Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 is, I don't know if it's any comfort to you but is exactly as Jack was at that age. We wondered if he would ever start to put words together etc and look at him now. He is very articulate and I think his speach is very clear. For a long time it was difficult to understand what he was saying as his pronounciation was poor. I know this doesn't help does it but just to let you know that he seems to be following the same path as Jack communication wise so don't worry too much just yet. Jack is not hearing impaired either. Elaine mum to Elise(14yrs) & Jack(9yrs) CHaRGE Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 It's a " Should we be doing more..... " type question... is 3 next month and has about 20-30 single words he will use if prompted, but says very little spontainously. He is not thought to be hearing impaired, although did have glue ear and grommets back in April. He understands loads (and will follow quite complicated instructions) but gives very little verbal output. Still babbles quite a bit and hums to himself, but rarely speaks. Should we be looking into a ACC devise or communication book....what advise would other parents have.... is (Mum to JAcob, UK, nearly 3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 In my opinion give your child all avenues of communication available to him. With his main mode of communication is sign language but he also has a communication schedual book and he is learning to use the computer at school. The more you offer your child the more affectivly he will learn to communicate and the less frustrated he will become because he will have many appropiate ways to express his needs and wants. This is just my opinion. a mother of 9 year CHARGEr and Quintin 6 year seizure prone --- is Wolfe wrote: > It's a " Should we be doing more..... " type > question... > > is 3 next month and has about 20-30 single > words he will use if > prompted, but says very little spontainously. He is > not thought to be > hearing impaired, although did have glue ear and > grommets back in April. He > understands loads (and will follow quite complicated > instructions) but > gives very little verbal output. Still babbles > quite a bit and hums to > himself, but rarely speaks. Should we be looking > into a ACC devise > or communication book....what advise would other > parents have.... > > is (Mum to JAcob, UK, nearly 3) > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 In a message dated 29/09/2006 17:54:38 GMT Standard Time, alexiswolfe@... writes: Elaine - did you use any Makaton signs with Jack at all? Or did you just wait and see - how did you deal with the frustrations/with the with the frustrations/<W Yes we used Makaton with Jack an it did help. Once he started talking more he dropped the Makaton signs. He was frustrated before he started with Makaton but generally once he knew he had a way to communicate his frustrations became less frequent. Jack has never really had many tantrums. Don't get me wrong he has had his moments but he is very easy going although very determined. He was less of a challenge quite frankly as a toddler than his big sister Elise lol. I keep waiting for the bubble to burst and for Jack to turn into a monster !!! He just seems to take everything in his stride. Elaine mum to Elise(14yrs) & Jack(9yrs) CHaRGE Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Thanks and Elaine for your replies, half of me thinks that I should just wait and see a little longer...and then the other half of me thinks I need to be doing more in this department so I am having an internal battle and keep getting pulled in different directions. My gut feeling is that will begin to talk more now that he has nailed the walking around thing, and up until recently all his focus was on learning to walk and balance that he could not divert any energy to speech. But I do want to encourage communication in whatever form it may take. In terms of development he is very much like an 12-18 month old baby who has just begun to toddle but isn't talking yet. Now that the walking has arrived I am impatient for him to start talking and I know I need to give him time. Pronounciation is another worry which I have expressed here before as many of his constanants are missing and many of his words are such approximations that only I can understand them. He started Pre School yesterday so I am hoping that that will also encourage his speech. I wonder if part of the problem is that I am so in tune with his needs I tend to anticipate what he wants before he has time to express a preference...it's like we operate telepathy between us and so with Mum here there is no need to communicate. I will continue to research the options.. Elaine - did you use any Makaton signs with Jack at all? Or did you just wait and see - how did you deal with the frustrations/tantrums...did Jack have any? is > > is, > I don't know if it's any comfort to you but is exactly as Jack was > at > that age. We wondered if he would ever start to put words together etc and > > look at him now. He is very articulate and I think his speach is very > clear. For > a long time it was difficult to understand what he was saying as his > pronounciation was poor. > I know this doesn't help does it but just to let you know that he seems to > > be following the same path as Jack communication wise so don't worry too > much > just yet. Jack is not hearing impaired either. > > Elaine mum to Elise(14yrs) & Jack(9yrs) CHaRGE > Scotland > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 I was in my 3rd year before I started talking, give him time, because of our delays in the medical things we go through, everything from walking, talking, growing, gets delayed. It will happen. Sincerely yours; Krista. 