Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 I haven't read much of these posts and might be off topic yet I think it's important for me to share a bit. Throughout Patty's life we have struggled to find her assistance and help from services and programs for the deaf blind with ONLY Perkins being beneficial. I will forever sing praises of Perkins deaf blind programs and those housed there. Yet in our personal experiences they have been the only ones who helped Patty reach her true potential without harming her inner being as well. Actually that's where she learned to love herself. I must say all the other programs Patty was involved with were minimal at best. The adult deaf blind programs she's experienced have had little understanding of the uniqueness of CHARGE and have been absolutely negative for her. They not only helped Patty be Disabled they almost destroyed Patty's " Self. " I have to add that for the last few months we are now traveling down a different road. The people, programs and services that Patty is now connected with are within the Deaf Community. Sure she is still deaf blind and needing services from her state provider yet there's so much more happening here. Although Patty has numerous disabilities, although she is oral, and although she is unique she has totally been accepted and valued as a person in her own right by all individuals who are deaf or within the deaf services and programs. Yes they do not know much about CHARGE but all are incredibly open to learning. And they are open to learning by no other reason but to enjoy Patty. This has been such a positive and enlightening experience for her and we are looking beautifully at her future due to all this. Not only that, Patty has found true companionship. She is now included in the deaf community with open arms by all-not controlling as she found in the adult deaf blind community. All these experiences have been a blessing as we found out a few days ago that Patty lost more hearing. She isn't upset but is comforted in that she knows her life will still be wonderful anyway. I'll share more later yet I wanted to share Patty's positive experiences. We should have gone down this road a long time ago. A long, long time ago. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Bonnie wrote: " Yes they do not know much about CHARGE but all are incredibly open to learning. And they are open to learning by no other reason but to enjoy Patty. " How great that they are willing to learn to enjoy her! Not because they " have to " for an educational requirement. That goes far to building true friendships for Patty. That must be thrilling to contemplate! Friends in CHARGE, Marilyn Ogan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 bonne you know i do want to meet you both one day maybe you all need to come to aus LOL eather that or ill get my cousin in laws mum or sis to get me soem vegimite and store it yeah thats it ill make them take it over there then they can hoard it and she can let them no when to break it loose > > Bonnie wrote: " Yes they do not know much about CHARGE but all are > incredibly open to learning. And > they are open to learning by no other reason but to enjoy Patty. " > How great that they are willing to learn to enjoy her! Not because they > " have to " for an educational requirement. That goes far to building true > friendships for Patty. That must be thrilling to contemplate! > > Friends in CHARGE, > > Marilyn Ogan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 Dear Bonnie, You and I share a simalar experience. Watching function in both the hearing and the deaf world I have to say that he seems to exist happier within the deaf community. He is afforded more indept and more fluidity in communication with others who are deaf. Something else that came from his existence within deaf culture is that my signing, though not expert, improved tremendously with increased socializing with other who are deaf. Before 's house I was very exact english in my sign and voiced. I was told real quick by the ASL deaf that my signing was very confusing. Though I fought the change in the beginnning I find and I do better when I don't speak and allow myself to be more expressive ASL in my signing. I am still in a place where I can sign much better than I can understand. When first meeting new people who are deaf it takes me awhile to catch on. With , Greg, and Debra I can acually pick up on their sign before some of the interpreters which comes, of course, from my knowing them so well. I feel sad when I see not being comfortable with hearing people, exspecally extended family. When we go out with others who are hearing I sometimes find myself signing with , not voicing, then realizing that we have been excluding hearing family all together. Not that we intent it. Then I realize how it is for when everyone is talking. Sometime I feel exhausted after an outing because I've had to be switching back and forth between signing to and speaking for other family members who can't sign. also wants me to act as his interpreter and to keep all my focus on him so I have to keep reminding him that I'm not a paid interpreter but his mother. LOL Still I am happy with my relationship with my son. I have a loving relationship with all three of my kids but there is a special closeness with . mom to (31) > > I haven't read much of these posts and might be off topic yet I think it's > important for me to share a bit. Throughout Patty's life we have struggled to > find her assistance and help from services and programs for the deaf blind > with ONLY Perkins