New to the group

[Guest guest]

Tammy - Warm welcomes to the group. Boy oh boy - you've been through

it all. Hard to believe that they misdiagnosed it initially - scary

really. Thankfully, its been found and you are in treatment. Hang

tough girlfriend - we're all fighting battles and it sounds like you

are working hard at fighting yours. I know what you mean about

friends and family " understanding " how you feel. Some things can

only be understood by sister survivors - and here we are!

Again, welcome,

Ellen

>

> I have been reading some of your stories and now I don't feel so

alone. I was sure I was the only one. Thank You. I was

convinced no one was having the same side effects, problems with

drs, etc. etc. With the very first thing I read I felt I could

relate. My family/friends are wonderful but you get that look from

them of not understanding. You know what I mean? Anyway I am so

glad you are out there. I need some positive with all this

negative. I had a mammogram in April 06 that was good. Late August

I started having shooting pain in my left breast with small lump

next to my breast bone. It kept getting bigger and pain became

constant. My primary said you don't have a good mammogram in April

and BC in August. He sent me for diag mammo and ultra sound which

said I had cancer. Then went to surgeon with my results and she

also said it looks like cancer. Went for biopsy they took 5

samples from what was by now a very large and painful lump. Results

came back

> NO CANCER. This was a result of Fibrocystic Breast Disease is

what they told me. So I went home de-stressed and decaffinated and

waited for this monster to go away. By the middle of October I was

taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed to be removed. Which resulted in a very large hematoma. Tumor

was 5cm. The next day she gave me the news. Cancer stage III. I

have not had mastectomy yet. April 07. I am on 5 of 8 chemo

trtmnts. Dr doesn't know if I will need radiation. Don't know if I

am doing reconst surg or not. I am still researching all the pros

and cons. I am 43 and I honestly thought before I found this site

that I was the yongest person with BC ever. You can't believe how

much you all have helped. If any one has had similar experience or

any good advice please let me know. I need everything I can get.

Thank You Tammy

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

Tammy welcome to the group. I was 44 when diagnosed and will be 62 in Oct. We

have ladies in their 30's that have breast cancer.

The best advice is to stay positive and take it one day at a time. We are here

for you if you have any questions or want to vent. I will keep you in my

prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

new to the group

I have been reading some of your stories and now I don't feel so alone. I was

sure I was the only one. Thank You. I was convinced no one was having the same

side effects, problems with drs, etc. etc. With the very first thing I read I

felt I could relate. My family/friends are wonderful but you get that look from

them of not understanding. You know what I mean? Anyway I am so glad you are out

there. I need some positive with all this negative. I had a mammogram in April

06 that was good. Late August I started having shooting pain in my left breast

with small lump next to my breast bone. It kept getting bigger and pain became

constant. My primary said you don't have a good mammogram in April and BC in

August. He sent me for diag mammo and ultra sound which said I had cancer. Then

went to surgeon with my results and she also said it looks like cancer. Went for

biopsy they took 5 samples from what was by now a very large and painful lump.

Results came back

NO CANCER. This was a result of Fibrocystic Breast Disease is what they told

me. So I went home de-stressed and decaffinated and waited for this monster to

go away. By the middle of October I was taking 800 mg of Ibuprofin every 4 hrs.

The surgeon agreed it needed to be removed. Which resulted in a very large

hematoma. Tumor was 5cm. The next day she gave me the news. Cancer stage III. I

have not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts. Dr doesn't

know if I will need radiation. Don't know if I am doing reconst surg or not. I

am still researching all the pros and cons. I am 43 and I honestly thought

before I found this site that I was the yongest person with BC ever. You can't

believe how much you all have helped. If any one has had similar experience or

any good advice please let me know. I need everything I can get. Thank You Tammy

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

Tammy

That is terrible - I'm suprised that the mammogram couldn't pick up a

5 cm tumor...

I am also young (40) - My tumor was 4.5cm and very noticable to the

touch, however - my sonogram/ mammogram only showed a 1.5 cm tumor.

When I discussed this with my onologist, he indicated that it is not

uncommon for a mammogram not to pick up the " whole thing " .

Funny you mention the pain - they say breast cancer is not painful,

oh horse balls - it is very painful.

Did anyone give an explaination of the biopsy coming back negative?

Are you opting to get the mastecomty? Were your margins clear when

they did the lumpectomy? No, I'm not nosey, just want to compare

notes because I've had a lumpectomy, a reincision and still do not

have clear margins - next move another reincision or mastectomy, I

haven't made the choice yet, I'm going to wait to get my 2nd opinion

and get the results of the CT and Bone scans.

Best of luck.

Rose

>

> I have been reading some of your stories and now I don't feel so

alone. I was sure I was the only one. Thank You. I was convinced

no one was having the same side effects, problems with drs, etc.

etc. With the very first thing I read I felt I could relate. My

family/friends are wonderful but you get that look from them of not

understanding. You know what I mean? Anyway I am so glad you are

out there. I need some positive with all this negative. I had a

mammogram in April 06 that was good. Late August I started having

shooting pain in my left breast with small lump next to my breast

bone. It kept getting bigger and pain became constant. My primary

said you don't have a good mammogram in April and BC in August. He

sent me for diag mammo and ultra sound which said I had cancer. Then

went to surgeon with my results and she also said it looks like

cancer. Went for biopsy they took 5 samples from what was by now a

very large and painful lump. Results came back

> NO CANCER. This was a result of Fibrocystic Breast Disease is

what they told me. So I went home de-stressed and decaffinated and

waited for this monster to go away. By the middle of October I was

taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it needed

to be removed. Which resulted in a very large hematoma. Tumor was

5cm. The next day she gave me the news. Cancer stage III. I have

not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts. Dr

doesn't know if I will need radiation. Don't know if I am doing

reconst surg or not. I am still researching all the pros and cons. I

am 43 and I honestly thought before I found this site that I was the

yongest person with BC ever. You can't believe how much you all have

helped. If any one has had similar experience or any good advice

please let me know. I need everything I can get. Thank You Tammy

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

Unfortuneately they don't even suggest a mammogram until you are

40... they oughta lower the recommended age to 30. They say if you

can feel the tumor, it has been growing between 5 - 10 years... that

would make me between 30 - 35. If only I knew.

>

> Tammy welcome to the group. I was 44 when diagnosed and will be 62

in Oct. We have ladies in their 30's that have breast cancer.

>

> The best advice is to stay positive and take it one day at a time.

