Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Had a check up with the hip dr today. The brace is working. What I thought was a SWASH brace is actually a ish Rite Brace. It would be better if it were more restrictive because she can still pop her hips a bit in it, but if it were any more restrictive, it would impede her walking too much. As it is, it greatly reduces the popping. She feels secure and stable in it so she's great about wearing it all waking hours. But, if you knew Aubrie, you wouldn't be surprised that she would be so agreeable. 4 months ago, she had a 20 degree spinal curvature. I didn't ask about it then cuz I was overwhelmed with the brace idea. This time, I did ask. They re-xrayed and found that it's now at 17 degrees. So - no worries for the time being. But I have to say that I'm scared to death about her future mobility with the hips and spine combined. Plus she fell one day due to her ankle giving out. She has pronation of the ankles. The day she fell, she wasn't wearing the hip brace and was on uneven ground. We are hoping that the brace will support her positioning enough to help her ankles indirectly. Gosh - I hate the thought of her getting ankle braces too! And eventually a spinal brace??? I'm projecting, I know. I don't dwell on it - but I just needed to vent. I hope our horseback riding will keep her spine straight. We'll get a recheck in 6 months again. I'm praying for no growth spurts. Isn't that awful?? Here's another vent. I know many of you deal with extremely difficult behaviors. I met a mom the other day whose son has autism. He is self-abusive and he hurts her. She had bruises all over her arms and face from him. I felt such incredible compassion for her and for all of you who share your struggles here. But then I felt guilty because I live with this little cherub who would never do anything wrong or hurt anybody. And you know, that's not all good either. The school social worker is trying to figure out how to help her cope with " naughtiness " (or what she perceives as such) in others. She gets so upset when someone is bad or arguing. I mean, even to the point of us not being able to have typical spats in the household. It's crazy. Even the good stuff is a " problem " . The bright side - at ISD we have a team of people trying to help me figure her out - and people who seem knowledgable and open-minded enough that we may actually be successful! On a positive note, we went to eat at Wolfgang Puck's restaurant after our Shriners visit. I had a hair in my soup so the waiter and chef will surely remember us. Plus - Aubrie is obviously disabled now with her hearing aid headband so visible and her hip brace. We asked the waiter if Puck ever comes. Turns out he's coming next week, but he didn't know a date. So he suggested I leave the question on my comment card. We came home to an e-mail invite to a gathering at the restaurant with Mr. Puck on Tues night! Now, this will mean leaving town as soon as Aubrie gets home from school, missing Girl Scouts, and getting home way past bedtime - but I think we can't pass it up. After Puck's, we went to Cirque du Soleil. It's phenomenal! This is my 3rd show, Aubrie and DJ's second. If you haven't been to one, I highly recommend it. I called for special seating (front row) due to Aubrie's vision. I called soon after tickets went on sale. We got 2 seats in the accessible first row with 2 seats right next to them - and they were half price. So the 4 of us went for less than $200. That's a bargain! No bargains once we arrived tho - soda was $5. Yes, $5!!!! Anyway - fabulous show and very agreeable to people with disabilities - just call the box office direct as soon as sales begin. If those seats next to the accessible seats are taken, you won't be able to get your party together - just one person with the disabled person. I'm jabbering. Thanks for listening! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 cirucus solie that is the best i went the other week with mum and we went with sevie and her mum LOL it was the very best and we were right up the front to coz the chairs and stuff though i could posibly of transfered sevie catn so yeah we were up the frotn it is the best ive been befor love it love it wow!!!!!!11 is the thing varaci thatss wat we saw here in aus hang on how can they be over there when they r here maybe me and sev saw soemthing different to u LOL now im confused well its still beatiful > > Had a check up with the hip dr today. The brace is working. What I > thought > was a SWASH brace is actually a ish Rite Brace. It