Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hi I am an five year survivor, I have a double mastectomy, the Tamoxifen and the trams flap, along with various other drugs At the beginning, the breast cancer started in the right breast. I had an lumpectomy, then was started on an five year therapy of Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and was taken off after 6 months. One month later I found an lump on the left breast. That when the fun started, I made an horrible decision of having an double mastectomy, with reconstruction. I had an double mastectomy, and trams flap in Nov. 2002, with some nodes removal from the left arm. I developed an hernia after a few days, because of the empty space the trams flap left. All of my stitches burst, and I had to have extreme antibiotic therapy for the next few weeks. I then had the hernia repaired, and developed numerous sacs of fluid buildup because of empty spots inside my abdomen. My plastic surgeon had no sympathy and sent me off to physical therapy for deep massages to Aleve the pain. The scar tissues from the surgeries was like an bunch of grapes in my abdomen, and I learn to live with them. Well I returned to my oncologist and started an 6 month round of chemo therapy, afterward I was then started on many different maintenance drugs such as Ameridex, and Femara. I had such severe reaction from these drugs, that my life was totally unlivable. I persevered, and now it has been five years. A few week ago, I went to the hospital for a few days because of the side effects of the Femara, I had lost all strength in my arms, and was beginning to suffer from chest pain. I did not take the Femara for two weeks after being admitted to the hospital and felt so much better, I made an decision I am still not sure is right. I stop taking any maintenance drugs. I have had 2 family member die from cancer, since I was diagnosed. Neither one took the maintenance drugs I am very afraid, but the quality of life for me was totally unbearable I would love responses to this inquiry. Thank Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Jan, Everyone has to do what they feel is best for them. Some want to prolong their life no matter how sick they get and others want to spend the rest of their life as normal as possible. Only you know what feels best for you. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com help, need opinion Hi I am an five year survivor, I have a double mastectomy, the Tamoxifen and the trams flap, along with various other drugs At the beginning, the breast cancer started in the right breast. I had an lumpectomy, then was started on an five year therapy of Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and was taken off after 6 months. One month later I found an lump on the left breast. That when the fun started, I made an horrible decision of having an double mastectomy, with reconstruction. I had an double mastectomy, and trams flap in Nov. 2002, with some nodes removal from the left arm. I developed an hernia after a few days, because of the empty space the trams flap left. All of my stitches burst, and I had to have extreme antibiotic therapy for the next few weeks. I then had the hernia repaired, and developed numerous sacs of fluid buildup because of empty spots inside my abdomen. My plastic surgeon had no sympathy and sent me off to physical therapy for deep massages to Aleve the pain. The scar tissues from the surgeries was like an bunch of grapes in my abdomen, and I learn to live with them. Well I returned to my oncologist and started an 6 month round of chemo therapy, afterward I was then started on many different maintenance drugs such as Ameridex, and Femara. I had such severe reaction from these drugs, that my life was totally unlivable. I persevered, and now it has been five years. A few week ago, I went to the hospital for a few days because of the side effects of the Femara, I had lost all strength in my arms, and was beginning to suffer from chest pain. I did not take the Femara for two weeks after being admitted to the hospital and felt so much better, I made an decision I am still not sure is right. I stop taking any maintenance drugs. I have had 2 family member die from cancer, since I was diagnosed. Neither one took the maintenance drugs I am very afraid, but the quality of life for me was totally unbearable I would love responses to this inquiry. Thank Jan ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.411 / Virus Database: 268.17.24/668 - Release Date: 2/4/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hi Jan you're one great fighter!! Do continue the battle with whatever arsenal the doc prescribes. Quality of life will come after the enemy is defeated. There's always light at the end of the tunnel. Pray hard and I'll also pray for you. Love and God bless, Aurelia. help, need opinion Hi I am an five year survivor, I have a double mastectomy, the Tamoxifen and the trams flap, along with various other drugs At the beginning, the breast cancer started in the right breast. I had an lumpectomy, then was started on an five year therapy of Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and was taken off after 6 months. One month later I found an lump on the left breast. That when the fun started, I made an horrible decision of having an double mastectomy, with reconstruction. I had an double mastectomy, and trams flap in Nov. 2002, with some nodes removal from the left arm. I developed an hernia after a few days, because of the empty space the trams flap left. All of my stitches burst, and I had to have extreme antibiotic therapy for the next few weeks. I then had the hernia repaired, and developed numerous sacs of fluid buildup because of empty spots inside my abdomen. My plastic surgeon had no sympathy and sent me off to physical therapy for deep massages to Aleve the pain. The scar tissues from the surgeries was like an bunch of grapes in my abdomen, and I learn to live with them. Well I returned to my oncologist and started an 6 month round of chemo therapy, afterward I was then started on many different maintenance drugs such as