We are here for you if you have any questions or want to vent. I will

keep you in my prayers.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

> BreastCancerStories.com

> http://www.breastcancerstories.com/content/view/433/161/

> Angel Feather Loomer

> www.angelfeatherloomer.blogspot.com

> Check out my other ornaments at

> www.geocities.com/chucky5741/bcornament.html

> Lots of info and gifts at:

> www.cancerclub.com

> new to the group

>

>

> I have been reading some of your stories and now I don't feel so

alone. I was sure I was the only one. Thank You. I was convinced no

one was having the same side effects, problems with drs, etc. etc.

With the very first thing I read I felt I could relate. My

family/friends are wonderful but you get that look from them of not

understanding. You know what I mean? Anyway I am so glad you are out

there. I need some positive with all this negative. I had a mammogram

in April 06 that was good. Late August I started having shooting pain

in my left breast with small lump next to my breast bone. It kept

getting bigger and pain became constant. My primary said you don't

have a good mammogram in April and BC in August. He sent me for diag

mammo and ultra sound which said I had cancer. Then went to surgeon

with my results and she also said it looks like cancer. Went for

biopsy they took 5 samples from what was by now a very large and

painful lump. Results came back

> NO CANCER. This was a result of Fibrocystic Breast Disease is

what they told me. So I went home de-stressed and decaffinated and

waited for this monster to go away. By the middle of October I was

taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it needed

to be removed. Which resulted in a very large hematoma. Tumor was

5cm. The next day she gave me the news. Cancer stage III. I have not

had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts. Dr

doesn't know if I will need radiation. Don't know if I am doing

reconst surg or not. I am still researching all the pros and cons. I

am 43 and I honestly thought before I found this site that I was the

yongest person with BC ever. You can't believe how much you all have

helped. If any one has had similar experience or any good advice

please let me know. I need everything I can get. Thank You Tammy

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

tammy, welcome to the group. i was 39 when i was diagnosed - stage 3, er and pr

positive- had lumpectomy, chemo,radiation, now on tamoxifen for 5 years - a

little over 1 year cancer free - hang in there , we are there for you.

hugs,sheri

---------------------------------

Get your own web address.

Have a HUGE year through Yahoo! Small Business.

[Guest guest]

Tammy:

You have been through a lot. Breast cancer is no picnic but it is not a death

sentence and is doable. I glad you found this support group. I am glad that I

did. Unfortunately we can't physically hold your hand or give you hugs, but you

will feel them through the e-mails you receive. I guarantee that from my own

experience here.

I was diagnosed on November 16, 2006 with invasive duct carcinoma. Had a

mastectomy on December 11, 2006, at which time the surgeon told me the

sentinental node was clear. My oncologist told me on January 3, 2007 that the

cancer was gone. I am now on Arimidex. Haven't had chemo or radiation but am

having a lot of side effects from Arimidex.

Keep us posted on things.

Peace and blessings,

Jan Koelsch

Why are they delaying your mastectomy until April, 2007

Tammy Yesford tcy510n4@...> wrote:

I have been reading some of your stories and now I don't feel so

alone. I was sure I was the only one. Thank You. I was convinced no one was

having the same side effects, problems with drs, etc. etc. With the very first

thing I read I felt I could relate. My family/friends are wonderful but you get

that look from them of not understanding. You know what I mean? Anyway I am so

glad you are out there. I need some positive with all this negative. I had a

mammogram in April 06 that was good. Late August I started having shooting pain

in my left breast with small lump next to my breast bone. It kept getting bigger

and pain became constant. My primary said you don't have a good mammogram in

April and BC in August. He sent me for diag mammo and ultra sound which said I

had cancer. Then went to surgeon with my results and she also said it looks like

cancer. Went for biopsy they took 5 samples from what was by now a very large

and painful lump. Results came back

NO CANCER. This was a result of Fibrocystic Breast Disease is what they told me.

So I went home de-stressed and decaffinated and waited for this monster to go

away. By the middle of October I was taking 800 mg of Ibuprofin every 4 hrs. The

surgeon agreed it needed to be removed. Which resulted in a very large hematoma.

Tumor was 5cm. The next day she gave me the news. Cancer stage III. I have not

had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts. Dr doesn't know if I

will need radiation. Don't know if I am doing reconst surg or not. I am still

researching all the pros and cons. I am 43 and I honestly thought before I found

this site that I was the yongest person with BC ever. You can't believe how much

you all have helped. If any one has had similar experience or any good advice

please let me know. I need everything I can get. Thank You Tammy

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

Hi Tammy, I am 43 also, dx in August 06 with Stage 3 also. Mine

also was 5 cm and fast growing. I had presurgery chemo, mastectomy

and oophrectomy, and am in postsurgery chemo now - to be followed by

radiation. No one wanted to say I would definitely need radiation

until I saw the radiation oncologist, but he had no question. So I

would recommend being mentally prepared for that.

Cancer sucks, but you've come to the right place! Hang in there.

>

> I have been reading some of your stories and now I don't feel so

alone. I was sure I was the only one. Thank You. I was

convinced no one was having the same side effects, problems with

drs, etc. etc. With the very first thing I read I felt I could

relate. My family/friends are wonderful but you get that look from

them of not understanding. You know what I mean? Anyway I am so

glad you are out there. I need some positive with all this

negative. I had a mammogram in April 06 that was good. Late August

I started having shooting pain in my left breast with small lump

next to my breast bone. It kept getting bigger and pain became

constant. My primary said you don't have a good mammogram in April

and BC in August. He sent me for diag mammo and ultra sound which

said I had cancer. Then went to surgeon with my results and she

also said it looks like cancer. Went for biopsy they took 5

samples from what was by now a very large and painful lump. Results

came back

> NO CANCER. This was a result of Fibrocystic Breast Disease is

what they told me. So I went home de-stressed and decaffinated and

waited for this monster to go away. By the middle of October I was

taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed to be removed. Which resulted in a very large hematoma. Tumor

was 5cm. The next day she gave me the news. Cancer stage III. I

have not had mastectomy yet. April 07. I am on 5 of 8 chemo

trtmnts. Dr doesn't know if I will need radiation. Don't know if I

am doing reconst surg or not. I am still researching all the pros

and cons. I am 43 and I honestly thought before I found this site

that I was the yongest person with BC ever. You can't believe how

much you all have helped. If any one has had similar experience or

any good advice please let me know. I need everything I can get.

Thank You Tammy

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

hello, I just read these emails, and I wanted to say some things. I had a mamo

and ultrasound birads 4, had the biopsy, came back negative, still have pain,

still have swollen lymph nodes and still running low grade temps. Monday I go

for a MRI, The doctors are really leaning towards a reaccurrance of cancer for

me, I had a lumpectomy 14 years ago that had cancer cells in it, at that time I

was 27, I will be 40 next thursday. I feel like crap all the time physically, or

at least 98% of the time, and mentally well I am also bipolar, and off my

medicine right now, so there I am swinging from extremely positive to

outrageously down several times a day. I had to print this email though because

my boyfriends family all keep saying that the biopsy was negative so I don't

have cancer, they act like I am making up the way I feel physically and keep

repeating that I need to get a job since our finances are so bad. they act like

I am mooching off my boyfriend, and stuff like that.

