Re: Re: when is the ER+/- etc testing done? from Velvet

[Guest guest]

Hi to those asking about above.

In UK it is now common practice for all tumours to be tested for various

things but years ago it wasn't done routinely. Mine was only tested for er +/-

at the time but my sample from 1996 has just been retrieved for testing for HER2

and some other tests. I didn't know that tumour samples were stored, it never

ocurred to me and I now notice in my hospital that there are leaflets asking for

written consent to store and use for research any body parts/samples.

Apparently it was normal practice for hospitals to keep organs/ tissue

samples and/or remove certain parts after death without asking permission but a

children's hospital came under fire some years ago when parents of the deceased

learned to their horror that their child had undergone organ/tissue removal

before the bodies were handed to the mortuary and a battle began as to the

ethics and legalities of this practice. It was found to be ilegal of course but

just think of the sadness all over again for the bereaved parents. I have

strayed.....

Basically the answer is yes, the tumour/biopsy/tissue is kept and can be

retrieved for further testing, so my hospital lab tech tells me but in UK

written consent will have to be obtained for future tissue samples.

In the USA I am unaware of the legislation on tissue sampling and storage but

I expect it is similar. likewise most countries.

Hey Ruth, well done for dragging your hospital into this century, thanks to

people like you many patients will benefit.

Take care Velvet (UK)

ruthiema36 ruthiema36@...> wrote:

My estrogen/progesterone status was determined from the biopsy. The

Her2 testing, after much reminding and bitching was done on the tumor

after mastectomy. The hospital, where I had the mastectomy, was the

only one in the area that didn't do it routenely and the surgeon

" forgot " to order it so I didn't have it till 5 weeks after surgery.

Thanks to me the hospital has come into the 21st century and is doing

it on all breast tumors, like the other hospitals!

Ruth

>

> I looked over the path report from my biopsies that my surgeon gave me,

> but I only see mention of the DCIS, IDC, and Type III (based on 8/9 of

> scoring meitosis, etc.)

>

> Is the other information determined from the tissue taken at time of

> surgery? I know that the state isn't completely determined until they

> can examine lymph nodes and evaluate if there's been metastasis.

>

> Ann

>

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[Guest guest]

When they tested your tissue for HER2 was it positive?

--- velvet girling osteonecrosisjaw@...>

wrote:

> Hi to those asking about above.

>

> In UK it is now common practice for all tumours to

> be tested for various things but years ago it wasn't

> done routinely. Mine was only tested for er +/- at

> the time but my sample from 1996 has just been

> retrieved for testing for HER2 and some other tests.

> I didn't know that tumour samples were stored, it

> never ocurred to me and I now notice in my hospital

> that there are leaflets asking for written consent

> to store and use for research any body

> parts/samples.

>

> Apparently it was normal practice for hospitals

> to keep organs/ tissue samples and/or remove certain

> parts after death without asking permission but a

> children's hospital came under fire some years ago

> when parents of the deceased learned to their horror

> that their child had undergone organ/tissue removal

> before the bodies were handed to the mortuary and a

> battle began as to the ethics and legalities of this

> practice. It was found to be ilegal of course but

> just think of the sadness all over again for the

> bereaved parents. I have strayed.....

>

> Basically the answer is yes, the

> tumour/biopsy/tissue is kept and can be retrieved

> for further testing, so my hospital lab tech tells

> me but in UK written consent will have to be

> obtained for future tissue samples.

>

> In the USA I am unaware of the legislation on

> tissue sampling and storage but I expect it is

> similar. likewise most countries.

>

> Hey Ruth, well done for dragging your hospital

> into this century, thanks to people like you many

> patients will benefit.

>

> Take care Velvet (UK)

>

>

>

>

>

> ruthiema36 ruthiema36@...> wrote:

> My estrogen/progesterone status was

> determined from the biopsy. The

> Her2 testing, after much reminding and bitching was

> done on the tumor

> after mastectomy. The hospital, where I had the

> mastectomy, was the

> only one in the area that didn't do it routenely and

> the surgeon

> " forgot " to order it so I didn't have it till 5

> weeks after surgery.