27 year old CHARGEr. is Wolfe wrote: It's a " Should we be doing more..... " type question... is 3 next month and has about 20-30 single words he will use if prompted, but says very little spontainously. He is not thought to be hearing impaired, although did have glue ear and grommets back in April. He understands loads (and will follow quite complicated instructions) but gives very little verbal output. Still babbles quite a bit and hums to himself, but rarely speaks. Should we be looking into a ACC devise or communication book....what advise would other parents have.... is (Mum to JAcob, UK, nearly 3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 i dotn think i started till i was his age eather > > I was in my 3rd year before I started talking, give him time, because of > our delays in the medical things we go through, everything from walking, > talking, growing, gets delayed. It will happen. > > Sincerely yours; Krista. 27 year old CHARGEr. > > is Wolfe <alexiswolfe@... <alexiswolfe%40gmail.com>> wrote: > It's a " Should we be doing more..... " type question... > > is 3 next month and has about 20-30 single words he will use if > prompted, but says very little spontainously. He is not thought to be > hearing impaired, although did have glue ear and grommets back in April. > He > understands loads (and will follow quite complicated instructions) but > gives very little verbal output. Still babbles quite a bit and hums to > himself, but rarely speaks. Should we be looking into a ACC devise > or communication book....what advise would other parents have.... > > is (Mum to JAcob, UK, nearly 3) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 I was a fairly fluent signer by age 4. Chantelle -- My spelling's kinda wobbly. It's good spelling but the letters wobble and end up in the wrong places. - Winnie the Pooh My Blog Space: http://neutralufo.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 I ment sign language gahhh cant spell it. (Please parents and teachers... dont EVER teach a deaf/HI child to spell creativly the way the hear!! please! PROMIS!!!! Chantelle > > I was a fairly fluent signer by age 4. > > > Chantelle > > > -- > My spelling's kinda wobbly. It's good spelling but the letters wobble and > end up in the wrong places. - Winnie the Pooh > > My Blog Space: http://neutralufo.blogspot.com/ > -- My spelling's kinda wobbly. It's good spelling but the letters wobble and end up in the wrong places. - Winnie the Pooh My Blog Space: http://neutralufo.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 i agree witht ath if they did id b worse than wat i amnow LOL > > I ment sign language gahhh cant spell it. (Please parents and > teachers... > dont EVER teach a deaf/HI child to spell creativly the way the hear!! > please! PROMIS!!!! > > Chantelle > > On 29/09/06, Chantelle McLaren <peppermint.chey@...<peppermint.chey%40gmail.com>> > wrote: > > > > I was a fairly fluent signer by age 4. > > > > > > Chantelle > > > > > > -- > > My spelling's kinda wobbly. It's good spelling but the letters wobble > and > > end up in the wrong places. - Winnie the Pooh > > > > My Blog Space: http://neutralufo.blogspot.com/ > > > > -- > My spelling's kinda wobbly. It's good spelling but the letters wobble and > end up in the wrong places. - Winnie the Pooh > > My Blog Space: http://neutralufo.blogspot.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 is You have probably worked out a potential answer now has 'nailed' walking, you obviously remember Brown talk at the Royal Society. Gail Deuce deliberately did some exercises with Jess a couple of years ago that showed clearly once Jess had a stable base she could sign. Jess definitely has problems with expressive language, so consider any type of communication to help expressively. Equally pick Gail's brain in a few weeks time at the London family day. By the way how was the Ryder Cup? I imagine there was some partying going on! More importantly how did Neil get on with for the 2 weeks? Best wishes Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 is, I am a full believer in total communication. When Patty was a young child she too didn't talk but by the time she was 2 1/2 she was making guttural sounds in effort to talk. As she already signed she wasn't as frustrated as she could communicate a need such as eat, no, want. It was then that we sent her to a school for the deaf. There they made her talk. They did things such as make her say hello before she entered the class. They did as Martha explained in another post. The teacher would have Patty incredibly close to watch her mouth, put one of Patty's hands on her cheek near her mouth to feel the formation and one on her neck to feel the vibration. They then put