Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 THank you all for your experiences. Now of course, if I could afford the 2,000 fee that she charges, with all of the good things that I have heard that she does, I would be at her door two months before the appointment camped outside of her office!!! MY other concern was with the fee that she charges, do you have to pay her again for anything related to that visit? Like for instance some of you have said she emails, calls EI, comes to meetings? Was there an extra fee attached, like a lawyer's fee everytime he goes to court with you? On the one hand, I think the fee is high, but I do wish that I could be one of the special circumstance situations where she would see my daughter. It hurts like hell to come out of the 24-30 month vocabulary burst stage and having it come and go with no progress. It has affected me where I can say I had a baby five months ago and have been depressed since then, gaining weight from stress eating. This group give me courage to feel that there is hope, with the right treatment. I don't get that feeling of hope anywhere else. I also feel I made the biggest mistake of my life moving from NY TO PA where I would have been given therapy for Jade four times a week and now down to 2 hours a week. I moved out of Brooklyn to raise her in a nice environment, but sometimes I say to myself, was living in a bad part of Brooklyn better than not being able to get her the therapy that she needs? I have a fear of getting a rushed diagnosis as some of you talked about and then always saying to myself, if I can beg, borrow and steal to get the money to pay for Dr. Agin's fee, would she have given me a better diagnosis than one I get with a state paid medicaid doctor? I am preparing myself for the Nuero Developmental appointment I got her at Gersinger(SP?) Medical Center in Danville, PA? I was told they have put 5 doctors there because of the need for them in this area. I pray to my God that these doctors are not residents. I am not in a situation where I feel comfortable working so that I can pay for the visit to Dr. Agin. I will not leave her with anyone, I have just moved to a new town, don't know anyone except my parents and they work, so her Dad is just starting a new job, so basically extra funds are non-exsistent. I trust no one with her. I want to say this, I found myself getting frustrated with her one day because she didn't want to point to something in a book, where she does most of the time when asked to. I cried for an hour because of the fact that I know its not her fault and it just breaks me down to know she is crying because she can't tell me what she needs. I prayed for strength and patience and held her and said sorry. So to sum it up, if I can get a tiny bit frustrated with the situation, how do I know someone may not hurt her or neglect her and she would not be able to tell me what is going on. I would die! What i am trying to say is, I am not a mother who wouldn't get up and work to get the money for the visit, but I really don't trust anyone with her. I made a decent living back in New York and have even considered going back just for the therapy, but that would be losing my peace of mind. I am going to contact any universities in my area to see if they have cheaper prices therapy sessions, etc.. I really do wish that I could see Dr. Agin, but I guess that may never happen or later on down the line. I wish maybe before she retires she could publish a book on just getting the schools and insurance to do what they need to do. I didn't mean to cause such a big ruckus, but it did seem to make an interesting post ... Ok, I am done venting... Sorry.. Forgive me if my thoughts are all jumbled, but it's a war going on up in my head ... Quote Link to comment Share on other sites More sharing options...
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