Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Endo's are really over rated..I am worried though about how quick your nodules are growing. Have you had a biopsy on them? Does the surgeon have anything in place set up to biopsy the half he is removing in case you need the other half removed? If you know the answers to these questions that I would say skip the ENDO..if these questions have not been answered as well as questions regarding testing for replacement hormone eetc.. then I would delay and see an ENDO.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Hi, I have a thyroid goiter with nodules on my right side. I had an ultrasound, then a biopsy, then another ultrasound 6 months later which showed that it has grown and is about 9-10 times larger than my left side. I am taking levothyroxine 100mcg to try and slow it down but it continues to grow. I was scheduled for surgery at the beginning of March which was cancelled, and now I am waiting to hear back from them on the new date which will be at the end of April. So, now that I have more time to think and worry about it, I am thinking I should see an Endo since I have not seen one yet. I have seen my pcp, a surgeon, and an ent/surgeon regarding this, but never an endo! I just met a coworker who has graves, and after talking with her, I realize that I should probably get an opinion from and endo. I am just wondering why none of my other doctors ever suggested that I see one? Does everyone with thyroid problems see an endo?? Am I just totally in the dark about this?! I think that I am very comfortable with my pcp; I have been going to him for about 1o years, and I really trust him. I think that since he never mentioned an endo, I haven't really thought about it? I don't know, I think that this postponement in the surgery has me reconsidering my options. Any suggestions? Am I really wrong in not seeing an endo? My coworker highly recommended hers and I think I will call him on Monday. Thanks so much~ I'm usually a lurker here, I realize that my thyroid issues are not as serious as many of yours are! But I read all the posts and am thankful that I found this board full of such knowledgable people.... Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 Jill, I'd go so him... just to be sure, in your own mind, that you are making the best decision for your circumstance.... once the surgery is done it can't be undone... the old adage 'measure twice, cut once' really does fit here.... Do you happen to have copies of any of your labs that you can share with us, including ranges? I'd very much like to see what your thyroid levels are (Free T4 and Free T3) to see if the dose of Levo they are giving you (you said 100 mcg) is doing the job.... if your TSH is now WAY down and the thyroid levels aren't up, it won't shrink the goiter.... Also, would like to see if they have checked for antibodies.. How long have you been taking the Levo, is that 100 mcg the dose that they first started you on or was it small to start and you work up (over what period of time)? It may very well be that the nodules you have need to be removed along with the enlarged side... but knowing the cause of them would be a good thing to know before hand.... if they are due to antibodies and that is not addressed you MIGHT (not saying you will, but you might) end up with the same problem on the other side down the road. Some docs feel that surgery is a quick and easy way out.... sometimes cuz that is their mind set, sometimes cuz they just don't understand thyroid disorders as well as they could.. that's why another opinion, like from that good thyroid endo, I think, would be a wise move.... Keep us posted on how things are going we're here for ya whichever way you end up having to go, you know that, right?? Topper () On Sat, 17 Mar 2007 21:22:44 -0500 jbmomto3 writes: Hi, I have a thyroid goiter with nodules on my right side. I had an ultrasound, then a biopsy, then another ultrasound 6 months later which showed that it has grown and is about 9-10 times larger than my left side. I am taking levothyroxine 100mcg to try and slow it down but it continues to grow. I was scheduled for surgery at the beginning of March which was cancelled, and now I am waiting to hear back from them on the new date which will be at the end of April. So, now that I have more time to think and worry about it, I am thinking I should see an Endo since I have not seen one yet. I have seen my pcp, a surgeon, and an ent/surgeon regarding this, but never an endo! I just met a coworker who has graves, and after talking with her, I realize that I should probably get an opinion from and endo. I am just wondering why none of my other doctors ever suggested that I see one? Does everyone with thyroid problems see an endo?? Am I just totally in the dark about this?! I think that I am very comfortable with my pcp; I have been going to him for about 1o years, and I really trust him. I think that since he never mentioned an endo, I haven't really thought about it? I don't know, I think that this postponement in the surgery has me reconsidering my options. Any suggestions? Am I really wrong in not seeing an endo? My coworker highly recommended hers and I think I will call him on Monday. Thanks so much~ I'm usually a lurker here, I realize that my thyroid issues are not as serious as many of yours are! But I read all the posts and am thankful that I found this board full of such knowledgable people.... Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 For your current condition (goiter) and the nodules, an endo might be helpfull. If you want to get your body back on track after the surgery, see a DO or NO or ND. Very very few encos know squat about thyroid hromones. They have sold out to the drug companies. > > Hi, I have a thyroid goiter with nodules on my right side. I had an ultrasound, then a biopsy, then another ultrasound 6 months later which showed that it has grown and is about 9-10 times larger than my left side. I am taking levothyroxine 100mcg to try and slow it down but it continues to grow. I was scheduled for surgery at the beginning of March which was cancelled, and now I am waiting to hear back from them on the new date which will be at the end of April. > > So, now that I have more time to think and worry about it, I am thinking I should see an Endo since I have not seen one yet. I have seen my pcp, a surgeon, and an ent/surgeon regarding this, but never an endo! I just met a coworker who has graves, and after talking with her, I realize that I should probably get an opinion from and endo. I am just wondering why none of my other doctors ever suggested that I see one? > > Does everyone with thyroid problems see an endo?? Am I just totally in the dark about this?! I think that I am very comfortable with my pcp; I have been going to him for about 1o years, and I really trust him. I think that since he never mentioned an endo, I haven't really thought about it? I don't know, I think that this postponement in the surgery has me reconsidering my options. > > Any suggestions? Am I really wrong in not seeing an endo? My coworker highly recommended hers and I think I will call him on Monday. > > Thanks so much~ I'm usually a lurker here, I realize that my thyroid issues are not as serious as many of yours are! But I read all the posts and am thankful that I found this board full of such knowledgable people.... > > Jill > Quote Link to comment Share on other sites More sharing options...
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