Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 We got the news the other day that Patty isn't eligible for a BAHA yet. Her ENT Specialist said that when he went in there for the mastoid down and the rebuilding of the ear canal and drum that her inner workings are way too malformed. He said if we put the BAHA in it might actually harm her hearing more. Patty's Audiologist agrees. We'll look at it again if or when she looses more. She hasn't had an infection in months so we're hoping she'll stabilize forever! Not so happy but moving on. Patty's OK with it. But that's Patty! Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 I know that's a huge disappointment when you felt like you were all ready for it - but i also know that Patty is one of the most resilient people i " know " and she certianly has more patience than... um... anything ever? (((((((((((((((((((((((((You & Patty))))))))))))))))))))))))))))) Cole > > We got the news the other day that Patty isn't eligible for a BAHA yet. > Her > ENT Specialist said that when he went in there for the mastoid down and > the > rebuilding of the ear canal and drum that her inner workings are way too > malformed. He said if we put the BAHA in it might actually harm her > hearing more. > Patty's Audiologist agrees. We'll look at it again if or when she looses > more. > She hasn't had an infection in months so we're hoping she'll stabilize > forever! > > Not so happy but moving on. Patty's OK with it. But that's Patty! > > Bonnie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 wow but maybe the aid is helping with infections it has with me just the aid > > I know that's a huge disappointment when you felt like you were all > ready > for it - but i also know that Patty is one of the most resilient people i > " know " and she certianly has more patience than... um... anything ever? > (((((((((((((((((((((((((You & Patty))))))))))))))))))))))))))))) > > Cole > > On 10/5/06, Turk22082@... <Turk22082%40aol.com> <Turk22082@...<Turk22082%40aol.com>> > wrote: > > > > We got the news the other day that Patty isn't eligible for a BAHA yet. > > Her > > ENT Specialist said that when he went in there for the mastoid down and > > the > > rebuilding of the ear canal and drum that her inner workings are way too > > malformed. He said if we put the BAHA in it might actually harm her > > hearing more. > > Patty's Audiologist agrees. We'll look at it again if or when she looses > > more. > > She hasn't had an infection in months so we're hoping she'll stabilize > > forever! > > > > Not so happy but moving on. Patty's OK with it. But that's Patty! > > > > Bonnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Bonnie- I've never heard of anything like that. Interesting. Please keep us posted as things move along. Did you understand why the BAHA would harm things? Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Michele, No I don't understand it completely. Apparently Patty's inner workings are incredibly involved. He said when he went in that the hearing bones are so different he couldn't identify them and he couldn't do a thing about them. All the other stuff inside there is different as well. But with that I'm thinking another opinion is on the way. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Oh I'm sorry to hear that Bonnie. > > I know that's a huge disappointment when you felt like you were all > ready > for it - but i also know that Patty is one of the most resilient people i > " know " and she certianly has more patience than... um... anything ever? > (((((((((((((((((((((((((You & Patty))))))))))))))))))))))))))))) > > Cole > > On 10/5/06, Turk22082@... <Turk22082%40aol.com> <Turk22082@...<Turk22082%40aol.com>> > wrote: > > > > We got the news the other day that Patty isn't eligible for a BAHA yet. > > Her > > ENT Specialist said that when he went in there for the mastoid down and > > the > > rebuilding of the ear canal and drum that her inner workings are way too > > malformed. He said if we put the BAHA in it might actually harm her > > hearing more. > > Patty's Audiologist agrees. We'll look at it again if or when she looses > > more. > > She hasn't had an infection in months so we're hoping she'll stabilize > > forever! > > > > Not so happy but moving on. Patty's OK with it. But that's Patty! > > > > Bonnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Bonnie, I had to giggle at ³apparently Patty¹s inner workings are incredibly involved² I¹ll second that emotion!!! Xo pam > Michele, > > No I don't understand it completely. Apparently Patty's inner workings are > incredibly involved. He said when he went in that the hearing bones are so > different he couldn't identify them and he couldn't do a thing about them. > All the other stuff inside there is different as well. > > But with that I'm thinking another opinion is on the way. > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Bonnie, This is very interesting to me because has a BAHA. They never did a CAT scan, I am not sure if he ever had a CAT SCAN or MRI of his inner ears actually. They always went off his audiograms and said he had a near-functioning cochlear and that's what he needed to make this work. The screw sits right next to the cochlear and the sound bounces off that so I am still trying to understand how it could harm residual hearing. It doesn't touch anything. This is the first time I am hearing this. I know has to have a middle ear malformation because most of his loss on the right side was conductive and the left all nerve damage. But it was the right side we were concerned with and air conduction hearing aides stopped working, but