Ameridex, and Femara. I had such severe reaction from these drugs, that my life was totally unlivable. I persevered, and now it has been five years. A few week ago, I went to the hospital for a few days because of the side effects of the Femara, I had lost all strength in my arms, and was beginning to suffer from chest pain. I did not take the Femara for two weeks after being admitted to the hospital and felt so much better, I made an decision I am still not sure is right. I stop taking any maintenance drugs. I have had 2 family member die from cancer, since I was diagnosed. Neither one took the maintenance drugs I am very afraid, but the quality of life for me was totally unbearable I would love responses to this inquiry. Thank Jan ________________________________________________________________________________\ ____ Don't get soaked. Take a quick peak at the forecast with the Yahoo! Search weather shortcut. http://tools.search.yahoo.com/shortcuts/#loc_weather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Jan, I had a tram flap reconstruction done in August of 06 along with a complete hysterectomy at the same time. I just want those who are considering this option it is not always a difficult process. I have no emptiness in my abdomen, I was stapled not stiched, and they use a piece of mesh to protect from any hernia. I had 2 drains in place for the fluid to drain and then they were removed. Overall, it was a great experience and I would absolutely do it again. I am very pleased with my reconstruction and my limitations to exercise are unlimited. As far as your decision on the drug treatment plan, that has to be yours and yours alone. I know many women I met during radiation who were recommended to take tamoxifan chose not to, it is definitely everyone's personal choice. I don't have that option as I am triple negative, but I'm sure its a hard decision to make with side affects and all for those of you who have to experiment in order to feel good. I wish you the best and hope you get some great feedback from this group! Peace and Prayers, Michele & nne Svihlik moochie1@...> wrote: Jan, Everyone has to do what they feel is best for them. Some want to prolong their life no matter how sick they get and others want to spend the rest of their life as normal as possible. Only you know what feels best for you. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com help, need opinion Hi I am an five year survivor, I have a double mastectomy, the Tamoxifen and the trams flap, along with various other drugs At the beginning, the breast cancer started in the right breast. I had an lumpectomy, then was started on an five year therapy of Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and was taken off after 6 months. One month later I found an lump on the left breast. That when the fun started, I made an horrible decision of having an double mastectomy, with reconstruction. I had an double mastectomy, and trams flap in Nov. 2002, with some nodes removal from the left arm. I developed an hernia after a few days, because of the empty space the trams flap left. All of my stitches burst, and I had to have extreme antibiotic therapy for the next few weeks. I then had the hernia repaired, and developed numerous sacs of fluid buildup because of empty spots inside my abdomen. My plastic surgeon had no sympathy and sent me off to physical therapy for deep massages to Aleve the pain. The scar tissues from the surgeries was like an bunch of grapes in my abdomen, and I learn to live with them. Well I returned to my oncologist and started an 6 month round of chemo therapy, afterward I was then started on many different maintenance drugs such as Ameridex, and Femara. I had such severe reaction from these drugs, that my life was totally unlivable. I persevered, and now it has been five years. A few week ago, I went to the hospital for a few days because of the side effects of the Femara, I had lost all strength in my arms, and was beginning to suffer from chest pain. I did not take the Femara for two weeks after being admitted to the hospital and felt so much better, I made an decision I am still not sure is right. I stop taking any maintenance drugs. I have had 2 family member die from cancer, since I was diagnosed. Neither one took the maintenance drugs I am very afraid, but the quality of life for me was totally unbearable I would love responses to this inquiry. Thank Jan ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.411 / Virus Database: 268.17.24/668 - Release Date: 2/4/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Oh Jan - you are indeed quite a fighter! What were the signs or effects that determined that you were allergic to the Tamoxifin and other A.I.'s?? I can certainly understand your dilema about whether to take them or not, but it sounds like you've made up your mind and I can appreciate your decision. We all have to weigh it out and make these tough decisions. In the " percentages game " of B/C recurrance you can either be on one side of the percent or the other. With your strength and determination - you'll be on the right side of those percents! Stay strong girlfriend. Hugs! Ellen > > Hi I am an five year survivor, > I have a double mastectomy, the Tamoxifen and the trams flap, along > with various other drugs > At the beginning, the breast cancer started in the right breast. > I had an lumpectomy, then was started on an five year therapy of > Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and > was taken off after 6 months. One month later I found an lump on > the left breast. > That when the fun started, I made an horrible decision of having an > double mastectomy, with reconstruction. > I had an double mastectomy, and trams flap in Nov. 2002, with some > nodes removal from the left arm. > I developed an hernia after a few days, because of the empty space > the trams flap left. > All of my stitches burst, and I had to have extreme antibiotic > therapy for the next few weeks. > I then had the hernia repaired, and developed numerous sacs of > fluid buildup because of empty spots inside my abdomen. > My plastic surgeon had no sympathy