Like I really need that kind of attitude on top of being bipolar and dealing

with the physical crap I am. I just want to say thank you I don't feel like such

a crazy person anymore. I read all the messages here and I think I would go

completely nuts if I didn't have this group and my mom to turn to. Thanks ya'll

Lori

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

Lori,

The last thing you need is someone telling you these things. I believe you

should never judge a person till you have walked in their shoes. Please go back

on your meds. I will continue to keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

thank you marianne, I would go back on my meds but no money for my prescription.

so am just trying to get by. Its not very easy today has been really hard. thanx

for the well wishes

Lori

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

Lori,

Talk to your dr about free samples and also see if you qualify from the drug

company to receive your med free. I get my Celexa free.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

Lori, I'm so sorry you are having such a hard time. Have you asked

your doctor about herbals like St 's Wort or Valerian Root?

Maybe some of these things that you can try from the healthfood store

might help you and be less expensive. Also, try reading up on

meditation. I meditate when I'm having a really stressful time. It

helps me only temporarily but it does help me get through those times

when my thoughts are just overwhelming me. I have had lots of

periods of depression over my lifetime and have taken just about

every depression medication out there; I only went off of them

(again) right before I found out that my cancer had returned. I have

found it really hard to believe that I HAVEN'T needed to go back on

them but so far so good...either I've been really lucky in that

respect or I'm kidding myself, not sure which. I'll keep you in my

thoughts, just try to breathe and get through one day at a time (and

ask your doctors about the herbal remedies...you never know)

> > >

> > > I have been reading some of your stories and now I don't feel

so

> > alone. I was sure I was the only one. Thank You. I was

> convinced

> > no one was having the same side effects, problems with drs, etc.

> > etc. With the very first thing I read I felt I could relate. My

> > family/friends are wonderful but you get that look from them of

not

> > understanding. You know what I mean? Anyway I am so glad you are

> > out there. I need some positive with all this negative. I had a

> > mammogram in April 06 that was good. Late August I started having

> > shooting pain in my left breast with small lump next to my breast

> > bone. It kept getting bigger and pain became constant. My

> primary

> > said you don't have a good mammogram in April and BC in August.

He

> > sent me for diag mammo and ultra sound which said I had cancer.

> Then

> > went to surgeon with my results and she also said it looks like

> > cancer. Went for biopsy they took 5 samples from what was by now

> a

> > very large and painful lump. Results came back

> > > NO CANCER. This was a result of Fibrocystic Breast Disease is

> > what they told me. So I went home de-stressed and decaffinated

and

> > waited for this monster to go away. By the middle of October I

was

> > taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

> needed

> > to be removed. Which resulted in a very large hematoma. Tumor was

> > 5cm. The next day she gave me the news. Cancer stage III. I have

> > not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

> Dr

> > doesn't know if I will need radiation. Don't know if I am doing

> > reconst surg or not. I am still researching all the pros and

cons.

> I

> > am 43 and I honestly thought before I found this site that I was

> the

> > yongest person with BC ever. You can't believe how much you all

> have

> > helped. If any one has had similar experience or any good advice

> > please let me know. I need everything I can get. Thank You Tammy

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > 8:00? 8:25? 8:40? Find a flick in no time

> > > with theYahoo! Search movie showtime shortcut.

> > >

> > >

[Guest guest]

I don't know about Valerian but I do know St 's Wort is a BIG no no when you

are on chemo.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: new to the group

Lori, I'm so sorry you are having such a hard time. Have you asked

your doctor about herbals like St 's Wort or Valerian Root?

Maybe some of these things that you can try from the healthfood store

might help you and be less expensive. Also, try reading up on

meditation. I meditate when I'm having a really stressful time. It

helps me only temporarily but it does help me get through those times

when my thoughts are just overwhelming me. I have had lots of

periods of depression over my lifetime and have taken just about

every depression medication out there; I only went off of them

(again) right before I found out that my cancer had returned. I have

found it really hard to believe that I HAVEN'T needed to go back on

them but so far so good...either I've been really lucky in that

respect or I'm kidding myself, not sure which. I'll keep you in my

thoughts, just try to breathe and get through one day at a time (and

ask your doctors about the herbal remedies...you never know)

> > >

> > > I have been reading some of your stories and now I don't feel

so

> > alone. I was sure I was the only one. Thank You. I was

> convinced

> > no one was having the same side effects, problems with drs, etc.

> > etc. With the very first thing I read I felt I could relate. My

> > family/friends are wonderful but you get that look from them of

not

> > understanding. You know what I mean? Anyway I am so glad you are

> > out there. I need some positive with all this negative. I had a

> > mammogram in April 06 that was good. Late August I started having

> > shooting pain in my left breast with small lump next to my breast

> > bone. It kept getting bigger and pain became constant. My

> primary

> > said you don't have a good mammogram in April and BC in August.

He

> > sent me for diag mammo and ultra sound which said I had cancer.

> Then

> > went to surgeon with my results and she also said it looks like

> > cancer. Went for biopsy they took 5 samples from what was by now

> a

> > very large and painful lump. Results came back

> > > NO CANCER. This was a result of Fibrocystic Breast Disease is

> > what they told me. So I went home de-stressed and decaffinated

and

> > waited for this monster to go away. By the middle of October I

was

> > taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

> needed

> > to be removed. Which resulted in a very large hematoma. Tumor was

> > 5cm. The next day she gave me the news. Cancer stage III. I have

> > not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

> Dr

> > doesn't know if I will need radiation. Don't know if I am doing

> > reconst surg or not. I am still researching all the pros and

cons.

> I

> > am 43 and I honestly thought before I found this site that I was

> the

> > yongest person with BC ever. You can't believe how much you all

> have

> > helped. If any one has had similar experience or any good advice

> > please let me know. I need everything I can get. Thank You Tammy

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > 8:00? 8:25? 8:40? Find a flick in no time

> > > with theYahoo! Search movie showtime shortcut.

> > >

> > >

[Guest guest]

And when you are on Tamoxifen. There is another supplement which is better for

that. It is a precursor to serotonin: 5-HTP. Check it out. It has been helping

me.

Re: new to the group

Lori, I'm so sorry you are having such a hard time. Have you asked

your doctor about herbals like St 's Wort or Valerian Root?

