CHARGE: Re:: An upsetting experience I had yesterday.

[Guest guest]

Kim,

Honey, I'm no one special. Just a mother with a specail needs child

like everyone else here. Need can really motivate people. I needed

to have security in his future because I got slapped in the

face with my own mortality. But that ergency did a wonderful thing

for me. It gave me a whole lot to live for. I kinda think God was

tired of my sitting on my haunches and decided to shake me up a bit.

From the time I was a little girl I have always hated to witness

injustice. Don't know if it was born of my Dad's drinking but I like

to think you can will some good from a bad situation. 's house

happened because I believee in my heart it was the right thing.

, Debra, Greg, and didn't come into my life by chance. I

really feel I'm still around here for a purpose.

mom to (31)

>

> , I will agree, you are one in a million and we need a

million

> more just like you! I am a Voc. Rehab Counselor by day and see

these

> situations come up often too. Our goal is always to get a

protective

> payee assigned (usually someone like you) and soon the family is

happy

> to give him up since he now serves no purpose since they no

longer " get

> to use his money as they please " . And coming from Child Welfare

years

> before I know what you mean about kids who have unconditional love

for

> their not so deserving parents. You are such a busy person what a

God

> send you must be to folks! I enjoy so much reading about your

> achievements with you have great ideas and give hope and

> inspiration for the rest of us. When you told your story about the

home

> where resides and how and the others were involved with

> planning and hiring of staff I was so inspired! That indeed would

be my

> dream for my son also and to know the path has been laid already is

a

> great thing! We too have been fighting since my son was 4 (sued the

> school system back when he was 5 for services even got the pleasure

of

> getting the Director of Special Ed (who was no good) canned) Of

coarse I

> also see that it never ends that we have to always climb back on our

> soap box. I do get tired and rest then get enough strength and

climb

> back on. We now have been blessed to have a terrific teacher who is

> degreed in HI and Cognitive behaviors and she is absolutely a

perfect

> fit for my son. She is discussing coming to California with us in

July

> for the CHARGE conf. which would be wonderful! I give you lots of

> credit for because you did not have this web site which is

just

> awesome to have. We did not have a correct diagnosis until my son

was 2

> 1/2 and then it was someone like you who diagnosed him while we were

> waiting to see the developmental specialist at Riley Children's

hospital

> in the waiting room a lady who had in the past done respite care

for a

> CHARGE kiddo asked us if he had CHARGE since he looked a lot like

the

> kid she had taken care of. We said dunno and when we went in to

see the

> doctor we mentioned this to her and voila he is a 100% classic

CHARGE'r

> kid. Life is crazy how things work out in the end! We attended the

> CHARGE conf. in Indy and that was a world of knowledge, now at our

> fingertips. I am thankful for this organization but look up to

those of

> you who have struggled with older CHARGE children who did not have

this

> great advantage. Keep up the great work!! You have a wonderful

gift!

> Kim/Michigan CHARGE'r soon to be a teenager Ugh!

> -----Original Message-----

> From: CHARGE [mailto:CHARGE ] On