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taxol and bone pain

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In a message dated 1/9/2007 3:43:33 PM Central Standard Time,

dreamofoz@... writes:

> hello dari,

>

> how have you been????? you " sound " great....i just now started

> posting again after finishing chemo and rads last month...did not see

> you post there for a while, hope everything is going well for/with

HI CAREN!

I'm still trudging along. I had many of the bad side effects happen to me

and caused some real damage. I'm just now getting back on my feet. (9 months

out from chemo)

I disappeared from the radar because I kept going in the hospital. Then I

felt like I couldn't be supportive to anyone. (I was sooooo sick) BLUK!

Every time I started to write something I felt like I was whining! (I

probably was) :-) And I thought I might be a little scary to others as well.

I still haven't been staged. I don't know if you remember I started out as

stage 3 but then in the midst of chemo they found nodules in my lungs. Each

time I go for another chest CT they tell me these things are increasing but they

are too small to biopsy.

Talk about leavin' a girl hangin'! :-)

I got so sick of all the crap I stopped goping to my doctor appts. (after

chemo was done)

My main complaint these days is the chemo brain. You know, I never really

put too much stock in it when the women were mentioning it. But, as time went

on I completely lost myself almost to the point of feeling actually stupid.

I also gained 50+ pounds and so not only can I not think correctly I hate the

way I look.

I'm finally feeling well enough to exercise but even that is such slow-going

it's driving me nuts. I miss my hyper, crazy self.

I'm glad to see you back. I hope you did okay thru your chemo. How did Hubby

hold up through it all?

HUGS to you my dear,

Dari

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Bone pain is a common side effect with Taxol. Everyone's experience, as usual,

is different. I finished 12 weekly Taxol treatments the end of October and

didn't have bone, but I did have leg cramps off and on. Some docs think that

the weekly treatments of lower dosage each time is just as effective as every 2

weeks, but with fewer side effects. That worked out for me.

I had 4x a/c dense dose before that. Congratulations to your sister for

completing the first phase of her treatment as a Stage III! That was a big

milestone for me to pass. I finally finished my last radiation treatment a week

ago last Friday and am still in Happy Dance mode ... at least until doctor

checkups start January 30th. Ha!

~Cheers

SharonK_MN

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