Re: I received this nasty note from Anne Kasper Radiation

[Guest guest]

I must start out by saying I am a bit behind in my reading here at

this site and haven't yet read the whole history of the person who

was just removed (but I will catch up), but if the

comment " radiation causes cancer " was deemed inflamatory, I must say

one of my oncologists did tell me that I would be more prone to

contralateral breast cancer (cancer in the opposite breast of the

one I just had treated) since I'd had radiation. It is a

possibility; it doesn't mean you shouldn't do the radiation, you

have to examine the percentages, etc. and evaluate the current

benefit for you vs the long term risk. Ask your doctor for more

details.

Before we bash everyone, I agree, we should try to be supportive,

but make sure we're operating based on facts and not just emotions

also. None of us likes to hear that our treatments may have bad

side effects, but they often do. But percentages vary. That doesn't

mean we shouldn't go through the treatments or go through all of

them. Some choose to take 'everything' and some choose a different

approach. My experience has been that the majority of people on

most cancer message boards/groups I've participated in are patients

in various stages of diagnosis and traditional medical treatment,

and that's fine. Everyone needs support. I have contacted one

previously banned person on my own and encouraged her to be a bit

more gentle if and when suggesting alternative stuff on others sites

she may visit; I said while I agreed with her in theory, I didn't

agree with her approach. We then actually established a good

rapport and supported each other through some stuff. Some people

just don't reign in their emotions unfortunately before

pushing " Send " or reply. I'm not a super traditionalist, but

haven't done anything offensive to get myself kicked off of anywhere

yet! I had a lumpectomy, abbreviated partial breast irridation via

Mammosite, and was waiting for a response to an appeal of my

insurance's denial of the oncotype DX test. No chemo or Tamoxifen

yet. Meanwhile, I am doing IV vitamin C therapy, also dubbed

a 'natural' chemo...it's controversial medically, but I have some

family history of various things that chemo's side effects may

enhance, so I'm personally reluctant to jump into chemo w/o results

of this test. But that's me. I'm not advocating this for everyone.

Good luck with the tolerance; let's support each other...we should

be on the same team, fighting breast cancer, not each other!

Suzanne

>

> nne, I too totally support your decision of banning her. This

is a place of comfort and encouragement and that definately was not

in her agenda. She has a right to her own opinions but needs to

choose the right form to voice them and this is not the place. Too

many of us new " sisters " need the support of knowing we are headed

in the right directions and someone to hold our hands, not to go off

on us for following our doctors orders. You do a GREAT job!!!

God Bless you

>

> B

>

> Re: I received this nasty note from

Anne Kasper

>

> ne,

> This is another member who believes you did the right thing. I

had bad

> feelings about Ann from the beginning and had even asked a

friend (and

> moderator) from another group (without giving names or group

name)

> what she thought I should do. I wished I had spoken up sooner

though

> but wasn't sure if I was the only one feeling this way. Next

time I

> will speak sooner.

> Val

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.410 / Virus Database: 268.16.12/630 - Release Date:

1/15/2007

>

>

[Guest guest]

Very well said - we are here to fight breast cancer not each

other and I would much rather have someone tell the the truth than lie

to me. As many of us have read - the diffent treatments and medicines

varies from person to person so what may affect someone in one way may

affect another person in other ways. We should try in every way that

we possible can to be honest with our statements but be gentle. Most

of us here have breast cancer ourselves or have someone dear to us

that has been affected. We all need an uplifting word of encouragement

These are trying times for us and our familes.