and sent me off to physical > therapy for deep massages to Aleve the pain. > The scar tissues from the surgeries was like an bunch of grapes in > my abdomen, and I learn to live with them. > Well I returned to my oncologist and started an 6 month round of > chemo therapy, afterward I was then started on many different > maintenance drugs such as Ameridex, and Femara. > I had such severe reaction from these drugs, that my life was > totally unlivable. > I persevered, and now it has been five years. > A few week ago, I went to the hospital for a few days because of > the side effects of the Femara, > I had lost all strength in my arms, and was beginning to suffer from > chest pain. > I did not take the Femara for two weeks after being admitted to the > hospital and felt so much better, I made an decision I am still not > sure is right. > I stop taking any maintenance drugs. > I have had 2 family member die from cancer, since I was diagnosed. > Neither one took the maintenance drugs > I am very afraid, but the quality of life for me was totally > unbearable > I would love responses to this inquiry. > Thank Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Wow, Jan. I probably would have made the same decisions, given what you say. I think people fear the way they are going to die and not death itself. Your post gives me lots of information about tram flap and other things. Thank you for sharing. You are a winner and it sounds like a fighter, too. I think that you have to decide what works for you. Unless I walk in your shoes, it is hard to know what is best. I think in your gut you know what you do for you is the right thing. I guess I would talk to my doctor, and see if there is anything that could make things more bearable. Anyway, I think quality of life is important. Time is precious. There is a country western song that Tim McGraw wrote about his dad who died from cancer. It is called " Live Like You Are Going To Die Tomorrow. " Basically it says that his dad said that once he received the cancer diagnosis, he went out and did everything that he wished he had done before cancer. Cancer tends to make us have a different perspective and creates a different meaning to life. Things just are never the same ever again. The Breathe In and Out is a really good piece to read, too. I wish for you and will pray that you have peace and confidence in your own decisions. We will support you no matter what. Jan K janice thornton jthor0824@...> wrote: Hi I am an five year survivor, I have a double mastectomy, the Tamoxifen and the trams flap, along with various other drugs At the beginning, the breast cancer started in the right breast. I had an lumpectomy, then was started on an five year therapy of Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and was taken off after 6 months. One month later I found an lump on the left breast. That when the fun started, I made an horrible decision of having an double mastectomy, with reconstruction. I had an double mastectomy, and trams flap in Nov. 2002, with some nodes removal from the left arm. I developed an hernia after a few days, because of the empty space the trams flap left. All of my stitches burst, and I had to have extreme antibiotic therapy for the next few weeks. I then had the hernia repaired, and developed numerous sacs of fluid buildup because of empty spots inside my abdomen. My plastic surgeon had no sympathy and sent me off to physical therapy for deep massages to Aleve the pain. The scar tissues from the surgeries was like an bunch of grapes in my abdomen, and I learn to live with them. Well I returned to my oncologist and started an 6 month round of chemo therapy, afterward I was then started on many different maintenance drugs such as Ameridex, and Femara. I had such severe reaction from these drugs, that my life was totally unlivable. I persevered, and now it has been five years. A few week ago, I went to the hospital for a few days because of the side effects of the Femara, I had lost all strength in my arms, and was beginning to suffer from chest pain. I did not take the Femara for two weeks after being admitted to the hospital and felt so much better, I made an decision I am still not sure is right. I stop taking any maintenance drugs. I have had 2 family member die from cancer, since I was diagnosed. Neither one took the maintenance drugs I am very afraid, but the quality of life for me was totally unbearable I would love responses to this inquiry. Thank Jan Jan Koelsch --------------------------------- Access over 1 million songs - Yahoo! Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 thank you Aurelia, I am my mom's full time care giver. she is 85 year old and slightly senile. I think the quality of my life is so different now, it is so good, I don't ever want to go back on the maintanence drugs again. Jan --- Aurelia Ang angaurelia@...> wrote: > Hi Jan you're one great fighter!! Do continue the > battle with whatever arsenal the doc prescribes. > Quality of life will come after the enemy is > defeated. There's always light at the end of the > tunnel. Pray hard and I'll also pray for you. > Love and God bless, > Aurelia. > > > help, need opinion > > Hi I am an five year survivor, > I have a double mastectomy, the Tamoxifen and the > trams flap, along > with various other drugs > At the beginning, the breast cancer started in the > right breast. > I had an lumpectomy, then was started on an five > year therapy of > Tamoxifen. We found, I was extremely allergic to the > Tamoxifen, and > was taken off after 6 months. One month later I > found an lump on > the left breast. > That when the fun started, I made an horrible > decision of having an > double mastectomy, with reconstruction. > I had an double mastectomy, and trams flap in Nov. > 2002, with some > nodes removal from the left arm. > I developed an hernia after a few days, because of > the empty space > the trams flap left. > All of my stitches burst, and I had to have extreme > antibiotic > therapy for the next few weeks. > I then had the hernia repaired, and developed > numerous sacs of > fluid buildup because of empty spots