Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 I have a small nodule which 2 biopsies were unable to get enough cells to give any info. I was scheduled for surgery for lobectomy when my preop blood work came back with a slightly low TSH. Now doctor thinks nodule is hot and I'm slightly hyperactive. So I am having I123 uptake and scan this week. They have given me the option to have surgery or radioactive I131 treatment to treat this nodule. I would really like to understand what the long term course is for someone who has either of these treatment options. Anyone willing to share what happens down the road, I'd be grateful to hear about your experience. Thanks. Ann > > I'm glad your friend will be pursuing a good doc stateside because I'm > really concerned over her current condition/treatment. The American Thyroid > Association (_www.thyroid.org_ (http://www.thyroid.org) ) will have referrals in > the Florida area; she should call ahead to make an appointment and be sure to > bring her lab results. > > As for the " general protocol, " I was hyperthyroid way before becoming > hypothyroid. At the time I was diagnosed with Graves' disease (autoimmune > hyperthyroidism), I was in a very severe, horribly symptomatic thyroid " storm. " I > agree -- it's way worse than being hypothyroid. I had three choices of treatment: > radioactive iodine treatment to " kill " part or all of the thyroid gland, > surgery to remove all or part of the gland, and a drug called, in short, PTU, > which is what I chose to do. It took a year and a half to get my thyroid levels > back to normal and, in subsequent years, I did have episodes of > hyperthyroidism. > > If what your friend has is autoimmune hyperthyroidism (they'll probably want > to do a thyroid uptake and scan to see if all or part of her thyroid gland > is overactive), it's likely that she will become hypothyroid either from RAI or > surgery, or just because the thyroid gland has a tendancy to burn itself out > over time. This is what's happened to me. But the thought of, somewhere down > the line, becoming hypothyroid is not something to worry over. What's > important is that she get good, solid treatment and monitoring from now on. > > Please keep us posted! I'll keep your friend in my prayers. > Maureen Pratt > ************************************** AOL now offers free > email to everyone. Find out more about what's free from AOL at > http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 > > I have a small nodule which 2 biopsies were unable to get enough > cells to give any info. I was scheduled for surgery for lobectomy > when my preop blood work came back with a slightly low TSH. Now > doctor thinks nodule is hot and I'm slightly hyperactive. So I am > having I123 uptake and scan this week. They have given me the option > to have surgery or radioactive I131 treatment to treat this nodule. > I would really like to understand what the long term course is for > someone who has either of these treatment options. Anyone willing to > share what happens down the road, I'd be grateful to hear about your > experience. Thanks. > Ann > > There is a third procedure where they inject ethanol alcohol into the nodule to destroy just the nodule. Hot nodules tend not to be cancerous so you also have the otpion of doing nothing and just monitoring them, but this would depend on symptoms etc. ATD's can help with symptoms although multinodule hyperthyroidism tends to not go into remmission like Grave's so a lot of Doctors tend to not use it other than to bring the thyroid numbers down to normal range. RAI is uptaken by the whole thyroid gland, it will destroy the whole thyroid gland , and they would have to give you a large enough dose to destroy the gland.. Surgery could remove the nodules and still leave you with most of your own thyroid, so it would be possible to not need replacement therapy but would really depend on locale and size of nodules as to what needs to be removed. I believe the Mayo clinic does the ethanol injections, I would investigate that option, and I would also investigate the option of doing nothing in hopes the nodules burn themselves out or disappear over time. I know a lot of people have nodules and it just means having them checked once a year for changes.. Have you had them biopsied? I know less than 5 % of nodules are considered Cancerous and when it comes to hot nodules it is almost unheard of.. but being hot nodules they will operate independant of the TSH and can cause symptoms of Hyperthyroidism. I think it is more of getting a full idea of the whole picture and what is involved, locale etc. before deciding to make a decision..and your doctor can use ATD's to control the hyper symptoms until you are confident with what ever decision you make. Kats3boys Quote Link to comment Share on other sites More sharing options...
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