Re: Re: when is the ER+/- etc testing done? from Velvet to anita

[Guest guest]

The HER2 assessment hadn't been done when I asked about it but it will be ~ I

had no explanation as to why it hadn't, Velvet (UK)

velvet girling osteonecrosisjaw@...> wrote: Hi Anita, just

going for the result ~ will get back to you ~ thanks for asking ~ chat soon,

Velvet (UK)

Anita gedwed_2@...> wrote: When they tested your tissue for HER2

was it positive?

--- velvet girling osteonecrosisjaw@...>

wrote:

> Hi to those asking about above.

>

> In UK it is now common practice for all tumours to

> be tested for various things but years ago it wasn't

> done routinely. Mine was only tested for er +/- at

> the time but my sample from 1996 has just been

> retrieved for testing for HER2 and some other tests.

> I didn't know that tumour samples were stored, it

> never ocurred to me and I now notice in my hospital

> that there are leaflets asking for written consent

> to store and use for research any body

> parts/samples.

>

> Apparently it was normal practice for hospitals

> to keep organs/ tissue samples and/or remove certain

> parts after death without asking permission but a

> children's hospital came under fire some years ago

> when parents of the deceased learned to their horror

> that their child had undergone organ/tissue removal

> before the bodies were handed to the mortuary and a

> battle began as to the ethics and legalities of this

> practice. It was found to be ilegal of course but

> just think of the sadness all over again for the

> bereaved parents. I have strayed.....

>

> Basically the answer is yes, the

> tumour/biopsy/tissue is kept and can be retrieved

> for further testing, so my hospital lab tech tells

> me but in UK written consent will have to be

> obtained for future tissue samples.

>

> In the USA I am unaware of the legislation on

> tissue sampling and storage but I expect it is

> similar. likewise most countries.

>

> Hey Ruth, well done for dragging your hospital

> into this century, thanks to people like you many

> patients will benefit.

>

> Take care Velvet (UK)

>

>

>

>

>

> ruthiema36 ruthiema36@...> wrote:

> My estrogen/progesterone status was

> determined from the biopsy. The

> Her2 testing, after much reminding and bitching was

> done on the tumor

> after mastectomy. The hospital, where I had the

> mastectomy, was the

> only one in the area that didn't do it routenely and

> the surgeon

> " forgot " to order it so I didn't have it till 5

> weeks after surgery.

> Thanks to me the hospital has come into the 21st

> century and is doing

> it on all breast tumors, like the other hospitals!

> Ruth

>

>

> >

> > I looked over the path report from my biopsies

> that my surgeon gave me,

> > but I only see mention of the DCIS, IDC, and Type

> III (based on 8/9 of

> > scoring meitosis, etc.)

> >

> > Is the other information determined from the

> tissue taken at time of

> > surgery? I know that the state isn't completely

> determined until they

> > can examine lymph nodes and evaluate if there's

> been metastasis.

> >

> > Ann

> >

>

>

>

>

>

>

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