being beneficial. I will forever sing praises of Perkins > deaf blind programs and those housed there. Yet in our personal experiences > they have been the only ones who helped Patty reach her true potential without > harming her inner being as well. Actually that's where she learned to love > herself. I must say all the other programs Patty was involved with were > minimal at best. The adult deaf blind programs she's experienced have had little > understanding of the uniqueness of CHARGE and have been absolutely negative > for her. They not only helped Patty be Disabled they almost destroyed Patty's > " Self. " > > I have to add that for the last few months we are now traveling down a > different road. > > The people, programs and services that Patty is now connected with are > within the Deaf Community. Sure she is still deaf blind and needing services from > her state provider yet there's so much more happening here. Although Patty > has numerous disabilities, although she is oral, and although she is unique > she has totally been accepted and valued as a person in her own right by all > individuals who are deaf or within the deaf services and programs. Yes they > do not know much about CHARGE but all are incredibly open to learning. And > they are open to learning by no other reason but to enjoy Patty. > > This has been such a positive and enlightening experience for her and we are > looking beautifully at her future due to all this. > > Not only that, Patty has found true companionship. She is now included in > the deaf community with open arms by all-not controlling as she found in the > adult deaf blind community. > > All these experiences have been a blessing as we found out a few days ago > that Patty lost more hearing. She isn't upset but is comforted in that she > knows her life will still be wonderful anyway. > > I'll share more later yet I wanted to share Patty's positive experiences. > > We should have gone down this road a long time ago. A long, long time ago. > > > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > > ************************************** AOL now offers free email to everyone. > Find out more about what's free from AOL at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 , Everything you said is us! I used to sign exact english but Patty is the one who corrects me. I do try. It's hard for Patty as she seems able to hear. She fills in the blanks of what she thinks was said. Often she's only gotten part of it. Patty didn't learn sign till she was older but how I wish she did from the beginning. We had it in her IEP but they couldn't find a teacher of sign. We hired our own but my family has forgotten much as they don't use it every day. You are so right also about the relationship. I have a unique one with Patty. I think because of obvious reasons, I understand her struggles. I also think it's trust. I've earned hers. I love the part where you say your not a paid interpreter but his mother. That's a good one. Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to Re: Vanilla Deaf-Patty Dear Bonnie, You and I share a simalar experience. Watching function in both the hearing and the deaf world I have to say that he seems to exist happier within the deaf community. He is afforded more indept and more fluidity in communication with others who are deaf. Something else that came from his existence within deaf culture is that my signing, though not expert, improved tremendously with increased socializing with other who are deaf. Before 's house I was very exact english in my sign and voiced. I was told real quick by the ASL deaf that my signing was very confusing. Though I fought the change in the beginnning I find and I do better when I don't speak and allow myself to be more expressive ASL in my signing. I am still in a place where I can sign much better than I can understand. When first meeting new people who are deaf it takes me awhile to catch on. With , Greg, and Debra I can acually pick up on their sign before some of the interpreters which comes, of course, from my knowing them so well. I feel sad when I see not being comfortable with hearing people, exspecally extended family. When we go out with others who are hearing I sometimes find myself signing with , not voicing, then realizing that we have been excluding hearing family all together. Not that we intent it. Then I realize how it is for when everyone is talking. Sometime I feel exhausted after an outing because I've had to be switching back and forth between signing to and speaking for other family members who can't sign. also wants me to act as his interpreter and to keep all my focus on him so I have to keep reminding him that I'm not a paid interpreter but his mother. LOL Still I am happy with my relationship with my son. I have a loving relationship with all three of my kids but there is a special closeness with . mom to (31) > > I haven't read much of these posts and might be off topic yet I think it's > important for me to share a bit. Throughout Patty's life we have struggled to > find her assistance and help from services and programs for the deaf blind > with ONLY Perkins being beneficial. I will forever sing praises of Perkins > deaf blind programs and those housed there. Yet in our personal experiences > they have been the only ones who helped Patty reach her true potential without > harming her inner being as well. Actually that's where she learned to love > herself. I must say all the other programs Patty was involved with were > minimal at best. The adult deaf blind programs she's experienced have had little > understanding of the uniqueness of CHARGE and have been absolutely negative > for her. They not only helped Patty be Disabled they almost destroyed Patty's > " Self. " > > I have to add that for the last few months we are now traveling down a > different road. > > The people, programs and services that Patty is now connected with are > within the Deaf Community. Sure she is still deaf blind and needing services from > her state provider yet there's so much more happening here. Although Patty > has numerous disabilities, although she is oral, and although she is unique > she has totally been accepted and valued as a person in her own right by all > individuals who are deaf or within the deaf services and programs. Yes they > do not know much about CHARGE but all are incredibly open to learning. And > they are open to learning by no other reason but to enjoy Patty. > > This has been such a positive and enlightening experience for her and we are > looking beautifully at her future due to all this. > > Not only that, Patty has found true companionship. She is now included in > the deaf community with open arms by all-not controlling as she found in the > adult deaf blind community. > > All these experiences have been a blessing as we found out a few days ago > that Patty lost more hearing. She isn't upset but is comforted in that she > knows her life will still be wonderful anyway. > > I'll share more later yet I wanted to share Patty's positive experiences. > > We should have gone down this road a long time ago. A long, long time ago. > > > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > > ************************************** AOL now offers free email to everyone. > Find out more about what's free from AOL at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 bonnie your right bout people like patty retaining sign i do wish id retained mine even if tis just to comunicate with people who cant hear at all hope u dotn mind but there was a thing ud written on inclusion awhile back that i fwd to dads cous coz she is doing a thing on it at uni and well to me u allways sum up everyones feelings just right > > , > > Everything you said is us! I used to sign exact english but Patty is the > one who corrects me. I do try. > > It's hard for Patty as she seems able to hear. She fills in the blanks of > what she thinks was said. Often she's only gotten part of it. Patty didn't > learn sign till she was older but how I wish she did from the beginning. We > had it in her IEP but they couldn't find a teacher of sign. We hired our own > but my family has forgotten much as they don't use it every day. > > You are so right also about the relationship. I have a unique one with > Patty. I think because of obvious reasons, I understand her struggles. I > also think it's trust. I've earned hers. > > I love the part where you say your not a paid interpreter but his mother. > That's a good one. > > Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to > > > > Re: Vanilla Deaf-Patty > > Dear Bonnie, > > You and I share a simalar experience. Watching function in > both the hearing and the deaf world I have to say that he seems to > exist happier within the deaf community. He is afforded more indept > and more fluidity in communication with others who are deaf. > Something else that came from his existence within deaf culture is > that my signing, though not expert, improved tremendously with > increased socializing with other who are deaf. Before 's house I > was very exact english in my sign and voiced. I was told real quick > by the ASL deaf that my signing was very confusing. Though I fought > the change in the beginnning I find and I do better when I > don't speak and allow myself to be more expressive ASL in my signing. > I am still in a place where I can sign much better than I can > understand. When first meeting new people who are deaf it takes me > awhile to catch on. With , Greg, and Debra I can acually pick up > on their sign before some of the interpreters which comes, of course, > from my knowing them so well. > > I feel sad when I see not being comfortable with hearing > people, exspecally extended family. When we go out with > others who are hearing I sometimes find myself signing with , > not voicing, then realizing that we have been excluding hearing > family all together. Not that we intent it. Then I realize how it is > for when everyone is talking. Sometime I feel exhausted after > an outing because I've had to be switching back and forth between > signing to and speaking for other family members who can't > sign. also wants me to act as his interpreter and to keep all > my focus on him so I have to keep reminding him that I'm not a paid > interpreter but his mother. LOL Still I am happy with my > relationship with my son. I have a loving relationship with all three > of my kids but there is a special closeness with . > > mom to (31) > > > > > > I haven't read much of these posts and might be off topic yet I > think it's > > important for me to share a bit. Throughout Patty's life we have > struggled to > > find her assistance and help from services and programs for the > deaf blind > > with ONLY Perkins being beneficial. I will forever sing praises > of Perkins > > deaf blind programs and those housed there. Yet in our personal > experiences > > they have been the only ones who helped Patty reach her true > potential without > > harming her inner being as well. Actually that's where she > learned to love > > herself. I must say all the other programs Patty was involved > with were > > minimal at best. The adult deaf blind