oncotype dx results are in.....

[Guest guest]

Well, I was really hopeing the oncotype would be my salvation from

chemo, but no dice. Results are a score of 32.. Chemo is a definate

now. Dr wants to do the atc sequintial protocall. adriamycin every

other week for 8 weeks, then taxol every other week for 8 weeks, then

cytoxan every other week for 8 weeks. has anyone else done chemo this

way? He gave me a script for crainal prothesis without batting an eye,

just said he could tell i had been doing my homework. You my sisters

have been wonderful teachers! I have learned so much from you all in

the last couple of weeks. Thank you for knowing what to ask.

I am having trouble holding it together tonight, so thanks for being

here! I don't know what I would do without you.

kathie

[Guest guest]

> I am having trouble holding it together tonight, so thanks for

being

> here! I don't know what I would do without you.

>

> kathie

>

hey kathie--i had A/C together, once ever 3 weeks - 4 infusions in

all; then taxotere/herceptin, once a week for 12 weeks (i only did 10

weeks) - now i'm just doing herceptin once ever 3 weeks, till next

summer.

it's do-able. and it sucks. this all sucks.

i know what you mean about " holding it together " ...but you'll plod

through all this; you'll get through all this--wshen i started, it

seemed like there was no end - but the " chemo " part has ended for me

now, and I'm feeling like *me* once again...but this is all so

scary. and a trauma, really...

the night i was diagnosed, i went out and got drunk

i HATE that i had breast cancer - but the operative word here

is " had " ...i was stage 1, er/pr/her2+

you'll be ok - line up friends/family - if you can - to help, when

you need help.

peace

marisa

[Guest guest]

Kathie,

Hang in there. We all have some bad times but we get through it. We are here for

you. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

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www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

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Lots of info and gifts at:

www.cancerclub.com

oncotype dx results are in.....

Well, I was really hopeing the oncotype would be my salvation from

chemo, but no dice. Results are a score of 32.. Chemo is a definate

now. Dr wants to do the atc sequintial protocall. adriamycin every

other week for 8 weeks, then taxol every other week for 8 weeks, then

cytoxan every other week for 8 weeks. has anyone else done chemo this

way? He gave me a script for crainal prothesis without batting an eye,

just said he could tell i had been doing my homework. You my sisters

have been wonderful teachers! I have learned so much from you all in

the last couple of weeks. Thank you for knowing what to ask.

I am having trouble holding it together tonight, so thanks for being

here! I don't know what I would do without you.

kathie

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[Guest guest]

I'm so sorry to hear about your onoctype results, Kathie. But at

least you know now that you NEED the chemo, it isn't just the

oncologist guessing that chemo will help.

>

> Well, I was really hopeing the oncotype would be my salvation from

> chemo, but no dice. Results are a score of 32.. Chemo is a

definate

> now. Dr wants to do the atc sequintial protocall. adriamycin

every

> other week for 8 weeks, then taxol every other week for 8 weeks,

then

> cytoxan every other week for 8 weeks. has anyone else done chemo

this

> way? He gave me a script for crainal prothesis without batting an

eye,

> just said he could tell i had been doing my homework. You my

sisters

> have been wonderful teachers! I have learned so much from you all

in

> the last couple of weeks. Thank you for knowing what to ask.

>

> I am having trouble holding it together tonight, so thanks for

being

> here! I don't know what I would do without you.

>

> kathie

>

[Guest guest]

Kathie,

I am sorry to hear that your score wasn't lower than you would of liked.

However, the bright side is, by this test, they know what they are dealing with.

I know it stinks to have to hear what you have ahead of you, but it really isn't

that bad. YOU can DO it. The fear beforehand is harder than the actual act

itself. I myself have tremendous anxiety and I did fine. I actually wanted to

go alone! LOL.. But I couldn't get rid of the posse!! Everything will fall into

place and for the right reasons you need the treatment. I wish you the best and

look foward to hearing about your journey and helping in any way I can!!

Peace and Prayers,

Michele

kathie kathiehart@...> wrote:

Well, I was really hopeing the oncotype would be my salvation from

chemo, but no dice. Results are a score of 32.. Chemo is a definate

now. Dr wants to do the atc sequintial protocall. adriamycin every

other week for 8 weeks, then taxol every other week for 8 weeks, then

cytoxan every other week for 8 weeks. has anyone else done chemo this

way? He gave me a script for crainal prothesis without batting an eye,

just said he could tell i had been doing my homework. You my sisters

have been wonderful teachers! I have learned so much from you all in

the last couple of weeks. Thank you for knowing what to ask.

I am having trouble holding it together tonight, so thanks for being

here! I don't know what I would do without you.

kathie

[Guest guest]

KATHIE:

I too was hoping and praying for your score to be low..(BIG SIGH)..okay

NOW.. SO at least we know at this time how aggressive they need to be with the

chemo.. and they can get it now before it metastasis.. I know this is hard at

this time to feel blessed and fortunate... BUT we live in a time where

science is finally catching up with this disease..AND you are now connected to

a

very large sisterhood of fellow survivors..

12 years ago when both my sisters (both) had BC they did not have this

test..the doctors didn't even offer my older sister Tomoxafin as a follow up

treatment??Because it was not a standard protocol at that time she was told

and

they were constantly on the wait for a doctor to tell them it had

returned...BOTH OF MY SISTERS ARE ALIVE AND WELL TODAY ... my older sister

beats all odds

because she still carries on partying and riding her Harley son.. go

figure.. Me I do everything the doctor says.. quit smoking.. quit drinking..

quit EATING FAT FOODS quit ,quit, quit..