would be better if > it were more restrictive because she can still pop her hips a bit in it, > but > if it were any more restrictive, it would impede her walking too much. As > it is, it greatly reduces the popping. She feels secure and stable in it > so > she's great about wearing it all waking hours. But, if you knew Aubrie, > you > wouldn't be surprised that she would be so agreeable. > > 4 months ago, she had a 20 degree spinal curvature. I didn't ask about it > then cuz I was overwhelmed with the brace idea. This time, I did ask. They > re-xrayed and found that it's now at 17 degrees. So - no worries for the > time being. But I have to say that I'm scared to death about her future > mobility with the hips and spine combined. Plus she fell one day due to > her > ankle giving out. She has pronation of the ankles. The day she fell, she > wasn't wearing the hip brace and was on uneven ground. We are hoping that > the brace will support her positioning enough to help her ankles > indirectly. > Gosh - I hate the thought of her getting ankle braces too! And eventually > a > spinal brace??? I'm projecting, I know. I don't dwell on it - but I just > needed to vent. > > I hope our horseback riding will keep her spine straight. We'll get a > recheck in 6 months again. I'm praying for no growth spurts. Isn't that > awful?? > > Here's another vent. I know many of you deal with extremely difficult > behaviors. I met a mom the other day whose son has autism. He is > self-abusive and he hurts her. She had bruises all over her arms and face > from him. I felt such incredible compassion for her and for all of you who > share your struggles here. But then I felt guilty because I live with this > little cherub who would never do anything wrong or hurt anybody. And you > know, that's not all good either. The school social worker is trying to > figure out how to help her cope with " naughtiness " (or what she perceives > as > such) in others. She gets so upset when someone is bad or arguing. I mean, > even to the point of us not being able to have typical spats in the > household. It's crazy. Even the good stuff is a " problem " . The bright > side - at ISD we have a team of people trying to help me figure her out - > and people who seem knowledgable and open-minded enough that we may > actually > be successful! > > On a positive note, we went to eat at Wolfgang Puck's restaurant after our > Shriners visit. I had a hair in my soup so the waiter and chef will surely > remember us. Plus - Aubrie is obviously disabled now with her hearing aid > headband so visible and her hip brace. We asked the waiter if Puck ever > comes. Turns out he's coming next week, but he didn't know a date. So he > suggested I leave the question on my comment card. We came home to an > e-mail invite to a gathering at the restaurant with Mr. Puck on Tues > night! > Now, this will mean leaving town as soon as Aubrie gets home from school, > missing Girl Scouts, and getting home way past bedtime - but I think we > can't pass it up. > > After Puck's, we went to Cirque du Soleil. It's phenomenal! This is my 3rd > show, Aubrie and DJ's second. If you haven't been to one, I highly > recommend it. I called for special seating (front row) due to Aubrie's > vision. I called soon after tickets went on sale. We got 2 seats in the > accessible first row with 2 seats right next to them - and they were half > price. So the 4 of us went for less than $200. That's a bargain! No > bargains once we arrived tho - soda was $5. Yes, $5!!!! Anyway - fabulous > show and very agreeable to people with disabilities - just call the box > office direct as soon as sales begin. If those seats next to the > accessible > seats are taken, you won't be able to get your party together - just one > person with the disabled person. > > I'm jabbering. Thanks for listening! > > Michele > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Ellen- Oh - yes, it's amazingly beautiful! We saw a show called Quidam. It's a traveling show. We saw La Nouba in Orlando FL. There are several different shows but all have the same style of music and performance. Aren't the costumes and makeup amazing??? Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of ellen howe Sent: Sunday, October 08, 2006 2:44 AM To: CHARGE Subject: Re: Aubrie's hips etc. cirucus solie that is the best i went the other week with mum and we went with sevie and her mum LOL it was the very best and we were right up the front to coz the chairs and stuff though i could posibly of transfered sevie catn so yeah we were up the frotn it is the best ive been befor love it love it wow!!!!!!11 is the thing varaci thatss wat we saw here in aus hang on how can they be over there when they r here maybe me and sev saw soemthing different to u LOL now im confused well its still beatiful Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 yeah they r the best > > Ellen- > > Oh - yes, it's amazingly beautiful! We saw a show called Quidam. It's a > traveling show. We saw La Nouba in Orlando FL. There are several different > shows but all have the same style of music and performance. Aren't the > costumes and makeup amazing??? > > Michele W > > _____ > > From: CHARGE <CHARGE%40yahoogroups.com> [mailto: > CHARGE <CHARGE%40yahoogroups.com>] On Behalf Of > ellen howe > Sent: Sunday, October 08, 2006 2:44 AM > To: CHARGE <CHARGE%40yahoogroups.com> > Subject: Re: Aubrie's hips etc. > > cirucus solie that is the best i went the other week with mum and we went > with sevie and her mum LOL it was the very best and we were right up the > front to coz the chairs and stuff though i could posibly of transfered > sevie > catn so yeah we were up the frotn it is the best ive been befor love it > love > it wow!!!!!!11 is the thing varaci thatss wat we saw here in aus hang on > how > can they be over there when they r here maybe me and sev saw soemthing > different to u LOL now im confused well its still beatiful > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 good news about the brace and reduced degrees, it all sounds scary stuff to me Michele. Cant comment on the show not seen it, but sounds like you enjoyed it seeing it 3 times!! hugs Les x > > yeah they r the best > > On 09/10/06, Michele Westmaas <momonamission@...<momonamission%40verizon.net>> > wrote: > > > > Ellen- > > > > Oh - yes, it's amazingly beautiful! We saw a show called Quidam. It's a > > traveling show. We saw La Nouba in Orlando FL. There are several > different > > shows but all have the same style of music and performance. Aren't the > > costumes and makeup amazing??? > > > > Michele W > > > > _____ > > > > From: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> [mailto: > > CHARGE <CHARGE%40yahoogroups.com> <CHARGE%40yahoogrou > ps.com>] On Behalf Of > > ellen howe > > Sent: Sunday, October 08, 2006 2:44 AM > > To: CHARGE <CHARGE%40yahoogroups.com><CHARGE%40yahoogrou > ps.com> > > Subject: Re: Aubrie's hips etc. > > > > cirucus solie that is the best i went the other week with mum and we > went > > with sevie and her mum LOL it was the very best and we were right up the > > front to coz the chairs and stuff though i could posibly of transfered > > sevie > > catn so yeah we were up the frotn it is the best ive been befor love it > > love > > it wow!!!!!!11 is the thing varaci thatss wat we saw here in aus hang on > > how > > can they be over there when they r here maybe me and sev saw soemthing > > different to u LOL now im confused well its still beatiful > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 WOW, what difference in her curvature!!! I can't imagine having to wear it, but it sure seems to have made a good difference. I bet you can expect extra help with the hippotherapy. What a wonderful night--Puck's, Cirque du Soleil! And of course, you must go meet MR. Puck!! Can't wait to see those pictures!! pam Aubrie's hips etc. Had a check up with the hip dr today. The brace is working. What I thought was a SWASH brace is actually a ish Rite Brace. It would be better if it were more restrictive because she can still pop her hips a bit in it, but if it were any more restrictive, it would impede her walking too much. As it is, it greatly reduces the popping. She feels secure and stable in it so she's great about wearing it all waking hours. But, if you knew Aubrie, you wouldn't be surprised that she would be so agreeable. 4 months ago, she had a 20 degree spinal curvature. I didn't ask about it then cuz I was overwhelmed with the brace idea. This time, I did ask. They re-xrayed and found that it's now at 17 degrees. So - no worries for the time being. But I have to say that I'm scared to death about her future mobility with the hips and spine combined. Plus she fell one day due to her ankle giving out. She has pronation of the ankles. The day she fell, she wasn't wearing the hip brace and was on uneven ground. We are hoping that the brace will support her positioning enough to help her ankles indirectly. Gosh - I hate the thought of her getting ankle braces too! And eventually a spinal brace??? I'm projecting, I know. I don't dwell on it - but I just needed to vent. I hope our horseback