programs she's experienced > have had little > > understanding of the uniqueness of CHARGE and have been absolutely > negative > > for her. They not only helped Patty be Disabled they almost > destroyed Patty's > > " Self. " > > > > I have to add that for the last few months we are now traveling > down a > > different road. > > > > The people, programs and services that Patty is now connected with > are > > within the Deaf Community. Sure she is still deaf blind and > needing services from > > her state provider yet there's so much more happening here. > Although Patty > > has numerous disabilities, although she is oral, and although she > is unique > > she has totally been accepted and valued as a person in her own > right by all > > individuals who are deaf or within the deaf services and > programs. Yes they > > do not know much about CHARGE but all are incredibly open to > learning. And > > they are open to learning by no other reason but to enjoy Patty. > > > > This has been such a positive and enlightening experience for her > and we are > > looking beautifully at her future due to all this. > > > > Not only that, Patty has found true companionship. She is now > included in > > the deaf community with open arms by all-not controlling as she > found in the > > adult deaf blind community. > > > > All these experiences have been a blessing as we found out a few > days ago > > that Patty lost more hearing. She isn't upset but is comforted in > that she > > knows her life will still be wonderful anyway. > > > > I'll share more later yet I wanted to share Patty's positive > experiences. > > > > We should have gone down this road a long time ago. A long, long > time ago. > > > > > > > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > > > > > > ************************************** AOL now offers free email to > everyone. > > Find out more about what's free from AOL at http://www.aol.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 Dear Bonnie, So, you get corrected too. laughs at me sometimes. I have problems with throwing english signs into our conversation. Sometime the english sign means something intirely different in ASL. ex; english breakfast sign can look like bitch in ASL. still reminds me of the time it appeared I was calling his sister a bitch when I was tying to ask her if she had breakfast. lol He was laughing so hard he was spitting and I was like " what in the heck is wrong with you. " LOL I'm very fortunate that can switch back and forth between english and ASL fairly proficently. Also with what hearing he has and lip reading I can ask him for help when talking with others who are deaf. I really am proud of the fact that I am accepted by deaf in our area because of my work in getting 's home approved by the state. I'm sorry if I missed it in a post but are you and Patty coming to Ca? where do you live. My email is artthrob@.... If you could send me your email I'd love to send you pictures and exchange phone #'s. ) mom to (31) > > , > > Everything you said is us! I used to sign exact english but Patty is the one who corrects me. I do try. > > It's hard for Patty as she seems able to hear. She fills in the blanks of what she thinks was said. Often she's only gotten part of it. Patty didn't learn sign till she was older but how I wish she did from the beginning. We had it in her IEP but they couldn't find a teacher of sign. We hired our own but my family has forgotten much as they don't use it every day. > > You are so right also about the relationship. I have a unique one with Patty. I think because of obvious reasons, I understand her struggles. I also think it's trust. I've earned hers. > > I love the part where you say your not a paid interpreter but his mother. That's a good one. > > Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to > > > > -----Original Message----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Ellen, Don't mind a bit. But could you forward a copy to me? Thanks. Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to Re: Vanilla Deaf-Patty > > Dear Bonnie, > > You and I share a simalar experience. Watching function in > both the hearing and the deaf world I have to say that he seems to > exist happier within the deaf community. He is afforded more indept > and more fluidity in communication with others who are deaf. > Something else that came from his existence within deaf culture is > that my signing, though not expert, improved tremendously with > increased socializing with other who are deaf. Before 's house I > was very exact english in my sign and voiced. I was told real quick > by the ASL deaf that my signing was very confusing. Though I fought > the change in the beginnning I find and I do better when I > don't speak and allow myself to be more expressive ASL in my signing. > I am still in a place where I can sign much better than I can > understand. When first meeting new people who are deaf it takes me > awhile to catch on. With , Greg, and Debra I can acually pick up > on their sign before some of the interpreters which comes, of course, > from my knowing them so well. > > I feel sad when I see not being comfortable with hearing > people, exspecally extended family. When we go out with > others who are hearing I sometimes find myself signing with , > not voicing, then realizing that we have been excluding hearing > family all together. Not that we intent it. Then I realize how it is > for when everyone is talking. Sometime I feel exhausted after > an outing because I've had to be switching back and forth between > signing to and speaking for other family members