michele S.

RE: A new member with CHARGE adult

Hi Michele S.

You sure have a big family!!

It is interesting that your sister is an audiologist because of you--nice that

you could influence her career!

There are two things I know about in the world: German Measles and CHARGE.

These are two VERY different things. CHARGE is genetic and German measles is

from the virus. WIth German measles (Rubella) the mother gets sick (sometimes

she does not know she is sick) from being exposed to someone with German measles

and if she is pregnant, her baby gets the virus, too. The baby can have

cataracts at birth, hearing loss, heart problems, learning problems, and other

things. With Rubella, there are no facial differences or outside ear differences

or colobomas or many of the problems associated with CHARGE.

With CHARGE, and you can get much information from the CHARGE website, there

are many problems from birth--some mild, some severe--several of which are very

noticeable such as facial palsy, odd shaped ears, breathing and swallowing

problems. We know now that CHARGE is a genetic condition; German Measles is not.

There are tests that can be done to see if you have CHARGE or Rubella. Perhaps

a talk with your doctor will help figure this out for you. I am sure if you have

more questions about CHARGE, Meg Hefner the geneticist here will be able to

answer them for you. If you want more information about german measles

--Rubella--or it's other name--Congenital Rubella Syndrome--feel free to contact

me off-line.

pam

Posted April 8, 2007 · April 8, 2007

Um ,

I'm sorry I forgot to ask you so what do you mean you fought through a lof of

challages?

Just wondering thanks,

michele S.

Re: A new member with CHARGE adult

Hey Michele,

My name is Chip and I'm from Los Angeles, California! Yee-Haw! I sound like a

cowboy, lol! I'm 27 yrs old, going on 28 on June 16! Yep, I'm coming to the

Charge Conference in Costa Mesa! It'll be my 2nd times, some of my Californian

Charge friends are coming too, yay!

Can't wait to meet ya soon, thanks for joining the Charge Group!

Ol' Chipper >

michele sinopoli wrote:

Hello,

>

> I'm Michele Sinopoli with adult CHARGE . I have read a lot about the

> CHARGE foundation from website. I didn't know about it until my sister

> told me about the conference in July to meet young adults who

> have CHARGE to talk with. I am very excited to go there with one of

> my sister and niece to see what it is like. I have never met any CHARGE

> people in my life but I have heard a lot about CHARGE Syndrome for years

> from my family and doctors who told me about it. So my sister and I

> decided to sign up for CHARGE yahoo-groups, for me to see if we can

> get to know each other and have common interest but I have never been in a

chat

> room before. It sound very interesting. I might ask some questions and am

> curious about the chat room so I'll try to communicate as best as I can.

>

> Thanks,

> Michele S.

Posted April 8, 2007 · April 8, 2007

By fighting through a lot of obstacles, I was facing challenges and taking them

down. Do you understand?