riding will keep her spine straight. We'll get a recheck in 6 months again. I'm praying for no growth spurts. Isn't that awful?? Here's another vent. I know many of you deal with extremely difficult behaviors. I met a mom the other day whose son has autism. He is self-abusive and he hurts her. She had bruises all over her arms and face from him. I felt such incredible compassion for her and for all of you who share your struggles here. But then I felt guilty because I live with this little cherub who would never do anything wrong or hurt anybody. And you know, that's not all good either. The school social worker is trying to figure out how to help her cope with " naughtiness " (or what she perceives as such) in others. She gets so upset when someone is bad or arguing. I mean, even to the point of us not being able to have typical spats in the household. It's crazy. Even the good stuff is a " problem " . The bright side - at ISD we have a team of people trying to help me figure her out - and people who seem knowledgable and open-minded enough that we may actually be successful! On a positive note, we went to eat at Wolfgang Puck's restaurant after our Shriners visit. I had a hair in my soup so the waiter and chef will surely remember us. Plus - Aubrie is obviously disabled now with her hearing aid headband so visible and her hip brace. We asked the waiter if Puck ever comes. Turns out he's coming next week, but he didn't know a date. So he suggested I leave the question on my comment card. We came home to an e-mail invite to a gathering at the restaurant with Mr. Puck on Tues night! Now, this will mean leaving town as soon as Aubrie gets home from school, missing Girl Scouts, and getting home way past bedtime - but I think we can't pass it up. After Puck's, we went to Cirque du Soleil. It's phenomenal! This is my 3rd show, Aubrie and DJ's second. If you haven't been to one, I highly recommend it. I called for special seating (front row) due to Aubrie's vision. I called soon after tickets went on sale. We got 2 seats in the accessible first row with 2 seats right next to them - and they were half price. So the 4 of us went for less than $200. That's a bargain! No bargains once we arrived tho - soda was $5. Yes, $5!!!! Anyway - fabulous show and very agreeable to people with disabilities - just call the box office direct as soon as sales begin. If those seats next to the accessible seats are taken, you won't be able to get your party together - just one person with the disabled person. I'm jabbering. Thanks for listening! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 !! Dont you EVER stop " ranting " or whatever about you and Aubrie..I love reading your emails Aubrie getting upset by people being " mean " ... a thing i can remember when i was younger is whenever my parents would argue, and i mean, they didnt really argue badly...Like no name calling or anything like that (well not bad name calling madee idiot or something lol) id go and cry in my room because id think they were being so mean to each other and were going to get a divorce > > WOW, what difference in her curvature!!! I can't imagine having to wear > it, but it sure seems to have made a good difference. I bet you can expect > extra help with the hippotherapy. > > What a wonderful night--Puck's, Cirque du Soleil! And of course, you must > go meet MR. Puck!! Can't wait to see those pictures!! > pam > > Aubrie's hips etc. > > Had a check up with the hip dr today. The brace is working. What I thought > was a SWASH brace is actually a ish Rite Brace. It would be better if > it were more restrictive because she can still pop her hips a bit in it, > but > if it were any more restrictive, it would impede her walking too much. As > it is, it greatly reduces the popping. She feels secure and stable in it > so > she's great about wearing it all waking hours. But, if you knew Aubrie, > you > wouldn't be surprised that she would be so agreeable. > > 4 months ago, she had a 20 degree spinal curvature. I didn't ask about it > then cuz I was overwhelmed with the brace idea. This time, I did ask. They > re-xrayed and found that it's now at 17 degrees. So - no worries for the > time being. But I have to say that I'm scared to death about her future > mobility with the hips and spine combined. Plus she fell one day due to > her > ankle giving out. She has pronation of the ankles. The day she fell, she > wasn't wearing the hip brace and was on uneven ground. We are hoping that > the brace will support her positioning enough to help her ankles > indirectly. > Gosh - I hate the thought of her getting ankle braces too! And eventually > a > spinal brace??? I'm projecting, I know. I don't dwell on it - but I just > needed to vent. > > I hope our horseback riding will keep her spine straight. We'll get a > recheck in 6 months again. I'm praying for no growth spurts. Isn't that > awful?? > > Here's another vent. I know many of you deal with extremely difficult > behaviors. I met a mom the other day whose son has autism. He is > self-abusive and he hurts her. She had bruises all over her arms and face > from him. I felt such incredible compassion for her and for all of you who > share your struggles here. But then I felt guilty because I live with this > little cherub who would never do anything wrong or hurt anybody. And you > know, that's not all good either. The school social worker is trying to > figure out how to help her cope with " naughtiness " (or what she perceives > as > such) in others. She gets so upset when someone is bad or arguing. I mean, > even to the point of us not being able to have typical spats in the > household. It's crazy. Even the good stuff is a " problem " . The bright > side - at ISD we have a team of people trying to help me figure her out - > and people who seem knowledgable and open-minded enough that we may > actually > be successful! > > On a positive note, we went to eat at Wolfgang Puck's restaurant after our > Shriners visit. I had a hair in my soup so the waiter and chef will surely > remember us. Plus - Aubrie is obviously disabled now with her hearing aid > headband so visible and her hip brace. We asked the waiter if Puck ever > comes. Turns out he's coming next week, but he didn't know a date. So he > suggested I leave the question on my comment card. We came home to an > e-mail invite to a gathering at the restaurant with Mr. Puck on Tues > night! > Now, this will mean leaving town as soon as Aubrie gets home from school, > missing Girl Scouts, and getting home way past bedtime - but I think we > can't pass it up. > > After Puck's, we went to Cirque du Soleil. It's phenomenal! This is my 3rd > show, Aubrie and DJ's second. If you haven't been to one, I highly > recommend it. I called for special seating (front row) due to Aubrie's > vision. I called soon after tickets went on sale. We got 2 seats in the > accessible first row with 2 seats right next to them - and they were half > price. So the 4 of us went for less than $200. That's a bargain! No > bargains once we arrived tho - soda was $5. Yes, $5!!!! Anyway - fabulous > show and very agreeable to people with disabilities - just call the box > office direct as soon as sales begin. If those seats next to the > accessible > seats are taken, you won't be able to get your party together - just one > person with the disabled person. > > I'm jabbering. Thanks for listening! > > Michele > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Bel- You know I'll never stop blabbering on and on. It's what keeps me sane. Although it may contribute to the readers' insanity! :-) You've got it exactly - she has a response that is unequal to the situation. Yes, your parents were arguing, and that's upsetting to any child, but you were very affected by it. She's the same. Often, she perceives something as much more " mean " than it is. She had a very hard time in soccer when you were supposed to steal the ball from the opponent - cuz you know stealing isn't nice! Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of _Belinda _ Sent: Monday, October 09, 2006 4:11 PM To: CHARGE Subject: Re: Aubrie's hips etc. !! Dont you EVER stop " ranting " or whatever about you and Aubrie..I love reading your emails Aubrie getting upset by people being " mean " ... a thing i can remember when i was younger is whenever my parents would argue, and i mean, they didnt really argue badly...Like no name calling or anything like that (well not bad name calling madee idiot or something lol) id go and cry in my room because id think they were being so mean to each other and were going to get a divorce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Michele, Sounds like good news to me. Yea about the reduction of the curvature of Aubrie's spine. I am sure horseback riding will also help. It'll help with everything. About Aubrie's ankles- Patty had inserts made so that it'll keep having to wear braces at bay. So far so good. They also help with her hips being more even. By the way, Wolfgang Puck lived in the town next to mine. I met him. He's wonderful and very personal. I am not surprised on the invite. He'll just