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Triple Neg Survey & ?

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In a message dated 1/30/2007 8:10:01 A.M. Eastern Standard Time,

cptinney@... writes:

I am also a triple neg.

could someone please explain what triple negative is?

thank you,

lorena

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I am also a triple neg.

I have a question maybe someone can answer about triple negs.

I was just reading that there is about a 20% chance that if you

got a new cancer it could be er+ so why wouldn't we be able to

take something like tamoxifen since our risk although evidently small

is still there for a new er+ tumor?

Pam

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Pam,

My understanding is that if you got a new cancer, it is still considered

breast cancer. The cancer you get always goes back to where it originates. So

for ex;, if you get lung cancer, it would still be from the breast cancer that

mestastized, brain, bones, etc. At least thats what I've been told by my Dana

Farber Oncologists. And not to scare you, but usually a triple negative means

your a genetic carrier. Not sure if you were genetically tested or not.

However, WE WILL BE FINE!!! There are pro's and con's to everything and

reading too much doesn't always help, just keep on keeping on (Joanna's

quote!)!!

Hugs

Michele

cptinney cptinney@...> wrote:

I am also a triple neg.

I have a question maybe someone can answer about triple negs.

I was just reading that there is about a 20% chance that if you

got a new cancer it could be er+ so why wouldn't we be able to

take something like tamoxifen since our risk although evidently small

is still there for a new er+ tumor?

Pam

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Thanks Michele for your answer, I'm still confused though. I

understand that if metastasized it would be considered bc but the

information I was reading from an Onc I think was referring to a new

primary, say in the other breast for example. Straighten me out

here,I'm sorry to be so thick headed.

Up until a couple of weeks ago my family history is very bad for

cancer having only my sister left, bc free and my children. Now my

38 yr old daughter has been diagnosed w/bc and I'm devastated.

My sister is now doing genetic counseling and considering getting

tested.

Pam

>

>

> Pam,

> My understanding is that if you got a new cancer, it is still

considered breast cancer. The cancer you get always goes back to

where it originates. So for ex;, if you get lung cancer, it would

still be from the breast cancer that mestastized, brain, bones, etc.

At least thats what I've been told by my Dana Farber Oncologists.

And not to scare you, but usually a triple negative means your a

genetic carrier. Not sure if you were genetically tested or not.

>

> However, WE WILL BE FINE!!! There are pro's and con's to

everything and reading too much doesn't always help, just keep on

keeping on (Joanna's quote!)!!

>

> Hugs

> Michele

> >

>

>

>

>

>

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Pam

Guess I only know about as much as you do then.. I do suppose if the other

breast were to get it that it most definitely could be a different type of

tumor, etc. with its only pathology readings being difference since its

completely the other side. I haven't thought that far ahead yet. I keep saying

the reason why I had it in 2 spots in one breast to be removed was because I

would never have to worry about the other side (denial, I know).

I'm sorry to hear about your daugther... However, you being the triple neg

doesn't surprise me. I'm worried about my young children as well when they get

there. My mother had ovarian so I knew something would come my way and it did.

All I can say is there are so many drugs out there... something, somewhere,

somehow will eventually work and until then, as long as we fight, the cure could

be tomorrow!

I'm sorry I don't have more info on the Triple Neg for you.

Love

Michele

cptinney cptinney@...> wrote:

Thanks Michele for your answer, I'm still confused though. I

understand that if metastasized it would be considered bc but the

information I was reading from an Onc I think was referring to a new

primary, say in the other breast for example. Straighten me out

here,I'm sorry to be so thick headed.

Up until a couple of weeks ago my family history is very bad for

cancer having only my sister left, bc free and my children. Now my

38 yr old daughter has been diagnosed w/bc and I'm devastated.

My sister is now doing genetic counseling and considering getting

tested.

Pam

>

>

> Pam,

> My understanding is that if you got a new cancer, it is still

considered breast cancer. The cancer you get always goes back to

where it originates. So for ex;, if you get lung cancer, it would

still be from the breast cancer that mestastized, brain, bones, etc.

At least thats what I've been told by my Dana Farber Oncologists.

And not to scare you, but usually a triple negative means your a

genetic carrier. Not sure if you were genetically tested or not.

>

> However, WE WILL BE FINE!!! There are pro's and con's to

everything and reading too much doesn't always help, just keep on

keeping on (Joanna's quote!)!!

>

> Hugs

> Michele

> >

>

>

>

>

>

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....but usually a triple negative means your a genetic carrier....

Wow, I thought I was in the minority before...I'm triple negative and

also negative for BRCA1 & 2 mutation...hey guess that makes me 5 time

negative (what is that a quaddruplet negative?)lol

> I am also a triple neg.

>

> I have a question maybe someone can answer about triple negs.

> I was just reading that there is about a 20% chance that if you

> got a new cancer it could be er+ so why wouldn't we be able to

> take something like tamoxifen since our risk although evidently

small

> is still there for a new er+ tumor?

>

> Pam

>

>

>

>

>

>

>

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,

You are lucky!! Congrats!

Michele

ginaleeusa ginaleeusa@...> wrote:

...but usually a triple negative means your a genetic carrier....

Wow, I thought I was in the minority before...I'm triple negative and

also negative for BRCA1 & 2 mutation...hey guess that makes me 5 time

negative (what is that a quaddruplet negative?)lol

> I am also a triple neg.

>

> I have a question maybe someone can answer about triple negs.

> I was just reading that there is about a 20% chance that if you

> got a new cancer it could be er+ so why wouldn't we be able to

> take something like tamoxifen since our risk although evidently

small

> is still there for a new er+ tumor?

>

> Pam

>

>

>

>

>

>

>

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