CHARGE: Re: More on and Cleft Palate Clinic

[Guest guest]

Hi,

Here's the rest of what I wanted to share a couple of days ago

about concerning his palate and teeth issues.

Like I said we decided against the tonsilectomy because the

doctors disagreed on the outcome and benefit connected to the flange

for better speach. At that time the doctors were recommending a

surgery to break his jawbone and positions it more correctly. They

said that this surgery would need to be done after he had braces for

his teeth. At the time they were saying his lower jaw was jutting

forward to much.

Our orthodontist worked with Cleft Palate Clinic for 's braces.

For a few months had an apparatus across the roof of his mouth.

In the center there was a hinge with a small hole. I had a little key

that I would insert into the hole and turn from front to back once

every 2 days. The key was on a string that I looped around my wrist

so if I lost my grip of it I could pull it out of his throat with the

string. (Truth) This stretched the sub mucus palate slowly to make

room enough for all his teeth to be aligned with braces. wore

braces for 3 years. Stretching 's palate and getting his teeth

inline made such a world of difference for him. The groove in the

roof of his mouth lessened to the point that he no longer had

problems with food getting lodged there.

was not having any problems that could be connected to what

they were saying about his jutting jaw. We talked it over with

and he didn't want to go through that kind of surgery. We opted

against it. to this day is not having any problems with his jaw.

To be honest I think he looks fine the way he is. He is quite the

hamsome guy.

After all the surgeries that were needed just to keep him alive we

began evaluating all surgeries recommended. How much improvement in

quality of life would it make. If it wasn't life threatening or

quality of life altering than we put things on hold for to have

imput into what he wanted done.

Once started socializing within the deaf community he has

stopped using his voice as much. He will try for hearing people and

when he's with us but at home he's not vocalizing much at all. He can

say some single words clearly if asked but does not connect words for

an understandable speech. He has a very thick tongue and cannot touch

the tip of it to the roof of his mounth to make certain sounds. He

carries paper and pen all the time in case he has to communicate with

hearing.

[Guest guest]

very good and informative

>

> Hi,

>

> Here's the rest of what I wanted to share a couple of days ago

> about concerning his palate and teeth issues.

>

> Like I said we decided against the tonsilectomy because the

> doctors disagreed on the outcome and benefit connected to the flange

> for better speach. At that time the doctors were recommending a

> surgery to break his jawbone and positions it more correctly. They

> said that this surgery would need to be done after he had braces for

> his teeth. At the time they were saying his lower jaw was jutting

> forward to much.

>

> Our orthodontist worked with Cleft Palate Clinic for 's braces.

> For a few months had an apparatus across the roof of his mouth.

> In the center there was a hinge with a small hole. I had a little key

> that I would insert into the hole and turn from front to back once

> every 2 days. The key was on a string that I looped around my wrist

> so if I lost my grip of it I could pull it out of his throat with the

> string. (Truth) This stretched the sub mucus palate slowly to make

> room enough for all his teeth to be aligned with braces. wore

> braces for 3 years. Stretching 's palate and getting his teeth

> inline made such a world of difference for him. The groove in the

> roof of his mouth lessened to the point that he no longer had

> problems with food getting lodged there.

>

> was not having any problems that could be connected to what

> they were saying about his jutting jaw. We talked it over with

> and he didn't want to go through that kind of surgery. We opted

> against it. to this day is not having any problems with his jaw.

> To be honest I think he looks fine the way he is. He is quite the

> hamsome guy.

>

> After all the surgeries that were needed just to keep him alive we

> began evaluating all surgeries recommended. How much improvement in

> quality of life would it make. If it wasn't life threatening or

> quality of life altering than we put things on hold for to have

> imput into what he wanted done.

>

> Once started socializing within the deaf community he has

> stopped using his voice as much. He will try for hearing people and

> when he's with us but at home he's not vocalizing much at all. He can

> say some single words clearly if asked but does not connect words for

> an understandable speech. He has a very thick tongue and cannot touch

> the tip of it to the roof of his mounth to make certain sounds. He

> carries paper and pen all the time in case he has to communicate with

> hearing.

>

>

>