inside my > abdomen. > My plastic surgeon had no sympathy and sent me off > to physical > therapy for deep massages to Aleve the pain. > The scar tissues from the surgeries was like an > bunch of grapes in > my abdomen, and I learn to live with them. > Well I returned to my oncologist and started an 6 > month round of > chemo therapy, afterward I was then started on many > different > maintenance drugs such as Ameridex, and Femara. > I had such severe reaction from these drugs, that my > life was > totally unlivable. > I persevered, and now it has been five years. > A few week ago, I went to the hospital for a few > days because of > the side effects of the Femara, > I had lost all strength in my arms, and was > beginning to suffer from > chest pain. > I did not take the Femara for two weeks after being > admitted to the > hospital and felt so much better, I made an decision > I am still not > sure is right. > I stop taking any maintenance drugs. > I have had 2 family member die from cancer, since I > was diagnosed. > Neither one took the maintenance drugs > I am very afraid, but the quality of life for me was > totally > unbearable > I would love responses to this inquiry. > Thank Jan > > > > > > > ________________________________________________________________________________\ ____ > Don't get soaked. Take a quick peak at the forecast > with the Yahoo! Search weather shortcut. > http://tools.search.yahoo.com/shortcuts/#loc_weather > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Thanks for your encouragement, I am an African American, and Tamoxifen was never studied on my race, the Dr. stated it was because hardly any AA volunteered for the clinical trials, therefore, I had migraine, infection of the scalp, which made the top layer of my scalp peel, severe hot flashes, itching, depression, and on and on. after 6 months I was almost climbling out of my skin. I stop taking the tamoxifen, and the cancer spread to the left breast one month later. After the surgery's, and the Chemo, i was started on 4 different maintenance drugs and could take none because of the joint pains, the headaches, the weight gain and so forth. I am so much at ease now, and content, please pray for me, as I pray for you. Thanks Jan --- Ellen emc_mom4@...> wrote: > Oh Jan - you are indeed quite a fighter! What were > the signs or > effects that determined that you were allergic to > the Tamoxifen and > other A.I.'s?? I can certainly understand your > dilema about whether > to take them or not, but it sounds like you've made > up your mind and > I can appreciate your decision. We all have to > weigh it out and > make these tough decisions. In the " percentages > game " of B/C > recurrance you can either be on one side of the > percent or the > other. With your strength and determination - > you'll be on the > right side of those percents! Stay strong > girlfriend. > > Hugs! > Ellen > > > > Hi I am an five year survivor, > > I have a double mastectomy, the Tamoxifen and the > trams flap, > along > > with various other drugs > > At the beginning, the breast cancer started in the > right breast. > > I had an lumpectomy, then was started on an five > year therapy of > > Tamoxifen. We found, I was extremely allergic to > the Tamoxifen, > and > > was taken off after 6 months. One month later I > found an lump on > > the left breast. > > That when the fun started, I made an horrible > decision of having > an > > double mastectomy, with reconstruction. > > I had an double mastectomy, and trams flap in Nov. > 2002, with some > > nodes removal from the left arm. > > I developed an hernia after a few days, because of > the empty space > > the trams flap left. > > All of my stitches burst, and I had to have > extreme antibiotic > > therapy for the next few weeks. > > I then had the hernia repaired, and developed > numerous sacs of > > fluid buildup because of empty spots inside my > abdomen. > > My plastic surgeon had no sympathy and sent me off > to physical > > therapy for deep massages to Aleve the pain. > > The scar tissues from the surgeries was like an > bunch of grapes in > > my abdomen, and I learn to live with them. > > Well I returned to my oncologist and started an 6 > month round of > > chemo therapy, afterward I was then started on > many different > > maintenance drugs such as Ameridex, and Femara. > > I had such severe reaction from these drugs, that > my life was > > totally unlivable. > > I persevered, and now it has been five years. > > A few week ago, I went to the hospital for a few > days because of > > the side effects of the Femara, > > I had lost all strength in my arms, and was > beginning to suffer > from > > chest pain. > > I did not take the Femara for two weeks after > being admitted to > the > > hospital and felt so much better, I made an > decision I am still > not > > sure is right. > > I stop taking any maintenance drugs. > > I have had 2 family member die from cancer, since > I was diagnosed. > > Neither one took the maintenance drugs > > I am very afraid, but the quality of life for me > was totally > > unbearable > > I would love responses to this inquiry. > > Thank Jan > > > > > ________________________________________________________________________________\ ____ Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. http://autos.yahoo.com/green_center/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Michele; Thank God for your success, I am totally disable now, from the surgery, and other existing conditions. I don't know if it was my weaken condition, or the lack of skill on my Plastic surgeon part. I needed to hear of your sauces. it has given me great joy to know that you and anyone else out there is successful. Thank you and God bless you. Jan --- Michele Gately tinkkerbelle2002@...