Maybe some of these things that you can try from the healthfood store

might help you and be less expensive. Also, try reading up on

meditation. I meditate when I'm having a really stressful time. It

helps me only temporarily but it does help me get through those times

when my thoughts are just overwhelming me. I have had lots of

periods of depression over my lifetime and have taken just about

every depression medication out there; I only went off of them

(again) right before I found out that my cancer had returned. I have

found it really hard to believe that I HAVEN'T needed to go back on

them but so far so good...either I've been really lucky in that

respect or I'm kidding myself, not sure which. I'll keep you in my

thoughts, just try to breathe and get through one day at a time (and

ask your doctors about the herbal remedies...you never know)

> > >

> > > I have been reading some of your stories and now I don't feel

so

> > alone. I was sure I was the only one. Thank You. I was

> convinced

> > no one was having the same side effects, problems with drs, etc.

> > etc. With the very first thing I read I felt I could relate. My

> > family/friends are wonderful but you get that look from them of

not

> > understanding. You know what I mean? Anyway I am so glad you are

> > out there. I need some positive with all this negative. I had a

> > mammogram in April 06 that was good. Late August I started having

> > shooting pain in my left breast with small lump next to my breast

> > bone. It kept getting bigger and pain became constant. My

> primary

> > said you don't have a good mammogram in April and BC in August.

He

> > sent me for diag mammo and ultra sound which said I had cancer.

> Then

> > went to surgeon with my results and she also said it looks like

> > cancer. Went for biopsy they took 5 samples from what was by now

> a

> > very large and painful lump. Results came back

> > > NO CANCER. This was a result of Fibrocystic Breast Disease is

> > what they told me. So I went home de-stressed and decaffinated

and

> > waited for this monster to go away. By the middle of October I

was

> > taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

> needed

> > to be removed. Which resulted in a very large hematoma. Tumor was

> > 5cm. The next day she gave me the news. Cancer stage III. I have

> > not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

> Dr

> > doesn't know if I will need radiation. Don't know if I am doing

> > reconst surg or not. I am still researching all the pros and

cons.

> I

> > am 43 and I honestly thought before I found this site that I was

> the

> > yongest person with BC ever. You can't believe how much you all

> have

> > helped. If any one has had similar experience or any good advice

> > please let me know. I need everything I can get. Thank You Tammy

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > 8:00? 8:25? 8:40? Find a flick in no time

> > > with theYahoo! Search movie showtime shortcut.

> > >

> > >

[Guest guest]

Lori,

Not sure what meds you take, but I know Lilly offers assistance with

it's meds...https://www.lillycares.com/index.jsp

> > >

> > > I have been reading some of your stories and now I don't feel

so

> > alone. I was sure I was the only one. Thank You. I was

> convinced

> > no one was having the same side effects, problems with drs, etc.

> > etc. With the very first thing I read I felt I could relate. My

> > family/friends are wonderful but you get that look from them of

not

> > understanding. You know what I mean? Anyway I am so glad you are

> > out there. I need some positive with all this negative. I had a

> > mammogram in April 06 that was good. Late August I started

having

> > shooting pain in my left breast with small lump next to my

breast

> > bone. It kept getting bigger and pain became constant. My

> primary

> > said you don't have a good mammogram in April and BC in August.

He

> > sent me for diag mammo and ultra sound which said I had cancer.

> Then

> > went to surgeon with my results and she also said it looks like

> > cancer. Went for biopsy they took 5 samples from what was by now

> a

> > very large and painful lump. Results came back

> > > NO CANCER. This was a result of Fibrocystic Breast Disease is

> > what they told me. So I went home de-stressed and decaffinated

and

> > waited for this monster to go away. By the middle of October I

was

> > taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

> needed

> > to be removed. Which resulted in a very large hematoma. Tumor

was

> > 5cm. The next day she gave me the news. Cancer stage III. I have

> > not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

> Dr

> > doesn't know if I will need radiation. Don't know if I am doing

> > reconst surg or not. I am still researching all the pros and

cons.

> I

> > am 43 and I honestly thought before I found this site that I was

> the

> > yongest person with BC ever. You can't believe how much you all

> have

> > helped. If any one has had similar experience or any good advice

> > please let me know. I need everything I can get. Thank You Tammy

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > 8:00? 8:25? 8:40? Find a flick in no time

> > > with theYahoo! Search movie showtime shortcut.

> > >

> > >

[Guest guest]

Lori:

You are not nuts. You are a woman with lots of issues you have already dealt

with and more to come. You are courageous, brave and have a right to feel

anyway you want. You are also a fighter and need to continue to stick to your

guns. What do these people know about breast cancer? It's like I told my

oncologist, " Have you had breast cancer or a mastectomy lately? " Until they

walk in your shoes, they just don't know. You do, we do. We will continue to

support and love you.

Jan K

Lori Wadsworth stickmanslady@...> wrote:

hello, I just read these emails, and I wanted to say some things. I

had a mamo and ultrasound birads 4, had the biopsy, came back negative, still

have pain, still have swollen lymph nodes and still running low grade temps.

Monday I go for a MRI, The doctors are really leaning towards a reaccurrance of

cancer for me, I had a lumpectomy 14 years ago that had cancer cells in it, at

that time I was 27, I will be 40 next thursday. I feel like crap all the time

physically, or at least 98% of the time, and mentally well I am also bipolar,

and off my medicine right now, so there I am swinging from extremely positive to

outrageously down several times a day. I had to print this email though because

my boyfriends family all keep saying that the biopsy was negative so I don't

have cancer, they act like I am making up the way I feel physically and keep

repeating that I need to get a job since our finances are so bad. they act like

I am mooching off my boyfriend, and stuff

like that.

Like I really need that kind of attitude on top of being bipolar and dealing

with the physical crap I am. I just want to say thank you I don't feel like such

a crazy person anymore. I read all the messages here and I think I would go

completely nuts if I didn't have this group and my mom to turn to. Thanks ya'll

Lori

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

Lori:

I know you have said that you are on Medicaid. Since you are now on what is

called " Standard of Care " , Medicaid may pay for your meds. It did my Celebrex,

the Arimidex, even my thyroxine for thyroid. It has been a great, I mean really

great, lifesaver. I don't think we could afford this cancer stuff without it.

Just a suggestion.

Jan K

Lori Wadsworth stickmanslady@...> wrote:

thank you marianne, I would go back on my meds but no money for my

prescription. so am just trying to get by. Its not very easy today has been

really hard. thanx for the well wishes

Lori

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

Lori,

Have you contacted the Patient Advocacy Service they maybe able to help you

find someone to help with prescriptions. Talk to someone at the American Cancer

Society also. I was truely amazed at the number of options I had after speaking

with them. I to am struggling to pay for insurance and prescriptions. Hang in

there be positive and something will work out for you. You never know when you

might meet your Angel. Tammy

Jan Koelsch jkoelsch1950@...> wrote:

Lori:

I know you have said that you are on Medicaid. Since you are now on what is

called " Standard of Care " , Medicaid may pay for your meds. It did my Celebrex,

the Arimidex, even my thyroxine for thyroid. It has been a great, I mean really

great, lifesaver. I don't think we could afford this cancer stuff without it.