who can't > sign. also wants me to act as his interpreter and to keep all > my focus on him so I have to keep reminding him that I'm not a paid > interpreter but his mother. LOL Still I am happy with my > relationship with my son. I have a loving relationship with all three > of my kids but there is a special closeness with . > > mom to (31) > > > > > > I haven't read much of these posts and might be off topic yet I > think it's > > important for me to share a bit. Throughout Patty's life we have > struggled to > > find her assistance and help from services and programs for the > deaf blind > > with ONLY Perkins being beneficial. I will forever sing praises > of Perkins > > deaf blind programs and those housed there. Yet in our personal > experiences > > they have been the only ones who helped Patty reach her true > potential without > > harming her inner being as well. Actually that's where she > learned to love > > herself. I must say all the other programs Patty was involved > with were > > minimal at best. The adult deaf blind programs she's experienced > have had little > > understanding of the uniqueness of CHARGE and have been absolutely > negative > > for her. They not only helped Patty be Disabled they almost > destroyed Patty's > > " Self. " > > > > I have to add that for the last few months we are now traveling > down a > > different road. > > > > The people, programs and services that Patty is now connected with > are > > within the Deaf Community. Sure she is still deaf blind and > needing services from > > her state provider yet there's so much more happening here. > Although Patty > > has numerous disabilities, although she is oral, and although she > is unique > > she has totally been accepted and valued as a person in her own > right by all > > individuals who are deaf or within the deaf services and > programs. Yes they > > do not know much about CHARGE but all are incredibly open to > learning. And > > they are open to learning by no other reason but to enjoy Patty. > > > > This has been such a positive and enlightening experience for her > and we are > > looking beautifully at her future due to all this. > > > > Not only that, Patty has found true companionship. She is now > included in > > the deaf community with open arms by all-not controlling as she > found in the > > adult deaf blind community. > > > > All these experiences have been a blessing as we found out a few > days ago > > that Patty lost more hearing. She isn't upset but is comforted in > that she > > knows her life will still be wonderful anyway. > > > > I'll share more later yet I wanted to share Patty's positive > experiences. > > > > We should have gone down this road a long time ago. A long, long > time ago. > > > > > > > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > > > > > > ************************************** AOL now offers free email to > everyone. > > Find out more about what's free from AOL at http://www.aol.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , Turk22082 is my email. You can send me anything but in th subject line make sure you write something that'll make sure I know it's from you. I've gotten too many viruses opening things. The conference! Of course I'll be there. We went to our first when Patty was 14 and haven't missed one since. I got such a wonderful feeling of connection with people that I joined the board. My bit as you would call it is the chair of the Adult Services Committee. Can't wait to talk to you about adulthood! It's a fun ride, isn't it! Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to Re: Vanilla Deaf-Patty Dear Bonnie, So, you get corrected too. laughs at me sometimes. I have problems with throwing english signs into our conversation. Sometime the english sign means something intirely different in ASL. ex; english breakfast sign can look like bitch in ASL. still reminds me of the time it appeared I was calling his sister a bitch when I was tying to ask her if she had breakfast. lol He was laughing so hard he was spitting and I was like " what in the heck is wrong with you. " LOL I'm very fortunate that can switch back and forth between english and ASL fairly proficently. Also with what hearing he has and lip reading I can ask him for help when talking with others who are deaf. I really am proud of the fact that I am accepted by deaf in our area because of my work in getting 's home approved by the state. I'm sorry if I missed it in a post but are you and Patty coming to Ca? where do you live. My email is artthrob@.... If you could send me your email I'd love to send you pictures and exchange phone #'s. ) mom to (31) > > , > > Everything you said is us! I used to sign exact english but Patty is the one who corrects me. I do try. > > It's hard for Patty as she seems able to hear. She fills in the blanks of what she thinks was said. Often she's only gotten part of it. Patty didn't learn sign till she was older but how I wish she did from the beginning. We had it in her IEP but they couldn't find a teacher of sign. We hired our own but my family has forgotten much as they don't use it every day. > > You are so right also about the relationship. I have a unique one with Patty. I think because of obvious reasons, I understand her struggles. I also think it's trust. I've earned hers. > > I love the part where you say your not a paid interpreter but his mother. That's a good one. > > Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to > > > > -----Original Message----- ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
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