> wrote: > Jan, > I had a tram flap reconstruction done in August of > 06 along with a complete hysterectomy at the same > time. I just want those who are considering this > option it is not always a difficult process. I have > no emptiness in my abdomen, I was stapled not > stiched, and they use a piece of mesh to protect > from any hernia. I had 2 drains in place for the > fluid to drain and then they were removed. Overall, > it was a great experience and I would absolutely do > it again. I am very pleased with my reconstruction > and my limitations to exercise are unlimited. > As far as your decision on the drug treatment > plan, that has to be yours and yours alone. I know > many women I met during radiation who were > recommended to take tamoxifan chose not to, it is > definitely everyone's personal choice. I don't have > that option as I am triple negative, but I'm sure > its a hard decision to make with side affects and > all for those of you who have to experiment in order > to feel good. > I wish you the best and hope you get some great > feedback from this group! > Peace and Prayers, > Michele > > & nne Svihlik moochie1@...> > wrote: > Jan, > Everyone has to do what they feel is best for them. > Some want to prolong their life no matter how sick > they get and others want to spend the rest of their > life as normal as possible. Only you know what feels > best for you. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > help, need opinion > > Hi I am an five year survivor, > I have a double mastectomy, the Tamoxifen and the > trams flap, along > with various other drugs > At the beginning, the breast cancer started in the > right breast. > I had an lumpectomy, then was started on an five > year therapy of > Tamoxifen. We found, I was extremely allergic to the > Tamoxifen, and > was taken off after 6 months. One month later I > found an lump on > the left breast. > That when the fun started, I made an horrible > decision of having an > double mastectomy, with reconstruction. > I had an double mastectomy, and trams flap in Nov. > 2002, with some > nodes removal from the left arm. > I developed an hernia after a few days, because of > the empty space > the trams flap left. > All of my stitches burst, and I had to have extreme > antibiotic > therapy for the next few weeks. > I then had the hernia repaired, and developed > numerous sacs of > fluid buildup because of empty spots inside my > abdomen. > My plastic surgeon had no sympathy and sent me off > to physical > therapy for deep massages to Aleve the pain. > The scar tissues from the surgeries was like an > bunch of grapes in > my abdomen, and I learn to live with them. > Well I returned to my oncologist and started an 6 > month round of > chemo therapy, afterward I was then started on many > different > maintenance drugs such as Ameridex, and Femara. > I had such severe reaction from these drugs, that my > life was > totally unlivable. > I persevered, and now it has been five years. > A few week ago, I went to the hospital for a few > days because of > the side effects of the Femara, > I had lost all strength in my arms, and was > beginning to suffer from > chest pain. > I did not take the Femara for two weeks after being > admitted to the > hospital and felt so much better, I made an decision > I am still not > sure is right. > I stop taking any maintenance drugs. > I have had 2 family member die from cancer, since I > was diagnosed. > Neither one took the maintenance drugs > I am very afraid, but the quality of life for me was > totally > unbearable > I would love responses to this inquiry. > Thank Jan > > ---------------------------------------------------------- > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.411 / Virus Database: 268.17.24/668 - > Release Date: 2/4/2007 > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Sucker-punch spam with award-winning protection. 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Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Jan you are in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com help, need opinion > > Hi I am an five year survivor, > I have a double mastectomy, the Tamoxifen and the > trams flap, along > with various other drugs > At the beginning, the breast cancer started in the > right breast. > I had an lumpectomy, then was started on an five > year therapy of > Tamoxifen. We found, I was extremely allergic to the > Tamoxifen, and > was taken off after 6 months. One month later I > found an lump on > the left breast. > That when the fun started, I made an horrible > decision of having an > double mastectomy, with reconstruction. > I had an double mastectomy, and trams flap in Nov. > 2002, with some > nodes removal from the left arm. > I developed an hernia after a few days, because of > the empty space > the trams flap left. > All of my stitches burst, and I had to have extreme > antibiotic > therapy for the next few weeks. > I then had the hernia repaired, and developed > numerous sacs of > fluid buildup because of empty spots inside my > abdomen. > My plastic surgeon had no sympathy and sent me off > to physical > therapy for deep massages to Aleve the pain. > The scar tissues from the surgeries was like an > bunch of grapes in > my abdomen, and I learn to live with them. > Well I returned to my oncologist and started an 6 > month round of > chemo therapy, afterward I was then started on many > different > maintenance drugs such as Ameridex, and Femara. > I had such severe reaction from these drugs, that my > life was > totally unlivable. > I persevered, and now it has been five years. > A few week ago, I went to the hospital for a few > days because of > the side effects of the Femara, > I had lost all strength in my arms, and was > beginning to suffer from > chest pain. > I did not take the Femara for two weeks after being > admitted to the > hospital and felt so much better, I made an decision > I am still not > sure is right. > I stop taking any maintenance drugs. > I have had 2 family member die from cancer, since I > was diagnosed. > Neither one took the maintenance drugs > I am very afraid, but the quality of life for me was > totally > unbearable > I would love responses to this inquiry. > Thank Jan > > ---------------------------------------------------------- > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.411 / Virus Database: 268.17.24/668 - > Release Date: 2/4/2007 > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/features_spam.html ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.411 / Virus Database: 268.17.27/671 - Release Date: 2/5/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Jan you are in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: Re: help, need opinion Thanks for your encouragement, I am an African American, and Tamoxifen was never studied on my race, the Dr. stated it was because hardly any AA volunteered for the clinical trials, therefore, I had migraine, infection of the scalp, which made the top layer of my scalp peel, severe hot flashes, itching, depression, and on and on. after 6 months I was almost climbling out of my skin. I stop taking the tamoxifen, and the cancer spread to the left breast one month later. After the surgery's, and the Chemo, i was started on 4 different maintenance drugs and could take none because of the joint pains, the headaches, the weight gain and so forth. I am so much at ease now, and content, please pray for me, as I pray for you. Thanks Jan --- Ellen emc_mom4@...> wrote: > Oh Jan - you are indeed quite a fighter! What were > the signs or > effects that determined that you were allergic to > the Tamoxifen and > other A.I.'s?? I can certainly understand your > dilema about whether > to take them or not, but it sounds like you've made > up your mind and > I can appreciate your decision. We all have to > weigh it out and > make these tough decisions. In the " percentages > game " of B/C > recurrance you can either be on one side of the > percent or the > other. With your strength and determination - > you'll be on the > right side of those percents! Stay strong > girlfriend. > > Hugs! > Ellen > > > > Hi I am an five year survivor, > > I have a double mastectomy, the Tamoxifen and the > trams flap, > along > > with various other drugs > > At the beginning, the breast cancer started in the > right breast. > > I had an lumpectomy, then was started on an five > year therapy of > > Tamoxifen. We found, I was extremely allergic to > the Tamoxifen, > and > > was taken off after 6 months. One month later I > found an lump on > > the left breast. > > That when the fun started, I made an horrible > decision of having > an > > double mastectomy, with reconstruction. > > I had an double mastectomy, and trams flap in Nov. > 2002, with some > > nodes removal from the left arm. > > I developed an hernia after a few days, because of > the empty space > > the trams flap left. > > All of my stitches burst, and I had to have > extreme antibiotic > > therapy for the next few weeks. > > I then had the hernia repaired, and developed > numerous sacs of > > fluid buildup because of empty spots inside my > abdomen. > > My plastic surgeon had no sympathy and sent me off > to physical > > therapy for deep massages to Aleve the pain. > > The scar tissues from the surgeries was like an > bunch of grapes in > > my abdomen, and I learn to live with them. > > Well I returned to my oncologist and started an 6 > month round of > > chemo therapy, afterward I was then started on > many different > > maintenance drugs such as Ameridex, and Femara. > > I had such severe reaction from these drugs, that > my life was > > totally unlivable. > > I persevered, and now it has been five years. > > A few week ago, I went to the hospital for a few > days because of > > the side effects of the Femara, > > I had lost all strength in my arms, and was > beginning to suffer > from > > chest pain. > > I did not take the Femara for two weeks after > being admitted to > the > > hospital and felt so much better, I made an > decision I am still > not > > sure is right. > > I stop taking any maintenance drugs. > > I have had 2 family member die from cancer, since > I was diagnosed. > > Neither one took the maintenance drugs > > I am very afraid, but the quality of life for me > was totally > > unbearable > > I would love responses to this inquiry. > > Thank Jan > > > > > __________________________________________________________ Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. http://autos.yahoo.com/green_center/ ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.411 / Virus Database: 268.17.27/671 - Release Date: 2/5/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Jan - yes, indeed, I will keep you in my prayers. Thanks for sharing your information. I am glad that you have found some peace in this. Hugs! Ellen > > > > > > Hi I am an five year survivor, > > > I have a double mastectomy, the Tamoxifen and the > > trams flap, > > along > > > with various other drugs > > > At the beginning, the breast cancer started in the > > right breast. > > > I had an lumpectomy, then was started on an five > > year therapy of > > > Tamoxifen. We found, I was extremely allergic to > > the Tamoxifen, > > and > > > was taken off after 6 months. One month later I > > found an lump on > > > the left breast. > > > That when the fun started, I made an horrible > > decision of having > > an > > > double mastectomy, with reconstruction. > > > I had an double mastectomy, and trams flap in Nov. > > 2002, with some > > > nodes removal from the left arm. > > > I developed an hernia after a few days, because of > > the empty space > > > the trams flap left. > > > All of my stitches burst, and I had to have > > extreme antibiotic > > > therapy for the next few weeks. > > > I then had the hernia repaired, and developed > > numerous sacs of > > > fluid buildup because of empty spots inside my > > abdomen. > > > My plastic surgeon had no sympathy and sent me off > > to physical > > > therapy for deep massages to Aleve the pain. > > > The scar tissues from the surgeries was like an > > bunch of grapes in > > > my abdomen, and I learn to live with them. > > > Well I returned to my oncologist and started an 6 > > month round of > > > chemo therapy, afterward I was then started on > > many different > > > maintenance drugs such as Ameridex, and Femara. > > > I had such severe reaction from these drugs, that > > my life was > > > totally unlivable. > > > I persevered, and now it has been five years. > > > A few week ago, I went to the hospital for a few > > days because of > > > the side effects of