Just a suggestion.

Jan K

Lori Wadsworth stickmanslady@...> wrote:

thank you marianne, I would go back on my meds but no money for my prescription.

so am just trying to get by. Its not very easy today has been really hard. thanx

for the well wishes

Lori

Re: new to the group

> >

> > I have been reading some of your stories and now I don't feel so

> alone. I was sure I was the only one. Thank You. I was

convinced

> no one was having the same side effects, problems with drs, etc.

> etc. With the very first thing I read I felt I could relate. My

> family/friends are wonderful but you get that look from them of not

> understanding. You know what I mean? Anyway I am so glad you are

> out there. I need some positive with all this negative. I had a

> mammogram in April 06 that was good. Late August I started having

> shooting pain in my left breast with small lump next to my breast

> bone. It kept getting bigger and pain became constant. My

primary

> said you don't have a good mammogram in April and BC in August. He

> sent me for diag mammo and ultra sound which said I had cancer.

Then

> went to surgeon with my results and she also said it looks like

> cancer. Went for biopsy they took 5 samples from what was by now

a

> very large and painful lump. Results came back

> > NO CANCER. This was a result of Fibrocystic Breast Disease is

> what they told me. So I went home de-stressed and decaffinated and

> waited for this monster to go away. By the middle of October I was

> taking 800 mg of Ibuprofin every 4 hrs. The surgeon agreed it

needed

> to be removed. Which resulted in a very large hematoma. Tumor was

> 5cm. The next day she gave me the news. Cancer stage III. I have

> not had mastectomy yet. April 07. I am on 5 of 8 chemo trtmnts.

Dr

> doesn't know if I will need radiation. Don't know if I am doing

> reconst surg or not. I am still researching all the pros and cons.

I

> am 43 and I honestly thought before I found this site that I was

the

> yongest person with BC ever. You can't believe how much you all

have

> helped. If any one has had similar experience or any good advice

> please let me know. I need everything I can get. Thank You Tammy

> >

> >

> >

> > ------------ --------- --------- ---

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

I was diagnosed in January with hypothyroidism. I had not really

educated myself

on what the symptoms of it were, so had not even mentioned most of them to

my regular doctor. (she rarely asks any questions!) Now that things are

really bad (symptom-wise) the proper tests were done and I started

Synthroid (50mcg) near

the end of January. I had only gotten a phone call from the doctor's

nurse, to say

that I needed to take a thyroid pill every day for the rest of my

life........that was the

extent of the information given!

I was in such a fog that I just said okay. Did not ask for my test

results, etc....

never even thought of it! I usually got up tired in the morning, and

then just got

more tired as the day went along...........really hard with having a

design business to

keep up with and to do the work. My hubby would take me out for an easy

dinner

each day, and I kept telling him that should not be so tired that I feel

like I could just lay my

head on the table! I had stopped cooking a few years

ago, as it was

just too much energy and too painful with the messed nerves in my legs

and arms.

(some bad spine problems)

I had gone into Amazon.com and ordered some books Did not know if what

I was

buying was good or not, but I see them listed in this group as things to

read.

(I appreciated the comments on them!)

I did read as much as I could right away, but some of it was " over my

head " at

the time. I will read them again later when my thinking ability and

memory are

doing better. I did decide after reading the books, and joining another

thyroid group,

that I might do best with my condition if I went to an endocronologist

to take over

my care for whatever was wrong with my thyroid, so I had made an

appointment.

My mother had to start thyroid meds when she was in her upper 30's, but

I really

did not know why, as I was young at the time. My brother was diagnosed

some years ago when he was in his 50's.

It was helpful to know (from my new endo doctor) that what I have is

Hashimoto's Disease,

and that have nodules on my thyroid. There were antibodies in my bloodwork.

I had already been on Synthroid for 6 weeks when I saw my new endo, and my

temperature at 11 a.m., in her office that morning, was 96.6.

The endo took the time to explain things to me and told me that she would be

treating me to get my TSH below " 2 " . From what I had read in the

books, and on-line,

and from the other group, I knew that she seemed to be following the newer

guidelines for TSH levels. The endo is very easy to talk to and seems to

be wanting

to do the best to get me feeling better. I am giving my body time to

adjust to getting

the thyroid med and will see how my symptoms are addressed, and then if

things are not

where I feel they should be, I will question the endo about changing my

med or adding

Armour to my Synthroid.

My hair is falling out somewhat less, I still don't have the outer half

of my eyebrows

(been gone for 5 years!), the numb fingers are now very seldom, but

they can still get too

chilled and hurt at times.

My fingernails are still very dry and splitting, but seem to be getting

a tad better.

My memory is doing a tiny bit better, but my speech is still having the

same problems.

It feels like my tongue will not go where it is supposed to go to form

words........very odd

feeling. (Has been going on for a couple of years, but I had thought it

might have been

caused by some extensive surgery to my c4,c4,c6 vertebrae, that was

accessed through

the front of my throat.) I thought that my deep fatigue was due to

battling the nerve

pain in my arms & legs all the time, that was caused before my 2 spine

fusion surgeries..

I had had terrible insomnia problems for some years, and my regular

doctor gave

me some sleeping meds to take occassionally, as I was terribly sleep

deprived.

(don't know if that was related to my Hashi's or not) My doctor never

looked into

what the true cause of my sleep problems were.

I kept thinking all the problems were from something else. The awful

water retention

in my legs/ankles/feet and hands (which my doctor kept giving me a

diuretic for off and

on for some years) has totally disappeared with the Synthroid. Hooray!

I still have a lot of fatigue, and have to pace all my activities. I had

about 4 days when

the fatigue was not quite as bad, but then it slipped right back most

days to where it had

been before beginning treatment.

My cholesterol levels had risen from where they were a long time ago,

and my endo

will be watching to see if the levels go down when my thyroid med is at

the proper

level. I refused the statin drug that my regular doctor wanted me to

get the week

before the thyroid test came back. I told the nurse that I would try to

get it down in

other ways. Now I know that the rise in cholesterol might be from the

bad thyroid.

(I cannot figure out why that regular doctor had not waited for the

thyroid test to

come back before trying to start me on statins.....my guess is that she

didn't know

the connection that there could be with hypythyroidism.)

My endo said that my reg doctor has me on too much steriod medicines for my

asthma and allergies, so wants me to go to a specialist to have those

conditions

evaluated and get off the steriods. Hope I can get off them.