Now doctors have another tool to help us catch this early.. and all science

points to early detection and early treatment means longer survival .. and

even CURE..

I will continue to hold you in my prayers.. email me if you want to talk..

Thank goodness for the Internet and this web site.. without it I would not

have known about this test (my doctor did not say anything I had to ask) and I

would not have known about reconstruction options ... and I would not have

found all of my BC sisters,..

Love and Prayer,

Cheryl

ps... when my " little sis " lost all of her hair.. her 4 boys and husband

shaved off all of their hair in solidarity

for her... her hair is now back and long and ... funny though.. she keeps it

blonde now..LOL. ( I won't tell you yet of the story of how she let her 4

boys dye her hair one night when it was growing back.. and it came out orange

and yellow) I will save that one..

[Guest guest]

Kathie - Sorry about the results - but now you have a plan - a

really crappy plan, but it can be done!

i had my A/C together, every two weeks and I didn't get Taxol (I

don't know why but I'm going to ask my oncol) and no Herceptin

because I'm a neg. for that. I wonder why they are not recommending

the A/C together - that would at least cut your treatment time down

by 8 weeks, right?? Maybe you should ask, I would.

Hang in there girlfriend, we're all in this together!

Hugs,

Ellen

>

> Well, I was really hopeing the oncotype would be my salvation from

> chemo, but no dice. Results are a score of 32.. Chemo is a

definate

> now. Dr wants to do the atc sequintial protocall. adriamycin

every

> other week for 8 weeks, then taxol every other week for 8 weeks,

then

> cytoxan every other week for 8 weeks. has anyone else done chemo

this

> way? He gave me a script for crainal prothesis without batting an

eye,

> just said he could tell i had been doing my homework. You my

sisters

> have been wonderful teachers! I have learned so much from you all

in

> the last couple of weeks. Thank you for knowing what to ask.

>

> I am having trouble holding it together tonight, so thanks for

being

> here! I don't know what I would do without you.

>

> kathie

>

[Guest guest]

Thanks for the support! This is a new protocol, yes it is longer,

but they say it is easier on the body as you are only getting 1 drug

at a time. They can give a slightly higher dose of each drug which

is more effective, without causeing toxicity. They " say " you can

continue your regular life because you don't get knocked down by so

much at once.

This is really important for me as I am the primary caregiver for my

86 yr old mother who has parkinson's. I also work full time. God I

hope what they " say " is true!

so it looks like the chemo will be over right before my daughter's

wedding. hopefully they will let me wait until Nov for the

radiation. This is hard enough without worrying about being up to

going to my own daughter's wedding

kathie

> >

> > Well, I was really hopeing the oncotype would be my salvation

from

> > chemo, but no dice. Results are a score of 32.. Chemo is a

> definate

> > now. Dr wants to do the atc sequintial protocall. adriamycin

> every

> > other week for 8 weeks, then taxol every other week for 8 weeks,

> then

> > cytoxan every other week for 8 weeks. has anyone else done

chemo

> this

> > way? He gave me a script for crainal prothesis without batting

an

> eye,

> > just said he could tell i had been doing my homework. You my

> sisters

> > have been wonderful teachers! I have learned so much from you

all

> in

> > the last couple of weeks. Thank you for knowing what to ask.

> >

> > I am having trouble holding it together tonight, so thanks for

> being

> > here! I don't know what I would do without you.

> >

> > kathie

> >

>

[Guest guest]

Kathie - That's interesting - the new protocol info. I mean. It

makes sense in one way but it also increases the amount of time you

have to undergo treatment, which stinks! Is your radiation after

all the chemo treatments?? I can identify with your situation as I

care for an 89 year old woman (as my job) and I was able to continue

doing that throughout my treatment (minus a couple of really bad

days). It sounds like you have a lot on your plate here - job,

caretaker, daughter's wedding!!! My gosh - a lot to consider.

Are you relatively healthy otherwise?? I mean, I'm 49, 4 teenagers

at home still, work part time. Taking the A/C together was doable

and many of the girls here have had the same treatment. Maybe the

strength of the chemo they want to give is too much on the system,

but 24 treatments every other week, that's a whole year! Yikes!

I know they " say " you can continue your life (as you said)...... but

you also have choices here too - right?? YOU are the one doing the

treatment so be sure that you've weighed all of your options. I

hope you don't think that I'm challenging you or your oncol's

protocol - I'm certainly not - but a whole year of treatments just

seems so daunting. But then again, even since my diagnosis (10

months ago) treatments and protocols have changed and improved.

(Thank Heaven)

You sound like a very strong woman and I'm sure you'll do what's

right for your situation - as we all do. I will continue to offer my

support as we all will - this is a great group of women - and I'm

glad you're a part of it.

Hugs!

Ellen

> > >

> > > Well, I was really hopeing the oncotype would be my salvation

> from

> > > chemo, but no dice. Results are a score of 32.. Chemo is a

> > definate

> > > now. Dr wants to do the atc sequintial protocall. adriamycin

> > every

> > > other week for 8 weeks, then taxol every other week for 8

weeks,

> > then

> > > cytoxan every other week for 8 weeks. has anyone else done

> chemo

> > this

> > > way? He gave me a script for crainal prothesis without batting

> an

> > eye,

> > > just said he could tell i had been doing my homework. You my

> > sisters

> > > have been wonderful teachers! I have learned so much from you

> all

> > in

> > > the last couple of weeks. Thank you for knowing what to ask.

> > >

> > > I am having trouble holding it together tonight, so thanks for

> > being

> > > here! I don't know what I would do without you.

> > >

> > > kathie

> > >

> >

>