the Femara, > > > I had lost all strength in my arms, and was > > beginning to suffer > > from > > > chest pain. > > > I did not take the Femara for two weeks after > > being admitted to > > the > > > hospital and felt so much better, I made an > > decision I am still > > not > > > sure is right. > > > I stop taking any maintenance drugs. > > > I have had 2 family member die from cancer, since > > I was diagnosed. > > > Neither one took the maintenance drugs > > > I am very afraid, but the quality of life for me > > was totally > > > unbearable > > > I would love responses to this inquiry. > > > Thank Jan > > > > > > > > > > > > > > _____________________________________________________________________ _______________ > Looking for earth-friendly autos? > Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. > http://autos.yahoo.com/green_center/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Ms. Jan: We can only know what is best for ourselves, with breast cancer or any other illness. I pray that you will continue to have peace and comfort. Caregiving is hard work and so is breast cancer. Take care. Jan K Ms Janice Thornton jthor0824@...> wrote: Thanks for your encouragement, I am an African American, and Tamoxifen was never studied on my race, the Dr. stated it was because hardly any AA volunteered for the clinical trials, therefore, I had migraine, infection of the scalp, which made the top layer of my scalp peel, severe hot flashes, itching, depression, and on and on. after 6 months I was almost climbling out of my skin. I stop taking the tamoxifen, and the cancer spread to the left breast one month later. After the surgery's, and the Chemo, i was started on 4 different maintenance drugs and could take none because of the joint pains, the headaches, the weight gain and so forth. I am so much at ease now, and content, please pray for me, as I pray for you. Thanks Jan --- Ellen emc_mom4@...> wrote: > Oh Jan - you are indeed quite a fighter! What were > the signs or > effects that determined that you were allergic to > the Tamoxifen and > other A.I.'s?? I can certainly understand your > dilema about whether > to take them or not, but it sounds like you've made > up your mind and > I can appreciate your decision. We all have to > weigh it out and > make these tough decisions. In the " percentages > game " of B/C > recurrance you can either be on one side of the > percent or the > other. With your strength and determination - > you'll be on the > right side of those percents! Stay strong > girlfriend. > > Hugs! > Ellen > > > > Hi I am an five year survivor, > > I have a double mastectomy, the Tamoxifen and the > trams flap, > along > > with various other drugs > > At the beginning, the breast cancer started in the > right breast. > > I had an lumpectomy, then was started on an five > year therapy of > > Tamoxifen. We found, I was extremely allergic to > the Tamoxifen, > and > > was taken off after 6 months. One month later I > found an lump on > > the left breast. > > That when the fun started, I made an horrible > decision of having > an > > double mastectomy, with reconstruction. > > I had an double mastectomy, and trams flap in Nov. > 2002, with some > > nodes removal from the left arm. > > I developed an hernia after a few days, because of > the empty space > > the trams flap left. > > All of my stitches burst, and I had to have > extreme antibiotic > > therapy for the next few weeks. > > I then had the hernia repaired, and developed > numerous sacs of > > fluid buildup because of empty spots inside my > abdomen. > > My plastic surgeon had no sympathy and sent me off > to physical > > therapy for deep massages to Aleve the pain. > > The scar tissues from the surgeries was like an > bunch of grapes in > > my abdomen, and I learn to live with them. > > Well I returned to my oncologist and started an 6 > month round of > > chemo therapy, afterward I was then started on > many different > > maintenance drugs such as Ameridex, and Femara. > > I had such severe reaction from these drugs, that > my life was > > totally unlivable. > > I persevered, and now it has been five years. > > A few week ago, I went to the hospital for a few > days because of > > the side effects of the Femara, > > I had lost all strength in my arms, and was > beginning to suffer > from > > chest pain. > > I did not take the Femara for two weeks after > being admitted to > the > > hospital and felt so much better, I made an > decision I am still > not > > sure is right. > > I stop taking any maintenance drugs. > > I have had 2 family member die from cancer, since > I was diagnosed. > > Neither one took the maintenance drugs > > I am very afraid, but the quality of life for me > was totally > > unbearable > > I would love responses to this inquiry. > > Thank Jan > > > > > __________________________________________________________ Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center. http://autos.yahoo.com/green_center/ Jan Koelsch --------------------------------- Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Dear Jan, I too have had a double mastectomy. I finshed chemo and my radiation was postponed and due to start next week. I have mixed feelings about it. Re Tamoxifen, it was expected I would take that as I tested positive to eostrogen and progestrone. However, it turns out that as I have a history of moderate to high anti phospolipid antibodies I can't take tamoxifen due to the increased risk of stroke. These antibodies are an immune disorder and cause the immune system to attack my own blood cells. The result is they clump together. I discovered I had this condition after a pregnancy where the baby died most likely from a clot blocking bloodflow throught the placenta. But I am told I can't take the alternative post menopause aromotease drugs because I haven't gone through menopause. So it is suggested I have my ovaries removed after the radiotherapy as a way to bring about menopause. I am feeling that I have had enough surgery for the moment and think I will postpone removing my ovaries and therefore taking these maintenace drugs, also I have a nephew with a