My endo says she will do a blood test at 12 weeks from my start date of the

Synthroid to see how to adjust the dosage. She said that doing it

sooner would

not give a true picture of how my body is doing.

I have decided that I have to be my own advocate in this and am trying

to learn as

much as I can about all the options for treatment. If my foggy brain would

cooperate, it would be easier. I have to triple check everything I type on

the computer to fix all the dumb things I have typed. Words that were always

easy for me to spell now take great concentration, if I can even think

of the

word I want at all. Never had to do that years ago! (I am 63 years old,

so should still have some of my thinking ability.)

Sorry to be so lengthy.......just wanted to get it all out at one time,

and now I

will go back some months on this group and read as many messages as I can.

Wishing for you all to have really good days!

--

Carolyn

http://www.carolyndesigns.com Cottages, Artistic florals & more

Quality Original Machine Embroidery designs

http://groups.yahoo.com/group/Embroidery_Designs_by_Carolyn/

[Guest guest]

hi carolyn,

glad you are here and it sounds like you have a pretty decent endo.

i had the asthma etc. until i went to a naturopath who did a detox

and then i went onto armour meds and from around 4 per day for asthma

and about 8 others for other symptoms i am now only on thyroid and bp

meds. so once you get stabilized it is more than likely that a lot

of the symptoms will either be gone or close to it. as your body

adjusts to the meds usually the 6 week time you could feel like the

meds are no longer working, it just means that your body is now in

need of more medication. this will go on until you have reached what

we call the sweet spot and that varies with each one of us. if you

are feeling that things arent going to well at the six week mark you

may want to contact your endo and see about an increase because IMHO

12 weeks is being very conservative but maybe that is better than

some who have been given increases every 2 weeks and found that they

have gone hyper with the meds. brain fog etc does go as the body

adjusts to the meds. dont be too hard on you we all have days when

we have probs with memory etc and things dont come out right. main

thing is to take care of you and everthing else will fall into place.

dawn cdn

>

> I was diagnosed in January with hypothyroidism. I had not really

> educated myself

> on what the symptoms of it were, so had not even mentioned most of

them to

> my regular doctor. (she rarely asks any questions!) Now that

things are

> really bad (symptom-wise) the proper tests were done and I started

> Synthroid (50mcg) near

> the end of January. I had only gotten a phone call from the

doctor's

> nurse, to say

> that I needed to take a thyroid pill every day for the rest of my

> life........that was the

> extent of the information given!

> I was in such a fog that I just said okay. Did not ask for my test

> results, etc....

> never even thought of it! I usually got up tired in the morning,

and

> then just got

> more tired as the day went along...........really hard with having

a

> design business to

> keep up with and to do the work. My hubby would take me out for an

easy

> dinner

> each day, and I kept telling him that should not be so tired that I

feel

> like I could just lay my

> head on the table! I had stopped cooking a few

years

> ago, as it was

> just too much energy and too painful with the messed nerves in my

legs

> and arms.

> (some bad spine problems)

>

> I had gone into Amazon.com and ordered some books Did not know if

what

> I was

> buying was good or not, but I see them listed in this group as

things to

> read.

> (I appreciated the comments on them!)

> I did read as much as I could right away, but some of it was " over

my

> head " at

> the time. I will read them again later when my thinking ability and

> memory are

> doing better. I did decide after reading the books, and joining

another

> thyroid group,

> that I might do best with my condition if I went to an

endocronologist

> to take over

> my care for whatever was wrong with my thyroid, so I had made an

> appointment.

>

> My mother had to start thyroid meds when she was in her upper 30's,

but

> I really

> did not know why, as I was young at the time. My brother was

diagnosed

> some years ago when he was in his 50's.

>

> It was helpful to know (from my new endo doctor) that what I have

is

> Hashimoto's Disease,

> and that have nodules on my thyroid. There were antibodies in my

bloodwork.

> I had already been on Synthroid for 6 weeks when I saw my new endo,

and my

> temperature at 11 a.m., in her office that morning, was 96.6.

>

> The endo took the time to explain things to me and told me that she

would be

> treating me to get my TSH below " 2 " . From what I had read in the

> books, and on-line,

> and from the other group, I knew that she seemed to be following

the newer

> guidelines for TSH levels. The endo is very easy to talk to and

seems to

> be wanting

> to do the best to get me feeling better. I am giving my body time

to

> adjust to getting

> the thyroid med and will see how my symptoms are addressed, and

then if

> things are not

> where I feel they should be, I will question the endo about

changing my

> med or adding

> Armour to my Synthroid.

>

> My hair is falling out somewhat less, I still don't have the outer

half

> of my eyebrows

> (been gone for 5 years!), the numb fingers are now very seldom,

but

> they can still get too

> chilled and hurt at times.

> My fingernails are still very dry and splitting, but seem to be

getting

> a tad better.

> My memory is doing a tiny bit better, but my speech is still having

the

> same problems.

> It feels like my tongue will not go where it is supposed to go to

form

> words........very odd

> feeling. (Has been going on for a couple of years, but I had

thought it

> might have been

> caused by some extensive surgery to my c4,c4,c6 vertebrae, that was

> accessed through

> the front of my throat.) I thought that my deep fatigue was due to

> battling the nerve

> pain in my arms & legs all the time, that was caused before my 2

spine

> fusion surgeries..

> I had had terrible insomnia problems for some years, and my regular

> doctor gave

> me some sleeping meds to take occassionally, as I was terribly

sleep

> deprived.

> (don't know if that was related to my Hashi's or not) My doctor

never

> looked into

> what the true cause of my sleep problems were.

>

> I kept thinking all the problems were from something else. The

awful

> water retention

> in my legs/ankles/feet and hands (which my doctor kept giving me a

> diuretic for off and

> on for some years) has totally disappeared with the Synthroid.

Hooray!

>

> I still have a lot of fatigue, and have to pace all my activities.

I had

> about 4 days when

> the fatigue was not quite as bad, but then it slipped right back

most

> days to where it had

> been before beginning treatment.

>

> My cholesterol levels had risen from where they were a long time

ago,

> and my endo

> will be watching to see if the levels go down when my thyroid med

is at

> the proper

> level. I refused the statin drug that my regular doctor wanted me

to

> get the week

> before the thyroid test came back. I told the nurse that I would

try to

> get it down in

> other ways. Now I know that the rise in cholesterol might be from

the

> bad thyroid.

> (I cannot figure out why that regular doctor had not waited for the

> thyroid test to

> come back before trying to start me on statins.....my guess is that

she

> didn't know

> the connection that there could be with hypythyroidism.)

