good thoughts by the group

[Guest guest]

Hi, thank you char, and nne, my mom came over as I finished my last post,

and pretty much stopped me from leaving. For how long I don't know, I am on an

emotional roller coaster, and pretty impetuous, I live in Florida, 1/2 way

between Ocala, and Gainesville, Home Of the University Of Florida, heart of

Gator country. My mom noticed even my shoulder is now getting larger. Great.

The lady in ville from the susan komen foundation called my mom while I

was writing my last post, She told my mom to take me back to the emergency room,

which is why my mom came over. I don't want to go. I am sad, I feel like a

punching bag emotionally since my last trip to the emergency room, the phone

calls with the coordinator of the Breast clinic, and the crap with my boyfriend.

I just don't want to go through any more of people putting me down, telling me I

am ignorant or whatever else they can to demoralize and demean me. I like being

in this group because you all are so

supportive, you don't put anyone down for thier true feelings in dealing with

breast cancer or whatever else is going on in thier lives. anyways thanks ya'll

Lori

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[Guest guest]

Lori,

I anyone demeans you at the hospital report them IMMEDIATELY! That is totally

uncalled for. Ask to talk to the Patient Advocate and tell them how you were

treateed last time and why you don't want to be there. I will continue to keep

you in my prayers.

Hugs

nne

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good thoughts by the group

Hi, thank you char, and nne, my mom came over as I finished my last post,

and pretty much stopped me from leaving. For how long I don't know, I am on an

emotional roller coaster, and pretty impetuous, I live in Florida, 1/2 way

between Ocala, and Gainesville, Home Of the University Of Florida, heart of

Gator country. My mom noticed even my shoulder is now getting larger. Great. The

lady in ville from the susan komen foundation called my mom while I was

writing my last post, She told my mom to take me back to the emergency room,

which is why my mom came over. I don't want to go. I am sad, I feel like a

punching bag emotionally since my last trip to the emergency room, the phone

calls with the coordinator of the Breast clinic, and the crap with my boyfriend.

I just don't want to go through any more of people putting me down, telling me I

am ignorant or whatever else they can to demoralize and demean me. I like being

in this group because you all are so

supportive, you don't put anyone down for thier true feelings in dealing with

breast cancer or whatever else is going on in thier lives. anyways thanks ya'll

Lori

__________________________________________________________

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

http://autos.yahoo.com/green_center/

[Guest guest]

lori wrote:

>

--clipped-- I am sad, I feel like a punching bag emotionally since

my last trip to the emergency room, the phone calls with the

coordinator of the Breast clinic, and the crap with my boyfriend. I

just don't want to go through any more of people putting me down,

telling me I am ignorant or whatever else they can to demoralize and

demean me. I like being in this group because you all are so --

clipped-

Lori,

I feel deeply for what you seem to be going through. I don't have

cancer but I have had much in my family. My sister is fighting it

now. But… nearly 3 years ago my daughter, a young woman who is very

smart- mid 20s… smarter than me, started having problems and the

treatment we got from doctors was unbelievable.

I would like to make a suggestion to you. (And I hope I don't step

on any Doctor's toes that might be in the group)

During the time in the first hospital we met with three surgeons

that told her that the surgery was not needed. Each one also said

that the growth she had could and would not cause her pain. I

finally called my attorney for advice and got the patient advocate

at the hospital to give us some advice.

Here is what we did. When my daughter was feeling a little put

together (less emotional) she wrote a well thought out letter. In it

she stated that she totally disagreed with the decision that the

doctors seemed to be making for her; that was to do nothing, thus

making her disabled. She addressed the doctor that was following her

case and asked for her to take her on as an advocate. She asked, in

writing for there to be a group of doctors that worked in the

hospital for more opinions as to a solution to the problem. Copies

were noted and sent to the doctors (all that had already seem my

daughter), and the hospital administrator, as well as the governing

board of the hospital, and of course my lawyer. Let me tell you…

that doctor and the hospital had her on an ambulance on the way to a

hospital with a specialist and surgery was done within the next 5

days.

Now, you might be wondering, how can this apply to your situation?

The advice my lawyer gave me was PUT IT IN WRITING! The difference

is a paper trail. And send a copy of the paper trail to more than

one person… proof. I hate to say it but it is true… people will be

more careful with your care and how you are treated. Doctors will

spend more time with you. Nurses will answer the bell call on the

first ring, and if something isn't right they will fix it as soon as

possible.

If you are treated in anyway you feel is inappropriate … take up for

you. It is easier when you can sit back at home and write a nicely

calmly stated letter. Oh… and my daughter never was charged a dime

by any of the other doctors or the first hospital… I have often

wondered why. We had no plans to take any legal action but perhaps

they thought we had a case… I never asked my attorney because that

was not my intention. I just wanted my daughter to get help and for

them to stop treating her like they thought she was just after pain

medication.

My daughter is completely healthy now after a liver transplant team

removed the tumor that was the size of the surgeon's fist.

I hope you will find something in this letter useful to help you

feel better about your treatment.

Kind wishes