> Thanks to me the hospital has come into the 21st

> century and is doing

> it on all breast tumors, like the other hospitals!

> Ruth

>

>

> >

> > I looked over the path report from my biopsies

> that my surgeon gave me,

> > but I only see mention of the DCIS, IDC, and Type

> III (based on 8/9 of

> > scoring meitosis, etc.)

> >

> > Is the other information determined from the

> tissue taken at time of

> > surgery? I know that the state isn't completely

> determined until they

> > can examine lymph nodes and evaluate if there's

> been metastasis.

> >

> > Ann

> >

>

>

>

>

>

>

> ---------------------------------

> New Yahoo! Mail is the ultimate force in

> competitive emailing. Find out more at the Yahoo!

> Mail Championships. Plus: play games and win prizes.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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[Guest guest]

Hi Anita, just going for the result ~ will get back to you ~ thanks for asking ~

chat soon, Velvet (UK)

Anita gedwed_2@...> wrote: When they tested your tissue

for HER2 was it positive?

--- velvet girling osteonecrosisjaw@...>

wrote:

> Hi to those asking about above.

>

> In UK it is now common practice for all tumours to

> be tested for various things but years ago it wasn't

> done routinely. Mine was only tested for er +/- at

> the time but my sample from 1996 has just been

> retrieved for testing for HER2 and some other tests.

> I didn't know that tumour samples were stored, it

> never ocurred to me and I now notice in my hospital

> that there are leaflets asking for written consent

> to store and use for research any body

> parts/samples.

>

> Apparently it was normal practice for hospitals

> to keep organs/ tissue samples and/or remove certain

> parts after death without asking permission but a

> children's hospital came under fire some years ago

> when parents of the deceased learned to their horror

> that their child had undergone organ/tissue removal

> before the bodies were handed to the mortuary and a

> battle began as to the ethics and legalities of this

> practice. It was found to be ilegal of course but

> just think of the sadness all over again for the

> bereaved parents. I have strayed.....

>

> Basically the answer is yes, the

> tumour/biopsy/tissue is kept and can be retrieved

> for further testing, so my hospital lab tech tells

> me but in UK written consent will have to be

> obtained for future tissue samples.

>

> In the USA I am unaware of the legislation on

> tissue sampling and storage but I expect it is

> similar. likewise most countries.

>

> Hey Ruth, well done for dragging your hospital

> into this century, thanks to people like you many

> patients will benefit.

>

> Take care Velvet (UK)

>

>

>

>

>

> ruthiema36 ruthiema36@...> wrote:

> My estrogen/progesterone status was

> determined from the biopsy. The

> Her2 testing, after much reminding and bitching was

> done on the tumor

> after mastectomy. The hospital, where I had the

> mastectomy, was the

> only one in the area that didn't do it routenely and

> the surgeon

> " forgot " to order it so I didn't have it till 5

> weeks after surgery.

> Thanks to me the hospital has come into the 21st

> century and is doing

> it on all breast tumors, like the other hospitals!

> Ruth

>

>

> >

> > I looked over the path report from my biopsies

> that my surgeon gave me,

> > but I only see mention of the DCIS, IDC, and Type

> III (based on 8/9 of

> > scoring meitosis, etc.)

> >

> > Is the other information determined from the

> tissue taken at time of

> > surgery? I know that the state isn't completely

> determined until they

> > can examine lymph nodes and evaluate if there's

> been metastasis.

> >

> > Ann

> >

>

>

>

>

>

>

> ---------------------------------

> New Yahoo! Mail is the ultimate force in

> competitive emailing. Find out more at the Yahoo!

> Mail Championships. Plus: play games and win prizes.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

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http://games.yahoo.com/games/front

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