>

> My endo said that my reg doctor has me on too much steriod

medicines for my

> asthma and allergies, so wants me to go to a specialist to have

those

> conditions

> evaluated and get off the steriods. Hope I can get off them.

>

> My endo says she will do a blood test at 12 weeks from my start

date of the

> Synthroid to see how to adjust the dosage. She said that doing it

> sooner would

> not give a true picture of how my body is doing.

>

> I have decided that I have to be my own advocate in this and am

trying

> to learn as

> much as I can about all the options for treatment. If my foggy

brain would

> cooperate, it would be easier. I have to triple check everything I

type on

> the computer to fix all the dumb things I have typed. Words that

were always

> easy for me to spell now take great concentration, if I can even

think

> of the

> word I want at all. Never had to do that years ago! (I am 63

years old,

> so should still have some of my thinking ability.)

>

> Sorry to be so lengthy.......just wanted to get it all out at one

time,

> and now I

> will go back some months on this group and read as many messages as

I can.

> Wishing for you all to have really good days!

>

> --

>

> Carolyn

>

> http://www.carolyndesigns.com Cottages, Artistic florals & more

> Quality Original Machine Embroidery designs

> http://groups.yahoo.com/group/Embroidery_Designs_by_Carolyn/

>

[Guest guest]

Hi Carolyn, welcome to our little family, nice to meet you!!! and no,

your post was not too long.....

It's good that you have a doc that is caring... hopefully you can keep

things going in the right direction...

With Hashi's... it seems to work much better to keep the TSH under

1.0.... or, better yet, approaching zero... more important than that

though is the level of thyroid hormones (specifically Free T4 and Free

T3) AND symptoms.... I would venture to say that getting the frees

checked an up is going to relive more of your symptoms. But we won't know

without a look at your labs.

Waiting 12 weeks for labs, might be a bit long.. for most, six weeks is a

good time frame... but it's better a bit long verses a bit short (time

wise) it's important to see how the body is responding to the dosage and

not still be in a flux state....

Have they talked to you about the best way to take Synthetic T4 (that

includes Synthroid, Levoxyl, Levothyroxine, etc)?

..... on an empty stomach, keeping calcium and iron supplements well

spaced from the thyroid dose, etc?

How about food type things to avoid.... like HFCS (high fructose corn

syrup) and soy products, as well as other goitrogens?

You're just starting out.. and already doing a lot of reading, even so,

please don't hesitate to ask questions... there are plenty of folks here

that will be able to share what they've learned and experienced...

I'd like to thank you for your donation too, it will be used for computer

parts to keep these ole clunkers running a while longer!!!

Topper ()

On Sun, 11 Mar 2007 14:58:30 -0500 Carolyn Faulk

cfaulk@...> writes:

> I was diagnosed in January with hypothyroidism. I had not really

> educated myself

> on what the symptoms of it were, so had not even mentioned most of

> them to

> my regular doctor. (she rarely asks any questions!) Now that things

> are

> really bad (symptom-wise) the proper tests were done and I started

> Synthroid (50mcg) near

> the end of January. I had only gotten a phone call from the doctor's

>

> nurse, to say

> that I needed to take a thyroid pill every day for the rest of my

> life........that was the extent of the information given!

> I was in such a fog that I just said okay. Did not ask for my test

>

> results, etc....

> never even thought of it! I usually got up tired in the morning,

> and then just got

> more tired as the day went along...........really hard with having a

>

> design business to

> keep up with and to do the work. My hubby would take me out for an

> easy dinner

> each day, and I kept telling him that should not be so tired that I

> feel like I could just lay my

> head on the table! I had stopped cooking a few years

>

> ago, as it was

> just too much energy and too painful with the messed nerves in my

> legs and arms.(some bad spine problems)

>

> I had gone into Amazon.com and ordered some books Did not know if

> what I was

> buying was good or not, but I see them listed in this group as

> things to read. (I appreciated the comments on them!)

> I did read as much as I could right away, but some of it was " over

> my head " at

> the time. I will read them again later when my thinking ability and

>

> memory are

> doing better. I did decide after reading the books, and joining

> another thyroid group,

> that I might do best with my condition if I went to an

> endocronologist to take over

> my care for whatever was wrong with my thyroid, so I had made an

> ment.

>

> My mother had to start thyroid meds when she was in her upper 30's,

> but I really

> did not know why, as I was young at the time. My brother was

> diagnosed some years ago when he was in his 50's.

>

> It was helpful to know (from my new endo doctor) that what I have is

> Hashimoto's Disease,

> and that have nodules on my thyroid. There were antibodies in my

> bloodwork.

> I had already been on Synthroid for 6 weeks when I saw my new endo,

> and my

> temperature at 11 a.m., in her office that morning, was 96.6.

>

> The endo took the time to explain things to me and told me that she

> would be

> treating me to get my TSH below " 2 " . From what I had read in the

> books, and on-line,

> and from the other group, I knew that she seemed to be following the

> newer

> guidelines for TSH levels. The endo is very easy to talk to and

> seems to be wanting

> to do the best to get me feeling better. I am giving my body time

> to adjust to getting

> the thyroid med and will see how my symptoms are addressed, and then

> if things are not

> where I feel they should be, I will question the endo about changing

> my med or adding

> Armour to my Synthroid.

>

> My hair is falling out somewhat less, I still don't have the outer

> half of my eyebrows

> (been gone for 5 years!), the numb fingers are now very seldom, but

> they can still get too chilled and hurt at times. My fingernails

> are still very dry and splitting, but seem to be getting a tad better.

> My memory is doing a tiny bit better, but my speech is still having

> the same problems.

> It feels like my tongue will not go where it is supposed to go to

> form words........very odd

> feeling. (Has been going on for a couple of years, but I had

> thought it might have been

> caused by some extensive surgery to my c4,c4,c6 vertebrae, that was

> accessed through

> the front of my throat.) I thought that my deep fatigue was due to

> battling the nerve

> pain in my arms & legs all the time, that was caused before my 2

> spine fusion surgeries..

> I had had terrible insomnia problems for some years, and my regular

> doctor gave

> me some sleeping meds to take occassionally, as I was terribly sleep

> deprived.

> (don't know if that was related to my Hashi's or not) My doctor

> never looked into what the true cause of my sleep problems were.

> I kept thinking all the problems were from something else. The awful

> water retention

> in my legs/ankles/feet and hands (which my doctor kept giving me a

> diuretic for off and

> on for some years) has totally disappeared with the Synthroid.

> Hooray!

>

> I still have a lot of fatigue, and have to pace all my activities. I

> had about 4 days when

> the fatigue was not quite as bad, but then it slipped right back

> most days to where it had been before beginning treatment.