bone conduction was great. So, they went off the fact that bone conduction results were so good that the BAHA would be beneficial. I am baffled at what you are saying. I was told it didn't matter what the inner workings looked like because the BAHA bypasses all of that and as long as the cochlear was functioning this was a good way to go. But I guess every case is so different. I am just concerned now with the fact that it could harm hearing, but I guess 3 years later for us it doesn't matter. Anyway, does Patty benefit from hearing aides? Debbie Matasker Patty-BAHA We got the news the other day that Patty isn't eligible for a BAHA yet. Her ENT Specialist said that when he went in there for the mastoid down and the rebuilding of the ear canal and drum that her inner workings are way too malformed. He said if we put the BAHA in it might actually harm her hearing more. Patty's Audiologist agrees. We'll look at it again if or when she looses more. She hasn't had an infection in months so we're hoping she'll stabilize forever! Not so happy but moving on. Patty's OK with it. But that's Patty! Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Bonnie, where did you go for this information? I never heard of this being a problem. They did 's BAHA no questions likethis eveyr arose. I beleive we livein the same area. cathie, 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Bonnie- Let us know about that other opinion. This just doesn't make sense - but we know that our kids don't always make sense. If I remember, I plan to ask about it when we go for surgery. I'm intensely curious. If it's true that a BAHA can be harmful for some people, why would they put it on anyone without doing an MRI or something first? Michele W ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 and wats an air conduction never heard of that > > Bonnie, where did you go for this information? I never heard of this > being > a problem. They did 's BAHA no questions likethis eveyr arose. I > beleive we livein the same area. > cathie, 's mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Cathie, Yes we live in the same area. I'm in MA. Her ENT is the one who called us to tell us of this. I am going to call for another opinion. They said no to Patty because of her structural abnormalities. He couldn't make identification of her hearing bones and said there was no way to fix it. I thought, yea so a BAHA would do the trick. But then he said Patty's cochlea is also involved, made differently and as of yet they can't see the semicircular canals but he thinks they're there. With all that is going on in there he said no to a BAHA. He didn't say never, he said not now. For some reason he thinks it won't help much and might do damage- the reason for the second opinion. Patty's hearing is degenerative because of constant ear infections. The last surgery on the right has lead her to a healthy ear. With that she's still severe to profound but with an aid she's moderate to severe. Of course there's that sensorineural component and she drops of at 2000Hz. Her left is totally deaf. When they did 's BAHA did they look at the cochlea? Again, another opinion is needed before I totally go with what this doctor says. Thanks. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 has this dr considered a cochlear implant thats waht they have thought for me > > Cathie, > > Yes we live in the same area. I'm in MA. > > Her ENT is the one who called us to tell us of this. I am going to call > for > another opinion. They said no to Patty because of her structural > abnormalities. He couldn't make identification of her hearing bones and > said there was > no way to fix it. I thought, yea so a BAHA would do the trick. But then he > > said Patty's cochlea is also involved, made differently and as of yet they > > can't see the semicircular canals but he thinks they're there. With all > that > is going on in there he said no to a BAHA. > > He didn't say never, he said not now. For some reason he thinks it won't > help much and might do damage- the reason for the second opinion. Patty's > hearing is degenerative because of constant ear infections. The last > surgery on > the right has lead her to a healthy ear. With that she's still severe to > profound but with an aid she's moderate to severe. Of course there's that > sensorineural component and she drops of at 2000Hz. Her left is totally > deaf. > > When they did 's BAHA did they look at the cochlea? > > Again, another opinion is needed before I totally go with what this doctor > > says. > > Thanks. > > Bonnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 Hi Patty, we had 's BAHA at NYU Cochlear Implant Center. They said she had semicicular canals and teh cochelar would be ok for a cochelar implant. But they wanted to try the BAHA first. (even though the losses are seperate issues) this is another decission we made based on what they told us. So after the BAHA problems we asked them to pursue the Cochealr implant. Then they told us, she was not a cadidate for the Cochlear b/c they didnt think she could process the sound EVEN if they could get it to her brain. So we went back to a hearing aide! She still has teh BAHA but will not toelrate it. And now, we are really see her respond more with the hearing aide. we also went to CHOPS for a 2nd opinion fo rthe cochlear and they said no b/c they saw her respond w/the aide! suffered hypoxia after the arrest w/her open heart surgery so the inslut to her brain may have had further affect on her hearing. cathie Quote Link to comment Share on other sites More sharing options...
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