stage 4 brain tumour and my dad has had a severe stroke. It is all too much for me to cope with. I am going to try to control my hormones (at least temporarily) with the help of my naturapath and monitor how that goes by checking my hormones.I feel a bit uncertain and scared but also know it is the right thing for me to do at this stage. It sounds to me as if you never had a chance to recover and feel well before you started your maintenance drugs. I don't know if it is possible to stop and start again but if you can then you could at least give yourself a rest to recover your strength and health. Spoil yourself, you deserve it. Prayers for good health and happiness for you, Meg > > Hi I am an five year survivor, > I have a double mastectomy, the Tamoxifen and the trams flap, along > with various other drugs > At the beginning, the breast cancer started in the right breast. > I had an lumpectomy, then was started on an five year therapy of > Tamoxifen. We found, I was extremely allergic to the Tamoxifen, and > was taken off after 6 months. One month later I found an lump on > the left breast. > That when the fun started, I made an horrible decision of having an > double mastectomy, with reconstruction. > I had an double mastectomy, and trams flap in Nov. 2002, with some > nodes removal from the left arm. > I developed an hernia after a few days, because of the empty space > the trams flap left. > All of my stitches burst, and I had to have extreme antibiotic > therapy for the next few weeks. > I then had the hernia repaired, and developed numerous sacs of > fluid buildup because of empty spots inside my abdomen. > My plastic surgeon had no sympathy and sent me off to physical > therapy for deep massages to Aleve the pain. > The scar tissues from the surgeries was like an bunch of grapes in > my abdomen, and I learn to live with them. > Well I returned to my oncologist and started an 6 month round of > chemo therapy, afterward I was then started on many different > maintenance drugs such as Ameridex, and Femara. > I had such severe reaction from these drugs, that my life was > totally unlivable. > I persevered, and now it has been five years. > A few week ago, I went to the hospital for a few days because of > the side effects of the Femara, > I had lost all strength in my arms, and was beginning to suffer from > chest pain. > I did not take the Femara for two weeks after being admitted to the > hospital and felt so much better, I made an decision I am still not > sure is right. > I stop taking any maintenance drugs. > I have had 2 family member die from cancer, since I was diagnosed. > Neither one took the maintenance drugs > I am very afraid, but the quality of life for me was totally > unbearable > I would love responses to this inquiry. > Thank Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 I'm so sorry for how hard this has been for you. I had a double in December and am now doing chemo. After that I'll have to have the transfer surgery (expanders in now) and it by the time it's all over with the entire process will have been going on for almost a year. It all takes so long and all of the side effects, while different for everyone based on what I hear, just make you feel like giving up sometimes. But remember there are a lot of people who are pulling for you to wholly reocver and live a long happy life. I'm one of those people, for all of us. I can't really give a good opinion because I'm not as far along in my treatment as you are, but I guess the bottom line is really that you can do what you want to , in spite of what the doctors say, just make sure you understand all of the reasons to keep going and all of the reasons to delay then weight them against each other. I just wanted to say that I'm pulling for you and sending you a hug today. Kim > > > > Hi I am an five year survivor, > > I have a double mastectomy, the Tamoxifen and the trams flap, > along > > with various other drugs > > At the beginning, the breast cancer started in the right breast. > > I had an lumpectomy, then was started on an five year therapy of > > Tamoxifen. We found, I was extremely allergic to the Tamoxifen, > and > > was taken off after 6 months. One month later I found an lump on > > the left breast. > > That when the fun started, I made an horrible decision of having > an > > double mastectomy, with reconstruction. > > I had an double mastectomy, and trams flap in Nov. 2002, with some > > nodes removal from the left arm. > > I developed an hernia after a few days, because of the empty space > > the trams flap left. > > All of my stitches burst, and I had to have extreme antibiotic > > therapy for the next few weeks. > > I then had the hernia repaired, and developed numerous sacs of > > fluid buildup because of empty spots inside my abdomen. > > My plastic surgeon had no sympathy and sent me off to physical > > therapy for deep massages to Aleve the pain. > > The scar tissues from the surgeries was like an bunch of grapes in > > my abdomen, and I learn to live with them. > > Well I returned to my oncologist and started an 6 month round of > > chemo therapy, afterward I was then started on many different > > maintenance drugs such as Ameridex, and Femara. > > I had such severe reaction from these drugs, that my life was > > totally unlivable. > > I persevered, and now it has been five years. > > A few week ago, I went to the hospital for a few days because of > > the side effects of the Femara, > > I had lost all strength in my arms, and was beginning to suffer > from > > chest pain. > > I did not take the Femara for two weeks after being admitted to > the > > hospital and felt so much better, I made an decision I am still > not > > sure is right. > > I stop taking any maintenance drugs. > > I have had 2 family member die from cancer, since I was diagnosed. > > Neither one took the maintenance drugs > > I am very afraid, but the quality of life for me was totally > > unbearable > > I would love responses to this inquiry. > > Thank Jan > > > Quote Link to comment Share on other sites More sharing options...
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