>

> My cholesterol levels had risen from where they were a long time

> ago, and my endo

> will be watching to see if the levels go down when my thyroid med is

> at the proper

> level. I refused the statin drug that my regular doctor wanted me

> to get the week

> before the thyroid test came back. I told the nurse that I would try

> to get it down in

> other ways. Now I know that the rise in cholesterol might be from

> the bad thyroid.

> (I cannot figure out why that regular doctor had not waited for the

> thyroid test to

> come back before trying to start me on statins.....my guess is that

> she didn't know

> the connection that there could be with hypythyroidism.)

>

> My endo said that my reg doctor has me on too much steriod medicines

> for my

> asthma and allergies, so wants me to go to a specialist to have

> those conditions

> evaluated and get off the steriods. Hope I can get off them.

>

> My endo says she will do a blood test at 12 weeks from my start date

> of the

> Synthroid to see how to adjust the dosage. She said that doing it

> sooner would

> not give a true picture of how my body is doing.

> I have decided that I have to be my own advocate in this and am

> trying to learn as

> much as I can about all the options for treatment. If my foggy

> brain would

> cooperate, it would be easier. I have to triple check everything I

> type on

> the computer to fix all the dumb things I have typed. Words that

> were always

> easy for me to spell now take great concentration, if I can even

> think of the

> word I want at all. Never had to do that years ago! (I am 63 years

> old,

> so should still have some of my thinking ability.)

>

> Sorry to be so lengthy.......just wanted to get it all out at one

> time, and now I

> will go back some months on this group and read as many messages as

> I can.

> Wishing for you all to have really good days!

>

> --

>

> Carolyn

[Guest guest]

My pharmacist told me (and gave me printed info) on taking my Synthroid

an hour before any other food or meds. (and to take it

the same time every day) I have been following the instructions

carefully. I wait to take my calcium and multi vitamin til afternoon,

and it seems to work out well.

I am eating low-carb most of the time, so don't get much HFCS at all.

I do eat some things that have some soy in them, so am not sure how

I will change that. I had read (someplace) that it is suspected that soy

messes things up, but had also read a report about a study that showed

no difference between patients who ate soy products and those who did

not. (with regards to thyroid meds) I thought I had bookmarked that

site, but I have so many sites bookmarked for thyroid stuff that it is

nearly impossible to find the right place for that info, or I forgot to

bookmark it. I went a little nuts searching for

thyroid information, and my brain would not absorb it all.

Thanks so much for taking the time to give me information.

Nice to "meet" you, !

Have they talked to you about the best way to

take Synthetic T4 (that

includes Synthroid, Levoxyl, Levothyroxine, etc)?

..... on an empty stomach, keeping calcium and iron supplements well

spaced from the thyroid dose, etc?

How about food type things to avoid.... like HFCS (high fructose corn

syrup) and soy products, as well as other goitrogens?

You're just starting out.. and already doing a lot of reading, even so,

please don't hesitate to ask questions... there are plenty of folks here

that will be able to share what they've learned and experienced.

...

I'd like to thank you for your donation too, it will be used for

computer

parts to keep these ole clunkers running a while longer!!!

Topper ()

-- Carolyn

http://www.carolyndesigns.com Cottages, Artistic florals & more

Quality Original Machine Embroidery designs

http://groups.yahoo.com/group/Embroidery_Designs_by_Carolyn/

[Guest guest]

The soy stuff can be confusing... I'm anti soy but that is beside the point right now....

If you consume soy products, or any of the other goitrogens (foods that negatively affect thyroid gland function and/or thyroid hormone conversion) the trick is to be consistent with how much and how often you eat it and then adjust your meds accordingly.

In a body with a healthy gland the gland just adjusts to compensate for the change in diet. Since we are dependant on the hormones that we take, and we can't adjust the amount we take correctly for timing and amount, we have to control what we consume...

If you love broccoli or whatever... and find that it's pretty good to have it two or three times a week and that makes you happy... try to eat it pretty consistently that two or three times a week (or everyday or once a week, what ever makes your body smile) and if your labs are showing good, and if your symptoms are backing off you have your balance. There are MANY good nutrients, and good tastes, in goitrogenic foods... so we just have to learn how to incorporate them in our diets in a way that allows them to be positive for us and not negative.

Kinda get the idea??

I have two items with soy in them that I love.. there are versions that are soy free, but they are more expensive... and my budge pretty much forces me to make some choices... So I still have my salad dressing on my sammys and I still have my crunchy peanut butter....

There are other things that I choose not to have cuz of certain ingredients... I can't have my favorite chip dip any more... it has soy and carageenan in it.... I can't have cheap BBQ sauce any more cuz it has HFCS in it. I still have soda, but only as a treat, usually between Thanksgiving and Christmas, a friend brings me a case for an early Christmas present, and then I get a case for my birthday during the summer... So I've gone from a 'case plus a day' to about 2 or 3 cases a year.... I'd say that is a bit of a reduction.

I've just eliminated one thing from my food choices.. and I'm still pretty broken up about it.... I was buying frozen chicken hind quarters... I LOVE chicken and these were cheap... but I've found that this type of product is soaked in soy protein... it's riddled with soy... I choose to avoid that if at all possible... and, well.... I'm avoiding it....

I'll have to find a store that is selling the bulk bagged non-frozen hind quarters that I used to get... the store that used to carry them sold out to a bigger chain, the new chain doesn't carry them, so I went to the frozen ones (at a higher price).

Topper ()

On Sun, 11 Mar 2007 20:28:00 -0500 Carolyn Faulk writes:

My pharmacist told me (and gave me printed info) on taking my Synthroid an hour before any other food or meds. (and to take it the same time every day) I have been following the instructions carefully. I wait to take my calcium and multi vitamin til afternoon, and it seems to work out well.I am eating low-carb most of the time, so don't get much HFCS at all.I do eat some things that have some soy in them, so am not sure howI will change that. I had read (someplace) that it is suspected that soymesses things up, but had also read a report about a study that showed no difference between patients who ate soy products and those who did not. (with regards to thyroid meds) I thought I had bookmarked that site, but I have so many sites bookmarked for thyroid stuff that it is nearly impossible to find the right place for that info, or I forgot to bookmark it. I went a little nuts searching forthyroid information, and my brain would not absorb it all.Thanks so much for taking the time to give me information. Nice to "meet" you, !

[Guest guest]

Hello, My name is Tonja, I am 27 years old and found out I have

hyperthyrodism back in 2002. Since then I have been treated with the

radioactive pill twice and no longer have the gotier. But I recently

had my levels checked and was advised that my thyriod levels are

suppressed. I have no idea what that means. I do not that I get no slee

but always fill drained. My muscles are always aching. I feel like my

body is going through more changes. Is there someone who can answer my

questions.

God bless