love meeting Aubrie. Got to get that girl cooking soon! Bring one of his cookbooks with you and he'll autograph it. Glad to hear all the good news. More than that every time you post about the new school I am more and more impressed. Take care, Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Michele, You will have to be our " culture advisor " . All these opportunities and experiences are fabulous. Partaking of the best life has to offer; what a downright intelligent thing to do! And the value to all of you as you reflect back on your life. I see CHARGE shrinking before our very eyes. in Ma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Bonnie- We are so excited about meeting Chef Puck! I'm glad to hear he is likely to meet our expectations. His head Midwestern chef called to clarify the invite and was so wonderful! We'll be his VIP guests and he'll be sure Aubrie has time with Chef Puck. When I mentioned that we needed to stop at the store for a cookbook (she has Emeril and Ray's) he said not to bother - he'll take care of that. Wow! I looked up info on Chef Puck and found that he's received humanitarian awards and has a foundation that gives to lots of organizations. I won't hit it up hard tonight, but wouldn't it be cool if we could get some recognition and support for CHARGE???? My thought is that I can email him afterwards with details after just a mention if it fits into the conversation tonight. And the Midwestern chef said he'd like to keep in touch so that we can be invited when others come to town. " Malto " is expected in a couple months. All of this has not been bad for Puck - I bought $200 worth of appliances this weekend after watching him on HSN!!!!!!!!! Since we truly choose Puck's restaurant for lunch when we are in for dr's appts, it won't be hard to keep up the relationship. The food is great and it's at the Art Museum. In St. Louis, the museum and parking are free so it's lovely to browse the artwork, have a nummy lunch, and be off to our appt or home. Degas' Little Dancer is there so we always are sure to stop and say " hi " to her :-) Tonight's event is at the Contemporary Museum of Art. Never been there but I'm really looking forward to it. I love art and can't always get my men to want to go. Now they'll be captive audiences. The meet-and-greet party will have full run of the museum after hours with drinks and hors d'ourves. I hope we know how to act! I'll tell you guys all about it tomorrow. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 CAN'T WAIT for the details!! pam > Bonnie- > > We are so excited about meeting Chef Puck! I'm glad to hear he is likely to > meet our expectations. His head Midwestern chef called to clarify the > invite and was so wonderful! We'll be his VIP guests and he'll be sure > Aubrie has time with Chef Puck. When I mentioned that we needed to stop at > the store for a cookbook (she has Emeril and Ray's) he said not to > bother - he'll take care of that. Wow! > > > > I looked up info on Chef Puck and found that he's received humanitarian > awards and has a foundation that gives to lots of organizations. I won't > hit it up hard tonight, but wouldn't it be cool if we could get some > recognition and support for CHARGE???? My thought is that I can email him > afterwards with details after just a mention if it fits into the > conversation tonight. > > > > And the Midwestern chef said he'd like to keep in touch so that we can be > invited when others come to town. " Malto " is expected in a couple > months. All of this has not been bad for Puck - I bought $200 worth of > appliances this weekend after watching him on HSN!!!!!!!!! Since we truly > choose Puck's restaurant for lunch when we are in for dr's appts, it won't > be hard to keep up the relationship. The food is great and it's at the Art > Museum. In St. Louis, the museum and parking are free so it's lovely to > browse the artwork, have a nummy lunch, and be off to our appt or home. > Degas' Little Dancer is there so we always are sure to stop and say " hi " to > her :-) > > > > Tonight's event is at the Contemporary Museum of Art. Never been there but > I'm really looking forward to it. I love art and can't always get my men to > want to go. Now they'll be captive audiences. The meet-and-greet party > will have full run of the museum after hours with drinks and hors d'ourves. > I hope we know how to act! > > > > I'll tell you guys all about it tomorrow. > > > > Michele > > > > Quote Link to comment Share on other sites More sharing options...
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