Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 My sister decided to start on her own neurology trip for this mitochondrial myopathy problem that is affecting our family. It is inherited through the mother. Anyway.. I went with her to check out this neurologist and answer any questions on what tests, symptoms I have been dealing with. This doc was brilliant, skipped no details, has a great sense of humor, and is good looking to boot [most important quality if you ask me]. Not only is he doing the standard neurological tests he is doing a complete endochronolgy work up, including am and pm cortisol and a few other odds and ends which looks like it will require at least a gallon of blood. He is going to test her for Hasimoto's antibodies too because another sister and I both have that and she had her thyroid radiated when she was in her twenties. I think she was in a thyroid storm at the time. I was so mad. Where has this Doc been???? I have been wanting this stuff done for so long.... Perhaps if he test results are all over the place, I can use that to get the tests run on me... C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 , Do you think this doc can help YOU in any way? Maybe he can take you as a patient too? M. --- Cody lecody@...> wrote: > My sister decided to start on her own neurology trip > for this > mitochondrial myopathy problem that is affecting our > family. It is > inherited through the mother. > > Anyway.. I went with her to check out this > neurologist and answer > any questions on what tests, symptoms I have been > dealing with. > > This doc was brilliant, skipped no details, has a > great sense of > humor, and is good looking to boot [most important > quality if you ask > me]. > > Not only is he doing the standard neurological tests > he is doing a > complete endochronolgy work up, including am and pm > cortisol and a > few other odds and ends which looks like it will > require at least a > gallon of blood. > > He is going to test her for Hasimoto's antibodies > too because another > sister and I both have that and she had her thyroid > radiated when she > was in her twenties. I think she was in a thyroid > storm at the time. > > I was so mad. Where has this Doc been???? I have > been wanting this > stuff done for so long.... > > Perhaps if he test results are all over the place, I > can use that to > get the tests run on me... > > C. > > ________________________________________________________________________________\ ____ We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. http://tv.yahoo.com/collections/265 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 , I did ask, but I don't think he wanted to be seen as stealing a patient and he suggested that I wait to see if I am the one that needs to or can get the muscle biopsy faster because I was quite far down the road with my neuro and testing. He said my sis in Calif.. was a poster child for mito and she should go first. It could mean we won't have to or they will still want to but will know exactly what to look for. Anyway Calif. sis should know in about a week when and if she will be getting the biopsy. C. > > > My sister decided to start on her own neurology trip > > for this > > mitochondrial myopathy problem that is affecting our > > family. It is > > inherited through the mother. > > > > Anyway.. I went with her to check out this > > neurologist and answer > > any questions on what tests, symptoms I have been > > dealing with. > > > > This doc was brilliant, skipped no details, has a > > great sense of > > humor, and is good looking to boot [most important > > quality if you ask > > me]. > > Quote Link to comment Share on other sites More sharing options...
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