Would be funny if it weren't so sad!

[Guest guest]

Had to share this.

Took my daughter, Eve, to a new neurologist yesterday. (Out of Children's

Memorial in Chicago...supposed to be one of the best...judge for yourself.) Gave

him a typed list of her developmental history (chronic ear infections,

antibiotics by the gallon, delays all across the board, etc.) Agreed with all of

my assessments of the situation. Went there to see if she should begin any

biomedical interventions, should have any additional therapies, like OT, and to

see if he agreed with her diagnosis of mild verbal apraxia (her school district

does not.)

He gave me no difinitive answer, just... " Well, if you think OT would be a good

idea, it can't hurt. " Gee, thanks. And, " yes, yes, she is a rare form of

apraxia, but it's there. " Again, such insight. " And she might be a very mild

PDD. " (Isn't that what HE'S supposed to decided?)

But here's the kicker. When I played dumb to see what his position was on the

crisis of neurological disorders amongst children and asked, " Doctor, any idea

of what could have possibly caused this to happen? There's nothing like this on

either side of our families. " He simply replied, " No, we have no idea. " And when

I said, " Well, is there anything we can do besides therapy to help? " He said,

" No, we don't have anything. " So I repeated, " You're telling me there are no

ideas as to what could cause this, and that basically there's nothing we can

do? " (Clutching my bag of books, my file folders of e-mails, and print out of

studies.) To which he says, " Well, therapy definitely helps. In fact, sometimes

these kids just snap out of it. "

" Snap out of it?! " I responded, horrified. " I haven't heard of that. "

" Well, you know, mom...I know this can be hard for parents to hear. And

sometimes we as parents project our disappointments with our children's

development onto our kids. They are very sensitive to our feelings towards them.

And sometimes it is our disappointment with them that perpetuates the problem.

So I'm going to recommend the name of a good therapist for you and your husband

to see along with Eve to deal with the emotional magnitude of the situation. "

" A phsychologist..You think we need a psychologist? You can't tell me what's

wrong, what to do about it, you have offered me no insight into anything that I

didn't already know, and now we're supposed to see a psychologist because I

MIGHT BE THE CAUSE OF THIS?! Is that your diagnosis? "

" No, continue with the speech therapy and look into OT as well. "

We got our things and left. We have an appointment with a DAN! doctor next week,

so I'm not too terribly upset. But, man, what a nightmare. This is what people

are being told.

Anyway, thought you'd enjoy.

[ ] Re: TMG,folinic acid and B12 for Pam

Thorne Research makes the " Methyl-Guard " capsules.

It contains 6.8 mcg B6 (P5-P), 400 mcg Folate (folinic acid from

calcium folinate), 400 mcg B12 (methylcobalamin) and 600 mcg Pure

Betaine (TMG). It says the Betaine is derived from a non-plant

source. Don't know what the source is.

The only other ingredients listed are the cellulose capsule and

silicon dioxide.

There is a phone number/website on the top of the bottle for

reordering: myvits.com 866-551-8487

I believe the 180 capsules cost me about $37. Pretty good as far as

supplements go. I started out dumping 1 capsule in to Ian's juice

or milk (in the morning). You can certainly start with 1/2 capsule

or even less. They are quite easy to open and reclose. Ian has

never been a negative responder to supplements, so I can't tell you

any potential side effects. At one point I went up to 2 capsules

per day (AM/early PM), but went back to one when I thought I saw a

decrease in language. Could have been the 24 hour stomach bug!

However, I will stick with 1 cap per day until our labwork comes

back from our doctor's office. Ian will be 4 in March and weighs

about 35 lbs.

The mB12 injection advocates tell me the oral mB12 is useless

(unabsorbable). They say I am seeing positive results due to the

TMG and/or folinic acid. At this time, injections are out of the

question (skeptic husband and nervous mom) so I'll continue to use

the Methyl-Guard.

Good luck to you.

Pam

> >

> > Is it mB12 (methylcobalamin)? If so, I think my son has

improved

> > on a similar product made by another company. His also includes

P-

> > 5P (B6). The start of this combination coincided with an

increase

> > of utterances from 2-3 words to 3-5 word statements.

> >

> > No miracles. No negatives.

> >

> > Pam