hand over hand on Patty to make the sounds. I think feeling it made more sense to Patty. They also had pictures along with the written word for everything around the room. This was down to things like toilet, chair, table, paint, sink... I then did the same in my house. This was well before boardmaker and other technological inventions. If Patty couldn't say something she could try to match picture to picture. It also gave her information such as when we were going somewhere I would give her the picture of our car. We also used pictures of people. The difference with the pictures and Patty is that we learned how to do the feeling of saying the word when she would point to a picture. Patty had the ability to learn how to communicate that way. Patty did learn how to talk, and hasn't stopped since. Yet in saying this not all children who have CHARGE are able to communicate by speaking. This reminds me of a time at the conference when I was talking to a mother whose child was around 4 or 5. She was almost in tears and telling me she wants to hear her child say " mom. " They were refusing to sign with their child as they didn't want her to rely on that form of communication. While she was talking to me I tried to point out a child nearby who was signing to her mother. It was and Marilyn. Not only was communicating with her mother using sign they were having a huge conversation with leading it the entire way. The point I am making is that communication comes in many ways. Sometimes it isn't the way we want it to be but it can be there just the same. Its is also true for children who don't sign as well. Body language is a huge form of communication. You are also totally right in that often our children can only learn one thing at a time, especially being mobile. Balance has a huge impact on our children. Don't give up hope. Just follow your child's lead. Total communication is a huge benefit for our children. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 im a believer in comunication i used to sign and then talk an dstill do talk like patty u cant shut me up LOL to me ccomunication b in mamy ways as u said bonnei soem of my firnes use well here we call them aphabet boards but there think ud call it a comunication book the people in wheelchairs have it on their trays its cool oand soem of m firends can just look and itll me um dont worry bout that pls LOL > > is, > > I am a full believer in total communication. > > When Patty was a young child she too didn't talk but by the time she was 2 > > 1/2 she was making guttural sounds in effort to talk. As she already > signed she > wasn't as frustrated as she could communicate a need such as eat, no, > want. > > It was then that we sent her to a school for the deaf. There they made her > > talk. They did things such as make her say hello before she entered the > class. > They did as Martha explained in another post. The teacher would have Patty > > incredibly close to watch her mouth, put one of Patty's hands on her cheek > near > her mouth to feel the formation and one on her neck to feel the vibration. > > They then put hand over hand on Patty to make the sounds. I think feeling > it > made more sense to Patty. They also had pictures along with the written > word > for everything around the room. This was down to things like toilet, > chair, > table, paint, sink... I then did the same in my house. This was well > before > boardmaker and other technological inventions. If Patty couldn't say > something > she could try to match picture to picture. It also gave her information > such > as when we were going somewhere I would give her the picture of our car. > We > also used pictures of people. The difference with the pictures and Patty > is > that we learned how to do the feeling of saying the word when she would > point to > a picture. Patty had the ability to learn how to communicate that way. > > Patty did learn how to talk, and hasn't stopped since. Yet in saying this > not all children who have CHARGE are able to communicate by speaking. This > > reminds me of a time at the conference when I was talking to a mother > whose child > was around 4 or 5. She was almost in tears and telling me she wants to > hear > her child say " mom. " They were refusing to sign with their child as they > didn't want her to rely on that form of communication. While she was > talking to me > I tried to point out a child nearby who was signing to her mother. It was > and Marilyn. Not only was communicating with her mother > using > sign they were having a huge conversation with leading it the > entire > way. > > The point I am making is that communication comes in many ways. Sometimes > it > isn't the way we want it to be but it can be there just the same. Its is > also true for children who don't sign as well. Body language is a huge > form of > communication. > > You are also totally right in that often our children can only learn one > thing at a time, especially being mobile. Balance has a huge impact on our > > children. > Don't give up hope. Just follow your child's lead. Total communication is > a > huge benefit for our children. > > Bonnie > > Quote Link to comment Share on other sites More sharing options...
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